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Omg...i Might Be On To Something


Rachel--24

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AndreaB Contributor

Rachel,

My daughter had one of those orange jugs. It was a pathetic collection....to say the least.

Rachel has started the Rachelville 2 thread for all that want to come over and gab. :P


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CarlaB Enthusiast

Okay, I need your expertise ... I was going to go on a bike ride with my family. I wiped down my bike, felt bad, so came inside and had a snack. I sat down for about 5 minutes, then went back out. I was getting my water bottle ready and almost totally blacked out, got real dizzy and sat down till Adam came outside and asked him to walk me in.

What's up with that?? I haven't been glutened or caseined. I'm feeling great, except for the fatigue because of having this new appliance in my mouth (my husband had the same fatigue the first few days when he got his invisalign braces) ... any ideas?

DingoGirl Enthusiast
Yeah...I'm a little slow. I thought it was for women only...something about face creams?? :huh:

I figured it out now. Celia clued me in. :lol:

Anyways I figure alot of people (who are as slow as I am) might not go into the thread because of the title. There will definately be no men in R-Ville with a title like that! :lol:

PREMATURE POST - - -

okay now THREE threads to follow - - this is too much! - - - Cecile started the lunacy over there, was just minding my own bidness!! It's a hoot - take a look gals, and brave guys (defnitely female-oriented over there.....)

So many thread and too little time....I may have to resign. :o Can't keep up!!!

Hi to all - - haven't read anything yet today, just the last page here - - gotta get busy in the garden and such - gorgeous day.

xoxo

Rachel--24 Collaborator

Carla,

I'm not sure...do you have low blood sugar? I think Vincent knows alot about that. What did you eat for your snack? I got that feeling a few times when I started eating stuff like candy bars and alot of processed foods. Sometimes I would get shaky, lightheaded or dizzy. I'm not really sure why it happened though. :(

Donna,

I just ummmm...gave a sample to the orange jug....after that I read the directions. Sheeeesh...I'm so backwards about things sometimes. :rolleyes:

Anyways it says this on the directions.

For 3 days before and during the collection of the specimen, exclude the following items from the diet:

coffee, chocolate, bananas, citrus fruits and nuts. I'm not eating these things (good thing) but I thought I'd highlight the chocolate on the list...just for you. ;)

I almost ate nuts yesterday...so glad I didnt. :)

CarlaB Enthusiast

My fasting blood sugar was just tested a couple weeks ago and was normal. Sometimes I think it does get low. With my hurting mouth, I may not be eating enough ... I ate eggs, with ground buffalo and veggies for lunch (soft food). My snack was a chocolate Enjoy Life bar, but I was feeling bad when I ate it and I went outside within a few minutes afterward, so I don't think it could have made my blood sugar drop that quickly, but I don't know. I'm still dizzy just sitting here ... I promised not to get up before they got back.

CarlaB Enthusiast

Okay, I just did a search on "dental vertigo" and it said that TMJ and malocclusion can cause vertigo. Since this appliance is messing with my whole jaw, I guess in theory it could be what's causing my dizziness. This is scary!!

dlp252 Apprentice
Okay, I need your expertise ... I was going to go on a bike ride with my family. I wiped down my bike, felt bad, so came inside and had a snack. I sat down for about 5 minutes, then went back out. I was getting my water bottle ready and almost totally blacked out, got real dizzy and sat down till Adam came outside and asked him to walk me in.

What's up with that?? I haven't been glutened or caseined. I'm feeling great, except for the fatigue because of having this new appliance in my mouth (my husband had the same fatigue the first few days when he got his invisalign braces) ... any ideas?

Premature post....that's exactly what was happening to me around the first of the year...I happened to be in my surgeon's office for a pre-op appointment...we were almost done talking when I felt it coming on. I told him I felt like I was going to pass out, so he had me lay back on the table and called the nurse in who took my blood pressure...it had dropped REALLY low...they had taken it when I first went in as part of their normal patient routine and it had gone from something like 106 (can't remember what the second number wsa) to 90/50...I've had that happen before and I'm thinking it was probably always related to blood pressure...it usually happens when I have blood drawn--I can feel the blood draining from my head in that instance, but it also happens at other times...fortunately not too often anymore. In that case I think I was dehydrated...I had blood drawn in the morning then went shopping and didn't have my water with me, then went to the pre-op appt.

It also sometimes happens if I change altitude too quickly...like standing to floor or floor to standing, but not often.

