Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Cheating A Possibility At All On This Diet?


Jamie

Recommended Posts

Jamie Contributor

Hi, I was just diagnosed last Tuesday with bloodwork. I have been gluten free since Wed. I don't feel much different. I was wondering.. what would happen to me if every once and a while I cheated on purpose(special occasions.. things like that)... or if I accidentally ate something with a trace of wheat in it...

Before being diagnosed my symptoms were only gas, bloating and constipation. Does this mean I can handle cheating every now and then because my symptoms aren't severe... or can handle it if accidentally gluten gets into my food (cross contamination.. ect)... I know some people react badly and get really sick.

I am new to this, am researching everything, but still don't understand it all yet. Anything you could help me with would be great.

-Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

Hello! Well, I am sorry to say that this is a no cheating game. I was shocked when I found that out, but to be healthy and not damage our bodies we have to be 100% gluten-free 100% of the time. Also, after you are gluten-free for awhile, it will hurt sooooooooooooo much worse when you eat gluten. It is a scary thing and not worth it at all.

Gluten to us is poison. That is hard to imagine at first, but it is true. It damages our insides. This doesn't mean you have to miss out on things. There are gluten-free substitutes for pretty much everything, even beer. There are places we can eat out in but it takes awhile to get this lifestyle figured out. Start off slow and learn what you can and in a few months you'll feel more comfortable and a lot better.

Good luck!

tom Contributor

I spent a few years in the 90s thinking a little was ok if I had no symptoms or easily manageable ones.

It ended up costing me 7-8yrs of my life.

Some CC may be unavoidable, but it'd be a (potentially huge) mistake to do what I did.

curlyfries Contributor

Welcome Jamie! :)

Sorry......no cheating whatsoever! A celiac is a celiac......whether the symptoms are extreme or mild or none. The damage done by gluten will be the same. Accidents will happen, especially at first, but you don't want to do it intentionally. You may find that once you are gluten free, your symptoms when glutened will be more severe. Your body will have realized what it feels like to be gluten-free, and will have none of that! <_<

You haven't been gluten-free long. It may take awhile for you to feel a difference. You may also find that other health issues you didn't think were related begin to improve. Keep reading. You will learn a lot here. :D

Here is a good site to start with

Open Original Shared Link

Let us know if you have any other questions!

pele Rookie

I heard it explained by a NP recently that by the time symptoms occur, your body has been struggling to cope with gluten damage for a long time. Symptoms just mean that your immune system can't take it anymore. Cheating is not worth it.

rinne Apprentice
...

Before being diagnosed my symptoms were only gas, bloating and constipation. Does this mean I can handle cheating every now and then because my symptoms aren't severe... or can handle it if accidentally gluten gets into my food (cross contamination.. ect)... I know some people react badly and get really sick.

.... -Thanks

Hi and welcome. :)

I knew for many years that wheat did not agree with me, my symptoms were your symtoms, gas, bloating and constipation and so for the most part I did avoid wheat BUT for special occasions I would still eat it knowing that for a day or two I would feel bad. One day that changed and now the slightest bit of gluten causes me agony.

You are extremely fortunate to have a diagnosis at this point , believe me you don't want to go where I went. :)

I am wondering how you got your diagnosis?

MELINE Enthusiast

Before diagnosis I would eat huge amounts of gluten. Now the slightest trace makes me sick for at least 24 hours.

When something is making us sick, the problem is not that we can't go out for a drink (for example..) . The problem is that the whole body is struggling at the time to cope with an invisible enemy. Your whole immune system is shuting down in order to deal only with the enemy. So that means that you are left in the war without a weapon. ....

Nature is wise. When our bodies ache, it is because we HAVE to know that something is not going well.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



luvs2eat Collaborator

Nope... there's no cheating on the gluten-free diet... simple as that.

I used to hope I might be able cheat occasionally, but the longer I've been gluten-free, the more sensitive I've become. I would NEVER, EVER intentionally cheat now... EVER!!!

gfwb Newbie

One of the hardest social situations is trying to get non celiacs to understand that celiac isn't like diabetes or a weight-loss diet. You can just cheat and take more insulin or work out a little harder. I almost think it is harder for celiacs like yourself--who didn't suffer complete systemic symptoms. After having anemia, hair loss, rickets, migraines, etc., cheating doesn't even look like fun. Hopefully, you'll start to see a big improvement in the quality of your life on a gluten-free diet, so that cheating won't be an attractive option.

Jamie Contributor

I am wondering how you got your diagnosis?

happygirl Collaborator

If you feel that a definite confirmation of the diagnosis (via biopsy) would help you adhere to the diet, then it may certainly be worthwhile.

Which blood tests were positive?

Jamie Contributor
If you feel that a definite confirmation of the diagnosis (via biopsy) would help you adhere to the diet, then it may certainly be worthwhile.

Which blood tests were positive?

My doctor called me and all he said was .. you have Celiac disease ... your blood work came out great.. but your anti bodies are abnormally hight toward gluten... everything else is perfectly in range

happygirl Collaborator

It may be helpful to have a follow up appointment to talk with your doctor about the next steps, and get a copy of your bloodwork as well.

Jamie Contributor
It may be helpful to have a follow up appointment to talk with your doctor about the next steps, and get a copy of your bloodwork as well.

Do you think there is a possibility that I have gluten intolerance... and not celiac?

happygirl Collaborator
Do you think there is a possibility that I have gluten intolerance... and not celiac?

Unfortunately, there is no way to know that without knowing what blood tests were run and what the results are, and discussing that with your doctor.

UnhappyCoeliac Enthusiast

I dont have much to add, been to a special dietitian specializing in coelicas asked if birthday xmas etc i could cheat, she answered like most here.... never

its all about alternatives I think

rinne Apprentice
....

I had blood work done and my antibodies were high toward gluten. Is that def celiac right there? Or should I get an endoscopy just for a second opinion before making this life change?

I would take it as a diagnosis but then I don't like tests. :) As Laura said you could ask for an endoscopy but since your doctor was conclusive in his/her diagnosis perhaps just discussing it would be a good start. On the other hand, an endoscopy may provide a picture of the damage that is done, but for you to have one you would have to continue to eat gluten until then as once we stop consuming gluten we start to heal.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,246
    • Most Online (within 30 mins)
      7,748

    IRENEG6
    Newest Member
    IRENEG6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.