Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten free for about 2 wks....headaches and hand pain.


sddave

Recommended Posts

sddave Enthusiast

I was officially diagnosed a celiac for just under 2 wks.

Every since going gluten-free I almost always have varying level of a headache the whole day.   My right eye was a little sore too yesterday.  As I get more hungry the pain seems to increase, and get some brain fog.   I had a followup today with GI doc and he didn't think it was a big issue.   Just withdrawals??  I would of thought after two weeks going gluten-free I wouldn't be getting headaches.

Also, I have had hand/wrist/numb finger tips off and on for years.   Checked for carpal tunnel and had neck MRI for nerve issue (rear ended 2x) in last couple years.   Both negative.  My right palm hurt slightly before being diagnosed.   Ever since going gluten-free I now have pain in both palms and pain has increased a lot.   I THOUGHT going gluten-free would reduce the pain....not get worse :(  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pikakegirl Enthusiast

I have similar pain, neuritis. After years finally found I also have the MTHFR gene which in my case means I am not able to convert folic acid to folate so it affects nerves. Right eye pain and migraine with carpel tunnel like reactions in muscles used most like hands shoulders. I take 3000 mcg l methyl folate by life extension each day. It has improved greatly. Also watch for thyroid changes. I have autoimmune related hypothyroid but when I stopped gluten it began to recover so my medication  was too high. Headaches. Also I take d ribose powder to avoid low blood sugar headaches since absorption is still not as good as non celiacs. I am 10 years celiac diagnosis healed. Docs kept saying fibromyalgia is cause for muscle Probs. When I ate gluten I was sore all over like next day at gym. Off gluten I lost a lot of water weight from inflamation then nerve pain set in. Unsure if this is damage from years undiagnosed but it is healing. Hope something helps soon. It was shocking to me as well that I regressed instead of getting better at first.

cyclinglady Grand Master

Ah....two weeks in?  It could be some gluten withdrawal.  Some folks here have reported withdrawal symptoms.  But this is not about going gluten free and healing fast.  The damage from gluten lasts and lasts.  It takes time to heal.  Most of us take a year or longer to heal?  Why?  The learning curve for the diet is steep and each of us have sustained damage beyond the gut.  It took time to get sick and it will take time to heal.  celiac disease is an autoimmune disease like lupus, RA or MS except the trigger for a flare-up (body attacking self) is known.  Once exposed to gluten, antibodies begin building and destroying your small intestine and that can last a week, months or longer.    Avoid gluten and eventually the body stops attacking.  

Hang in there. 

GFinDC Veteran

Hi sddave,

I suggest you get your blood glucose checked.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,796
    • Most Online (within 30 mins)
      7,748

    Mary hopper
    Newest Member
    Mary hopper
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • olivia11
      This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense.   You are not confusing yourself  you have got it right. Thiamax (TTFD) plus a B-complex, and if you want benfotiamine, the Life Extension formula covers that at ~100 mg.
    • olivia11
      High fiber can definitely cause sudden GI distress especially if it’s a new addition but accidental gluten exposure can feel similar. Keeping a simple food/symptom log and introducing new gluten-free foods one at a time can really help you spot the pattern. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense.
    • xxnonamexx
      sorry a bit confused so I should take my B complex along with Objective Nutrients Thiamax for TTFD but what about a Benfotiamine to take. The Life extensions contains Benfotiamine and Thiamine together or im confusing myself. I am trying to see if I take Thiamax what should I take for Benfotiamine. Thanks EDITING after further research I see ones water soluble ones fat soluble. So I guess 100MG as you suggested of Life Extension contains Benfotiamine and Thiamine Hydrochloride. and the Objective Nutrients Thiamax contains TTFD.     would work for me.
    • Rogol72
      I put on over 12kg by eating protein with every meal, 3 to 5 times a day. Eggs, Chicken, Tuna, Turkey etc. I stay away from too much red meat as it can be inflammatory. Scott is correct. I've come across a bunch of Coeliac PT's on Tiktok and Instagram. They all say the same thing, the key is getting enough protein and consistency.
    • Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.