Donna,

I just ummmm...gave a sample to the orange jug....after that I read the directions. Sheeeesh...I'm so backwards about things sometimes. :rolleyes:

Anyways it says this on the directions.

For 3 days before and during the collection of the specimen, exclude the following items from the diet:

coffee, chocolate, bananas, citrus fruits and nuts. I'm not eating these things (good thing) but I thought I'd highlight the chocolate on the list...just for you. ;)

I almost ate nuts yesterday...so glad I didnt. :)

:lol::lol::lol: Sheesh...I'll have to fast for the three days before that test. :lol: Just had some macademia nuts...that's probably bad, lol. :rolleyes:

Okay, I just did a search on "dental vertigo" and it said that TMJ and malocclusion can cause vertigo. Since this appliance is messing with my whole jaw, I guess in theory it could be what's causing my dizziness. This is scary!!

Okay, so ignore my premature post above...this sounds pretty scarey! I do know that dizzyness was one of my main symptoms at the time I joined this thread and it's a horrible feeling, so I'm so sorry you're going through it.


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CarlaB Enthusiast
Okay, so ignore my premature post above...this sounds pretty scarey! I do know that dizzyness was one of my main symptoms at the time I joined this thread and it's a horrible feeling, so I'm so sorry you're going through it.

Thank you. And I was just starting to get really healthy, now I look like a sicky again! :(

Green12 Enthusiast

I am behind on the scientificness here, will have to catch up....

:lol: Rachel at the Ener-G bread, yes very sad and yet so exciting at the same time!

I have not been able to find a bread I can eat, they all just make me plain sick. Too many ingredients I guess, and too processed.

I am stuck with my corn tortillas and I have been eating the rice tortillas once in a while and I seem to do ok with them. And I have had tamales, potatoes, and some potato chips.

I would like to figure out a corn bread recipe I can eat, maybe that would be my "bread"

Am interested about the histamine pee test :lol: how do they treat it if your levels are abnormal??

Thank you. And I was just starting to get really healthy, now I look like a sicky again! :(

Oh Carla, I'm so sorry :(

Still waiting for the progluten reactions from yesterday.....my mom forgot about the flour she coats the pot roast with. She said it was just a little and shouldn't hurt us. :o:(

Andrea, how is everyone feeling so far??

Judyin Philly Enthusiast

ORANGE 'PEE' JUG STORY--- WHEN BEING TESTED FOR CUSHINGS...I WAS STILL WORKING..AND HAD TO COLLECT ALL PEE 24/7 FOR 7 DAYS, YES THAT'S ONE FULL WEEK.

TRY PEEING IN A JUG IN A HOSPITAL BATH ROOM :ph34r:

ONE THE LAST DAY...THE DR OFFICE CALLED AND SAID, "JUDY, I DON'T KNOW HOW TO TELL YOU THIS..BUT ON DAY 5 ONE OF YOUR JUGS LEAKED IN THE TRANSPORT VAN AND SO...WE'LL HAVE TO START ALL OVER AGAIN. I TOLD THEM WHAT THEY COULD DO WITH THEIR 'BIG ORANGE JUGS'

NEVER DID RULE IT OUT...I TOOK A PILL THAT STARTED WITH A 'D' THE DAY BEFORE THE FIRST JUG COLLECTION. MAYBE ONE OF YOU WILL KNOW WHAT IT WAS. ALL THE SWELLING IN MY BODY WAS GONE THE DAY AFTER TAKING IT...STILL CAN'T REMEMBER WHAT IT WAS.

JUDY IN PHILLY

CarlaB Enthusiast
ORANGE 'PEE' JUG STORY--- WHEN BEING TESTED FOR CUSHINGS...I WAS STILL WORKING..AND HAD TO COLLECT ALL PEE 24/7 FOR 7 DAYS, YES THAT'S ONE FULL WEEK.

TRY PEEING IN A JUG IN A HOSPITAL BATH ROOM :ph34r:

ONE THE LAST DAY...THE DR OFFICE CALLED AND SAID, "JUDY, I DON'T KNOW HOW TO TELL YOU THIS..BUT ON DAY 5 ONE OF YOUR JUGS LEAKED IN THE TRANSPORT VAN AND SO...WE'LL HAVE TO START ALL OVER AGAIN. I TOLD THEM WHAT THEY COULD DO WITH THEIR 'BIG ORANGE JUGS'

NEVER DID RULE IT OUT...I TOOK A PILL THAT STARTED WITH A 'D' THE DAY BEFORE THE FIRST JUG COLLECTION. MAYBE ONE OF YOU WILL KNOW WHAT IT WAS. ALL THE SWELLING IN MY BODY WAS GONE THE DAY AFTER TAKING IT...STILL CAN'T REMEMBER WHAT IT WAS.

