Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

NoGluGirl Contributor

Dear Andrea,

I wonder where Claire is? It has been forever since we heard anything from her. The last time she posted anything was after going on that spiritual retreat. Peace and Love Girl disappeared, too. Where is everyone?

Dear Everyone,

I just got an idea. Something I could do from home for a little money is wrap presents for people. I am not sure how much to charge, though. I can get supplies for a good price at the Factory Card and Party Outlet store. I know I could make flyers and hand them out. Most families have at least one child. One has eight!

Sincerely,

Jin


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
confusedks Enthusiast

Jin,

That's a good idea. I love wrapping gifts...my favorite part of the holidays!! :D

Everyone,

I am going to go to the bookstore tonight and look at raw diet food books. I want to look into this. I know someone who has Lyme and she is on a raw diet and she LOVES it. It may be helpful with the detox process.

Kassandra

NoGluGirl Contributor

Dear Kassandra,

I love wrapping gifts, too! It was surprising to learn 37 percent of people polled dreaded doing that. I always thought it was fun. Hopefully, there are a lot of people around here who are in that 37 percent. Maybe I could get enough money to pay off some of my bill from school and to help my medical issues be resolved.

If you want more information on the raw food diet, I say go for it! Things like that never have appealed to me. The part about not being able to cook meat over a certain temperature makes me nervous. I do not want to get food poisoning. I heard this diet is very beneficial, because it has to do with how cooking food destroys essential enzymes in food that your body needs.

Dear Mia,

I did not get a chance to talk about the protein powder before. My post was really long, and there was no room! Is the rice protein powder made by Jarrow? I heard it was good for people with Leaky-Gut. I have considered trying it.

Sincerely,

Jin

happygirl Collaborator
Open Original Shared Link
AndreaB Contributor
A reporter with Lyme has done a series on Lyme. Its wonderful. Her sister was misdiagnosed with MS years ago, but has a documented case of a bulls eye rash years ago (1960's). Sister was correctly diagnosed with Lyme, then the reporter sister was diagnosed recently. Its a great series, with great LLMDs interviewed.

Open Original Shared Link

Thanks Laura! I looked at the first page and bookmarked it for later. :)

CarlaB Enthusiast

kassandra, i have done live food for a week before and felt great. It was before i was really sick. You might get good results from proper food combining. I am on my phone, so im not writing a lot now, but you might want to check ou the Fit For Life books. Harvey Diamond also has a my space. I would be concerned about too little protein with being chronically ill.

Theres a good article mentioned on a ln thread. I think its the muscle wasting thread. Its about protein req for the ill.

dlp252 Apprentice

Jin - my toes are still kind of a gold color with black appliques with rhinestones... :P I did this about a week before my trip and since it's been kind of cool here the past week, I haven't been motivated to change it, lol. I went so far as to pick out my next color, but just haven't done anything about it. Maybe later after my BioSET appointment. I'm not sure I'll paint them again though...weather will be turning cold and I won't be wearing sandals or open toe shoes much so they won't show, and I like to give the nails a chance to rest.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NoGluGirl Contributor

Dear Laura,

Thank you so much for the link! :) It is about time journalists write more about this! Lyme is a neglected illness. Many people are probably going to finally understand what is happening with them now. All of the trouble it causes is pretty scary, and misdiagnosis are typical.

Dear Andrea,

I put it in my favorites. I just hope I remember where it is when I need to! :lol: I just woke up and have a headache. Reading it later would be better, because my head impairs my ability to concentrate and recall or understand things sometimes. You know how migraines are! :(

Dear Carla,

I have noticed protein helps me feel better. I tend to be a carbohydrate freak, which is bad. Eating cereal tends to make me sleepy. It can also cause blood sugar levels to drop quickly after a couple of hours. There is a lot of cooking to do today so I can eat well the rest of the week! Dad just went to the store last night.

Dear Donna,

Your toes sound pretty! I have never done anything fancy like that. It would be nice to try. I can make my own stencils. Sally's Beauty Supply has some cute stuff. I have not been very motivated with my nails, either! :lol:

It is getting cold, and socks are essential now. I left my favorite blue color on so long, once I removed it, there was a nasty looking layer underneath. I must have left it on way too long! I am not sure, but it may have been something in the polish itself. Maybe you will feel more like doing something after your appointment today.

Let us know how BioSet goes! Hopefully, nothing new will pop up for intolerances. It is so odd how things change periodically. One week, you cannot have something and the next you can! :blink: Our bodies are so crazy!

