Has Anyone Heard Of This Or Had It Done?

[Canadian Karen]

I went to have this done this week to try to find out if there are any other intolerances that are interfering with my getting better.

Anyway, here is the website that explains what it is:

Open Original Shared Link

To be honest, I am kind of skeptical. She did the test on me, which consisted of me holding some metal cylinder that was wet in my left hand, while she pressed down a pen-like think on the knuckle on my right hand.

The highlights of the results are as follows:

64 - 100 Tolerance - NONE

58 - 63 Tolerance - POOR

56-57 Tolerance - Reduced

42 - 55 Tolerance - no reaction

The top offenders apparently are:

1. Yeast, Bakers - 82

2. Casien , Cowmilk - 79

3. Aspartame - 73

4. Milk, Cow - 73

5. Paprika - 72

6. Pork - 72

7. Salmon - 72

8. Sugar Twin - 72

9. Superheated Vegetable Fat - 71

10. Bean Flour (Romano) - 70

11. Ripe Olive - 70

12. Peanut - 70

13. Red Wine - 70

14. Sage - 69

15. Grapefruit - 68

16. White Wine - 68

17. Orange - 67

18. Papaya - 67

19. Yeast, Brewers - 67

20. Beef - 66

21. Poppy Seed - 66

22. Sesame Seed - 66

23. Wheat, Pasta - 66

24. Kraft Dinner - 64

25. Tomato - 64

26. Wheat, Whole - 64

The thing that has me skeptical, is that Barley Malt scored 62, Wheat Bran scored 59 and Wheat Gluten scored 57......... Huh?

She wants me to join a program where she would closely monitor me and do further testing (hair sample testing, something like that), total cost being $499.00

Is she trying to take me for a ride or do you guys think there is some validity in this testing?

Thanks!

Karen

[Lymetoo]

I think an elimination diet would be more accurate and $500 cheaper. Just my humble opinion!!

[Canadian Karen]

I think an elimination diet would be more accurate and $500 cheaper. Just my humble opinion!!

That seemed to be my first thought too! LOL!

Karen

[Nancym]

Is she trying to take me for a ride or do you guys think there is some validity in this testing?

Sounds like a scam to me!

[Lymetoo]

Laughter is the shortest distance between two people.

-- Victor Borge

That gives me a warm feeling inside every time I see that quote! I had the supreme pleasure of seeing Victor Borge perform....many years ago. What a great man!

[Helena]

I'd go with the elimination diet too. I'd highly recommend buying this book:

Open Original Shared Link .com/Dealing-Food-Allergi...TF8&s=books

She deals with a variety of things you can react to aside from the usual culprits---like tyramine (hope I'm remembering this correctly).

Don't know how I would have survived the elimination diet without it! (The diet my doctor put me, however, on was more limited than the one in the book---I could have rice, water, sea salt, two types of veggies, two types of fruit, turkey. That's it.)

[marciab]

Karen,

Sounds all to similar to testing I had done back in 1990. Did she have you hold a vial of the offending substance in one hand ? And did it register somewhere whether or not you had a reaction to it ?

I did this for about 9 months when I first got sick. And bought $1000 of my doctors herbal supplements.

What a waste ... He convinced me that my problems were not food oriented.

marcia

[ravenwoodglass]

Save your money and do an elimination diet. Much cheaper and no chance of false positives when done correctly. If needed an allergist can assist with this, but your fingers may need to do a bit of walking to find one who works with food allergies. Many just want to do shots for ragweed etc now.

[Rachel--24]

Karen,

I've been doing this type of testing/treatments for a couple months now....I do BioSET. I have severe toxicity and food and chemical sensitivities. My Dr. sent me to this lady because she's suppossed to be the best in the country for this kind of stuff. He has alot of faith in her.....says she's been able to help people all over the US and Canada.

You can read about her half way down this page...

Open Original Shared Link

This is an explanantion of BioSET

Open Original Shared Link

I'm off to work right now but I'll let you know more about my treatments later on today if you're interested.

[Rachel--24]

Sounds like a scam to me!