JUDY IN PHILLY

I would think they could have found something out since they were missing only one day!!

Rachel--24 Collaborator

Carla, I bet you're right about the appliance being the culprit! That really sucks though. :(

Julie,

I wonder if we could all come up with some kind of corn bread??? That would be so cool and so yummy....I love corn bread. :D

Ummm...I have no idea what they would do if the levels come back high. :unsure:

Right now I'm just gonna see if I'm right about it....one step at a time.... just having something come back abnormal would be cause for celebration. I think I might throw a party. :lol:

How twisted is that?? :lol:

At least if they see something is wrong and it corresponds to what I'm saying....I would think the docs would start looking into it....trying to get to the bottom of why this is happening. Thats my hope anyway. There are lots of reasons why histamine levels can rise. As far as I know the only treatment is restricted diet and antihistamines. Hopefully if the test is positive my doc will prescribe a compounded antihistamine if possible. Since the place I go to looks into the causes for these type things I'm hoping they will want to figure out whats causing the elevated histamine levels.

If the test is negative I'll be bummed....I better not build myself up too much.

ONE THE LAST DAY...THE DR OFFICE CALLED AND SAID, "JUDY, I DON'T KNOW HOW TO TELL YOU THIS..BUT ON DAY 5 ONE OF YOUR JUGS LEAKED IN THE TRANSPORT VAN AND SO...WE'LL HAVE TO START ALL OVER AGAIN. I TOLD THEM WHAT THEY COULD DO WITH THEIR 'BIG ORANGE JUGS'

:lol::lol::lol:

Judy, hilarious!!

I hope mine doesnt leak while I transport it from Manteca to my Mom's. Cant have my car reeking like pee. :ph34r: That would NOT be good. <_<

I have to figure something out though. The test needs to be exactly 24 hours. I started at 8:30 this morning....so I have to take my last sample at the same time tomorrow. I'll be at work at that time....no way am I gonna bring the big orange jug to work with me. :blink: It needs to be refridgerated so what am I suppossed to do put it in the break room fridge??? :lol:

I'm thinking The Dave may have a problem with me doing that. :P

I suppose I could "hide" it somewhere in my dairy cooler. I could quickly dash from the cooler to the restroom (cant exactly hide the jug under my shirt though)...I will just have to make sure the coast is clear.

I'll peek out of the cooler :unsure: .....make sure nobody is around...and then RUN! :lol:

Getting back into the cooler with the orange jug may be more of a challenge. <_<

EDIT: OMG....I seee The Dave. :o

Umm...I was just kiddin....I'm not really gonna bring the "orange jug" to work. hehehe :ph34r:

CarlaB Enthusiast
I have to figure something out though. The test needs to be exactly 24 hours. I started at 8:30 this morning....so I have to take my last sample at the same time tomorrow. I'll be at work at that time....no way am I gonna bring the big orange jug to work with me. :blink: It needs to be refridgerated so what am I suppossed to do put it in the break room fridge??? :lol:

I'm thinking The Dave may have a problem with me doing that. :P

I suppose I could "hide" it somewhere in my dairy cooler. I could quickly dash from the cooler to the restroom (cant exactly hide the jug under my shirt though)...I will just have to make sure the coast is clear.

I'll peek out of the cooler :unsure: .....make sure nobody is around...and then RUN! :lol:

Getting back into the cooler with the orange jug may be more of a challenge. <_<

Well, since The Dave has no authority over you, I guess you can do what you want. Put a big orange juice sticker on it, then just hope no one sells it!!!

Rachel--24 Collaborator
Well, since The Dave has no authority over you, I guess you can do what you want. Put a big orange juice sticker on it, then just hope no one sells it!!!

ROFLMAO!!!

:lol::lol::lol:

Can you imagine??? :lol:

Dave, this thread is full of scientificness...alien baby talk...orange pee jugs....you know boring ...not really your cup of tea. :P

There is another thread for Rachelville fun stuff....its in the Gab Forum. ;)

VydorScope Proficient

CarlB...

