Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hidden Gluten


Guest cassidy

Recommended Posts

debmidge Rising Star

Bullion cubes - just a minor inconvenience but really relied on them in cooking.

Chicken and beef stock in cans (College Inn) - still haven't found a gluten-free brand yet of either of these things.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 62
  • Created
  • Last Reply
kevsmom Contributor
I just found out that MAC Brush Cleanser has some kind of wheat stuff in it. It's a good thing I never used it to wash my makeup brushes.

I'm still grossed out by the fact that preshredded cheese has flour. Ew. That would stop me from eating it even before going gluten-free.

I buy the Kraft Natural Shredded Fat Free Cheddar Cheese all the time (it's great in taco and chef's salads). It specifically states that it uses potato starch, cellulose powder and calcium sulfate to prevent caking.

Cindy

teankerbell Apprentice

In make up! That is really frustrating!

:angry:

TinkerbellSwt Collaborator

debmidge..

I see you are from NJ.. as am I, you can get Swanson Chicken Broth and it is gluten free. I use it all the time. And for boullion use Herb Ox, that is gluten free and it says so right on the container. You can get both of these products at your local ShopRite. I know that for sure. I hope this helps you!

Tinkerbell

penguin Community Regular
Pretty well all of aveda products contain some form of wheat. All of their hair products do.

I get my hair cut/colored at Aveda!! :o

This is veeerrrry bad news for me :(

I guessed as much though, since all of thier stuff is all natural.

That explains why my scalp always goes through a molting period after coloring...

ravenwoodglass Mentor
I get my hair cut/colored at Aveda!! :o

This is veeerrrry bad news for me :(

I guessed as much though, since all of thier stuff is all natural.

That explains why my scalp always goes through a molting period after coloring...

Your lucky it is only your scalp and not your hair also. When I color I use Colorspa by L'oreal, it is a semipermanent color they also make a couple permanent colors that are gluten-free but I would call and double check to be sure. You could ask your salon to maybe get in somethig that is safe?

pumpkin Rookie
I get my hair cut/colored at Aveda!! :o

This is veeerrrry bad news for me :(

I guessed as much though, since all of thier stuff is all natural.

That explains why my scalp always goes through a molting period after coloring...

I wonder if this is true for Rediken color. I had color done a week ago and my scalp has itched since then not to mention my hair if falling out more noticeably than usual. This was the first time I had colored since my diagnosis :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



munchkinette Collaborator
I don't think the rosemary mint shampoo/conditioner have wheat, but you'll have to check for sure. I might have only looked on one out of two bottles. Their shampure line does have wheat. :(

OK, I checked. The rosemary mint conditioner DOES have wheat amino acids but the rosemary mint shampoo is ok. I'm not sure how old those bottles are, so the formula may be different.

happy4dolphins Enthusiast

Well, I'm still learning about where and what the gluten is in. But one thing that has stood out for me the last several weeks, like after making the kids lunches, especially if it's pbj, I lick my fingers if there's pb! :) Seems like I do that more then I realized.

Nicole

erin24 Explorer

I saw 2 people post something about dry roasted nuts. Can anyone confirm dry roasted nutes have gluten b/c I JUST ate a TON of them. I thought I would be safe with nuts.

angielackner Contributor

i'm wondering if my stylist will let me bring in my own shampoo and stuff...i've been going to her since i was 9...and she runs an aveda salon...so she cant order in anything besides aveda. hmmmm...i'm due for a hair cut this month...ughhhh. i usually dye my own hair though, and have always gotten itchy while its in...always permanant dye...and i've been doing it for 15 years...i dont get other issues though...how many hair dyes have gluten i wonder???

angie

munchkinette Collaborator

I was wondering about that too. My stylist uses a lot of Sebastian stuff, and I know the shampoo has wheat. I thought the problem with those products was that a small amount of suds gets on your face in the shower, and possibly ingested. It seems like that wouldn't be an issue when the stylist is washing your hair in the sink.

jerseyangel Proficient

When I go in for a cut, I now just have the stylist rinse my hair with water. I take a shower in the AM and wash my hair, so it's clean. I also request that no products be used. My stylist dosen't mind at all and said that several other people request 'no products' because that is just their preference. I doubt very much that a stylist would mind it if you brought your own shampoo. Also, I verified by phone that Loreal's Feria color is gluten free.

StrongerToday Enthusiast

I just checked the Avon site and I don't see any gluten ingredients in the Glazewear - did someone get other information they could pass on to me? Hate to throw it all out - but certainly paranoid now :blink:

Watch Bed Head products too - there was three forms of wheat in the shampoo alone as well as the thickening lotion! I use L'oreal now.

penguin Community Regular

In the safe looking cornmeal I just bought. Definite gluten reaction from my cornbread, and that was the only new thing. I seriously doubt it was the tinkyada.

Bob's Red Mill did the same thing.

Why is it every time I make something yummy and normal I get glutened, when I know all other ingredients and tools are safe? :(

CMCM Rising Star
I just checked the Avon site and I don't see any gluten ingredients in the Glazewear - did someone get other information they could pass on to me? Hate to throw it all out - but certainly paranoid now :blink:

Watch Bed Head products too - there was three forms of wheat in the shampoo alone as well as the thickening lotion! I use L'oreal now.

If you have particular Avon products you want to check out, email Avon and ask them. I sent them a question about their Anew eyelift cream, and they got back to me in one day saying it was gluten free.

