Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Are You Binned After A Glutening?


Leper Messiah

Recommended Posts

Leper Messiah Apprentice

Just wondering how long symptoms last after a glutening for folks? Mine seems to last for days.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ciavyn Contributor

Just wondering how long symptoms last after a glutening for folks? Mine seems to last for days.

Three weeks. :(

tictax707 Apprentice

record recovery: one week. record misery: six weeks. average: three weeks. :blink:

bridgetm Enthusiast

Anyone have the problem of starting to improve after a glutening and then crashing back down again? I had some cross-contamination issues last week and from Wednesday through Sunday or Monday I wasn't feeling well. Really focused on simple foods, was starting to feel better (no acute pain, discomfort). But yesterday my pain started up again and worse than it was a week ago. I don't know if it's a normal recovery or if I ate something in one of those no-motivation, tired, busy, hungry moments.

jenngolightly Contributor

Just wondering how long symptoms last after a glutening for folks? Mine seems to last for days.

1 week.

bluebonnet Explorer

about a week for me. :(

tictax707 Apprentice

Anyone have the problem of starting to improve after a glutening and then crashing back down again? I had some cross-contamination issues last week and from Wednesday through Sunday or Monday I wasn't feeling well. Really focused on simple foods, was starting to feel better (no acute pain, discomfort). But yesterday my pain started up again and worse than it was a week ago. I don't know if it's a normal recovery or if I ate something in one of those no-motivation, tired, busy, hungry moments.

I have totally had that problem. It usually happens when I try to introduce foods that my body isn't ready for, and my body says NO WAY Jose... :angry:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eastvangal Newbie

About a week for me too.

Jessika Newbie

About a week for me too : (

hypersof Apprentice

same problem here for the ups-n-downs! I keep hoping this is going to get more stable soon...on the better side! (I am "only" 6 weeks gluten-free)

seems that when I feel down again, it can last anywhere from 4 days to 2 weeks :(

Sophie

MagpieWrites Rookie

Depends a bit for me - if I'm in pretty good shape beforehand and the stars are completely aligned in my favor? I've managed to shake it off in about 3 days a few times.

If not?

Up to two weeks before I can say with certainty I'm all the way back on the beam. Well... that I can see the beam from where I'm standing!

Lycopene Rookie

Ugh. I've been glutened 3 times this week due to cross contamination in my kitchen. So it's been non-stop brain fuzz and being bed ridden.

But, for about a year I've been on-and-off gluten free dieting (been at it for about 6 weeks now... even though I've been glutened 3 times this week), and the longest was about 3 weeks for me.

i-geek Rookie

Usually about a week for the worst of it to go (multi-day migraine and multi-day GI problems).

Becks85 Rookie

Usually about a week for me...I start feeling better after a few days but it takes a few more before I feel completely back to normal and can eat properly again.

dhiltonlittle Contributor

are you all completely down for the count for this long or are you still making it to work during this time?

lynnelise Apprentice

I have GI issues and am achy all over...plus I break out in a rash. This part last about 2 days. Then I get super fatigued for the next 5 or 6 days.

lynnelise Apprentice

are you all completely down for the count for this long or are you still making it to work during this time?

I work the whole time, but I have a sit down, low stress job and my own little office so I can look and feel terrible in solitude! lol!

jenngolightly Contributor

are you all completely down for the count for this long or are you still making it to work during this time?

Depends on how much I ate. I'm usually out for 3 days. Luckily, for some weird reason, I always tend to get sick toward the weekend. Still, I don't have any sick/vacation time saved up because I'm always taking off for celiac or other intolerance problems. Boo hoo. I wish I could take a vacation.

tictax707 Apprentice

Usually I can go into work and function, but I am miserable, tired, and dragging myself and my raw intestines around. I couldn't afford to take all the time off, but sometimes I do give up and stay home for a day or two when it's at the worst part.

tarnalberry Community Regular

for me, about a week. Doesn't stop me from working (either previously, when I was a software engineer, or now, when I just teach yoga), but not only are my symptoms not as severe as many other people's, but I've worked through migraines and many other painful things, so I tend to just deal (not saying exactly how well ;) ) with the pain/discomfort.

kayo Explorer

A few days to a week on average. I have RA so I'm always pushing through while fatigued and achy. That's a norm for me. When glutened I get a food poisoning like reaction so that first day or two I feel physically beat up but mentally ok. I do continue to work but I can work from home whenever I want to so those 'dragged behind a bus days' can be spent at home in my pj's. Then there are hours/days that follow where the physical piece is over but the brain fog is so bad I don't really accomplish anything and when I bounce back those days it's like they never happened. My memory is shot during those brain fog days (these are more intense than my general fog brain which I seem to have 24/7). Thank goodness I'm not a surgeon, bus driver or accountant!! :P

i-geek Rookie

are you all completely down for the count for this long or are you still making it to work during this time?

I have to go to work regardless. I'm a grad student and we really only take sick days when we either have a high fever or are vomiting. I took an accidental/CC hit on Wednesday at lunch. I've been making it through the rest of the week doped up on Tylenol (ibuprofen makes the heartburn worse). It blunts the migraine to a dull ache. I can work through a dull ache. Last night I waited too long to take Tylenol and the pain was bad enough that I had the dry heaves, but I was at home by then. I think the headache is on its way out, but now my stomach and intestines are rumbling. I'm prone to C rather than D, which is painful but not as potentially disastrous when I leave the house.

Leper Messiah Apprentice

Lol well I am an accountant so I generally am screwed with the brain fog. I sent an email to the wrong person yesterday with some sensitive info...grr.

Hmm it seems gluten hits everyone for at least a few days so it's maybe I'm getting cross contamination. I am fairly careful but the other person in my house eats a normal diet and leaves crumbs about. I'll perhaps be more diligent, keeping my own plate cutlery etc.

Anyone get severe sensitity to lack of carbs? Or is this an effect of being glutening. I seem to be hungry and tired all the time, and only carbs seem to kind of bring me out of zombie mode - the more I eat the more able to function I am.

Jestgar Rising Star

I'm through it in a couple hours.

Just wanted to point out that not everyone takes days.

i-geek Rookie

Lol well I am an accountant so I generally am screwed with the brain fog. I sent an email to the wrong person yesterday with some sensitive info...grr.

Hmm it seems gluten hits everyone for at least a few days so it's maybe I'm getting cross contamination. I am fairly careful but the other person in my house eats a normal diet and leaves crumbs about. I'll perhaps be more diligent, keeping my own plate cutlery etc.

Anyone get severe sensitity to lack of carbs? Or is this an effect of being glutening. I seem to be hungry and tired all the time, and only carbs seem to kind of bring me out of zombie mode - the more I eat the more able to function I am.

You know, I used to have the brain fog constantly, but now I don't notice it as much when I take an accidental hit. I think that for me it was a cumulative effect. A small hit is enough to pull up the more physical symptoms but doesn't take down the whole brain with it. I wonder about the carb hunger. I remember being hungry ALL the time pre-gluten-free, and I would go and pour myself another bowl of mini-wheats cereal. (sigh) I don't really crave carbs anymore. In fact, if I eat too much sugar or starch, my blood sugar goes wonky. I used to crave them a lot, though.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

    2. - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

    3. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,107
    • Most Online (within 30 mins)
      7,748

    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.