Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do I Cope?

Jo-miller

By Jo-miller
in Coping with Celiac Disease

Recommended Posts

Jo-miller Newbie
Jo-miller
Posted

II was recently diagnosed with celiac's disease and I'm still having a hard time coming to terms with the lifestyle change that takes place with the celiac's. I am starting to find myself not wanting to do anything and also being depressed at the same time. I joined this forum to try to find some guidance and support and how to handle the lifestyle change. my family has been really supportive but it still just not the same

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Welcome! You are not alone! Cheer up as things will get better.

First, take time to read "Newbie Info 101" found under the "Coping" section in this forum or click on this link:

https://www.celiac.com/forums/topic/91878-newbie-info-101/

We have all been in your shoes. This is a time to grieve and that is NORMAL. But soon you will physically feel better and you will learn to replace your favorites using gluten-free products.

Hang in there!

icelandgirl Proficient
icelandgirl
Posted

Hi there...it is hard at first.  Give yourself time to grieve.  Things do get easier...you will get used to the new way of eating sooner than you think.  And if you were feeling poorly before the diagnosis, going gluten free will improve some symptoms fairly quickly.  Starting to feel better definitely helps with coping.

 

Definitely read the Newbie thread...there is a lot of good information in there.  Come back on here and vent or chat whenever you need too.  Everyone on here has been through this and there are a lot of great people here who will take the time to listen and respond.  Before you know it you will get used to this new lifestyle and be feeling better!

Celiwack Newbie
Celiwack
Posted

I'm fairly new to celiac myself and it's been a very hard adjustment. I get so frustrated at every restaurant and am overly apologetic because I'm so embarrassed. I get mad because almost every restaurant still gets me sick. Eating at friends houses' is embarrassing and you're "that person."

Then I tell myself, you were sick, you found out why you were sick, you were given a solution and the solution isn't even that bad. Some people get handed much worse news every day and we got handed a solution. It helps to think that way.

notme Experienced
notme
Posted

I'm fairly new to celiac myself and it's been a very hard adjustment. I get so frustrated at every restaurant and am overly apologetic because I'm so embarrassed. I get mad because almost every restaurant still gets me sick. Eating at friends houses' is embarrassing and you're "that person."

Then I tell myself, you were sick, you found out why you were sick, you were given a solution and the solution isn't even that bad. Some people get handed much worse news every day and we got handed a solution. It helps to think that way.

that is a great attitude :)  yes, for me it was a huge relief because i was losing weight so rapidly, i thought surely whatever was wrong was a serious (fatal) illness.   so, telling me to eat gluten free was certainly healthier and far less harsh than, say, chemo.  another added benefit (for me, anyway) was actually paying attention to what i was eating.  if you don't *have* to read the labels, who does?  i hardly ever did....  now, i eat healthier all around, i drink more water, less alcohol, more beer <haha j/k.  maybe.  yes, it's difficult at first, but you get used to it.  it takes more planning ahead.  good luck

Serielda Enthusiast
Serielda
Posted

I agree when I first received my diagnosis, it was a hard one to swallow, but after a few hours of thinking and remembering how miserable I had felt, I realized I had nothing to lose and only good things to gain. Like some sage advice some friends had gave me  was  the first  3 weeks is  a doozey then the first three months and so on are hard. I can say for myself there is a lot of truth to that. But I am still soldiering onward. I had so much that  gluten stole from me and some things I am still paying for after  4 1/2 months.  Can I say the feelings of isolation will get better, in  time it can but pending on what is going on and how traditions can be bound to food or drinks are can make it a real hard one.  But hang in there you will make it, you are never alone. Listen to the folks here, there are a lot of good folks here with  some of the best advice I have had given to me are here.  Heck if its any consolation, I am having to remap my food intake further yet  that is leaving me with soem serious moral delimas but its up to me to follow thru and take care of me, since I have only myself and a lot of  cool folks in my life depending on me like a sister, my nephew and hubby and a sweet lil furbaby kitteh named Constatine. I  don't want to fail myself or them.

II was recently diagnosed with celiac's disease and I'm still having a hard time coming to terms with the lifestyle change that takes place with the celiac's. I am starting to find myself not wanting to do anything and also being depressed at the same time. I joined this forum to try to find some guidance and support and how to handle the lifestyle change. my family has been really supportive but it still just not the same

skullgrl Rookie
skullgrl
Posted

Some tips, since everyone has covered the basics:

1. Don't apologize. You bring your own food and enjoy it, if other people are offended by your health problem it's their issue, not yours.

2. Don't be forced into eating something you aren't sure about. People generally won't do things like, "Oh but Mr. Diabetic, it's just a little sugar in this cupcake, you'll be fine!" "Oh but Ms. Peanut-Allergy, it only touched a peanut a little, I can just wipe it off!" Not OK there, not OK for Celiacs.

3. Find joy in the little things.

4. You will mess up, it sucks but it will get better again.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Serielda Enthusiast
Serielda
Posted

Spot on  Skullgrl!

Some tips, since everyone has covered the basics:

1. Don't apologize. You bring your own food and enjoy it, if other people are offended by your health problem it's their issue, not yours.

2. Don't be forced into eating something you aren't sure about. People generally won't do things like, "Oh but Mr. Diabetic, it's just a little sugar in this cupcake, you'll be fine!" "Oh but Ms. Peanut-Allergy, it only touched a peanut a little, I can just wipe it off!" Not OK there, not OK for Celiacs.

3. Find joy in the little things.

4. You will mess up, it sucks but it will get better again.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,015
    • Most Online (within 30 mins)
      7,748
    Rockette47
    Newest Member
    Rockette47
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      Thank you all. 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.