Here's the email address for Avon:

dearavon@avon.com

Rad3737 Rookie

HONEY CASHEWS. Have been gluten free since Nov. 1, 2005 OR so I thought. Love the little bag of honey cashews I've been purchasing often for months. Today felt the desire to check out the calorie count / and amount of carbs., and out of the corner of my eye saw: WHEAT STARCH and MALTODEXTRIN. Am sure my eyes popped open, mouth dropped, and a loud growl emerged. Couldn't believe it . . . and here thought I was being almost saintly in my quest for a gluten free way-of-life. Darn those hidden glutens anyway.

Dianna

TinkerbellSwt Collaborator

Sorry to hear that Rad, that your cashews have wheat starch in them. BUT maltodextrin is a safe ingredient. Dextrin, unless you know the source, is not. I think that is correct anyway. Please anyone can check me on this.. I believe it is right

Tinkerbell

kari Apprentice
HONEY CASHEWS. Have been gluten free since Nov. 1, 2005 OR so I thought. Love the little bag of honey cashews I've been purchasing often for months. Today felt the desire to check out the calorie count / and amount of carbs., and out of the corner of my eye saw: WHEAT STARCH and MALTODEXTRIN. Am sure my eyes popped open, mouth dropped, and a loud growl emerged. Couldn't believe it . . . and here thought I was being almost saintly in my quest for a gluten free way-of-life. Darn those hidden glutens anyway.

Dianna

wheat starch you can't have, but maltodextrin does not have any gluten in it, so at least it's only half as bad as you thought it was :huh:

kristing Newbie

surprise!!!!

-communion wafers

-veggie burgers (yes, even without the bun)

-gluten free food cooked in the same water (pasta) or oil (deep fried foods, like mozzerella sticks)

-envelopes/stamps

-imitation seafood

-toothpaste/mouthwash (ask your dentist what they're using in your mouth!)

maltodextrin is safe in American products, check the source when buying imported products. download the forbidden list of ingredients from this site, print it out, and carry it with you. my boyfriend has a copy on his refridgerator. when in doubt, check it. if you're still in doubt, contact the company.

HONEY CASHEWS. Have been gluten free since Nov. 1, 2005 OR so I thought. Love the little bag of honey cashews I've been purchasing often for months. Today felt the desire to check out the calorie count / and amount of carbs., and out of the corner of my eye saw: WHEAT STARCH and MALTODEXTRIN. Am sure my eyes popped open, mouth dropped, and a loud growl emerged. Couldn't believe it . . . and here thought I was being almost saintly in my quest for a gluten free way-of-life. Darn those hidden glutens anyway.

Dianna

for some reason that reminds me: if you think something is gluten free because you checked it before, don't count on it being gluten free the next time you buy it. what cereal company is it who is now adding wheat to ALL of it's cereals, just to make them more healthy? always check labels, even if you've purchased it before!!! so frustrating...

McDougall Apprentice
I thought I was doing a good job of finding all the hidden gluten, but I wasn't. My herbal tea now has a "contains trace amounts of wheat" label. It is Salada decaf red berry green tea, for any other tea drinkers. Now I'm wondering if there are other things I've not even considered. I've checked all my cosmetics & toiletries and changed a few of those. We have separate pots and pans just because we both had a set when we got married and we both prefer our own. I am still getting myself sick and I can't figure out why. Where did you finally find your last bit of gluten?

Viniger including some distilled vinigers in products. Also distilled alcohol, I have no faith in distilled viniger or alcohol anymore. Things like mayo, ketchup, whiskey and other items with "distilled vinigers and alcohol" I do not injest anymore. I trust very few "prepared" products at all anymore.

Guest cassidy
wheat starch you can't have, but maltodextrin does not have any gluten in it, so at least it's only half as bad as you thought it was :huh:

The salada tea that made me start this post said it had traces of wheat from maltodextrin and fish something (I forgot that part and already returned the tea). So, at least they listed it, and I don't know if this is made in the US, but that maltodextrin contained wheat according to the label.

lovegrov Collaborator

"Things like mayo, ketchup, whiskey and other items with "distilled vinigers and alcohol" I do not injest anymore. I trust very few "prepared" products at all anymore."

Even if you make the decision to avoid distilled vinegar that comes from wheat, virtually none does. If all distilled vinegar seems to bother you, that has nothing at all to do with gluten. Avoiding prepared foods is another matter.

"I don't know if this is made in the US, but that maltodextrin contained wheat according to the label."

Even before the new labeling law, maltodextrin with wheat had to be clearly listed in foods in the U.S. It didn't matter where the food or maltodextrin was made, the wheat had to be listed.

richard

Guest BERNESES

I think the biggest shocker I got was gluten in Tropicana lemonade and then in a ginger tea that I had been drinking for years to settle my stomach. Yikes!

Also, that some medications do contain gluten. I think it's lame that any medication at all would contain a major allergen. Duh! I know there aren't a lot but there are some.

minibabe Contributor
I think the biggest shocker I got was gluten in Tropicana lemonade and then in a ginger tea that I had been drinking for years to settle my stomach. Yikes!

Also, that some medications do contain gluten. I think it's lame that any medication at all would contain a major allergen. Duh! I know there aren't a lot but there are some.

Some medications......no one can say that they are stricktly gluten-free because they change suppliers all the time. It is really frustrating.

TROPICANA LEMONADE!!!!! WHAT OMG I am so glad that I did not buy that the other night. :blink:

Are there any other drinks that are not gluten-free?

Amanda NY

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.