Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Shampoo W/ Gluten Ok?


jasonD2

Recommended Posts

jasonD2 Experienced

theres a shampoo i really like cause it helps w/ my slightly thinning hair...but it does contain hydrolyzed wheat protein. i dont get topical reactions to gluten, but wanted to make sure this shampoo is safe..as long as i dont swallow it :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I wouldn't use it. There are some good volumizing shampoos that don't have wheat. Garneir makes some, for example, or Giovanni if you prefer the organic. Oh and just to be on the safe side since you mention your hair is thinning, Rogaine products used to have wheat, or did last I checked, so be careful with those if you decide to try them.

burdee Enthusiast

I wouldn't use that shampoo. The risk of accidentally consuming a bit of shampoo is too high. Look for a safer product.

SUE

jasonD2 Experienced

Im extremely careful and never get any in my mouth...are there any risks with using it it on the skin? can the gluten enter your body? i would imagine the protein is too large to be absorbed thru the pores

jasonD2 Experienced

also...Ive been using a natural hair gel with wheat protein for years and have never had any problems

burdee Enthusiast

Your choice ... However, I often accidentally swallow water or get water into my nose when I shampoo in the shower. Even though I don't actually ingest the undiluted shampoo, I sometimes swallow water which might contain a bit of shampoo. With all my allergies, I usually spit out the water. Nevertheless, I wouldn't want to take any chances.

SUE

PS How are you doing with treatment for parasites? I hope you're doing well.

jasonD2 Experienced

yeah Im so careful I really dont think its an issue..i tilt my head so water doesnt drip down my face

havent gotten my test results back, hopefully this week so i can start medication


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

No risk on the skin itself. You cannot absorb gluten through your skin.

richard

jerseyangel Proficient

I'd be more concerned with the hair gel. That can get all over under your fingernails while you are applying it to your hair. I was being glutened by my hair gel in the beginning and didn't realize it. Be sure to wash your hands very carefully after applying it.

If you're sure you're not getting any shampoo in your mouth, then it shouldn't be a problem. I use gluten-free shampoos and conditioners at home to make absolutely sure (and so I don't have to be so careful), but everyone knows their own level of sensitivity. When I go to the hair salon, I let my stylist use whatever he thinks is right for my hair, I just make sure none of it splashes in my mouth. I do, however, ask him to not use any product on my hair for blow drying/styling.

burdee Enthusiast

yeah Im so careful I really dont think its an issue..i tilt my head so water doesnt drip down my face

havent gotten my test results back, hopefully this week so i can start medication

I'm confused. I thought you already received results that indicated you had 5 parasites. Have you already treated those and now await the retest results?

SUE

tarnalberry Community Regular

shampoo isn't a big risk, but it's nonzero. if you're still having issues, why take any risk you don't need to?

lotion is something I would change. unless you *NEVER* touch your mouth, never pick up a piece of food with your hands, and never handle your utensils and plates directly, there is a chance of transfer from lotion that ends up on the hands (even if it was just on the hands to apply to the arms or knees or feet) ends up on your food and ends up in your mouth. again, a small risk, but why take it if you're having problems?

there are so many gluten free options for both of these items, so my approach is "why not just go the really obvious route?". :)

ravenwoodglass Mentor

yeah Im so careful I really dont think its an issue..i tilt my head so water doesnt drip down my face

havent gotten my test results back, hopefully this week so i can start medication

I am wondering why if you think it isn't an issue you asked the question in the first place.

The choice is yours. There are many of us who do avoid it in toiletries. If you are continueing to have gluten issues then drop the stuff and see if it helps.

modiddly16 Enthusiast

I've never avoided products that I don't consume that have gluten in them. I can honestly say that I've never been glutened by my shampoo or hand soaps, but it is your choice. Many people choose to take more precautions than others!

Juliebove Rising Star

I would say, "no"! It would be far too easy to get shampoo in your mouth. All it would take would be a slight bit.

My daughter is contact reactive, but hers is an allergy and not celiac. I accidentally used a bath product with wheat in it on myself and the slight residue left behind gave her a rash. Never again!

GarAndTeed Rookie

shampoo isn't a big risk, but it's nonzero. if you're still having issues, why take any risk you don't need to?

lotion is something I would change. unless you *NEVER* touch your mouth, never pick up a piece of food with your hands, and never handle your utensils and plates directly, there is a chance of transfer from lotion that ends up on the hands (even if it was just on the hands to apply to the arms or knees or feet) ends up on your food and ends up in your mouth. again, a small risk, but why take it if you're having problems?

there are so many gluten free options for both of these items, so my approach is "why not just go the really obvious route?". smile.gif

Hi Tarnelberry!

Any suggestions for lotion?? My skin is brutally dry; I've been using Neutrogena unscented body oil after showers, but also lots of scented stuff. I looked on the web for 3 hours the other night; Burt's Bees has been taken over by clorox(!), and I'm having a heck of a hard time finding something.

