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Then Last Item With Gluten You Ate...

VegasCeliacBuckeye

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darlindeb25 Collaborator
darlindeb25
Posted
:P a really good elephant ear should not be greasy--it is like a very a very flat donut--they are ususally dropped into hot oil and removed--if placed on a paper towel and flopped over--then rolled in cinnamon and sugar--ohhhhhhh man--they are very good--sweet and flaky-------------i think probably the last thing i ate was hot ham and cheese on aunt millies buttermilk bread--i loved it---deb
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Guest vetnurse
Guest vetnurse
Posted

The last thing I can remember eating with Gluten was a big salty pretzel and a sabrett hot dog (no bun) at a NY Yankee Game, it was the 4th Inning and I had to fight to stay awake for the rest of the game.

  • 11 months later...
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

I wish it was wedding cake!

skoki-mom Explorer
skoki-mom
Posted

Kentucky Fried Chicken. I'd been eating normally for 36 years with no symptoms, so the day of my biopsy I decided I'd have a gluteny dinner for the last time and start the next day. Had a heck of a time trying to decide between the chicken dinner or the Big Crunch Sandwich. I kinda wish now I'd had the Big Crunch, lol.

francelajoie Explorer
francelajoie
Posted

Last Xmas, I had some very dense chocolate chip square that was so yummy I had 2! :(

Worse thing about it, it never bothered me except for a little gas the next morning.

skoki-mom Explorer
skoki-mom
Posted
Beer and Cookie dough ice cream for an endoscopy-a little too much of both.

Sometimes when I 'm really bored in class and in the mood to torture myself, I'll make a list of all my favorite foods that I'll eat one of these days when we're cured.

LOL! Sometimes I think a cure would be a bad thing for me! I'd probably put on about 300 lbs the first week! I don't even know where I'd start.................

jkmunchkin Rising Star
jkmunchkin
Posted

I think the last gluten item I ate before becoming gluten free was a Crumbs cupcake at bakery in East Hampton last 4th of July weekend. I happily sat on a bench and ate my devils food cupcake with oreo bits on top knowing this was going to be my last. (I had gotten my blood results back at that point and was still awaiting the biopsy results, so I figured I would live it up until then).

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penguin Community Regular
penguin
Posted

Dinner at Macaroni grill, with pasta and an ENTIRE LOAF of french bread.

I wish I would have gone to KFC, gotten a loaf of french bread on the way home, and a tube of pillsbury cookie dough.

tarnalberry Community Regular
tarnalberry
Posted

a ruth's hemp bar - didn't realize some of the flavors of hemp bar (not flax bar) had barley malt and oats. darnit! it wasn't too bad, but still annoying.

Mango04 Enthusiast
Mango04
Posted

Rubios Health Mex chicken taco combo. I wish it was something like french bread or a soft pretzel...but I don't remember the last time I ate real bread.

kabowman Explorer
kabowman
Posted

I had forgotten - after the fair and the elephant ear, I went home and had a couple of cold beers to wash it down with - if I was going out, I was going out in STYLE!!!

I haven't touched anything with gluten intentionally since!

megzmc3611 Rookie
megzmc3611
Posted

I was very drunk and said "to heck with it" and chowed down an entire

large bag of Doritos (my favorite junkfood)...

Felt horrible for over a week and now no amount of alcohol can inhibit my gluten-free senses!

mouse Enthusiast
mouse
Posted

15 months ago I went to PF Changs and ordered EVERY gluten filled appetiser they had on the menu. A couple of them I made into double orders. It was really OINK OINK time. I still think of those appetisers. Not a lettuce wrap among them.

whitball Explorer
whitball
Posted

I love beer, so I drank a six pack of Foster's Lager. I drank it throughout the day and cherished every sip!

Green12 Enthusiast
Green12
Posted

Pizza, chocolate cake, and cheesecake, my weaknesses once upon a time...

