Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone?


tuffnikki

Recommended Posts

tuffnikki Newbie

Hi! I'm new here. I've been having lots of problems and suspecting celiac for a while now.

When I tell people my symptoms they look at me strangely.

I was wondering if any of you could relate?

sometimes when i eat certain foods, my stomach will bloat up and ache and it will go through my back and sometimes up my back a little bit. I get really nausiated and sometimes it makes me throw up. The only thing that i have found that will help it is sometimes a heating pad. I've went to the ER once because i was hurting and i wanted to know what was wrong...they didn't do any testing just told me it was a stomach flu. But it happens frequently sometimes happening in "season" so to speak.

I'm not sure if this is related but my immune system is awful. I get everything that comes around and have a hard time gaining weight. I'm only 23 and weigh 89 pounds. I eat all the time just can't gain weight. Does this sound familiar to anyone?

Thanks for the help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GeoffCJ Enthusiast
Hi! I'm new here. I've been having lots of problems and suspecting celiac for a while now.

When I tell people my symptoms they look at me strangely.

I was wondering if any of you could relate?

sometimes when i eat certain foods, my stomach will bloat up and ache and it will go through my back and sometimes up my back a little bit. I get really nausiated and sometimes it makes me throw up. The only thing that i have found that will help it is sometimes a heating pad. I've went to the ER once because i was hurting and i wanted to know what was wrong...they didn't do any testing just told me it was a stomach flu. But it happens frequently sometimes happening in "season" so to speak.

I'm not sure if this is related but my immune system is awful. I get everything that comes around and have a hard time gaining weight. I'm only 23 and weigh 89 pounds. I eat all the time just can't gain weight. Does this sound familiar to anyone?

Thanks for the help!

Sounds like it could be a suspect. I went through a lot of testing to try and figure things out, but you can very simply try a gluten free diet for a few weeks. If you feel better, then you know you are on the right track. Some people stop there. I personally wanted to know as precisely as I could what was wrong with me, so I did blood testing, and endoscopy, and Enterolab testing. Expensive and a pain, but I appreciated, after years of false diagnosis, a diagnosis that I felt relatively certain would be accurate.

Good luck!

Geoff

lonewolf Collaborator

Welcome!

You certainly sound like you could have a problem with gluten. Ask your doctor to run the Celiac Panel (blood test) for you. Make sure he runs the whole panel - all 5 tests. Hopefully someone will come on here and tell you the exact names of all 5 tests, I'm not sure I'd get it right. Anyway, I'd start with that. After the test, you can either wait to get a biopsy or just try the gluten free diet. Some people need a firm diagnosis, while others are convinced by positive results from the diet. There's always the chance that you could have gluten intolerance without Celiac Disease, which still requires a gluten-free diet, but won't show positive in any traditional test.

jerseyangel Proficient

Here are the tests in the Celiac Panel--

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

Just make sure not to cut down on gluten before the test, if you decide to have it. You need to be eating gluten--if not you will skew the results :)

Best of luck to you.

CMCM Rising Star

Here are the necessary blood tests...I copied this from Danna Korn's www.glutenfreedom.net site.

Blood: The blood test for celiac disease is looking for the following :

AGA (antigliadin) IgA

AGA (antigliadin) IgG

EMA (antiendomysial)

tTG (anti-tissue transglutaminase)

Total serum IgA

Genetics testing - DQ2, DQ8

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,205
    • Most Online (within 30 mins)
      7,748

    pinetopgarden
    Newest Member
    pinetopgarden
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.