In So Much Pain Is Tylenol An Anti Inflammatory And Safe?

[ravenwoodglass]

Lucky me I got glutened day before yesterday. As usual I managed to reinjure a torn ligament or tendon in my ankle while I was sleeping last night. It dislocated at about 3:30 am so it has been a long day. I have of course popped things back in place but it hurts really badly. Why does everything have to be so amplified by gluten, agggghhhh. And why wasn't I smart enough to tape up my joints before this happened, it's not like it is any surprise.

I am having a double scope done next week after having a real bad time with some scarey non gluten related (we think) V and D with bleeding.

I am not supposed to take asprin, all I have ever taken or needed since I was diagnosed, but the doc said I can't have that or Advil or any other anti inflammatory. It's on the little slip along with all the other stuff like the food I can't eat. Which is everything I eat daily. How I am going to keep my blood sugar stable with just basically white rice and canned fruit (a dieticians suggestion to a diet controled diabetic) I don't know. Might as well complain about everything while I am here I guess.

Anyway the big question is about the tylenol or what else could I take?

[Lisa]

I'll check and be back in a minute.

Tylenol Arthritis Pain Extended Relief Caplets

Tylenol Extra Strenght Caplets

Tylenol Extra Strength PM Gelcaps....all gluten free.

So sorry babe you are have such a rough time. I hope you feel better soon and get some relief. Well wishes for your upcomming test. Please feel free to PM me if you what to scream at someone.

[StrongerToday]

Sorry you're having a rough day. I would check with your dr., but I know Tylonel is gluten-free. My dad is diabetic and missing one kidney, and Tylonel is all he's allowed to take as the others are too hard for his remaining kidney.

[ravenwoodglass]

Thanks guys, it never rains but that it pours as they say. I just want to be able to sleep, there is just no comfy position for this ankle even taped. Suppose someday I should just see a surgeon the original bad injury is almost a year old now.

[Michi8]

Tylenol (acetaminophen) is not an anti-inflammatory.

Michelle

[darlindeb25]

Yes Raven, Tylenol is gluten free, but will do little to help your inflamation issues. Take Aleve, it works great and yes, it is gluten free. I have been having so much trouble with my neck and shoulders. I had a nerve conduction done and they found no pinched nerves. Tylenol and Excedrin did nothing. Another gluten intolerant friend told me to try Aleve. You take it 2 times a day and it does work.

[DebbieInCanada]

...I am having a double scope done next week after having a real bad time with some scarey non gluten related (we think) V and D with bleeding.

I am not supposed to take asprin, all I have ever taken or needed since I was diagnosed, but the doc said I can't have that or Advil or any other anti inflammatory. It's on the little slip along with all the other stuff like the food I can't eat.

...

Anyway the big question is about the tylenol or what else could I take?

So, does the doctor want you to stay off of all anti-inflammatory drugs in preparation for your scope? If so, Aleve is also an anti-inflammatory. That really sucks, because anything that would help with the swelling in your ankle would be anti-inflammatory.

Tylenol is not anti-inflammatory, only a pain killer. Be careful with your dose - it can be rough on your liver if you take too much or your liver is stressed.

Debbie

[JNBunnie1]

Aleve is made from naproxen, which is part of the non-steroidal anti-inflammatory family of drugs, called NSAIDS, along with ibuprofen. It works great, but if you can't have anti-inflammatories it won't work for you. I'd ask the doc for a low dose narcotic.

[NoGluGirl]

Aleve is made from naproxen, which is part of the non-steroidal anti-inflammatory family of drugs, called NSAIDS, along with ibuprofen. It works great, but if you can't have anti-inflammatories it won't work for you. I'd ask the doc for a low dose narcotic.

Dear JNBunnie1,

You are right. Aleve is a NSAID. I do not think that would be safe for ravenwoodglass. I would recommend her not take it, anyway. It sounds like she has bleeding issues that are quite serious.

Dear ravenwoodglass,

My grandmother got an ulcer from taking naproxen. It was the size of an orange, located between her duodenum and stomach. The bleeding she experienced from it caused her Alzheimer's to come on. If you take the Tylenol, be sure to eat when you take it. Damage can be caused by taking them on an empty stomach. Also, do not take more than the recommended dosage.

You would be surprised by how many people die each year from liver failure as a result of overdosing on acitomenophen. Much of the time, it is due to them having colds, and taking it along with cold formulas which they did not read the label and realize that it was already in it.

Sincerely,

NoGluGirl

[darlindeb25]

the doc said I can't have that or Advil or any other anti inflammatoryI'm sorry, I missed this. Very sorry about that.

[jerseyangel]

Ravenwood,

Stick to Tylenol for now

I personally use the Extra Strength Caplets and Gelcaps--both are safe. I had major surgery in January, and after I came home I used nothing stronger than the Tylenol and it did help.

You poor thing--I hope you get some relief soon

[ravenwoodglass]

Thanks everyone. After searching the house all I had with Tylenol was Nyguil. So I took that along with a valium I've had around for a year and sleep was acheived. Of course that combined with the glutening have given me my ususal pink pee. Fortunately the pain has lessened and I can go back to my 'just deal with it' mindset.

Boy I would have loved to have been able to get a low dose narcotic but after being misdiagnosed for so, so many years and many trips to the ER most of the medical folks where I live think I am a drug seeker.