Thanks!unsure.gif

Wolicki Enthusiast

Jason, Jason, Jason,

Really? Why would you even chance it with all of the health issues you continue to have? I don't get it. I am beginning to think that you're not going to take anyone's advice, so why do you continue to ask and then argue to the death that you're right?

Sorry, but it is frustrating to continue to try to help (and there are so many who do) only to be told all the reasons that you're right. Aye :(

sandsurfgirl Collaborator

Jason are you really serious right now? First of all, as it's been said, WHY would you ask the question, knowing the answer you will get and then argue with people who are taking time out of their busy lives to answer?

Second of all, you are sick all. the. time. You post regularly about how you are intolerant of most foods you are eating, everything makes you sick, you are depressed about your situation... etc. etc. but you are using shampoo with gluten in it? Really? Seriously?

How can you say you use it with no problem Jason? You are sick all the time. Of course it's a problem. Why in the world would you take a chance on something like that when you have so many symptoms is beyond me.

When you post, you get so many replies because people on here really care about your plight, yet you argue and argue against the good advice you are given every time. And you never ever bother to post to anyone else's threads and help anyone but yourself. And you won't even do that if you are using gluten shampoo.

{shaking my head in confusion} {sigh}

ravenwoodglass Mentor

Hi Tarnelberry!

Any suggestions for lotion?? My skin is brutally dry; I've been using Neutrogena unscented body oil after showers, but also lots of scented stuff. I looked on the web for 3 hours the other night; Burt's Bees has been taken over by clorox(!), and I'm having a heck of a hard time finding something.

Thanks!unsure.gif

I'm not Tarnelberry but I also have very dry skin. Two of my favorite products are NOW Cocoa Butter and Jojoba Oil and the plain Shea Butter. Both are sold in jars and are solid at room temp but they melt into your skin on contact. There is nothing in either other than the CB and J and the S, no other ingredients.

psawyer Proficient

Jason, Jason, Jason,

Really? Why would you even chance it with all of the health issues you continue to have? I don't get it. I am beginning to think that you're not going to take anyone's advice, so why do you continue to ask and then argue to the death that you're right?

Sorry, but it is frustrating to continue to try to help (and there are so many who do) only to be told all the reasons that you're right. Aye :(

Jason are you really serious right now? First of all, as it's been said, WHY would you ask the question, knowing the answer you will get and then argue with people who are taking time out of their busy lives to answer?

Second of all, you are sick all. the. time. You post regularly about how you are intolerant of most foods you are eating, everything makes you sick, you are depressed about your situation... etc. etc. but you are using shampoo with gluten in it? Really? Seriously?

How can you say you use it with no problem Jason? You are sick all the time. Of course it's a problem. Why in the world would you take a chance on something like that when you have so many symptoms is beyond me.

When you post, you get so many replies because people on here really care about your plight, yet you argue and argue against the good advice you are given every time. And you never ever bother to post to anyone else's threads and help anyone but yourself. And you won't even do that if you are using gluten shampoo.

{shaking my head in confusion} {sigh}

Jason, are you there? Are you listening? :o

tarnalberry Community Regular

I made a combination of cocoa butter, shea butter, lanolin, and emu oil as "preggo belly butter" that I gotta say I love. (Mostly solid, but sort of soft like a ripe avocado, at room temperature.) For an "out of bottle" one, I tend to like Open Original Shared Link line (you don't have to use much at all). Locally, there's a company called Open Original Shared Link that makes a FABULOUS foot cream and general lotion. Otherwise, plain oils are an option.

Additionally, I find that getting enough fat in my diet makes the biggest difference in my skin. Plenty of omega-3's, but also plenty of fat in general.

  • 1 month later...
hypersof Apprentice

I made a combination of cocoa butter, shea butter, lanolin, and emu oil as "preggo belly butter" that I gotta say I love. (Mostly solid, but sort of soft like a ripe avocado, at room temperature.) For an "out of bottle" one, I tend to like Open Original Shared Link line (you don't have to use much at all). Locally, there's a company called Open Original Shared Link that makes a FABULOUS foot cream and general lotion. Otherwise, plain oils are an option.

Additionally, I find that getting enough fat in my diet makes the biggest difference in my skin. Plenty of omega-3's, but also plenty of fat in general.

Jason, I agree w/ the above!!

I am currently trying to find out about all my Burt's bees products...read some positive things about the lip balm/ creams & shampoo that I use...but as for the ingredients, I am still doubting the Tocopherol/ vitamin E, as I didn't get an answer if it was made from wheat...anyone knows??

Otherwise, I am very interested in Shikai's dry skin therapy...so it is gluten-free? (didn't find the ingredients info on the website...am I just too tired??)

(I tried pure coconut oil, great for the body but it won't do for my hands!)