Maybe it depends on the practitioner who's doing the testing and treatments. The lady that I see has an excellent reputation and has had great success in clearing people of their intolerances. My M.D. sent me to her for this reason. He said she has helped him with other patients as far as reducing their intolerance and toxicity levels so that he can better treat them from there. He said he needs her help with some patients who are sensitive to *everything*.....such as me. So I see her twice a week now.

I'm not one to fall for scams.....at least I dont think I am.

I did research first.

I also contacted the guy who wrote about her here...

Open Original Shared Link

I've met him in person...he's all about helping people and he speaks VERY highly of her and her testing methods.

[trents]

Karen,

Of course you know that celiac disease involves an autoimmune reaction, not an allergic reaction, and an autoimmune reaction that takes place specifically in the gut. That would explain why your wheat gluten and wheat bran scores are lower than you expected. I had the skin prick allergy testing done several years ago (this was well after the onset of my celiac disease) and wheat was not one of the allergens I reacted to at all. Now, in saying this I'm certainly not endorsing this testing you had done. I'm skeptical of those kind of things.

Steve

[Canadian Karen]

One of the main concerns that I have is the fact that when I first mentioned celiac disease and how underdiagnosed it was, she actually said that she thought it was OVER diagnosed! Red flags immediately went up..... I just got the distinct impression that she is so geared to the "holistic, naturopathic approach" that something that is medically proven with traditional medical testing to be wrong goes against when she believes.... I don't think she like too much the comment I made about how unhelpful nutritionists are to celiacs. I said most dieticians just hand you over a page taken out of their binders and that's it. It wasn't until after I went on the website, that I realized that Nutritional was her speciality and where most of her studying has been done!

She must have mentioned to me about 10 times that she is a very "results driven" person. I just seemed to get the impression that she tapped into my desperation to get some results and is taking advantage of that.....

Just my gut instinct (well, whatever is left of my gut, anyway..... )

Hugs.

Karen

Karen,

Of course you know that celiac disease involves an autoimmune reaction, not an allergic reaction, and an autoimmune reaction that takes place specifically in the gut. That would explain why your wheat gluten and wheat bran scores are lower than you expected. I had the skin prick allergy testing done several years ago (this was well after the onset of my celiac disease) and wheat was not one of the allergens I reacted to at all. Now, in saying this I'm certainly not endorsing this testing you had done. I'm skeptical of those kind of things.

Steve

Steve, you are so right - I didn't even think of that....

Karen

[chrissy]

karen---i had that same kind of testing done about 11 years ago. it told me i reacted to a number of things. i have since heard that that type of testing is not accurate. i'm pretty desperate to feel better these days-----if i could find the sheet of paper that told me all the things i reacted to, i might try eliminating them again----even if i don't necessarily believe in the testing. it did tell me i reacted to wheat------but i am not allergic to wheat and i don't have celiac.

i have been considering trying the elimination diet---can one of you direct me to some info on how to go about doing it?

[aikiducky]

One thing that I have experienced time and time again is that you really should listen to a gut feeling about things. If you have a feeling that this is a scam, I don't think you should do it, whatever anyone else says. It might be completely legit, it might just be this particular practitioner, but it's probably not for you. Whenever I have tried to convince myself to do something I had a bad feeling about, I always regretted it afterwards.

My two eurocents worth...

Pauliina

[loraleena]

I met a woman last week who did this here in Vermont. She said it has helped her, but she barely has anything to eat. I don't know what to think.

[Rachel--24]

I met a woman last week who did this here in Vermont. She said it has helped her, but she barely has anything to eat. I don't know what to think.

I'm not sure what to think yet either but from all that I've been able to find online it seemed like alot of people have benefited from the treatment. I had found a site where people who have Lyme give ratings on various treatments they've tried. One girl said she had become so intolerant to everything that she couldnt leave the house and could barely eat anything. She did Bioset treatments and all of her allergies and intolerances went away.

She said that if she gets under too much stress or her Lyme disease flares up some of the sensitivities will start to come back.....so she'll have another treament to clear it again.

