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Coping Emotionally With Not So Recent Diagnose?


darlingnea13

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darlingnea13 Rookie

i was diagnosed February 2014. But yet I'm still have trouble emotionally going to the grocery store and being around people eating gluten (like pizza). Is there anything I can do??


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mamaw Community Regular

there is a very "real" emotional side in the beginning. We all have been there . I know it doesn't truly help but honestly it does get better...Many go through a grieving process, denial, anger, fear, sadness, just the same as loosing a loved one...but then comes the emotional healing. There is no time frame, I'm gluten-free for over twelve years , very strict & at times I still get a little weepy....

Just keep yourself focused on being very strict , learning all you can about gluten-free, try to avoid CC....& try not to think of what you are giving up but what you are gaining--- a happy healthy life awaits you...For me, I was so ill that I just wanted to be better so I didn't think about the food... And I will say there is a gluten-free food to match almost any wheat one.. The gluten-free food is almost a clone ...if you are craving something just ask & we can direct you to find it gluten-free....

Eating a "naked" plain gluten-free diet will also help you in your new lifestyle...ie: chicken, meats, veggies, fruits in their natural state...Digestive enzymes are also good to help the gut....

blessings

nvsmom Community Regular

I find it helpful to be proactive.  I don't let myself get into situations where I'll be sitting hungry while others eat.  I always bring food with me when I go out.  I will bring some dishes to a dinner and people's houses and turn it into a bit of a potluck; it costs more, and I'm the one who always brings the most, but I can eat and enjoy myself.   I will even take food with me into restaurants or skip restaurants altogether.  When I meet friends we will usually go out for coffee or drinks.

 

Always be prepared so you don't get into a situation where you will be deprived.  No one else, unless it is an educated celiac, will be prepared with the knowledge or supplies to feed you safely, so try not to expect them to and you won't be disappointed.  KWIM?

Jays911 Contributor

The only time i miss anything is on road trips, where almost all food choices are fast food--i.e., nothing for us gluten-free folks.  So we bought one of the iceless coolers and take along our own food.  It has been seven months for me, and I find it gets easier every day.

kerrygirl15 Newbie

I hope it gets easier for you....I'm sure it will in time...You should make a homemade gluten free pizza...

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
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      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
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      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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