Dear Everyone,

Dad's leg is doing a little better each day. He still cannot stand for very long. If so, the leg begins to swell. This is the opposite leg of what he had it in last time. Thank God my mother and I convinced him to go to the doctor soon this time! When he had this before, he was lucky he did not need amputation or surgery to remove necrotic and dangerous tissue.

Sincerely,

Jin

AndreaB Contributor

Donna,

Hope BioSET goes well today. I hope you'll post an update. :)

Jin,

Glad to hear your dad is doing a bit better. I'm glad it didn't turn worse for him like last time.

NoGluGirl Contributor

Dear Andrea,

Dad is so stubborn, if we had not forced him to call the doctor, he would not have! We told him it was not going to be like last time! The last time this happened was 18 years ago. I was 7 years old. Later the doctor confessed to my mother that he did not expect him to live through the night!

Sincerely,

Jin

rinne Apprentice
..... Has your day been a pink one? I hope it has. I am wearing pink now, but this shirt has seen better days. Let's just say that I have spills on this shirt I do not even know where they came from. There is no telling what I put my elbow in!

..... The Pumpkin Pie with Snickerdoodle Crust is going to be great! I just got a new pie pan. First, I am going to make cherry pie. I have been waiting for that. Then, I need to prepare for Thanksgiving. Chad and I are going to celebrate together this year. Since we are both Celiac, there is no way we could eat at my grandparents' house now.

..... I was thinking a thin layer of melted chocolate would be good on the snickerdoodle crust before you get to the pumpkin filling. What do you think? Or how about cocoa powder or melted baking chocolate added to the pumpkin filling? Like I have not been eating enough chocolate lately! :lol: I have been thinking about brownies and all kinds of things I do not need.

.....

Not more Lyme drama! :( I had no idea IgeniX was so strict. It makes sense that they would not want to run the test until a doctor gave them a word, though. Will the blood sample be alright? Or will they have to take more?

..... Psyllium is something I cannot do, either! It makes me very sick. The pain in my stomach was awful. I will not take that stuff ever again! Cramping is apparently not uncommon with that stuff. Even better, Humaworm is a custom blend!

Okay Jin, what is the story with Rachel and you and pink? I remember mentioning my new pink neti pot a while back and got a definite no on the pink. :lol: Rachel, feel free to fess up to loving pink. :P

Love your pumpkin pie snickerdoodle idea even if I have never had a snickerdoodle, what are they?

Igenex has to be strict, a few years ago they were accused of misdeeds resulting in false positives on their Lyme tests because they had so many positives and other labs had so few!!!! They won, they proved that not only were they not sloppy in any way but in fact they were the superior lab.

I think psillium is from hell, I noticed a few years ago that they started pushing the orange variety and if you read the label it says something like pharmacies and doctors may call to get the complete list of ingredients. So what is in the orange stuff?

A reporter with Lyme has done a series on Lyme. Its wonderful. Her sister was misdiagnosed with MS years ago, but has a documented case of a bulls eye rash years ago (1960's). Sister was correctly diagnosed with Lyme, then the reporter sister was diagnosed recently. Its a great series, with great LLMDs interviewed.

Open Original Shared Link

Thanks Laura. :)

dlp252 Apprentice

Ha, Rinne, Rachel has decided that there MAY be more to pink than meets the eye, lol. :lol:

Jin, glad your dad is getting better.

BioSET was interesting today. I had one of the new people Anna was training a few months ago. She was pretty good and very thorough. I wasn't getting very good readings and halfway through the process she had to recheck my polarity. Strangetly enough, I didn't feel well yesterday (slightly nauseated a couple of times), and today feel okay, but just really tired. I guess it showed cuz she had a hard time getting readings.

Anna hadn't written down the game plan with the allergies, so Valerie asked me if there was anything in particular I wanted her to check--she noted that at some point we have to check miasms. I said that I didn't think we were done with allergies, but wasn't sure which ones were left, and also said that miasms would be fine too. We ended up checking chemicals.

Okay, wow, I had a TON of sensitivities there. It was interesting because what came up today really jives with what I think I have problems with. A lot of paint things came up...I afew years ago I used to oil paint, but had to stop because the chemicals were getting to me...no wonder, lol. Can't even use acylics though anymore.

The stupid chemicals are affecting EVERYTHING! Stupid chemicals. I can't remember all of them, but lots of common ingredients in cosmetics came up. :( I basically only wear makeup on Sundays or special ocassions now, but my eyes always burn when I do...also, some of this stuff is in the cleansers and lotions I use.