Thanks for the advice!

Heidi S. Rookie

Hi Tarnelberry!

Any suggestions for lotion?? My skin is brutally dry; I've been using Neutrogena unscented body oil after showers, but also lots of scented stuff. I looked on the web for 3 hours the other night; Burt's Bees has been taken over by clorox(!), and I'm having a heck of a hard time finding something.

Thanks!unsure.gif

I love California baby! (also for sensitive adults!) Target and whole foods carries it, great moisturizing and they have a cream great for the legs for people with eczema and different massage oils that I love! I also use pure coconut oil for after the shower.

Open Original Shared Link

AlysounRI Contributor

Burt's Bees has been taken over by clorox(!), and I'm having a heck of a hard time finding something.

:angry:

Really?

God, that is truly, truly awful.

I use a cream from a company I have been using for years.

Open Original Shared Link

She used to do the Ren. Faire circuit when I was working at them and her stuff is pure, made with only pure oils for the base and pure oils for scents. They are also not animal tested. It's a bit expensive, yes, but I use it only for handcream and makeup remover. A little goes a long way. I use a cream called sunshine which is a scent made with orange, lemon and bergamot. It's gorgeous. She also does unscented creams. The base is always comprised of: coconut oil, almond oil, beeswax and aloe vera. The key lime cream is also gorgeous!!

Now they do haircare and soap too.

But I use garnier things on my hair and I know that's safe.

I would recommend Nadina to anyone. So I hope some of you check out her page. They are based out of Maryland.

Have a good day/night, everyone!

~Allison

burdee Enthusiast

I've had problems with contamination from shampoo, but not from gluten. I have a diagnosed soy allergy. Tocopherol/vitamin E can be derived from soy. I had to change my shampoo to avoid soy contamination. I switched to Shakai's natural hair care line. It's more expensive, but well worth the expense. Their natural hair care products are free of all my allergens (gluten, dairy, soy, eggs, vanilla, etc.). Best of all my hair has never felt as clean, soft and shiny (as it does after using Shakai products). I don't know about the dry skin therapy, but you can call the company. The customer service rep is very helpful and knowledgable about all their products.

SUE

Jason, I agree w/ the above!!

I am currently trying to find out about all my Burt's bees products...read some positive things about the lip balm/ creams & shampoo that I use...but as for the ingredients, I am still doubting the Tocopherol/ vitamin E, as I didn't get an answer if it was made from wheat...anyone knows??

Otherwise, I am very interested in Shikai's dry skin therapy...so it is gluten-free? (didn't find the ingredients info on the website...am I just too tired??)

(I tried pure coconut oil, great for the body but it won't do for my hands!)

Thanks for the advice!

hypersof Apprentice

I've had problems with contamination from shampoo, but not from gluten. I have a diagnosed soy allergy. Tocopherol/vitamin E can be derived from soy. I had to change my shampoo to avoid soy contamination. I switched to Shakai's natural hair care line. It's more expensive, but well worth the expense. Their natural hair care products are free of all my allergens (gluten, dairy, soy, eggs, vanilla, etc.). Best of all my hair has never felt as clean, soft and shiny (as it does after using Shakai products). I don't know about the dry skin therapy, but you can call the company. The customer service rep is very helpful and knowledgable about all their products.

SUE

Thanks for the advice!

I spent a fair amount of time the other day, shopping for some new products...

I think gluten isn't in THAT many products, but with the gazilion unpronouncable ingredients they put in it...I never know!

Anyway, I think I found some safe: face cream (weleda)/ shampoo (everyday shea)/ hand cream (desert essence)/ handsoap (kiss my face, it's a simple olive oil soap)...I then double-checked googling /surfing on their websites and/ or emailing them afterwards and they're fine -except for everyday shea shampoo, no solid confirmation yet, but there's really not a whole lot of ingredients there -anyone knows if Cocamidopropyl Betaine/ Decyl Polyglucose are a potential problem regarding gluten? couldn't find out much about those, but if I understood well they have nothing to do w/ gluten ;)

I also contacted ShiKai: all their products (including borage dry skin therapy) are gluten-free, EXCEPT for the moisturizing shower gels...I thought it might be of interest for people like me -I was struggling already before going gluten-free, imagine now...well, at least I don't have anymore a million different products to try before finding one that works for my crazy dry skin :)

(so I am probably going to go buy/ or order some of this borage cream & give it a try...I'll post my feedback if some are interested)

...So this isn't easy, but I feel like I am making progress!!

Good luck to all of you

Sophie

edit: just found out there is paraben in borage, don't like that :( but there is still california baby I haven't tried!

I also bought a badger lip balm, gluten-free, very few ingredients, no strange/ unpronoucable ones...got the "moccha cocoa", love it :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,547
    • Most Online (within 30 mins)
      7,748

    gizmo1jazz2
    Newest Member
    gizmo1jazz2
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.