Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cbs News Story

floridanative

By floridanative
in Publications & Publicity

Recommended Posts

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
It's a transcript :)
Penguin!! YOU'RE BACK!!!!!!!!!! :)

It also has a video of the segment!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 97
  • Created
  • Last Reply
DingoGirl Enthusiast
DingoGirl
Posted
THAT WAS THE BEST SEGMENT ON CELIAC I HAVE EVER SEEN!!!!!

I'm so glad they didn't push the biopsy or that all symptoms are GI. AWESOME!!! :D

OH MY GOD - - it just ran here - - I totally agree! Much more than I expected - - really, really on the mark. and national news - - and toward the beginning of the broadcast - NOT something thrown in at the end - -

LOVED IT!!!!

Lisa Mentor
Lisa
Posted
THAT WAS THE BEST SEGMENT ON CELIAC I HAVE EVER SEEN!!!!!

I'm so glad they didn't push the biopsy or that all symptoms are GI. AWESOME!!! :D

Chels:

Good to see you again. I agree. To get and article on National News coverage in prime time, is about as good as it gets.

This is major, no complaints from me!!! :)

Nantzie Collaborator
Nantzie
Posted
It was so on the mark I was actually starting to get tears in my eyes!

Tom

Oh good. I wasn't the only one crying...

{sniff}

Nancy

LKelly8 Rookie
LKelly8
Posted

My mother and I watched it together and we both cracked up when they showed the family eating those sad, flat little cupcakes! I remember baking things that looked like that. :lol: Someone send that woman some gluten-free baking mix, stat!

Good show. Lots of coverage. . .get ready for the onslaught of newbies. ;)

DingoGirl Enthusiast
DingoGirl
Posted
Good show. Lots of coverage. . .get ready for the onslaught of newbies. ;)

'

OMG you're right....we'll have to make sure and educate everyone...the pressure! it's up to us! :blink:;)

rez Apprentice
rez
Posted

The CBS News Story was AWESOME!!!!!!!! My prayers were answered!!! Finally, my friends and family don't think I'm nuts!! I had chills up my spine and tears rolling down my cheeks. It was serile. My sons results haven't come back from Enterolab yet, but he has responded to the gluten free diet. He had terrible stomach aches, vomitting, acid reflux, horrible mouth sores, and it was starting to affect him mentally. He couldn't go to sleep at night and nightly woke up with terrible stomach pains and sometimes vomitting. We have been doctoring for 6 months with us, which I know is short in comparison to some people's stories. Thank God I had access to a person who has family members who are gluten intolerant and access to tons of great info on the internet including this site!! Going gluten free was our last resort. The medical community has laughed in my face, basically telling me I'm crazy. I am concvinced I know more about it than any doctor in this area. The first dr. ordered the wrong test and the second ordered the right one when my son had already been gluten free for a month. No one understands the terrible alone, abandoned feeling unless you've gone through it. Thank God for the news story. Now people can see it's not just kids who are withering away that suffer from this. The mother basically diagnosed the daughter and she was CLASSIC Celiac. All I can say is I hope the right people were watching!! The doctors!!! I am so thrilled and have been in a depression over this for the last week. I am so happy!!! Let's try for Oprah now!!!! I have emailed her on this topic and I think there is power in numbers!! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VydorScope Proficient
VydorScope
Posted

Everyone make sure you email CBS thanking htem... they need postive reinforcement as much, if notmore then, the bad feedback!

rez Apprentice
rez
Posted
Everyone make sure you email CBS thanking htem... they need postive reinforcement as much, if notmore then, the bad feedback!

Yes!!! Email lots of thanks and don't forget to email Oprah!!! Let's get this out to the public!!!!!

mouse Enthusiast
mouse
Posted

I sat here with my hubby watching it. I thought it was great. I only hope that people I know were also watching. I forgot about the newbie aspect of the broadcast LOL. Almost 4 minutes in prime time is awesome.

Guhlia Rising Star
Guhlia
Posted

You guys can watch that portion of the newscast on www.cbsnews.com. Wow, was it good!

Rachel--24 Collaborator
Rachel--24
Posted

I watched it with my mom and her hubby....I thought it would be longer but I thought it was very good regardless. I was hoping my moms hubby was paying attention because I think he might have Celiac. I was happy with the info they provided ...mostly the fact they pointed out that its common, that 95% arent diagnosed and that symptoms can vary. I think alot of people might get themselves diagnosed just from seeing a short segment like that.

