Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"newbies" How Did You Find This Website?

par18

Recommended Posts

par18 Apprentice
par18
Posted

Just curious how you found this site. Also did recent publicity on CBS, USA and CNN have anything to do with searching for it? Also welcome aboard!

Tom

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dlp252 Apprentice
dlp252
Posted

I actually found out through a co-worker, never had heard of it before.

OOOPSSS, I see that you asked newbies, lol...although sometimes I still think of myself as one. Sorry! :P

par18 Apprentice
par18
Posted
  • Author
I actually found out through a co-worker, never had heard of it before.

OOOPSSS, I see that you asked newbies, lol...although sometimes I still think of myself as one. Sorry! :P

No apology necessary. Actually anyone can answer. I myself found it by searching my symptoms shortly before my diagnosis last year. I just did not find it soon enough.

Tom

Sweetfudge Community Regular
Sweetfudge
Posted

I was told by my nutritionist. I actually think she referred me to the celiac.com site, and I found the forum from there :) Glad I did too!

Looking for answers Contributor
Looking for answers
Posted

Googled gluten intolerance and found the site! B)

gadgetgirl Newbie
gadgetgirl
Posted

After reading Brostoff's Food Allergies and Food Intolerances book, I was looking for tests to supplement what I was trying to accomplish with a food elimination diet. Found the Enterolab website and then was googling to find out what people had to say about their tests and that is what led me here!

i canary Rookie
i canary
Posted

I'm not a newbie either, but my doctor told me about the website. Her daughter had celiac disease.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Well, since you don't have to be a newbie...

I stumbled onto the board about 4 months after I was diagnosed. I was researching an ingredient in my digestive enzymes, and came upon a discussion about it here. :)

Adelle Enthusiast
Adelle
Posted

I did an internet search for celiac support groups. This one looked cool and loaded on my sidekick (I don't have a computer) easily. Thank you google! Lol!

marciab Enthusiast
marciab
Posted

I was googling wheat free bread recipes, found the word gluten, googled gluten and wala ... I have been here ever since ... Love this board ... :) I would have never figured out this diet without this board ...

Marcia

super-sally888 Contributor
super-sally888
Posted

Hi,

Googled celiac. This site came up.

Sally

SchnauzerMom Rookie
SchnauzerMom
Posted

I was searching the Net for info on celiac disease and gluten free diets and this site came up. I am very glad that I found it. It has helped a lot.

mamazoocrew Newbie
mamazoocrew
Posted

My mom saw the CBS show and she called me. She told me it what she saw mimiced much of what my daughter and I have been going through for years! We have had bloodwork done and sent to promethius labs and are still waiting for results! I found your site via the web when I began my research.

Yenni Enthusiast
Yenni
Posted

I did a search about gluten intolerance on Google and this place came up. I started reading some and found a lot of good information and VERY friendly people. So I signed up. I think I wouldn't have done half as well without this place. :)

georgie Enthusiast
georgie
Posted

I found it talked about on a Thyroid yahoo list.

Peta Explorer
Peta
Posted

Was curious to know more about Celiac since my son was told their was a strong possibility he had it.

I "Googled" and found this site.

It's wonderful...and SOOOOO informative!!!

Peta

Guest nini
Guest nini
Posted

since you don't have to be a newbie to answer...

I found this site when I was ordering food from the Gluten Free Mall, I was looking around the web site and noticed Message Board links... and since I am a message board junkie I thought, hmmmmm I just HAVE to check THIS out!

I found the Gluten Free Mall through Google.

prinsessa Contributor
prinsessa
Posted

I found this site after googling "Celiac Disease". My mom mentioned I might have it since I was having chronic diarrhea. I think she might have it too, but she doesn't seem to want to get tested (not that testing always works).

CarlaB Enthusiast
CarlaB
Posted

I found celiac.com when I googled celiac disease.

I'm really wondering whether some of our current newbies are here as a result of any of the recent publicity on celiac disease.

kbtoyssni Contributor
kbtoyssni
Posted

I found the site by googling celiac.

Rebecca47 Contributor
Rebecca47
Posted

I found it by accident lookig on celiac.com and just go down and clicking on everything in the index. YAHOOO!

Now I can't get off of it.

rebecca :rolleyes:

AndreaB Contributor
AndreaB
Posted

If I remember correctly I was searching for gluten intolerance info. I found celiac.com and later clicked on the message board.

Can't get me off of here now. :)

linds Apprentice
linds
Posted

my nutritionist directed me to celiac.com and told me that I could finda message board there that would be a great deal of help.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Theresa2407
      - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

      thank you for your advice. I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated. I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    2. KathyR37
      - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and gloves when cooking for them. One huge problem...
    3. Scott Adams
      - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are fee...
    4. KathyR37
      - KathyR37 posted a topic in Coping with Celiac Disease
      2

      New here

      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels...
    5. Scott Adams
      - Scott Adams replied to Colleen H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Celiac attack confusion and anxiety

      This article, and the comments below it, may be helpful:
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,812
    • Most Online (within 30 mins)
      7,748
    Papa Emeritus 79
    Newest Member
    Papa Emeritus 79
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Theresa2407
      Probiotics

      By Theresa2407 · Posted

      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      New here

      By KathyR37 · Posted

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      New here

      By Scott Adams · Posted

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      New here

      By KathyR37 · Posted

      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
    • Scott Adams
      Celiac attack confusion and anxiety

      By Scott Adams · Posted

      This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.