Stupid chemicals.

I think I have Anna next week, so maybe we'll do miasms then.

AndreaB Contributor
Okay, wow, I had a TON of sensitivities there. It was interesting because what came up today really jives with what I think I have problems with. A lot of paint things came up...I afew years ago I used to oil paint, but had to stop because the chemicals were getting to me...no wonder, lol. Can't even use acylics though anymore.

The stupid chemicals are affecting EVERYTHING! Stupid chemicals. I can't remember all of them, but lots of common ingredients in cosmetics came up. :( I basically only wear makeup on Sundays or special ocassions now, but my eyes always burn when I do...also, some of this stuff is in the cleansers and lotions I use.

Wow Donna! :o

I would assume those will be things of the past once you can get started on some treatments and lessen drastically your toxic load right now.

I'm interested in the miasms too. Didn't Rachel say something about those affecting getting better?

miamia Rookie
Ha, Rinne, Rachel has decided that there MAY be more to pink than meets the eye, lol. :lol:

Jin, glad your dad is getting better.

BioSET was interesting today. I had one of the new people Anna was training a few months ago. She was pretty good and very thorough. I wasn't getting very good readings and halfway through the process she had to recheck my polarity. Strangetly enough, I didn't feel well yesterday (slightly nauseated a couple of times), and today feel okay, but just really tired. I guess it showed cuz she had a hard time getting readings.

Anna hadn't written down the game plan with the allergies, so Valerie asked me if there was anything in particular I wanted her to check--she noted that at some point we have to check miasms. I said that I didn't think we were done with allergies, but wasn't sure which ones were left, and also said that miasms would be fine too. We ended up checking chemicals.

Okay, wow, I had a TON of sensitivities there. It was interesting because what came up today really jives with what I think I have problems with. A lot of paint things came up...I afew years ago I used to oil paint, but had to stop because the chemicals were getting to me...no wonder, lol. Can't even use acylics though anymore.

The stupid chemicals are affecting EVERYTHING! Stupid chemicals. I can't remember all of them, but lots of common ingredients in cosmetics came up. :( I basically only wear makeup on Sundays or special ocassions now, but my eyes always burn when I do...also, some of this stuff is in the cleansers and lotions I use.

Stupid chemicals.

I think I have Anna next week, so maybe we'll do miasms then.

Donna-

In my muscle testing Chemicals and foods are my main offenders too. Chemicals are huge including food preservitives .

I can feel how chemicals affect me so much though. Especially cleaning products and stuff. I get really sick in big stores . I have a very select group of products i use. I don't wear make up really so that is not an issue. But i have one lotion i use, one soap , one face lotion, one tooth paste , etc. I don't use anything with a scent really at all at this point. and everythign i use has very few ingredients.

The chemical thing really sucks becasue theya re impossible to avoid even though i don't use them plenty of people were way too much perfume and it always really affects me and i can't control what cleaning products and sprays other people use. The other day i was in the grocery store and these two women were spraying air fresheners to test which scent they liked I thought i was going to die I basically ahd to run out of the store.

Miamia

mftnchn Explorer

Donna and Mia, I have in the past been very sensitive to chemicals as well. I am better than I was though. I recently switched to everyday minerals makeup, it has very simple ingredients. I so far do very well with this. Skin care products--I am careful there too.

I used to get very faint after about 30 seconds in a store. I still avoid exposures where I can. A big one to avoid--cooking on a gas stove. Gas heat can be a problem, but the stove/oven is a major issue.

I also avoid perfumes whenever I can. I can't buy organic out here very often, but that helps too.

My allergist told me it takes 10 days for chemicals to move through the body, versus four days for foods.

Sherry

mftnchn Explorer
Hi Rinne,

As a menopausal woman B) , I am doing it without use of hormones or anything, really.

I'm in the process as well, but am on HRT for now. Natural progesterone and estrogen patches, small doses. The doc put me on this due to bad insomnia. My gyn says she isn't too worried for this small dosage and once I am fully into menopause we'll back it off.

I am finding the hot flashes not too bad but recently am concerned that it might be babs instead of hormone related.

mftnchn Explorer

I am rather confused about the acid/alkaline thing. Can anyone clear this up? I noticed a post with a quote from Rachel about more acidic better to combat parasites. Then I saw some posts about using vinegar and lemon juice for being more alkaline. Also since I am a type O blood type I understand it is better for me to be more acidic.

