-
Welcome to Celiac.com!
You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
-
Get Celiac.com Updates:Support Our Content
Archived
This topic is now archived and is closed to further replies.
-
Get Celiac.com Updates:Support Celiac.com:
-
Celiac.com Sponsor (A17):
Celiac.com Sponsor (A17):
Celiac.com Sponsors (A17-M):
-
Recent Activity
-
- trents replied to Jillian83's topic in Introduce Yourself / Share Stuff1Celiac and dermatitis herpetiformis has taken Me from Me
Is this man the father of your children? -
- Jillian83 posted a topic in Introduce Yourself / Share Stuff1Celiac and dermatitis herpetiformis has taken Me from Me
Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without... -
- cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications11Ibuprofen
@Colleen H I am just curious, when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium. Might be worth looking into having some more tests. Pins and needles can be neuropathy, again caused... -
- Me,Sue commented on Scott Adams's article in Additional Concerns1Celiac Patients and the Future of Gluten-Free Prescriptions in the UK
This is an interesting article, and I personally feel that the direction of travel is to NOT prescribe gluten free bread in the UK in all areas. I myself have stopped buying gluten free bread because of the cost.- 1
-
- celiac disease
- cost
- (and 8 more)
-
- Me,Sue posted a topic in Introduce Yourself / Share Stuff0
Knowing what to do when feeling unwell.
I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed...
-
-
Celiac.com Sponsor (A19):
-
Member Statistics
-
Celiac.com Sponsor (A20):
-
Forum Statistics
-
Total Topics121.4k
-
Total Posts1m
-
-
Celiac.com Sponsor (A22):
-
Who's Online (See full list)
-
Celiac.com Sponsor (A21):
-
Upcoming Events
-
Posts
-
Is this man the father of your children?
-
Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable. this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing.
-
@Colleen H I am just curious, when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium. Might be worth looking into having some more tests. Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12, which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis. I was very iron anemic and supplementation made a big difference. B12 was low normal, but in other countries the UK's low normal would be considered a deficiency. My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed. My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals. But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill. (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut? I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening. When this happens, I take for just a few days a small daily dose of OTC omeprazole. I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals. When I get a sore stomach, I also find it helpful to drink lots of water. I also find hot water with a few slices of ginger very soothing to sip, or camomile tea. A wedge pillow at night is good for reflux. Also, best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana
-
I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
-
Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
-
Recommended Posts
I do not have personal experience but my mom was a vegie for a while. When she started eating meat again it did not always sit well with her. It took several months for this "feeling" to go away. Keep in mind she was not dx as celiac yet so that might have had something to do with it as well. Hope you find better health with or without it!
Hez
We were veg or vegan for 8 years.
We've added meat back in due to all our intolerances. Amazingly we didn't have any problems picking back up on meat products. We buy our beef and chicken from www.uswellnessmeats.com
Wonderful meat.....100% grass fed.
Start out slow just in case though.
BTW, we all feel much better eating meat than not eating it. I really think it depends on each person. Some do better with, some do better without.....you have to listen to your body.
thanks for everyone reponses. i'm also blood type O which is supposed to eat meat. i hate meat, it grosses me out but im gonna try and see- maybe i wnot feel exhausted all the time.
thanks
I feel for you. I haven't eaten meat ever in my life, but now that I can't eat SO many things and I am so sick of the stuff I do eat after two years, I have seriously considered it. I just wouldn't have a clue how to cook it. Plus, I am scared my body wouldn't know what to do with it. Beans don't seem to agree with me very well and that is what I have been eating alot of the past two years. Goodluck trying it and let us know how it goes.
Monica
What kinds of bean and/or bean products have you tried?
My middle daughter didn't eat meat for probably 10 years. She wasn't a strict vegetarian, but simply didn't eat meat. Not too long after she was diagnosed, she began to eat it again, fearing she couldn't get the protein she needed. It didn't take her long to begin saying, "Man... I missed this stuff!!"
I was a pretty lax vegetarian for a couple of years.... my girlfriend was so I only ate meat viviting parents etc.
I had a friend that was vegetarian strictly for 7....
I think if you think its disgusting its going to sit badly... regardless...
As an example I always haten fish, especially fishy-fish (if that makes any sense) but after diagnosis I ended up eating sushi...
First few times I really gagged... it was a struggle to just keep it down and after it felt like lead...
