Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Where's The Most Inconvenient Place You've Realized You've Been Glutened


jkmunchkin

Recommended Posts

jkmunchkin Rising Star

I'll start.

The NYC Subway.

I decided to run to Bloomies after work today, got on the 6 train (which was more crowded than ever for some reason), and all of a sudden started to feel the effects of being glutened. All I kept thinking is, if this subway gets delayed for any reason, I'm going to die.

Needless to say, I spent my time at Bloomies in the bathroom and then got back on the subway to go home.

I'm not a happy camper right now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Sorry you're sick.

This isn't an inconvenient place, but there is a restaurant across the street from my house, one of the nicest ones in town, and we gave it a try 3 times. The chef is waaaayyy to important to come to the table, so the communication to him was bad. All three times I got glutened. Anyway, the third (and last, it's across the street or they never would have gotten a second chance ...) I went home to use the bathroom, then went back!!!

jerseyangel Proficient

Sam's Club. The place is huge--and seems even bigger when you're in a race against time to get to the restroom!

This was a while ago, and I must have gotten glutened that morning at breakfast. Gosh, I must have been in that bathroom for 1/2 an hour! :angry:

Guest Norah022

class...you can't get up and leave 5 times in an hour without the entire class and the prof knowing.

Now all of my professors know about my celiac's so they know when i leave a lot of times it is because my celiac's is acting up

Matilda Enthusiast

...

corinne Apprentice

Two come to mind. One snow camping. Multiple trips out of my warm sleeping bag to go behind the nearest snowdrift. Not fun (and ran out of TP). I now carry at least 2 rolls of TP.

The worst - while doing a long rock climb (before I realized oatmeal for breakfast was a bad thing) and having to figure out how to wiggle the pants quickly while staying safely tied in a harness. My poor partner.

lonewolf Collaborator

I got glutened at a restaurant and then hubby and I went for a long walk on a public trail with no bathrooms and no woods to hide in. We finally made it around to the softball fields and I got into the bathroom just before the janitor was going to close them. I was really embarrassed that I didn't make it out in two minutes or less :ph34r: and my husband was just starting to come in to see if I was okay when I finished. Did manage to make it home before the next wave hit.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

airplane. ugh, painful stomach, seatbelt, two people between me and a busy bathroom. and I don't even get bad symptoms.

Ursa Major Collaborator
The worst - while doing a long rock climb (before I realized oatmeal for breakfast was a bad thing) and having to figure out how to wiggle the pants quickly while staying safely tied in a harness. My poor partner.

Ouch, I have to try to laugh quietly, so I won't wake up my family. But this one is a killer! :rolleyes:

Well, this was when I started having terrible symptoms (and ended up in the ER that night, because we thougth I had a heart attack, and was told, after five hours it was 'only bad stomach and bowel cramps, and I was just fine and could go home' :ph34r: ). I had an appointment in Toronto (a large city, and it was a two-hour-drive from here). On the way home (still in the middle of the city), my car quit. I managed to roll into a side street, left the car there, to look for a phone (my husband works in Toronto, and I had to ask him to rescue me). I found a convenience store that said it had a public phone.

My husband told me he was on the other line, and I needed to call him back in half an hour, because he was talking to an important client.

After I hung up, and started hanging out in the store, my stomach started that awful rumbling that meant trouble. I was getting desperate, knew that it would be hours before I could get home, and went and begged the store owner to let me use the bathroom. She let me, and I just hated repaying her for her kindness by leaving the bathroom smelling just horrible! And I still had to use the phone again.

It was a long time before I got home, and I was sooooooooo sick.

The other times were in the grocery store. Several times I felt I wasn't going to make it to the bathroom in the middle of shopping (this is my favourite grocery store, because it has a public bathroom ;) ), but tried to walk at a normal pace, without looking frantic on my way to the bathroom, and once it was occupied when I got there! It was a close call.