Fasting blood sugar WILL NOT test for low blood sugar, it is how ever one of hte tests for DIABETAES which is High Blood Sugar.

Do you have a home glucose testor? If so the test for LOW blood sugar (also know as hypoglycemia) is easy to do at home. The test kits are litk $15-$20 if you get an elcheapo which is all you need for this. I have the CVS sotre brand. Came with 10 test strips, and you will only need 5 or so for this.

What you do is first fast for AT LEAST eight hours. Its easiest to do this while your sleeping. Then test your blood sugar, it should be between like 70 and 120. If so, that is good and pretty much what you already tested, but theres more to come...

Next eat a sugary meal. Somthing most ppl would be fine with, but on the surgary side, aviod or minimaze protien/fat. Note the time you START eating. After that meal do not eat any more or it will efect the test. Then every hour check your blood sugar (from the time you started eating). YOur first test at one hour should be the highest, but under 140 or so. After that it should fall steadily. Do this for 4 hours. Your score should never drop below 70ish. If you get a low score AND you start feeling symptons (nausa, light headed, shakes, etc), then eat somthing!!! Wiat 15-20 after that and retest. If your symptons start clearing up, and your score heads back up thats considered diagnostic of "Reactive Hypoglycema".

Take those results to your doctor for an offical dx. Pleaes note the diabtes test where they make you drink a jug of sweet liquid is NOT SAFE for hypoglycemics, as it will cause a what we call a "crash".

If thats not clear, please ask away , and if I mis your question PM me :)

Good luck!

If you ever get a number over say 180 or 200, that would be indictiave of diabetes and you would need to talk to your doc about that.

mouse Enthusiast

Carla - I just lost it over the orange sticker and the hope no one would sell it. Thanks for the belly laugh. I have just spent over 30 minutes reading all 3 threads and I should be in the kitchen baking some things for me to put weight on.

CarlaB Enthusiast
Carla - I just lost it over the orange sticker and the hope no one would sell it. Thanks for the belly laugh. I have just spent over 30 minutes reading all 3 threads and I should be in the kitchen baking some things for me to put weight on.

Thanks!! I LOVE it when people laugh at my jokes!!! B)

CarlB...

Fasting blood sugar WILL NOT test for low blood sugar, it is how ever one of hte tests for DIABETAES which is High Blood Sugar.

Do you have a home glucose testor? If so the test for LOW blood sugar (also know as hypoglycemia) is easy to do at home. The test kits are litk $15-$20 if you get an elcheapo which is all you need for this. I have the CVS sotre brand. Came with 10 test strips, and you will only need 5 or so for this.

What you do is first fast for AT LEAST eight hours. Its easiest to do this while your sleeping. Then test your blood sugar, it should be between like 70 and 120. If so, that is good and pretty much what you already tested, but theres more to come...

Next eat a sugary meal. Somthing most ppl would be fine with, but on the surgary side, aviod or minimaze protien/fat. Note the time you START eating. After that meal do not eat any more or it will efect the test. Then every hour check your blood sugar (from the time you started eating). YOur first test at one hour should be the highest, but under 140 or so. After that it should fall steadily. Do this for 4 hours. Your score should never drop below 70ish. If you get a low score AND you start feeling symptons (nausa, light headed, shakes, etc), then eat somthing!!! Wiat 15-20 after that and retest. If your symptons start clearing up, and your score heads back up thats considered diagnostic of "Reactive Hypoglycema".

Take those results to your doctor for an offical dx. Pleaes note the diabtes test where they make you drink a jug of sweet liquid is NOT SAFE for hypoglycemics, as it will cause a what we call a "crash".

If thats not clear, please ask away , and if I mis your question PM me :)

Good luck!

If you ever get a number over say 180 or 200, that would be indictiave of diabetes and you would need to talk to your doc about that.

Thank you, I will walk to the pharmacy now (supervised by my daughter, but we live on the same block as the pharmacy, so it's as close as my car ...). I'll keep you posted.

AndreaB Contributor
I'll be at work at that time....no way am I gonna bring the big orange jug to work with me. :blink: It needs to be refridgerated so what am I suppossed to do put it in the break room fridge??? :lol:

I'm thinking The Dave may have a problem with me doing that. :P

I suppose I could "hide" it somewhere in my dairy cooler. I could quickly dash from the cooler to the restroom (cant exactly hide the jug under my shirt though)...I will just have to make sure the coast is clear.