So I am not sure what to try!

CarlaB Enthusiast

Sherry, I thought I'd Google it before I answered and I found this informative page ... Open Original Shared Link.

My LLMD said to drink lemon water during a herx ... though it seems wrong, lemon/lime water will help make you more alkaline. He also says that if the lemon water makes you feel better, you may want to consider an alkaline diet.

I crave the lemon water at times, then at other time I can't stand it. I think that if you're giving your body good foods, you tend to crave what you need.

dlp252 Apprentice
I'm interested in the miasms too. Didn't Rachel say something about those affecting getting better?

Yeah, I think so...can't remember exactly what. Later today I'll search through my bookmarks and see if I have anything about them.

Donna-

In my muscle testing Chemicals and foods are my main offenders too. Chemicals are huge including food preservitives .

I can feel how chemicals affect me so much though. Especially cleaning products and stuff. I get really sick in big stores . I have a very select group of products i use. I don't wear make up really so that is not an issue. But i have one lotion i use, one soap , one face lotion, one tooth paste , etc. I don't use anything with a scent really at all at this point. and everythign i use has very few ingredients.

The chemical thing really sucks becasue theya re impossible to avoid even though i don't use them plenty of people were way too much perfume and it always really affects me and i can't control what cleaning products and sprays other people use. The other day i was in the grocery store and these two women were spraying air fresheners to test which scent they liked I thought i was going to die I basically ahd to run out of the store.

Miamia

Yeah, I know one of the things that came up was isopropyl alcohol I think...they put that in everything.

The one thing I didn't react to was BOUNCE. :lol: So, Rachel, if you ever need any help with busting through the bounce blockade, I'm your girl. :P

My allergist told me it takes 10 days for chemicals to move through the body, versus four days for foods.

Egads, 10 days! I avoid perfume like the plague myself...messes me up pretty badly. I do use mineral makeup for foundation, blush and eyeshadows, but some of the other stuff isn't. :(

Green12 Enthusiast

OMG is so quiet........

I avoid perfume like the plague myself...messes me up pretty badly. I do use mineral makeup for foundation, blush and eyeshadows, but some of the other stuff isn't. :(

Chemicals bother me for the most part, but sometimes I am not affected as much as other times. I don't know why that is.

I use mineral make-up too. At first it bothered me, and then I stopped using it for several months and then I tried it again and I was fine :huh:

I try to keep scented things to a minimum, I am fine with a few things as long as it isn't too synthetic and strong.

truthsearcher Rookie

Hi there.

I finally got the long awaited IGenX Lyme test.

I will post on the Lyme thread as soon as I can type it.

Thanks for your support.

TS

AndreaB Contributor
Hi there.

I finally got the long awaited IGenX Lyme test.

I will post on the Lyme thread as soon as I can type it.

Thanks for your support.

Could you post it here too. Just do a copy. We've a running list here and I don't always get the update notices for posts on the lyme thread. :)

truthsearcher Rookie

Hi Andrea.

I am totally computer illiterate. I have no idea how to copy. When my husband gets home from work I will have him help me.

Sorry.

TS

CarlaB Enthusiast

TS, it looks like a pretty clear test to me, IGeneX positive! Congratulations on a clear answer!

truthsearcher Rookie

Yes! I'm relieved and scared all at the same time.

I've been very ill for 9 years now and subtle symptoms going all the way back to early childhood. I believe my pregnancy, dental work and some very stressful events in my life triggered all of this to explode.

I have three little ones to think about now, and I have to figure out what this is going to mean for them.

You don't know how appreciative I am to have this place to have put some more pieces of the puzzle together. I have used every ounce of energy to get to this point. I pray God gives me strength and resolve to now continue the fight for good health.

TS

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Prana Organics no longer GFCO-certified

    2. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    3. - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    4. - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,926
    • Most Online (within 30 mins)
      7,748

    Kptaylor
    Newest Member
    Kptaylor
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • TheDHhurts
      I've been buying my seeds and nuts from Prana Organics for a number of years because the products have been GFCO-certified. I just got a new order delivered of their flax and sunflower seeds, and it turns out that they are no longer GFCO-certified. Instead, it just has a generic "Gluten Free" symbol on the package. I reached out to them to ask what protocols/standards/testing they have in place. The person that wrote back said that they are now certifying their gluten free status in-house, but that she couldn't answer my questions related to standards because the person with that info was on vacation. Not very impressed, especially since it still says on their website that they are GFCO-certified. Buyer beware!
    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.