Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Shocking Places You've Found Gluten!

GFLindsey

By GFLindsey
in Coping with Celiac Disease

Recommended Posts

GFLindsey Explorer
GFLindsey
Posted

I have been very, very careful to read the labels of all of my products (edible or not!) since being diagnosed in February. Earlier this week I was tackling my rarely-if-ever used hair products and found that my hairspray had wheat in it! It was John Freida's Frizz Ease. Also, I was at a bridal shower today and won a gift that included hand sanitizer from Bath and Body Works. After browsing through the ingredients lists I saw that it contained wheat amino acids.

Please share any experience you had in finding gluten in an unexpected place. I think the information could help everyone!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Wolicki Enthusiast
Wolicki
Posted

Rolaids soft chews. No gluten, but made on shared equipment. Knocked me out for a week :blink:

AlysounRI Contributor
AlysounRI
Posted

I know this is a known one.

But I am a black licorice nut.

Black licorice has wheat in it!!!

Can anyone explain to me why???

I knew that before I went gluten-free but it never fails to blow my mind, you know!!

~Allison

Roda Rising Star
Roda
Posted

Off bug repellant. Was looking at all my cleaning products etc for hidden gluten and the rep told me that this had gluten in it. Weird.

JNBunnie1 Community Regular
JNBunnie1
Posted

I was watching an episode of Dirty Jobs and Mike Rowe was at a cask-making factory, and to caulk the lids they use a paste with wheat in it. Freaked me right out. Haven't had any wine since, as I don't feel like bothering to call the winemakers. Sticking to my potato vodka.....

AmyT Newbie
AmyT
Posted

Delmonte Tomato Paste. Used a small spoonful to make Spanish Rice last night and my daughter read the label after dinner! Ugh, we all had the effects! I can't believe that one snuck by me. I am going to go through my kitchen again!!

buffettbride Enthusiast
buffettbride
Posted

I know this is a known one.

But I am a black licorice nut.

Black licorice has wheat in it!!!

Can anyone explain to me why???

I knew that before I went gluten-free but it never fails to blow my mind, you know!!

~Allison

Most licorice does--like Twizzlers and Red Vines and such. It is what makes it chewy and pliable.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Black Sheep Apprentice
Black Sheep
Posted

After browsing through the ingredients lists I saw that it contained wheat amino acids.

I found that my Nature's Organics (well, I think that was the name) lotions had wheat amino acids. I gave them to my daughter but now I want them back so I can throw them away, as she and I are both now 100% sure she has a major gluten problem. But she doesn't want to get rid of them. Should have stolen them when I was at her apt. the other day....I could have, you know....we'd just brought her home from the dentist's, where she'd had her wisdom teeth out and was a bit loopy....BWAAAHAHAHAHAHA! :ph34r::rolleyes:

koolkat222 Newbie
koolkat222
Posted

I know this is a known one.

But I am a black licorice nut.

Black licorice has wheat in it!!!

Can anyone explain to me why???

I knew that before I went gluten-free but it never fails to blow my mind, you know!!

~Allison

Same here! Wheat in licorice?! I, too, would like to know why.

Juliebove Rising Star
Juliebove
Posted

We were at the party store the other day. They had some mints with different colored wrappers. I picked up the light blue ones because they matched the color for my daughter's dance party. I then read the ingredients and they had wheat in them! Why?

Years ago, I bought some organic bath product for kids. Daughter had been using it and got a rash. Sure enough there was wheat!

sa1937 Community Regular
sa1937
Posted

Amy - DelMonte Tomato Paste??? Is there wheat in it and/or what else?

Jeez, I never thought I'd have to read the labels of tomato paste! I have tomato paste and tomato sauce on my grocery list. I would think these would be "pure" plain tomato products.

Guess I'll need to get another pair of el-cheapo reading glasses with a chain to put on when I go to the grocery store. ARGH!!!! ph34r.gif

WheatChef Apprentice
WheatChef
Posted

Many tomato sauces use "Natural Flavors".

Last night: White Zinfandel. Was somewhat cheap so not sure exactly what I was expecting, at least I get to be lethargic on a sunday.

Rissmeek Newbie
Rissmeek
Posted

My hair dye. I use the same products that salons do and there it was wheat protein.

ravenwoodglass Mentor
ravenwoodglass
Posted

Delmonte Tomato Paste. Used a small spoonful to make Spanish Rice last night and my daughter read the label after dinner! Ugh, we all had the effects! I can't believe that one snuck by me. I am going to go through my kitchen again!!

Was it the Delmonte tomato paste or was it their meat flavored sauce? Here is a list of their gluten free products. Delmonte tomato paste should be safe. The meat flavored sauce isn't.

