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Possible Lymphoma Cancer Again.


Celiac Ninja

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Celiac Ninja Enthusiast

Well well well....

 

Not surprised. Nor scared. I may have cancer again. :P

 

I am going to go WHOLE HIPPY NUTS THIS TIME! BooYAA!

 

I'm allergic to pain killers: no surgery for me. Thank GOD!

I'm not interested at all in chemo or radiation again. Been there done that. They will want to bone marrow transplant, I will not tolerate pain killers nor that transplant without painkillers. lol

 

I am however FAR more aware of what to research, how much to supplement, how little and signs to look out for.
I DO have a Naturopathic Doctor licensed and NOT a quake to monitor what I choose to do nutrition wise. 

 

Welcome, to the FIGHT! DING DING DING> IT'S ON! LOL

 

Cancer shall meet it's worst enemy..... ME! BWAHAHAHHAHA

 

Any-who, cancer is literally our own healthy cells becoming malignant (going astray/doing something they aren't programed to do by DNA). SO really we should care for our unhealthy cells. Treat them with the herbs, vitamins and minerals that are put here on the face of this earth in their best form by God Himself. I believe I will live as long as the good Messiah allows me to and I will be with Him when He wants me to. I'll just be more educated of the remedies available and be more responsible for the temple (my body) that He has given me.

I should have never SLACKED on my immune supports when first diagnosed with Celiac. That was the stupidest mistake, I was worried about the money>which is now being spent ANYWAY.

 

Sigh.

 

Time to get back up in the saddle!


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kareng Grand Master

I am sorry to hear this. You have always seemed like a very strong person. If anyone can beat this , you will! ( and probably beat the s$!& out of it, too).

icelandgirl Proficient

I'm so sorry to hear this as well...have you had tests done yet? I hope for you that this isn't a return of your cancer...but if it is you seem ready to kick its butt! (((Hugs)))

ravenwoodglass Mentor

I hope that the 'may be back' turns into a whoops it wasn't that it was_________ and that soon the symptoms that have you thinking the cancer may be back resolve.

Glad you have a doctor you trust. Maybe check into acupuncture to help with some of your symptoms. It may help.

cyclinglady Grand Master

I am so sorry. I hope that all goes well for you!

bartfull Rising Star

IF that is what it is, you can beat this. After all, you ARE a Ninja!

 

You've got your ducks all lined up - a good doctor, your own knowledge, your strong will, and your faith. Add to that all the prayers from your friends and family, and the thoughts and prayers from your online friends.

 

Keep us informed and you know we're all on your side. (((((HUGS)))))

Gemini Experienced

My very best wishes to you that this is not cancer and it's something else that can be easily treated.  You are tough and I love that!  Please keep us informed....

we'll be your Ninja team!  :)


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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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