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Thankful-time To Give


debmidge

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debmidge Rising Star

Thank you for all the work you do for us so we can enjoy this board.


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Guest Viola

Yes! Thank you all who work to keep this forum running :P

nettiebeads Apprentice

Thanks from me, too! I was thinking about this board and how much healthier I've been from all of the things I've learned :) Definitely strength and wisdom in numbers!!!!!

jerseyangel Proficient

Thanks to everyone who helps the board run and be there for all of us :) Have a Happy Thanksgiving!

Rusla Enthusiast

I would like to thank those who put up this site so that we could all find people like us and share our feelings, laughter and frustration with. I also thank the moderators for helping keep it all together here.

cmom Contributor

I am also thankful for this forum. I have learned so much more about this disease and how to deal with it than I ever did from any doctor, GI or otherwise. Thanks to everyone who has contributed to my knowledge! :)

FaithInScienceToo Contributor

I am grateful to all of the moderators who volunteer their precious time here.

I, too, learn SO much here and do not know where I'd be right now without having had this forum!

"Happy Turkey-Day to all!" - Scott, too!

oops - and a "Happy Tofu and Veggie day," to any herbivores...

Gina


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jenvan Collaborator

rock on ! i do love this place...my second home :)

debbiewil Rookie

Yes, yes, yes!

This board and the people on it have made going gluten-free soooo much easier!

Thank you,

Debbie

mart Contributor

Me too! I love this site and thank God for it. It's helped me to cope at living in a poisonous world full of gluten. I was so confused and depressed prior to finding all you super knowlegable people. I'm fairly new here but want to thank ELONWY for making me laugh everyday, JENVAN for a beautiful, caring spirit and positive attitude, RICHARD for being so unbelievably smart and celiac3270 for being such a mature, courageous kid (you give me hope for my son). I sound like I'm at the Oscar's. Sorry :lol: Just have to say that I appreciate all of you.

Wish everyone on this site a wonderful, gluten-free holiday!

Mart

Lisa Mentor

I too, feel the same as Mart. There are so many of you the have guided me through the roller-coaster of Celiacland. Karen for her everpresent suppost, Kaitie for her everpresence, Richard, the word of an expert, Shirley, for thinking that everyone should know how to milk a goat, Tiffany for her knowledge and great research, celiac3270 who will do great things in his life. (esp. "You know You're a Celiac if...)

I don't mean to leave anyone out. You guys are my C-friends and I would like to meet you all some day.

Thank you, all of you for your help, in guiding me through this disease. :):)

Best of Thanksgiving to All.

Lisa B.

VydorScope Proficient

Asa forum admin of a nother major forum, I know what kind of work goes in to this site, and I am thankfull that here at laeast some one else does it! :D

Thanks to all that work to make this a great rescource site, its enve RECOMENDED by my son's GI doc. :D

celiac3270 Collaborator
Shirley, for thinking that everyone should know how to milk a goat

I really don't know how to milk a goat--seriously, I'm a New Yorker, lol.

Thank you to everyone--particularly Scott--he does so much more work than us moderators pinning topics--and all the people who post here :)

Canadian Karen Community Regular

I agree also, without Scott, none of us would be here if you really think about it. His dedication must be amazing to keep this running and all the work that goes along with that. Kudos Scott! You rock! ;)

Karen

KaitiUSA Enthusiast

For sure...have to thank Scott. I have to agree he does so much more to keep this site running. I am glad to be a part of the site :)

Scott Adams Grand Master

Thank you to all of our great moderators, and the great community who come here for a place to spend time. FYI: We just upgraded the board again and have a few bugs--we know about:

1) My Assitant - Loading. Please Wait...

2) Multiple calendar events

but if you see anything else please let me know.

Thanks again and have a great turkey day!

Scott

For sure...have to thank Scott. I have to agree he does so much more to keep this site running. I am glad to be a part of the site :)
celiac3270 Collaborator

Yes--I had noticed that assistant issue just now when I logged on. Cool updates :) -- the revamped posting options, warnings are back, new general formatting. What's the new icon? The V-thing--just wondering if that had something to do with celiac like the old wheat icon or if it was some default icon that came with the board update?

Thank you for all of your hard work!

-celiac3270

Lisa Mentor
Thank you to all of our great moderators, and the great community who come here for a place to spend time. FYI: We just upgraded the board again and have a few bugs--we know about:

1) My Assitant - Loading. Please Wait...

2) Multiple calendar events

but if you see anything else please let me know.

Thanks again and have a great turkey day!

Scott

Hey Scott: You're the one to go on Oprah. Can we help get you there?

Lisa B.

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  • Posts

    • Trish G
      Wow, that's alot of info, Thanks!!!! I had my intake with Nutrionist where we went over basics and then will have follow up where we will talk about all the questions I've come up with (including the fiber question and so many more). I'll talk to her about the info you provided as well.  Thanks again (newbie here 😀)
    • Hmart
      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
    • knitty kitty
      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
    • Trish G
      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement.  Thanks again
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