AndreaB Contributor
AndreaB
Posted

I couldn't get the video to play. Anyone else have that problem. It said I didn't have windows media or real player installed and I have both on my computer.

wonkabar Contributor
wonkabar
Posted
. I was happy with the info they provided ...mostly the fact they pointed out that its common, that 95% arent diagnosed and that symptoms can vary. I think alot of people might get themselves diagnosed just from seeing a short segment like that.

I agree. The fact that the medical correspondent specifically stated that it's no longer looked at as a disease specifically related to horrific gi symptoms was clutch! I loved the fact that they listed associated symptoms that weren't specific to gi problems. I thought it was great that they mentioned neurological symptoms and reccurent miscarriages.

evie Rookie
evie
Posted
I couldn't get the video to play. Anyone else have that problem. It said I didn't have windows media or real player installed and I have both on my computer.

Glad I got on this thread tonight and read about the CBS celiac story, that was great to have on National TV!!

I did not see it because I was so tired after dental work today that I went to sleep during that time. Do not want to say I nap because of being older, I blame it onto being Celiac. HA-HA Such 'Good' publicity for "Celiac disease". Am I a newbie on here? Evening all!! evie

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

-

lonewolf Collaborator
lonewolf
Posted

That was a GOOD piece!

Penguin - welcome back!

2Boys4Me Enthusiast
2Boys4Me
Posted

Just watched the video. Good story, but that gluten free store?! Must've been a set. No such thing in real life. Maaaybe a gluten-free section.

Guest nini
Guest nini
Posted

I missed it... I wasn't home from working in time, and I can't get the video to play :(

happygirl Collaborator
happygirl
Posted

Linda,

Actually, surprisingly enough, there are gluten free stores. A family opened one in Pennsylvania, about 20 minutes from my parents house. Everything in their store is gluten free---they opened it because people in their family were diagnosed with Celiac. There is one in Virginia Beach, and he carries probably 90% gluten free stuff (independently owned, and his family has two people with Celiac).

So, stranger things have happened :)

Laura

lindalee Enthusiast
lindalee
Posted
Linda,

Actually, surprisingly enough, there are gluten free stores. A family opened one in Pennsylvania, about 20 minutes from my parents house. Everything in their store is gluten free---they opened it because people in their family were diagnosed with Celiac. There is one in Virginia Beach, and he carries probably 90% gluten free stuff (independently owned, and his family has two people with Celiac).

So, stranger things have happened :)

Laura

Hi Laura, Where are the stores located? I think there is a health food store close to Cbn - is that it?

Also I will be going to Pa. later this month. Where is that one located? Thanks :)

2Boys4Me Enthusiast
2Boys4Me
Posted
Linda,

Actually, surprisingly enough, there are gluten free stores. A family opened one in Pennsylvania, about 20 minutes from my parents house. Everything in their store is gluten free---they opened it because people in their family were diagnosed with Celiac. There is one in Virginia Beach, and he carries probably 90% gluten free stuff (independently owned, and his family has two people with Celiac).

So, stranger things have happened :)

Laura

I sit corrected. I've never seen a whole store, but certainly sections. In fact the health food store kindly labels celiac friendly stuff with a red dot sticker and the words "celiac ok". I wonder where the story originated.

For everyone who couldn't get the video to play I had to click a litte circle next to the file type I wanted to play. There was a commercial first. <_<

Rachel--24 Collaborator
Rachel--24
Posted
Just watched the video. Good story, but that gluten free store?! Must've been a set. No such thing in real life. Maaaybe a gluten-free section.

Linda,

There was a store in my area that was all gluten free. It was amazing!! Unfortunately it recently closed down. :(

AndreaB Contributor
AndreaB
Posted

OK, I finally got to watch it. Maybe shutting down my computer last night helped. I thought it was a good piece. I emailed my mom the video link. She's on vacation and I doubt she would have seen it.

We have a gluten free store in Vancouver WA called Lingonberries.

Tay Newbie
Tay
Posted

I agree that this was a good piece! And I cried too. Thank goodness that people will get this message. I am excited to send it to my parents, who so far have been to stuborn to get tested. Taylor

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,572
    • Most Online (within 30 mins)
      7,748
    lizz Z
    Newest Member
    lizz Z
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      Roommate search

      By ckeyser88 · Posted

      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.