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Then Last Item With Gluten You Ate...

VegasCeliacBuckeye

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darlindeb25 Collaborator
darlindeb25
Posted
:P a really good elephant ear should not be greasy--it is like a very a very flat donut--they are ususally dropped into hot oil and removed--if placed on a paper towel and flopped over--then rolled in cinnamon and sugar--ohhhhhhh man--they are very good--sweet and flaky-------------i think probably the last thing i ate was hot ham and cheese on aunt millies buttermilk bread--i loved it---deb
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  • Replies 86
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Guest vetnurse
Guest vetnurse
Posted

The last thing I can remember eating with Gluten was a big salty pretzel and a sabrett hot dog (no bun) at a NY Yankee Game, it was the 4th Inning and I had to fight to stay awake for the rest of the game.

  • 11 months later...
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

I wish it was wedding cake!

skoki-mom Explorer
skoki-mom
Posted

Kentucky Fried Chicken. I'd been eating normally for 36 years with no symptoms, so the day of my biopsy I decided I'd have a gluteny dinner for the last time and start the next day. Had a heck of a time trying to decide between the chicken dinner or the Big Crunch Sandwich. I kinda wish now I'd had the Big Crunch, lol.

francelajoie Explorer
francelajoie
Posted

Last Xmas, I had some very dense chocolate chip square that was so yummy I had 2! :(

Worse thing about it, it never bothered me except for a little gas the next morning.

skoki-mom Explorer
skoki-mom
Posted
Beer and Cookie dough ice cream for an endoscopy-a little too much of both.

Sometimes when I 'm really bored in class and in the mood to torture myself, I'll make a list of all my favorite foods that I'll eat one of these days when we're cured.

LOL! Sometimes I think a cure would be a bad thing for me! I'd probably put on about 300 lbs the first week! I don't even know where I'd start.................

jkmunchkin Rising Star
jkmunchkin
Posted

I think the last gluten item I ate before becoming gluten free was a Crumbs cupcake at bakery in East Hampton last 4th of July weekend. I happily sat on a bench and ate my devils food cupcake with oreo bits on top knowing this was going to be my last. (I had gotten my blood results back at that point and was still awaiting the biopsy results, so I figured I would live it up until then).

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penguin Community Regular
penguin
Posted

Dinner at Macaroni grill, with pasta and an ENTIRE LOAF of french bread.

I wish I would have gone to KFC, gotten a loaf of french bread on the way home, and a tube of pillsbury cookie dough.

tarnalberry Community Regular
tarnalberry
Posted

a ruth's hemp bar - didn't realize some of the flavors of hemp bar (not flax bar) had barley malt and oats. darnit! it wasn't too bad, but still annoying.

Mango04 Enthusiast
Mango04
Posted

Rubios Health Mex chicken taco combo. I wish it was something like french bread or a soft pretzel...but I don't remember the last time I ate real bread.

kabowman Explorer
kabowman
Posted

I had forgotten - after the fair and the elephant ear, I went home and had a couple of cold beers to wash it down with - if I was going out, I was going out in STYLE!!!

I haven't touched anything with gluten intentionally since!

megzmc3611 Rookie
megzmc3611
Posted

I was very drunk and said "to heck with it" and chowed down an entire

large bag of Doritos (my favorite junkfood)...

Felt horrible for over a week and now no amount of alcohol can inhibit my gluten-free senses!

mouse Enthusiast
mouse
Posted

15 months ago I went to PF Changs and ordered EVERY gluten filled appetiser they had on the menu. A couple of them I made into double orders. It was really OINK OINK time. I still think of those appetisers. Not a lettuce wrap among them.

whitball Explorer
whitball
Posted

I love beer, so I drank a six pack of Foster's Lager. I drank it throughout the day and cherished every sip!

Green12 Enthusiast
Green12
Posted

Pizza, chocolate cake, and cheesecake, my weaknesses once upon a time...

DingoGirl Enthusiast
DingoGirl
Posted
Elephant ears are made of the same thing as funnel cakes -- puffy dough and loads of powdered sugar. Very common at State/County Fairs

I miss them....

never wanted one in my whole life, would look at those funnel cakes, and think, wow, how utterly vomitous. Now, what I wouldn't give (only half joking...fried dough is somehow really appealing to me now).

my last thing.....the day of endoscopy/colonoscopy, and he told me right then I had advanced Celiac and not one villi, I didn't care, my friend drove me straight to the grocery deli and I ate about six pieces of the most yummy fried chicken. It was SO delicious....