DingoGirl Enthusiast
DingoGirl
Posted
Elephant ears are made of the same thing as funnel cakes -- puffy dough and loads of powdered sugar. Very common at State/County Fairs

I miss them....

never wanted one in my whole life, would look at those funnel cakes, and think, wow, how utterly vomitous. Now, what I wouldn't give (only half joking...fried dough is somehow really appealing to me now).

my last thing.....the day of endoscopy/colonoscopy, and he told me right then I had advanced Celiac and not one villi, I didn't care, my friend drove me straight to the grocery deli and I ate about six pieces of the most yummy fried chicken. It was SO delicious....

Susan

Clark Bent as Stupor-Man Contributor
Clark Bent as Stupor-Man
Posted

last thing I remember intentionally eating with gluten was cheese fries and a nice, fat cheeseburger from windmill... I was trying to increase my gluten intake that day for an antibody blood test the next morning... not that one day of eating any substantial amount of gluten would matter but I figured why not enjoy a good meal..

CarlaB Enthusiast
CarlaB
Posted

When I went on my gluten challenge for six weeks, I ate Big Macs (someday I WILL go to Findland for a gluten-free one), McGriddles, scones, pizza. All I remember is that they were making me so sick that it was all I could do to choke them down after a while. It certainly made me not want to cheat, even after my tests were all inconclusive! (I was eventually diagnosed by Enterolab)

jaten Enthusiast
jaten
Posted

I haven't cheated at all since being diagnosed. I remember my "last supper" well, however. It was a Friday nite and dh called and said, "Why don't I pick up some ribs from..... on my way home?" Now, I'd been having gi issues for months, and was dropping 5 lbs a week without knowing why. All tests were coming back negative. This place is well known for its ribs, so I thought, yeah, what the heck, it sounded good. I had ribs, slaw, baked beans, and a roll. Yummy! In less than 20 minutes I was 10 x sicker than the sickest I had ever been. This lasted on through the nite, and by Sat a.m. I was in the hospital. There wasn't much left to test me for, so they decided to test me for e coli....negative of course. 3 days later, still in the hospital, a dr. said, "Gluten!" when I told him that for several months I'd not even been able to eat toast without getting sick. Do I even need to tell you what tests finally came back overwhelmingly positive???? Complete villous atrophy.

Although I'd been on a fast downhill slide, I suppose that 1 roll and possibly rib seasoning was my final tipping point.

Life insists you have a sense of humor; everyday coming home from work, I pass the billboard advertising those ribs :wacko:

JenAnderson Rookie
JenAnderson
Posted

Mine was a sandwich...just a ham and cheese sandwich. With Doritos.

Beer and Cookie dough ice cream for an endoscopy-a little too much of both.

Sometimes when I 'm really bored in class and in the mood to torture myself, I'll make a list of all my favorite foods that I'll eat one of these days when we're cured.

I do that too...it's in the back of my Day Planner. :ph34r:

megzmc3611 Rookie
megzmc3611
Posted

I did not really have a "last supper". I was so sick, when my doctor gave me the blood tests...my levels were so high that he told me to start the gluten-free diet right away, that he did not think a week would make a difference with my endoscopy (as he had it scheduled for one week later)..

Everything I was eating at that point made me feel awful, so nothing was enjoyable.

I think that is why I had my drunken breakdown with the doritos...I had finally started enjoying food again and was craving those yummy chips!

If I could have my last hoorah, I really think I would go to Outback and get a no rules burger with everything and a double order of cheesefries!

2Boys4Me Enthusiast
2Boys4Me
Posted

I'm answering for my six year old son. I know that the night we found out we were having Chicken Caesar salad and sourdough bread. I had to scramble to find a gluten-free Caesar dressing, but I did - he didn't have the bread or croutons. I'll bet it was Honey Nut Cheerios. He lived on those things. He probably had two bowls for breakfast, I don't know about lunch...we found out after lunch. He still looks at the box of Honey Nut Cheerios at the store from time to time and sighs and says I loved Honey nut. Then he walks away.

megzmc3611 Rookie
megzmc3611
Posted
Mine was a sandwich...just a ham and cheese sandwich. With Doritos.

I do that too...it's in the back of my Day Planner. :ph34r:

My sister and I use to sit on our couch and talk about what our last hoorah meal would be if a meteor was coming and the world was going to end....