I dont think my Dr. would be sending me to her if he hadnt had good results in the past. My Dr. isnt a naturopath...he's an M.D.

He said that he never used to use "those" kinds of people for helping his patients but nowadays people are becoming soooo intolerant to soooo many things that he cant treat them effectively because they cant tolerate any meds or supplements.

He said in some cases he needs help from the BioSET practitioner to get some of these things cleared so that he can start treating the patient. He doesnt speak about BioSET as a whole though.....he only seems to trust this one practitioner that I'm currently seeing.

From what I've learned my practitioner is trained for alot more than just clearing allergies. She does alot of other stuff.....I think there are only a few other people in the US who are currently practing some of the things that shes working with me on. I'm pretty sure thats why my Dr. has sent me to her....he says shes the best in the country. I dont know that he would just send me to *any* BioSET practitioner....I dont think he would.

So far my impression is that the testing is VERY good. In my case its been extremely accurate...I'm just continuously amazed by how accurrate the results have been. As far as the actual treatments for clearing the allergens....I dont know yet. I havent even started on foods and I still have a ton of stuff that needs to be addressed.

My dr. didnt just send me to her for the allergens. I had one positive test for Lyme (through Igenix) and two equivocal results. It *looked* like I have Lyme but he wanted her to use her testing methods to back it up and help confirm the diagnosis.

I didnt believe in this kind of testing at all....I thought it was bogus. They said I could bring whatever I wanted as far as meds or supplements and she would test them to see if they were ok for me. I figured I was gonna try to trick them and prove to myself that it was bogus.

I brought supplements that I *knew* were horrible for me and then I brought some that I felt were perfectly fine. The machine NAILED it....it *knew* which things I could not tolerate and which things were ok.

Thats been my experience the entire time as far as the testing. Its amazing. I dont get how it works.....but somehow it just knows everything that I'm struggling with.

I've now been saying that if the treatments actually work on me and if they clear my intolerances...I might want to become a practitioner myself!!

Just my gut instinct (well, whatever is left of my gut, anyway..... )

Karen...if thats what your instinct is telling you about this lady....then maybe you should go with that. I always trust my instinct and the times that I didnt...it was very bad outcomes.

[bluejeangirl]

I had this done many years ago. We had to fly to Reno Nev. to get it done. We were following the advice of a lady who thought the world of this clinic and how it helped her so much.

The thing I remember is holding that bar and her shoving all these plates into a machine that would represent the food. I tested high on everything. She made it sound like I was so sick. Then she made this liquid concoction and put it in a syringe and shot me up with it.

We both had a bad feeling about this clinic and I threw away all the test results.

It was a wasted plane ticket, wasted money on tests and wasted time as far as I'm concerned. I did have fun being at the peppermill casino however.

Gail

[Nancym]

This article might be Open Original Shared Link.

But to summarize, they're not legal to use in the US and anyone using them to diagnose disease is breaking the law and would be subject to all kinds of stuff including loss of license and quite probably fraud charges.

[loraleena]

I'll say it before and I'll say it again, you cannot trust quack watch. It is set up by anti-natural treatment people and they have been in trouble for false info. I really respect what Rachel has to say, and would like to see how things go for her. If you have any success Rachel, I am willing to check it out. This device is legal in Europe and has been used with success. The U.S. is always the last to know!

[Rachel--24]

This article might be Open Original Shared Link.

But to summarize, they're not legal to use in the US and anyone using them to diagnose disease is breaking the law and would be subject to all kinds of stuff including loss of license and quite probably fraud charges.

I dont EVER read anything from quackwatch. Heck.....they say that mercury in amalgams is "safe".

Ummm....I *know* first hand that its NOT.

They also say that MSG is safe...as far as I'm concerned anyone who takes quackwatch seriously could be putting themselves at risk.

I dont trust that site or anything they have to say.

I go to BioSET....I dont know where you get the idea that they are diagnosing diseases???

They dont diagnose disease. The testing is a diagnositic *tool*. For example......the practitioner can do testing and then tell a person that they are showing *signs* of having Lyme Disease. They would advise you to see a Dr. and get tested with blood tests from a lab.