Open Original Shared Link

Del Monte Gluten-Free Products

All Del Monte® and S&W® Canned/Jarred Fruits

All Del Monte® Fruit Cup® Snacks (Metal and Plastic), including Fruit Chillers®

All Del Monte® and S&W® Canned Vegetables

All Del Monte®, Contadina®, and S&W® Tomatoes & Tomato Products (except

Del Monte® Spaghetti Sauce Flavored with Meat, and Contadina® Tomato Paste with Italian Herbs)Harvest Selections® Santa Fe Style Rice and Beans, Homestyle Chili with Beans.

College Inn® Garden Vegetable Broth and Organic Beef Broth, Beef Sirloin Bold Stock, White Wine & Herb Culinary Broth.

kenlove Rising Star
kenlove
Posted

Buttermilk in Hawaii has wheat in it. So do the walnuts in McDonalds salads.

Seems to be unless you grow it or catch it yourself you won't know whats in it!

GFLindsey Explorer
GFLindsey
Posted
  • Author

Well I have a new one. I got a Sarris chocolate egg for Easter (they are a local chocolate company). I wouldn't have chanced it anyway, because I know they have one factory and are known for chocolate-covered pretzels. Delicious but dangerous little things! Anyway, the egg was fine besides the risk of cross contamination. However, there was a tiny pink and white flower painted on the top and sure enough, it was made with wheat paste!

Black Sheep Apprentice
Black Sheep
Posted

Guess I'll need to get another pair of el-cheapo reading glasses with a chain to put on when I go to the grocery store. ARGH!!!! ph34r.gif

That's a good idea. I've been using a small magnifying glass that I have in my purse. :rolleyes:

I can't tell you all how many times, in the under-six-weeks time I've been g.f., I have been in a store somewhere, picked up something that I was sure would be g.f., with great expectations--and read the word "wheat" on the label. :huh: Like the mango-flavored licorice I wanted to try. The chocolate truffles (on that one I exclaimed to the poor store employee, "Seriously? I used to make chocolate truffles, and the thought never even occurred to me to stick wheat in them! Who does that?"). The plain, grilled chicken breast. The french fries--I mean really! Even long before I went g.f., when I made my home made oven fries, I put "strange" things on them like--oh, sea salt. Maybe garlic salt. :blink:

It's a mad, mad, world.

newgfcali Rookie
newgfcali
Posted

Would you believe MENTOS? Yipes.

Just when you thought it was safe to freshen your breath... wham-o!

Mac55 Apprentice
Mac55
Posted

Mentos??? Really?? Haven't eaten them in a long time but now that I think of it I remember they used to give me terrible gas and bloating.

newgfcali Rookie
newgfcali
Posted

Mentos??? Really?? Haven't eaten them in a long time but now that I think of it I remember they used to give me terrible gas and bloating.

I don't have one in front of me, but I read the ingredients on a roll of the regular mints and "wheat" was staring me in the face.

Here's a list of ingredients I found online for "Mint Mentos":

sugar, wheat glucose syrup, hydrogenated coconut oil, rice starch, gum arabic, sucrose esters of fatty acides, gellan gum, natural flavors

kareng Grand Master
kareng
Posted

Guess I'll need to get another pair of el-cheapo reading glasses with a chain to put on when I go to the grocery store. ARGH!!!! ph34r.gif

I got a pretty necklace from target & some "glasses holder thingies" (technical term). Cut the necklace & added the holders & at least my reading glasses are on a pretty chain. I get them out & wear them in the store.

afreeclimber74 Rookie
afreeclimber74
Posted

My favorite chocolate brand is Lindt and almost all their products have barley malt powder.

The other shocker was being told that there was wheat as an anti-caking agent in the pre-shredded cheese at a Mexican restaurant.

Mac55 Apprentice
Mac55
Posted

I don't have one in front of me, but I read the ingredients on a roll of the regular mints and "wheat" was staring me in the face.

Here's a list of ingredients I found online for "Mint Mentos":

sugar, wheat glucose syrup, hydrogenated coconut oil, rice starch, gum arabic, sucrose esters of fatty acides, gellan gum, natural flavors

I totally believe you, I was just so surprised! I don't know why though, as we all know it's in almost EVERYTHING!

Funny, I was feeding our fish the other day and happened to look at the ingredients and there it was, wheat gluten. Now, why do fish need wheat?? I swear they just like to put it in everything. :P

psawyer Proficient
psawyer
Posted

The other shocker was being told that there was wheat as an anti-caking agent in the pre-shredded cheese at a Mexican restaurant.