And also if the meteor was coming and we could only go to one aisle of the grocery store, what aisle would it be ?(yes we have problems and are obsessed with eating!). At the time I never even thought I would be restricted from so much food....

My sister has celiac too, so now our discussions are "what we would eat if we could have gluten"...

natalunia Rookie
natalunia
Posted

Beer (was eating Brisket, potato salad and baked beans, so you have to have beer), sliced white bread with brisket and fixins, and cheesecake for dessert.

hez Enthusiast
hez
Posted

I was like megzmc3611. I was told to go on the gluten-free diet about two weeks before the endo. The doctor was hopeful that she would see some villi. Unfortunatly, not a one was found. So my "last supper" (I even called it that) was some crappy leftovers :angry: I was too tired to make dinner. Had I known then what I know now I would have gone out to dinner at least! The reality was that I was so sick food was not enjoyable. If I could do the day over I would eat out for breakfast, lunch and dinner with oreos and krispy kremes for a snack.

Hez

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    • MicG
      Test interpretations

      By MicG · Posted

      I had been eating reduced gluten until about 3 days before the test. I did realize that wasn’t ideal, but it was experimental to see if gluten was actually bothering me. One slip up with soy sauce and it was quite clear to me that it was, lol. 
    • trents
      Test interpretations

      By trents · Posted

      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated Gliadin Abs, lgA) for which you do have a positive score. It might also be of concern that your total IGA is elevated as that can indicate some other health problems, some of which are serious.  Had you been practicing a gluten free or a reduced gluten free diet prior to the blood draw? Talk to your physician about these things. I would also seek an endoscopy/biopsy of the small bowel to check for damage to the villous lining, which is the gold standard diagnostic test for celiac disease.
    • MicG
      Test interpretations

      By MicG · Posted

      Test results as follows: Deamidated Gliadin Abs, lgA 40 H (normal range 0-19) Deamidated Gliadin Abs, IgG 4 (0-19) t-Transglutaminase (tTG) IgA <2 (0-3) t-Transglutaminase (tTG) IgG <2 (0-5) Endomysial Antibody IgA Negative (Negative) Immunoglobulin A, Qn, Serum 535 H (87-352) Do I have celiac?
    • catnapt
      how long does it take for the genetic blood test for celiac to come back?

      By catnapt · Posted

      how long does it take for the genetic blood test for celiac to come back? I saw the GI today, she was great. She says I def have an issue with gluten and that my symptoms align more with celiac disease than NCGS, so she's doing the genetic testing, Ordered a test for SIBO but said that's just to cover all bases, she doesn't think I have that. If the blood work comes back negative for the genes, then I will cancel the endoscopy. If positive, I will try the 2 week gluten challenge and get the endoscopy done. If I can't manage the gluten challenge (I had HORRIBLE symptoms last time and quit after 12 days) then we'll just assume it's celiac disease and go from there. She says she does a full nutrient panel on all her pts every year, that was nice to hear.I'm on so many supplements it would be nice to only have to get the ones I truly need! so yeh, really anxious about the test results for the genes!! I have an identical twin sister so I'd need to tell her if it's positive, she'd prob want to get tested too. *interesting note: when I said if the blood work comes back that I don't have the genes, then I'm in the clear - she said, well,,,,,,not necessarily. But she didn't want to go into as we had a lot to go over. I did make a  mental note of that comment and will ask her when I see her next time.   she was very thorough! I was impressed! she even checked- up on some lab work I had done that my Endo ordered. I like her, I am looking forward to seeing her again. I think I'll get some good advice and info from her she also complimented me on my diet.   said it was a very gut friendly and healthy diet 
    • Scott Adams
      Second chance

      By Scott Adams · Posted

      I'm not sure why "colonoscopy" keeps coming up for you, again it would be an endoscopy to diagnose celiac disease, but it seems that Kaiser should still have your records. If you were diagnosed by them in the 1990's using a blood test and endoscopy, then you definitely have celiac disease, and hopefully you've been gluten-free since that time. You should be able to contact Kaiser for those records.
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