Susan

Clark Bent as Stupor-Man Contributor
Clark Bent as Stupor-Man
Posted

last thing I remember intentionally eating with gluten was cheese fries and a nice, fat cheeseburger from windmill... I was trying to increase my gluten intake that day for an antibody blood test the next morning... not that one day of eating any substantial amount of gluten would matter but I figured why not enjoy a good meal..

CarlaB Enthusiast
CarlaB
Posted

When I went on my gluten challenge for six weeks, I ate Big Macs (someday I WILL go to Findland for a gluten-free one), McGriddles, scones, pizza. All I remember is that they were making me so sick that it was all I could do to choke them down after a while. It certainly made me not want to cheat, even after my tests were all inconclusive! (I was eventually diagnosed by Enterolab)

jaten Enthusiast
jaten
Posted

I haven't cheated at all since being diagnosed. I remember my "last supper" well, however. It was a Friday nite and dh called and said, "Why don't I pick up some ribs from..... on my way home?" Now, I'd been having gi issues for months, and was dropping 5 lbs a week without knowing why. All tests were coming back negative. This place is well known for its ribs, so I thought, yeah, what the heck, it sounded good. I had ribs, slaw, baked beans, and a roll. Yummy! In less than 20 minutes I was 10 x sicker than the sickest I had ever been. This lasted on through the nite, and by Sat a.m. I was in the hospital. There wasn't much left to test me for, so they decided to test me for e coli....negative of course. 3 days later, still in the hospital, a dr. said, "Gluten!" when I told him that for several months I'd not even been able to eat toast without getting sick. Do I even need to tell you what tests finally came back overwhelmingly positive???? Complete villous atrophy.

Although I'd been on a fast downhill slide, I suppose that 1 roll and possibly rib seasoning was my final tipping point.

Life insists you have a sense of humor; everyday coming home from work, I pass the billboard advertising those ribs :wacko:

JenAnderson Rookie
JenAnderson
Posted

Mine was a sandwich...just a ham and cheese sandwich. With Doritos.

Beer and Cookie dough ice cream for an endoscopy-a little too much of both.

Sometimes when I 'm really bored in class and in the mood to torture myself, I'll make a list of all my favorite foods that I'll eat one of these days when we're cured.

I do that too...it's in the back of my Day Planner. :ph34r:

megzmc3611 Rookie
megzmc3611
Posted

I did not really have a "last supper". I was so sick, when my doctor gave me the blood tests...my levels were so high that he told me to start the gluten-free diet right away, that he did not think a week would make a difference with my endoscopy (as he had it scheduled for one week later)..

Everything I was eating at that point made me feel awful, so nothing was enjoyable.

I think that is why I had my drunken breakdown with the doritos...I had finally started enjoying food again and was craving those yummy chips!

If I could have my last hoorah, I really think I would go to Outback and get a no rules burger with everything and a double order of cheesefries!

2Boys4Me Enthusiast
2Boys4Me
Posted

I'm answering for my six year old son. I know that the night we found out we were having Chicken Caesar salad and sourdough bread. I had to scramble to find a gluten-free Caesar dressing, but I did - he didn't have the bread or croutons. I'll bet it was Honey Nut Cheerios. He lived on those things. He probably had two bowls for breakfast, I don't know about lunch...we found out after lunch. He still looks at the box of Honey Nut Cheerios at the store from time to time and sighs and says I loved Honey nut. Then he walks away.

megzmc3611 Rookie
megzmc3611
Posted
Mine was a sandwich...just a ham and cheese sandwich. With Doritos.

I do that too...it's in the back of my Day Planner. :ph34r:

My sister and I use to sit on our couch and talk about what our last hoorah meal would be if a meteor was coming and the world was going to end....

And also if the meteor was coming and we could only go to one aisle of the grocery store, what aisle would it be ?(yes we have problems and are obsessed with eating!). At the time I never even thought I would be restricted from so much food....

My sister has celiac too, so now our discussions are "what we would eat if we could have gluten"...

natalunia Rookie
natalunia
Posted

Beer (was eating Brisket, potato salad and baked beans, so you have to have beer), sliced white bread with brisket and fixins, and cheesecake for dessert.

hez Enthusiast
hez
Posted

I was like megzmc3611. I was told to go on the gluten-free diet about two weeks before the endo. The doctor was hopeful that she would see some villi. Unfortunatly, not a one was found. So my "last supper" (I even called it that) was some crappy leftovers :angry: I was too tired to make dinner. Had I known then what I know now I would have gone out to dinner at least! The reality was that I was so sick food was not enjoyable. If I could do the day over I would eat out for breakfast, lunch and dinner with oreos and krispy kremes for a snack.

Hez

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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