This is how some people actually get to the root of their illness....by first testing with Bioset. Nothing is *forced* on you....you can choose to follow up on it or not.

If you read the link I posted previously.....this is how that guy got his diagnosis after 45 doctors NOT knowing what was wrong with him. The BioSET practitioner told him he had Lyme and a specific co-infection of Lyme. She told him to get tested. He didnt believe her but got tested anyway and everything she said was true. He had Lyme Disease and he tested positive for the same co-infection that she told him he had.

He is now very involved in helping others with Lyme Disease. If it werent for his BioSET testing he may still be sick without an answer....instead he is on the mend.

My story was the opposite...my Dr. suspected Lyme and ordered the blood tests. Lyme is very hard to diagnose and bloodtests arent always clear. Like I said.....I had positive results and equivocal results. It was enough for him to give me a diagnosis but he is VERY thorough and wanted to see what the BioSET tests had to say. He wanted to make sure he had it right. He said in his mind the results hold alot of weight because they are much more sensitive. If Lyme is there the BioSET test will pick it up.

In my case the BioSET test showed Lyme.....in a BIG way. The practitioner is very familiar with Lyme....just as much as my Dr. actually. Heck....even though she's not a "Dr." she knows a HECK of alot more than nearly every Dr. I've seen in the past 4 years. How sad is that?? Anyways she felt 100% sure that I have Lyme and it was enough to satisfy my Dr.

But noooo...he wasnt diagnosing me based on her results alone. He was diagnosing me on the WHOLE picture.....my symptoms, my history, the Igenix test results and the Bioset results. The Igenix results would be the most important.....because they are from a lab which specializes in Lyme.

For Lyme you actually dont need *any* test to come back positive because its a "clinical" diagnosis...based on history and symptoms. My Dr. and I both wanted to see positive test results and the more the better.

Anyways....when making a decision about something like this I value the opinion of others who have went through the process and I'm interested in what their experience was. That is what is most *credible* to me. I'm definately not interested in what Quackwatch has to say.

[Rachel--24]

I had this done many years ago. We had to fly to Reno Nev. to get it done. We were following the advice of a lady who thought the world of this clinic and how it helped her so much.

The thing I remember is holding that bar and her shoving all these plates into a machine that would represent the food. I tested high on everything. She made it sound like I was so sick. Then she made this liquid concoction and put it in a syringe and shot me up with it.

We both had a bad feeling about this clinic and I threw away all the test results.

It was a wasted plane ticket, wasted money on tests and wasted time as far as I'm concerned. I did have fun being at the peppermill casino however.

Gail

Gail,

I'm not sure exactly what type of testing you had done but it doesn't sound anything like BioSET. I never got shot up with any kind of "concoctions" either.

I really respect what Rachel has to say, and would like to see how things go for her. If you have any success Rachel, I am willing to check it out. This device is legal in Europe and has been used with success. The U.S. is always the last to know!

Thanks Loraleena,

I'm gonna post about how my treatments go and any progress I make (or dont make)....I'll keep you informed.

BioSET is not illegal here in the U.S. either....why would it be??

You're right though.....the US is always the last to know.

[mamaw]

Hi Everyone

Just thought I'd add my two cents on this topic. Since I have severe reactions to mainstream drugs I use alternative ways if possible..Yes, there are quacks out there, but I firmly believe if you find a reputable practitioner these things work... It's hard for some who only believe in mainstream drugs (which by the way are foreign to our bodies) to swallow tons of pills with terrible side effects & don't usually heal the symptom but kill the pain but the issue still remains.It is a two-way sword. I believe in doctors who believe in both types of treatments. Neither is 100% right but by using both , you get the best in both worlds.

I started out using NAET testing which helped me with food sensitivity. From there I moved on to BIO-SET which is about the same only that the NAET is done by muscle testing manually, where as BIO-SET is done on a computer giving a better or a more pinpointed result. I will say my practitioner never ever told me he could heal any autoimmune disease.. in fact every time I leave his office he says keep on the gluten-free diet, it is the only thing to do for celiac disease.