I'd say the main thing is quality meat/fish in small amounts... better a little organic beef than a burger or steak of supermarket meat?
Overall I'd say why not just gradually introduce it as a subsistute in your normal veggie diet...
A little in a stir-fry instead of a steak .... some chicken in a fajita with LOTS of vegetables. etc. ??
We require amazingly little meat to get our daily dose... of proteins... so I don't think either the standard meat 3 times a day or strict vegan is healthy .. rather sometihng inbetween in moderation...
Personally now I tend to eat meat once a day... sometimes a huge steak but sometimes just a bit of chicken in a risotto or something... So instead of making meat meals make meals with some meat???
For me, I buy organic free-range chicken and my conscious feels better about it. First, if you can afford it, organic tastes really great. Second, at least I know they had a quality life before they went to market. I only buy one or two chickens a month. This gives us three meals of chicken. Then I make stock/soup with the leftover carcasses. I also eat fish and shellfish.
I tried beef after not eating it for many years and I didn't like the taste anymore. Even though I like pork, I just can't bring myself to eat it anymore.
Start slowly! Your body needs to gear up to produce the proper enzymes to digest the meat. Might take a couple of weeks to adapt.
I was once vegetarian, had horrible problems with blood sugar. Would probably be diabetic by now if I'd kept it up. I'm finding the Paleo diet is doing me a lot of good.
I ate red meat when my boyfriend said, "Baby, there's nothing on this menu you can have!"I ate steak strips on a salad. (It was late at night and I hadn't eaten all day, so a salad wasn't going to cut it.)My stomach hurt.
And since then, I've eaten it once or twice a week with NO problems.
I only eat good quality steak and good quality ground beef, and pork ribs.
It was weird cooking it, to be honest.
btw-- b4 dx, when iron was too low to give blood- I was perplexed since I ate so many dark green veggies, and do you know what the blood bank people tell you to eat to raise iron? CREAM of WHEAT!! It has TONS more iron per gram than any meat or veggie!! I ate it, was so sick(didn't know about celiac yet), but my iron skyrocketed in just a few weeks!
so i had a few pieces of chicken last night- just two bites really was all i could handle mentally. i didnt get any weird stomach aches so thats good. i guess ill slowly just increase it to three bites and then four bites- it tastes so weird!!
Glad at least it didn't make you feel sick
I went about 10 years only eating chicken or turkey occasionally. No red meats at all--I was prettty strict with it. When I tried steak for the first time after that, it tasted odd--very strong and the texture took some getting used to again.
I'm glad I went back to eating meat because since I've been gluten-free, I can't tolerate plant proteins at all.
I think your plan is a good one--go slowly and carefully to see how different things sit.
I just started eating meat again after five years of being veggie. I find that meat sits well in my stomach. I never feel sick after eating it. Veggies and grains do not always sit well, I think because they're harder for the body to digest. It's frustrating because I want to not eat meat, but I know it won't make me sick and on days when my stomach is already upset, I don't want to eat a bunch of veggies and make it worse. I do buy free range/hormone free.
Oh, the one meat that doesn't sit well is beef. That always seems to upset the stomach so I don't eat it. Chicken, turkey, fish, etc seem to be ok.
Groan...I'm dealing with this right now. I've been a vegetarian for 30 years, but with my current problems, I am running out of foods to eat. Several of my friends have been suggesting that I should start eating meat again, but I just can't imagine it. I'm not a radical vegetarian by any stretch (one of my friends is a deer hunter), but when I visualize eating meat again, I just picture myself throwing up all over the place. My vegetarianism is real tied into my identity, plus I have a real aversion to meat. I am going to try eggs this weekend, though. Maybe that will be enough.
I credit eating meat again for helping me figure out my Celiac!
I had been vegan/vegetarian/pescatarian (in that order) for 12 years, and been having celiac symptoms for about as long. Last September, while in England, I fell off the wagon when a favorite aunt made a favorite child hood meat dish. Loved it.
Starting eating meat again, a few weeks or a month after returning, went on the South Beach diet to lose weight, something I'd never consider before because I thought it would be too hard as a vegetarian. Lot's of things started feeling better. One thing leads to another, and I figure out the Celiac and get diagnosed.
My wife likes to joke about the 3 weeks she's known me where I could order anything on the menu.
What's so funny is how I remember eating vegetarian things that were meant to taste like meat. You'd think it'd be just a quick hop back to real meat...