I'll peek out of the cooler :unsure: .....make sure nobody is around...and then RUN! :lol:

Getting back into the cooler with the orange jug may be more of a challenge. <_<

EDIT: OMG....I seee The Dave. :o

Umm...I was just kiddin....I'm not really gonna bring the "orange jug" to work. hehehe :ph34r:

ROFL

:lol::lol::lol::lol:

queenofhearts Explorer

On the subject of corny scientificness,

1. Polenta!!!!! I love it but then I'm a grits lover & they're close cousins. I like it best after it's been chilled & then fried in olive oil & garlic. It's scrumptious with tomato sauce, for those who can eat that... or ratatouille.

2. Corn eating bread questers-- I've been thinking about coming up with a recipe that's somewhere between corn bread, tortillas & a pancake, that is, thicker, softer & fluffier than tortillas, but usable as a sandwich matrix... What are your dos & don'ts for quick breads? Soda okay? Are egg yolks out too, or only whites? Please advise & I'll try to accomodate.

3. Lime in hominy/ grits/ masa-- it's my understanding that it all gets washed off, but I suppose it's conceivable there is a tiny bit of residue. But it is an alkali, & don't you have a problem with acids? So it might even help...

Leah

miamia Rookie
Donna, I always react to the rice cakes.....its a quicker reaction then what I'd get from plain brown rice or brown rice cereal. I've been wondering what it is exactly about the cakes that do me in. From what I've read about it when stuff is heated past the boiling point they develop more amines. When foods ripen or ferment they develop more amines. Really ripe bananas will have alot of amines (even not ripe they are considered high). I'm thinking the way the rice cakes are made they probably are heated and develop more amines that way. Since I'm already overloaded I'll react pretty quickly. If I wasnt overloaded I could probably eat the cakes now and then as long as I dont overdo it and reach my threshhold.

The "orange pee jug" (:lol:) and the bloodtest are both for histamines. I asked the doctor at HN if she could order me the test. She wasnt familiar with it but she looked it up, ordered it and gave me the lab slip. On the lab slip there was a bunch of labs to go to for the test. I picked one on Remmington in Sunnyvale. Just went in on Friday and walked out with a huge orange pee jug. :lol:

Are you doing the test for histamines? Or is the orange jug universal for all sorts of "pee tests"?? :lol:

Its already 12:30 and I havent even gone yet. The first morning one doesnt count....you're not suppossed to "save" that one. My jug is gonna be so not full. :rolleyes:

My doctor is testing me for a bunch of things so I am not sure if this one is for histamines or its the universal orange jug- it may be. Its 8:30 Pm here and I have been peeing in this stupid thing since 7 in the morning. I always pee frequently so I am doing pretty good at filling it up but I think I might go mad in the process!!

Miamia

Rachel--24 Collaborator
1. Polenta!!!!! I love it but then I'm a grits lover & they're close cousins. I like it best after it's been chilled & then fried in olive oil & garlic. It's scrumptious with tomato sauce, for those who can eat that... or ratatouille.

Just got back from the store...was grabbing my pears and guess what was right above them on the produce rack?? A tube of polenta! Organic too. I bought it but not sure when I'll try it...kinda scared. Hopefully if its good I dont pull a Rachel and eat the whole thing at once. :rolleyes:

miamia Rookie
Just got back from the store...was grabbing my pears and guess what was right above them on the produce rack?? A tube of polenta! Organic too. I bought it but not sure when I'll try it...kinda scared. Hopefully if its good I dont pull a Rachel and eat the whole thing at once. :rolleyes:

there are all these easy things you can do with it including making pizza from it. Rachel- what flours if any can you tolerate now? I bet we could come up tih a corn bread I am a pretty good cook- chef in rachelville

miamia

ROFL

:lol::lol::lol::lol:

Andrea-

how is everyone feeling

queenofhearts Explorer

Hope you enjoy it! Remember to fry-- right out of the tube it would taste pretty gross. But it's good with just salt & pepper if you can't do garlic or other yummies...

Leah

penguin Community Regular

Well, I only add bulk and nothing useful, so I'm leaving the thread.

Hope you all feel better!

AndreaB Contributor
Andrea-

how is everyone feeling

Some upset tummies today, but so far nothing real bad.

Hopefully you and Rachel will get some answers from the pee test.

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      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
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