Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

AndreaB Contributor
Maybe you were brought here for a different reason ... maybe you will need to know in the future what a bulls-eye rash looks like ... hopefully so you can help someone -- a complete stranger rather than a friend of family member :P -- get treatment right away in an attempt to avoid chronic lyme.

I'm here for support too and I've made some good friends. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
CarlaB Enthusiast
That dosen't mean we all have to have the exact same illness. There's a lot more to us than that :D

Yeah, we're all hot babes with great hair, too!!! :rolleyes:

dlp252 Apprentice
Yeah, we're all hot babes with great hair, too!!! :rolleyes:

Okay, well some of us have more of one thing in common than another...you should have seen my hair on Saturday...frightful, lol! :lol:

jerseyangel Proficient
Yeah, we're all hot babes with great hair, too!!! :rolleyes:

Darn right B)

rinne Apprentice
:lol::lol:

Rinne....you know you wanna say it... :P

Two words..... Lyme Clan :ph34r:B)

I'm practicing restraint. :P:lol::lol::lol:

Carla, I have had deja vu experiences but not lately.

CarlaB Enthusiast
Okay, well some of us have more of one thing in common than another...you should have seen my hair on Saturday...frightful, lol! :lol:

Yeah, well, I look like Kramer in the morning.

Mtndog Collaborator

Hi y'all- Drive by hello. I just haven't been able to keep up with the thread (tired- my mojo went wherever Richard's did- hope they're having fun!) But, I heard that you were wondering where I'd been (hope the dingos were not sent out) :ph34r:

So,...... I wanted to pop (or should I say poop in my case!) in and say hello and wish everyone peace love and wubs :wub::wub::wub:

I feel so grateful to have met such a group of amazing people and such an inspiration to fight. I hope you all have a great week. I am thankful to "know" all of you even if it is cyberically (is that a new word for the rachelville dictionary?) :P

happy Birthday to Seth and Andrea, special wishes to you. :wub:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Green12 Enthusiast

Hi Bev, good to see you :) I was about to call for a Dingo rescue :lol: I haven't been able to keep up either, my brain has been all in a fog, nothing computes...

HAPPY BIRTHDAY SETH :wub:

Quick question, what test kit do I order from IGenX? Are there many to choose from? If someone has specifics regarding this I would so grateful for the info :)

...and I apologize in advance if this has been asked/covered already, I just don't want to go back and get lost :blink:

CarlaB Enthusiast

Julie, I got the complete Lyme Panel.

Green12 Enthusiast
Julie, I got the complete Lyme Panel.

Thanks so much Carla :) Always so helpful you are! And you deliver everything with a smile :lol:

Another quick question, does it absolutley positively 100% have to be IGenX???? Can other labs competently do the western blot testing?

jerseyangel Proficient

Question about Igeneix--if a miracle occurs, and my new doctor will test me for Lyme, can she order the test from them--or does she just send the blood sample to them :blink:

rinne Apprentice
Hi y'all- Drive by hello. I just haven't been able to keep up with the thread (tired- my mojo went wherever Richard's did- hope they're having fun!) But, I heard that you were wondering where I'd been (hope the dingos were not sent out) :ph34r:

I knew that Richard was a mischievious influence. :lol: I hope your mojo comes home. :)

In answer to the question as to a girl or boy, they don't know and are looking forward to being surprised. I am thinking, of course, that this is going to be the cutest baby ever, he has red hair and she is Japanese. I keep wandering into baby shops and picking up sleepers and such and thinking a real baby is going to fit in these. :lol: I am so happy for them and for me too.

TriticusToxicum Explorer
I knew that Richard was a mischievious influence. :lol: I hope your mojo comes home. :)

I would have blamed my mojo as well - that is until Ms. Beverly from Beverly posted Open Original Shared Link on another thread. Now I'm REALLY CONCERNED about my mojo :o . If they've run off together I can only imagine...

AndreaB Contributor

Patti,

I think you have to have the paperwork from Igenix to send in.

GGGRRRR!!!