Kaycee Collaborator

Here is my icky story.

It would seem before being diagnosed, that the minute I went to town to shop, I would have to find the loo because I needed it quickly. Always embarassing as it was not pleasant on the nose for others.

The most inconvenient, embarassing time for me, was pre diagnosis, the previous night I had celebrated my birthday at a restuarant. I did not feel too bad, but had to get up at 5.30am next day to go walking with a friend, work mate, in what seemed the middle of the night. We are crazy to do that, but there is no other suitable time to walk.

I managed to get halfway round our three quarter of an hour walk, when I could feel the need to go to the loo, and I hate to say it but I did not make it. Thankfully it was dark. Talk about being so embarassed, Maureen was real cool about it. But I was mortified, I could not face work that day, so stayed home, and hoped Maureen would not pass on my little mishap to workmates. Not that she would. I just felt a bit delicate and sick. I did not realise it was a glutening, but what else could it have been now that I know.

Catherine

Guest nini

rush hour traffic in Atlanta... nuff said.

CarlaB Enthusiast
rush hour traffic in Atlanta... nuff said.

Reminds me of a Sandra Bullock scene in Two Weeks Notice, she's having an attack and the billionaire she works for is driving her car, they are stuck in traffic. She says she can't go in her car, he says, "It's only a Volvo, I'll buy you a new one." He ends up carrying her to a motor home also stuck in traffic and pays them $1000 for her to use their toilet.

There's also a good "potty scene" in Along Came Polly.

We're a sick group aren't we???

Love the rock climbing story .... did you REALLY do that?? :o

hannahsue01 Enthusiast

Ok well the story is about me but I um don't remember it but it has been a favorite story of my parents. I was a baby and we took a trip to WalMart. They had me in shopping cart and apperantly the diaper wasn't enough to hold what I did. I guess I made a huge mess in the cart and imbarrassed my parents. They left the poopy cart in the isle and left the store. They put me on some papers on the floor of the car and took me home to get cleaned up. I guess it was awhile before my mom felt comfterble going back there to shop. I feel sorry for who ever got to clean up that mess.

schuyler Apprentice

Two days ago, the boys and I were glutened on a flight back east. It was a really bad glutening too. The whole plane hated us! Plus the boys get really grouchy and have anger issues when they're glutened.

That was the longest flight in my life...

tiffjake Enthusiast

Theme park.......

Trish in Canada Apprentice

At my cousin's wedding... last month. I ate one bite of a potato covered in beef gravy. I asked the caterer what was on the potatoes before I ate she said beef drippings, noooooo.... I realized it was covered in gravy after I took the bite (I could taste it).

Awhile later I got horrible gas + bloating that got progressively worse as the evening went on. My brother didn't want to leave. I told him I wasn't feeling well, but he didn't realize why. I didn't want to announce to everyone at the table that I felt like I was about to explode rectally. I was still able to access the restroom. A public restroom at a wedding, no privacy, people were in and out of the restroom every minute.

:unsure: Here's a tip: If you are at a party with loud music and a dance floor and you get glutened, head for the dance floor, no one can hear you toot :unsure:

But of course it doesn't help much with the smell.... :blink: But I found that everyone's busy dancing so they didn't notice that either. :P

When we finally left there was a 45 minute drive from reception hall to the place we were staying, you could hear my intestines churning. There were no places to stop along the way, because we were outside of any towns.

Kaycee Collaborator
rush hour traffic in Atlanta... nuff said.

Why is it called rush hour. Sorry gone off track.

Maybe you have given rush hour a new meaning.

But I am not laughing.

Catherine

Guest nini
Why is it called rush hour. Sorry gone off track.

Maybe you have given rush hour a new meaning.

But I am not laughing.

Catherine

humph! LOL... all I know is during rush hour NO ONE MOVES NO WHERE NO HOW!!! So stuck in my car and OMG... thought I was gonna die.