This is very likely a misunderstanding by the person who said this. This myth has been going around for as long as I have been gluten-free, but in that time nobody has ever found actual confirmation of a product where wheat is used. Wheat is used in baking because it sticks together. It would make a poor anti-caking agent. If an anti-caking agent is used at all, it would be cellulose powder (which is gluten-free). Most shredded cheeses are just that: shredded cheese and nothing else.

sa1937 Community Regular
sa1937
Posted

I know exactly what "glasses holder thingies" are. lol Actually I do have those on my sunglasses after I dropped them years ago just before going on vacation.

Actually I think I'll go to Dollar Tree and get some reading glasses in an even stronger strength than I need. That's to read the tiny black ingredients list printed on a red background. What a way to discourage people from reading labels, huh? ph34r.gif They really don't want us to know all the crap they put in what should be a pretty simple product.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,701
    • Most Online (within 30 mins)
      7,748
    Patticolw
    Newest Member
    Patticolw
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      And thank you for your encouragement. I am glad that her body is doing a good job fighting it. I also just want clarity for her moving forwards. She was only 6 for the last round of testing and she's 10 now, so I'm also hoping that makes a difference. It was weird during her last round of testing though, because right before her biopsy, we'd upped her gluten intake by giving her biscuits made from straight up vital wheat gluten, and her labs actually normalized slightly (lower ttg and her ema went negative). Bodies just do weird things sometimes! lol
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      The first negative biopsy in 2021 just said "no pathological change" for all the samples, and the second one in 2022 said "Duodenal mucosa with mild reactive change (focal foveolar metaplasia) and preserved villous architecture." So I think Marsh score 0 in both cases, though it's not actually written in the pathology reports. I'm really hoping to get a clear positive result this time, just for her sake.  
    • Wends
      Blood results

      By Wends · Posted

      Hopefully the biopsy gives a conclusive and correct diagnosis for your daughter. Im in the UK and have been in the situation a few years ago of trying to rule celiac in or out after inconclusive results. Many symptoms pointing to it including the classic symptoms and weight loss and folate and iron deficiency. You have to play a waiting game. I also had the label of IBS and likely food allergy. Genetic test showed low risk for celiac but not no risk. It sounds like the Gastroenterologist is on it and hopefully will diagnose what it is correctly. Food hypersensitivity (allergy) can also cause similar symptoms and inflammation as well as mimicking IBS. Milk / dairy and wheat (cereal grains) being the biggest culprits. The “oesophagitis” and “gastritis” you mentioned can be caused by another gastrointestinal disorder called “eosinophilic gastrointestinal disorders”. These are named depending on which part of the gastrointestinal tract is affected. For example eosinophilic oesophagitis, eosinophilic gastritis, eosinophilic gastroenteritis, and more rare eosinophilic colitis. They are antigen (allergen) driven. When the blood test measuring anti-ttg antibodies is positive in absence of a positive ema test - which is more specific to celiac, this can also suggest food hypersensitivity (allergy). Usually delayed type allergy similar to celiac but not autoimmune if that makes sense. In this case the ttg antibodies are transient. Which happens. I’ve first hand experience. For info, evidence of villous atrophy too can be caused by food hypersensitivity. Not just by celiac disease. In Egid disorders the six food elimination diet, under a dietitian and gastroenterologist care, is the dietary protocol to figure out the culprit or culprits. Sometimes only two food elimination diet is used at first. The number one culprit is milk protein / dairy. Followed by wheat, eggs, soy, fish and seafood, and nuts. Most are only reactive to one food group or two. Most are only reactive to milk. Hope this is a helpful reply.
    • Bennyboy1998
      Potential celiac need advice

      By Bennyboy1998 · Posted

      Yes gene HLADQ2 was positive 
    • Wends
      Inconclusive results

      By Wends · Posted

      Wow, the system is crazy isn’t it? Maybe switch Doctors if you can. It’s surprising from what you’ve written it seems obvious it’s celiac disease. The “potential” diagnosis means celiac is developing and it basically just hasn’t done enough gut damage to be captured on the biopsy yet, and meet that “criteria” to satisfy the current system! Given the overwhelming evidence already - family history, positive ttg and ema. And your own experience and intuition which counts far more. And the labs being reproduced after gluten elimination and reintroduction- elimination and reintroduction diet is the gold standard too. Shame on the Doc and the system. What was the Marsh score? I’m guessing not 0 if it’s potential celiac. Meaning the autoimmune process has been triggered and started. Your daughter is obviously very healthy and her immune system is putting up a good fight. It can take years for the gut damage to build to a point where there’s overt symptoms and then a conclusive diagnosis, hence why many celiacs receive diagnosis later in life. You can prevent it. See the positive and the gift in that. Hopefully the gluten challenge confirms it, but if it doesn’t maybe get a second opinion?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.