Just found out that we won't be all sitting together on our flights. One flight doesn't have any of us together. :angry:

TriticusToxicum Explorer
Just found out that we won't be all sitting together on our flights. One flight doesn't have any of us together. :angry:

Sometimes it's more fun that way. Let somebody else watch the kids on the plane :P Maybe they can "help" the flight attendant :)

AndreaB Contributor
In answer to the question as to a girl or boy, they don't know and are looking forward to being surprised. I am thinking, of course, that this is going to be the cutest baby ever, he has red hair and she is Japanese. I keep wandering into baby shops and picking up sleepers and such and thinking a real baby is going to fit in these. :lol: I am so happy for them and for me too.

I love surprises of this kind!

We'd love to see a picture after he/she is born.

jerseyangel Proficient

Rinne,

The baby news is exciting! :D I love shopping for baby things--and I agree, this is going to be one beautiful child. :rolleyes:

Andrea,

I was afraid of that--I'll take it one step at a time. Thanks :)

I had my kids back in the dark ages--we never knew if we were having a boy or girl--it was just a nice surprise. (But, I "knew" they were both boys--I could feel it)

rinne Apprentice
Thanks so much Carla :) Always so helpful you are! And you deliver everything with a smile :lol:

Another quick question, does it absolutley positively 100% have to be IGenX???? Can other labs competently do the western blot testing?

Julie, I think Bowen is a lab that is also considered reliable but I would want to check on that. Stephen Buhner, in "Healing Lyme" talks about the various tests and their weakness, it looks like there are new tests coming that are more reliable than the Western Blot. There is one that Bowen labs does now I think. He talks about Igenex as being an excellent lab and the importance of the quality of the lab work done. It is a little beyond my capacity for scientificness at the moment but basically Igenex pays close attention to detail and many other labs don't.

Question about Igeneix--if a miracle occurs, and my new doctor will test me for Lyme, can she order the test from them--or does she just send the blood sample to them :blink:

I don't know. My doctor's office took care of it all but then they use Igenex on a regular basis. Have you checked the Igenex site, maybe it says on there?

Green12 Enthusiast
I love surprises of this kind!

We'd love to see a picture after he/she is born.

rinne, congratulations on the grandbaby to be :) Very exciting!

Wanted to add that my thoughts and prayers are with Evie and her family.

AndreaB Contributor
Sometimes it's more fun that way. Let somebody else watch the kids on the plane :P Maybe they can "help" the flight attendant :)

:lol: I figure someone would be willing to change seats so they won't have to kid sit. :)

dlp252 Apprentice
I am thankful to "know" all of you even if it is cyberically (is that a new word for the rachelville dictionary?) :P

Ha, you said cyberically!! :lol:

Mtndog Collaborator
Ha, you said cyberically!! :lol:

I think it's like Siberiacally (like when you're really cold- you're Siberia cold!)

Rinne- Supercool about the baby! It's so cool it's Siberia cool.

Yes- Richard and i suspect our mojos have run away together (we think we were twins seperated at birth- I was adopted so it's possible). We suspect they have gone on a vacation somewhere tropical. Like this:

Open Original Shared Link

I hope they're having fun! I got soyed and then glutened (by body lotion which I read the ingredients on and realized once it was way too late and i had already racheled a bag of gluten-free breadsticks :angry: ). Soy + gluten=pain and the blues.

Missing my mom this Thanksgiving too. Sorry I'm being a party pooper. I'll try to cheer up!

CarlaB Enthusiast

For Igenex, if it's a lab that your doc doesn't normally use, you call them and order the kit for no charge. You take it to your doctor, then he/she takes the blood and sends it in. I would order the kit just to be sure.

Bev, it's our job to cheer YOU up!!! Just take another look at Richard's turkey ... it's really good for a laugh! Wouldn't it be funny to put foil over your turkey so that it looks like that on Thanksgiving!!! :lol:

dlp252 Apprentice
Missing my mom this Thanksgiving too. Sorry I'm being a party pooper. I'll try to cheer up!

I still miss my dad after 10 years! You're entitled to feel blue! I always think of him still on his birthday, father's day, Christmas etc.

jerseyangel Proficient

Donna and Bev--I'm so sorry that both of you are feeling blue :(

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,917
    • Most Online (within 30 mins)
      7,748

    tiffanygosci
    Newest Member
    tiffanygosci
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Thank you, a little expensive but glad to have this source. 
    • Xravith
      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.