Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter

South Florida


ms-sillyak-screwed

Recommended Posts

ms-sillyak-screwed Enthusiast

?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Ms SS--Darn, if I lived in Florida, I would join your club! We could meet on Sunday nights--around 7:30 and then stick around and have a Sopranos party afterwards :D

Really--good luck with it!

ms-sillyak-screwed Enthusiast

-

bklyn Enthusiast

I belong to the SE Florida support group. Have you been to a meeting?

  • 1 month later...
ms-sillyak-screwed Enthusiast

-

  • 2 months later...
beaglemania Rookie

I'm from South East Florida. I believe me and my mom might start one someday. We would form one right away but for now my mom is busy taking care of my papa who has a brain tumor.

I'm from South East Florida. I believe me and my mom might start one someday. We would form one right away but for now my mom is busy taking care of my papa who has a brain tumor.

So I know there's one In Boca you could go to, I would go to it if it weren't so far away.

lindalee Enthusiast

Didn't you go to the doctor? Hope it went well. I would go to your group but too far away. Have you ever looked into the SCD? LL


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



samking72 Rookie

Im in Orlando... very long drive. I wish I was closer.

beaglemania Rookie
Im in Orlando... very long drive. I wish I was closer.

I know my mom knows people who have Celiac Disease. Hopefully we may start a group soon in Stuart, Florida. Its about an hour drive from West Palm Beach and the Gardens Mall.

rumbles Newbie

What part of SE Florida?

beaglemania Rookie

I live in Stuart. In Martin County. Next to Port St. Lucie. And an hour from The Gardens Mall in PGA.

NicoleAJ Enthusiast

My parents live in Miami Shores, but I live in PA. Let me know if you start a group in Miami because I'd like to attend when I go home to visit them in the summer and over holidays.

  • 2 weeks later...
ms-sillyak-screwed Enthusiast

-

Cheri A Contributor

Silly ~ sorry that I'm not in FL anymore to hook up w/you. I used to live in South Florida. My family is still there. But, I'm in Minnesota now :blink:

  • 4 months later...
Stebetty12 Newbie

I recently got diagnosed with Celiac and i feel as if i am the only person inn South Florida with it. Its so unfair that i see other cities have full dedicated websites and posting and restaurant options and there is nothing for south Florida. I would love to Join a group. :) and feel there i am not the only one, get helpful advice, exchange ideas, etc.... maybe even star up a website as there is one needed.. :rolleyes:

steveindenver Contributor

Does anyone have a list or suggestions of places to eat in and around the Boca area? I'm heading down there in March or April to visit my mom, and I've googled for suggestions, but can't find any. Other then the typical PF Changs or Outback, anyone have any suggestions? Thanks so much!

  • 4 weeks later...
jacki Newbie
Does anyone have a list or suggestions of places to eat in and around the Boca area? I'm heading down there in March or April to visit my mom, and I've googled for suggestions, but can't find any. Other then the typical PF Changs or Outback, anyone have any suggestions? Thanks so much!
jacki Newbie

Legal Seafood at Town Center Mall has a gluten Free menu. There is a new pizza place in Deerfield beach, called Pizza Fusion that has gluten free pizza. Another Pizza Fusion will be opening in Boca, Powerline and Palmetto in April. If you bring your own pasta to Sweet Tomatoes, they will make it for you, but if you are highly sensitive, I would be careful.

steveindenver Contributor

I'm heading down there in April to visit my mom in Boca area. I hope the new Pizza Fusion is open by then, as I eager to try it!!! If not, we're driving to Deerfield.

Cheri A Contributor

Definitely visit Pizza Fusion!! I was in South FL visiting family over the holidays and took my dd there for pizza! She loved it and even got a brownie too! One word of warning, though... give them a call before you go there because they need a little notice for the gluten-free crust.

mamaw Community Regular

We will be coming to Florida in April07. Disney for a week then we will go down the East coast. First stop is Junipter, hopefully the guys can get out on a head boat to do some fishing. Then I ask that we stop to try Pizza Fusion. I sure hope it is worth the stop over.Then we are going over 75 to the gulf side. Stopping in Port Charlotte, then onto to Palmetto.If anyone knows any good eating places on this route,Please let me know.

Oh yeah, fishing head boats too???? I forgot we want to stop at Cape Canaveral.

If there are any good gluten-free shopping on our route please fiil us in on that too. I'm always on the look-out for new gluten-free foods that will knock our socks off... I don't get that where I live......

thanks

mamaw

Jprock Newbie

The Southeast Chapter (CSA affiliated) meets too far south for me as I'm in northern Palm Beach County. The Palm Beach County Chapter (CDF affiliated) meets in the Delray area - again, too far away for me, especially during the work week.

I'd love to have a support group in the northern part of the county; anybody out there want to get involved?

  • 4 weeks later...
lovetofysh Newbie
I recently got diagnosed with Celiac and i feel as if i am the only person inn South Florida with it. Its so unfair that i see other cities have full dedicated websites and posting and restaurant options and there is nothing for south Florida. I would love to Join a group. :) and feel there i am not the only one, get helpful advice, exchange ideas, etc.... maybe even star up a website as there is one needed.. :rolleyes:

I too am in South FL (Miami) and was recently diagnosed with Celiac. I have done numerous searches on the internet and have found nothing available in this area as well. My search is continuing and I will let you know if I find something!!!

  • 2 months later...
Vince Newbie

I live in Boynton Beach and am a Celiac. I do go to school in Connecticut but I am here on breaks and would be interested in interacting with other Celiacs.

RKB-MD Rookie

I am possibly moving to Pembroke Pines area in August and would be interested in meeting some others. Is there a WF nearby that has a monthly meeting?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.