I used to have terrible reactions to all nightshade veggies (which I love) but since I did the BIO-SET I have no problems with them.... I was having a no-stop cough for several months. I went to my reg. doctor ,he put me through many tests. All came back fine so his final words were , I do not know what or why you have this cough. I went to my practitioner & he tested me &told me it was a medical drug I was taking. So back to my reg. doc-- I tell him this - he looks like I am a space alien & says quit taking the quinapril (drug). I did & in 5 weeks my cough is gone. I wasted time & energy taking all the tests plus all the co-pays to find out a drug was making me cough & the doctor who prescribed it didn't even think about that could be my problem.

I have been meeting new people in my area who have been having celiac related problems. I find out that several of them were or have been sick for a long time. How they finally found out they had a problem with wheat & gluten was by doing the Bio-set testing. It was a practitioner who told them to go to a medical facility &get an endo & a colonoscopy if they didn't believe him.

I can't say enough good for this type of easy testing.But again you need to have faith in who you are using.I pay $55.00 for a hour. If you are being charges a ton of cash then something is wrong.

In my family many of us use this testing with great results for many different issues.....

For me I would much rather put a vitamin & mineral in my system than a pile of drugs that has side effects, yes ,you can OD on vits& min.too.

This type of treatment is not for everybody, esp. if you think alternative medicine is a snake oil remedy. Remember this is what our forefathers used for hundreds of years......Canadian Karen if you don't feel comfortable -- stop the program because it will not help you & you would be wasting your hard earned dollar.

I think that was longer than the two cents worth of comment I said at the beginning...................

mamaw

[jerseyangel]

I feel the same way that mamaw does about this. I saw a Kinesiologist after years of trying to find out what was wrong with me. I had been to many medical doctors--GP's, specialists. I had test after test, was put on antibiotics that never did anything except make me sicker, was given steroids, and after years of this go-round, I was no better, and no closer to figuring out why I was ill.

In 2004, I reluctantly saw my sister's Kinesiologist--who she swears by. He uses muscle testing to determine which things the body is "allergic" to. (He uses the word allergic to mean any intolerance) I was found to be "allergic" to wheat, oats, barley, rye, soy, dairy, and coconut. I was to limit other grains and legumes to 2 oz. per week. At the time, I was a little taken aback because I was under the impression that these were "healthy" foods. With the exception of coconut, I was eating all of them.

Long story short, I did exactly what he suggested--and felt much better right away. But, I slowly slipped back to my former habits and was feeling ill again before long. I was still having trouble believing that food would have such an effect (!!)

As luck would have it, I saw an article in Prevention Magazine about Celiac Disease. It sounded awful, but I had to wonder--and thought back to how I felt off the wheat, oats, etc. I started reading everything I could get my hands on, which led me to the Gastroenterologist. Luckily, he listened to this long story, and agreed that I should be tested--for Celiac and to rule out other things.

So, although I don't really understand how these energy measuring techniques work exactly, I do think that there is something to it.

My advice to you, Karen, about this is to listen to your instincts--in general I believe that alternative practices can work in harmony with traditional medicine. Maybe this person just isn't the right one in your case.

When I began developing additional food intolerances (after going gluten-free), I found a good allergist/immunologist who worked with me on an elimination diet. Have you tried/considered this?

[Canadian Karen]

To all you guys who have seen these "alternative" practitioners, did you have to sign a waiver declaring that you weren't someone who was representing a government agency with the intent of entrapment? I guess the fact that I had to do that gave the whole thing an air of "illegality"........

Karen

[jerseyangel]

To all you guys who have seen these "alternative" practitioners, did you have to sign a waiver declaring that you weren't someone who was representing a government agency with the intent of entrapment? I guess the fact that I had to do that gave the whole thing an air of "illegality"........

Karen

No, I wasn't asked to sign anything. It all had a rather informal air about it.

The fact that you were asked to do so--does make it sound a little 'fishy' to me.