They also have even less knowledge about what goes on wtih an Elhers Danlos person than they do about celiac. After years of telling me my knee didn't really dislocate (they don't believe I can actually put the joints back in myself) I was in another city the last time it happened and was sent to a surgeon, that surgeon actually believed me and operated a couple weeks later and repaired a torn meniscus and removed a lot of debis from all the past injuries that 'never happened'. That dislocation had happened when I just stood up, he asked if I played football. Unfortunately RSD set in before the stitches even came out. I had lost all muscle from where they put the tourniqet down. The knee worked great but it took 6 months of PT to get the muscles back to the point where I had legs the same size. I am afraid of the same thing happening with the ankle but I know I should get it repaired soon. Maybe gluten-free the RSD won't set in. I can hope that at least. For right now though I need to address the GI bleeding. Everytime I get glutened or get sick it gets worse.

The hardest thing about dealing with all this is the fear that I won't be around much longer. Unfortunately that is a very valid fear. I am so afraid that something will happen to me before my DS is at a point in his life where the family doesn't have to fear him 'doing something stupid' (suicide) when he is in a severe gluten funk. I am the only one he talks to, and while listening to the venting is hard I know it helps him. He has told me many times that the only reason he is still living is because he knows what losing him would do to me.

Sorry I'm off topic, I have to just keep going. Have to think positive. Have to go put on my happy the worlds great face and voice. Awful hard to do when your glutened. But it will pass.

Thanks you everyone for your input. It does help so much in my little restricted world to have someone, somewhere out in cyberspace to vent to. I can't talk to my DH about a lot of this because it upsets him so much that he can't do anything about it and celiac took all my freinds long before I was diagnosed.

[jerseyangel]

I'm glad you have this place to come to, Ravenwood

I'm not going to say that your fears are not valid, because as a mom, I know exactly where you're coming from. You are doing the very best you can, and I will pray that these tests will be able to put your mind at ease.

Take care, and I'm here anytime

[ravenwoodglass]

I'm glad you have this place to come to, Ravenwood

I'm not going to say that your fears are not valid, because as a mom, I know exactly where you're coming from. You are doing the very best you can, and I will pray that these tests will be able to put your mind at ease.

Take care, and I'm here anytime

Thanks Patti

[mamabear]

Ravenwood,

Just a word of caution. Pick one form of the acetaminophen(tylenol) to use.....like 8hr /arthritis strength which is long acting (650 mg per tablet ) or the regular(325mg regular acting) or extra strength(500mg regular acting). The maximum dosage recommended is 4000 mg per day....I personally never get close to that amount. So it would be maximum 6 arthritis/8hr per day ...or 12 325mg regular strength per day ..or 8 500mg XS per day. It states on the 8hr bottles do not mix with other forms of acetaminophen because of the varying amount of time they are active in your body.

Hope your ankle feels better soon.

[ravenwoodglass]

Ravenwood,

Just a word of caution. Pick one form of the acetaminophen(tylenol) to use.....like 8hr /arthritis strength which is long acting (650 mg per tablet ) or the regular(325mg regular acting) or extra strength(500mg regular acting). The maximum dosage recommended is 4000 mg per day....I personally never get close to that amount. So it would be maximum 6 arthritis/8hr per day ...or 12 325mg regular strength per day ..or 8 500mg XS per day. It states on the 8hr bottles do not mix with other forms of acetaminophen because of the varying amount of time they are active in your body.

Hope your ankle feels better soon.

Thanks for the word to the wise. It can be easy for folks to overdo it on those especially when they mix.

I don't usually take anything, but between the gluten and the ankle I was a hurting puppy. All of the OTC pain relievers, and most script ones, are real hard on the liver or kidneys or both so I only use them when really really needed.

Thank goodness things are much better today. I don't know if it was the valium I took or what but I am not having the post gluten jaw clenching and shakes like I usually get. I certainly don't mind.

[NoGluGirl]

Thanks for the word to the wise. It can be easy for folks to overdo it on those especially when they mix.

I don't usually take anything, but between the gluten and the ankle I was a hurting puppy. All of the OTC pain relievers, and most script ones, are real hard on the liver or kidneys or both so I only use them when really really needed.

Thank goodness things are much better today. I don't know if it was the valium I took or what but I am not having the post gluten jaw clenching and shakes like I usually get. I certainly don't mind.

Dear ravenwoodglass,

I hope these tests reveal the trouble! Then maybe you can get it fixed! The GI bleeding is serious. That really must be taken care of. My grandmother had such a bad ulcer, they put her on Protonix, which is amazing. It practically healed completely in a week! That is incredible considering its size.

Gluten irritates everything. It can bother those injuries more. The GI bleeding my have even caused it. Stress makes everything worse. Just make sure to be careful with those Tylenols!

It is okay for you to vent. You have to. Bottling up everything inside is not good for you. That makes things harder on you. We are all here for you! This forum has been a godsend to all of us!

Sincerely,

NoGluGirl

[ravenwoodglass]

Thanks again everyone.

NoGluGirl, I alos hope that whatever is causing the bleeding is found quickly, although I have a feeling I will be facing 'the knife' after the tests.

For me all this bleeding didn't start until I did the gluten challenge after being gluten free for a month. I had never bled before even though my D was daily and for the last 5 years of my misdiagnosis I would be up every night with it for 3 hours and it was very violent. But before my challenge I didn't bleed. Now whenever I get a severe glutening or other GI thing I bleed for hours after the D is done. This is what makes me so against oral gluten challenges. I do think my GI will figure this out though. It is not like it's celiac after all, he still apologizes for misdiagnosing me for so long.

On a bright note, he had not seen me since my diagnosis. You should have seen his face. Last time he saw me I was on canes, bloated, covered in oozing sores, had technicolor skin (livedo reticularis) and missing a lot of hair. My skin is now nice and clear and normal color, my hair is thick and shot through with gray rather than almost all white and I move for the most part like everyone else. He looked at me, looked at the chart again then looked back and said, "My Gosh you look great". If he had any doubt about diagnosing me without the biopsy, (I was still curled up by the toilet from the challenge and didn't make it) it was gone that day.