Matilda Enthusiast

...

ArtGirl Enthusiast

This was pre-diagnosis about a year ago. I was in an art show at a mall over 30 minutes drive from my home. The artists all had to be there by 9:30 to be ready for when the shops mall opened at 10:00. I got to the parking lot early at 9:00 when the need to go hit. I stood by the van trying to gain enough control to make it into the mall and the bathroom - to no avail. Fortunately, no one was around me at the time there in the parking lot. I had some towels in the van and layed them on the seat so I wouldn't get it soiled, and drove the 30 minutes back home feeling disgusted and depressed. By the time I got all cleaned up, the towels and clothes in the wash, and drove back to the art show I was an hour late.

Then there was the time I was walking the dogs and had to rush home - made it into the laundry room that time before it all broke loose. I really didn't think I was going to make it and was going to embarrass myself right there on the street.

I'm soooo hoping this kind of thing is in my past now.

penguin Community Regular

Football game. 72,000 fans. 90 degree heat.

With the inlaws.

brendygirl Community Regular

Las Vegas. The bathrooms are great, but the toilets automatically flush on you if you stay on awhile!

Matilda Enthusiast

...

MistressIsis Apprentice

I accidentally glutened myself the night before a funeral. It was my ex grandmother in law's and it was a Catholic service.

ironic Newbie

Two pre-dx:

I was in a grocery store about an hour away from my house.. with no pub. bathroom. There was a Chuck E. Cheese next door.. so I went in. I was about a foot from the bathroom when an employee saw me. He asked if I had paid, and I lied. So he asked me to check my hand, and there wasn't a stamp. I didn't have any cash.. so I broke down in tears. So he said I could use it *quickly*. An hour later I came out and he was still waiting outside, making sure I didn't sneak in. It was horrible.

I was visiting my grandparents, and we all went to the library. I felt fine and then all of a sudden NEEDED to go. So I asked for the bathroom, was told it was being remodeled but I could use it if I wanted, and tried so hard to walk normally. So I find the so called bathroom. No door on the stall.. and no door to the bathroom. Not only wasn't there a door, there was no wall. Luckily the doorless stall was facing away from the missing wall.. but it was still horrifying. So I finished asap and said we needed to leave. We only took one car, and my sister and her boyfriend had wandered off, to some other store. So I sat in the car and cried while my father tracked them down. Eventually we just left them. It was fun explaining to my sisters BF about my "bad stomache"

Then post dx I was driving home from my aunts at about 1 in the morning. She lives about an hour away. I knew when I was at her house I had been glutened. So I left as soon as I ate it, hoping to get home before the attack hit. (She was having a very fancy dinner party with only one bathroom). So I get on the highway and five minutes pass before the worst cramps of my life hit. So I pull over because I am doubled over and crying to hard to see. After two minutes on the side of the road I need to go, so I pull back on and did about 90 the rest of the way home.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,869
    • Most Online (within 30 mins)
      7,748

    Stacy W
    Newest Member
    Stacy W
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
    • Scott Adams
      I am so sorry you're going through this. It's bad enough to fight for a diagnosis and manage this disease, but to have your partner use it as a weapon against you is truly devastating. What you're describing isn't just a lack of support; it's abuse, full stop. Controlling your food and money is cruel, and his pleasure in your misery is chilling. Please hear this: the kindness from that woman at the food pantry is what you deserve. It's a glimpse of the real world, where people care. You deserve to eat, to heal, and to have peace. His actions are the biggest barrier to your health right now, and you are not broken—you are surviving in an impossible situation. Don't give up on that lifeline you've found.
    • Colleen H
      Thank you.. Christina My anxiety is through the roof.  I think it was from eggs.  I really don't know because my eyes feel sore. Like I'm allergic to them.  I was defient in B12.   My heart is pounding and it won't stop.  Not sure what to do.   I don't have much support other than this forum.    Colleen 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.