Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Body Pain And A Drained Feeling


Kim UPST NY

Recommended Posts

Kim UPST NY Apprentice

Does any one eles free insaine bone pains? like in shoulder blades, hips, Spine? I was diagnosed Jan, 18th and I am trying to recover I eat one meal a day because I can't eat while I'm at work I feel pain , and kinda stoned by the end of the day and I just want to feel better. is this part of healing?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sillyyak Enthusiast

It is normal. I have a lot of bone pain as well. And the muscles in the backs of my legs are often sore. This is a daily thing. It is hard but things will get better. Give it time.

nederlandse Newbie

My advice also is give it time. You should stick with. Eat healthy, balanced gluten-free meals and in time you should feel better.

GL and hang in there.

It is normal. I have a lot of bone pain as well. And the muscles in the backs of my legs are often sore. This is a daily thing. It is hard but things will get better. Give it time.
Rusla Enthusiast

I have big time pain in my hips. Some days I can barely walk. I used to race walk and would like to get back to it but right now it is not feasible with the pain.

jerseyangel Proficient

I have hip pain that is especially bad in the morning. Sometimes it hurts to just roll over. The worst, though, is the neck pain that I get right at the base of my skull. That used to be horrible before I was Dx--it would be worse lying down and in the morning. Since being gluten-free, that is slowly improving.

jenvan Collaborator

Kim-

What kind of pain exactly? I think you wrote insane--so if the pain is excruitating and is affecting your ability to do everyday things or work, you should see a doctor. I deal with chronic pain due to Fibromyalgia, but I am able to continue my life and manage it with pain relieving techniques at home.

minibabe Contributor

I get a lot of pain in my joints. It is so bad sometimes that I have trouble walking. And I also walk up and down stairs all day long and carry a backpack that is about 20 pounds. I am exhausted by the end of the week. I know how you guys feel and it is really stinky :( .

Does anyone take anything for it like tyleno or motrin?

Thank you

Amanda NY


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Before being diagnosed, I was in bed most of the day due to my unbelievable bone and muscle pain. I was seeing a rheumatologist, in particular for my severe spinal pain. I had been diagnosed with fibromyalgia, also.

Once I went gluten-free, it was an improvement!! It took me a few months to "heal" and not have the everday pain. Now, I am ok. If I eat any gluten (miniscule amounts, like from cross contamination), the bone pain comes back. As long as I am 100% gluten-free, I don't have any symptoms of arthritis or fibro (luckily). I now know that I was misdiagnosed with various issues on my way to being diagnosed with Celiac. However, others like JenVan, have pain beyond the Celiac. Since you have only been gluten-free for a couple of weeks, I would see how your symptoms improve with the gluten-free diet. Then, re-evaluate and potentially look for other diagnoses.

I sure hope you feel better-I know that the pain can make you miserable. Unfortunately, nothing helped my pain (tylenol/advil, etc. or various arthritis drugs). The only two things that gave me momentary relief were hot baths and strong massages.

julie5914 Contributor

Yeah, those seem to be the celiac sore spots: shoulder blades, neck, hips/lower back/almost glute area.

I am six months out and still have trouble, but it has gotten better since cutting out dairy. Yoga helps me as well. I do take tylenol a lot. Just don't take Ibuprofen. I got a tempupedic pillow also.

ebrbetty Rising Star

I too get pain..somedays like today my elbow burns

julie, the spots you mention are also fibro spots..funny how many ppl with celiac have fibro..I'm one myself, was diagnosed 4 years ago..makes you wonder if it really is..like IBS, fibromyalgia is another "disease" doctors diagnose when they can't find anything else wrong.

I'm hoping as I heal my body pain will get better

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,318
    • Most Online (within 30 mins)
      7,748

    direne
    Newest Member
    direne
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.