Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Coffee The Problem


Wp1234

Recommended Posts

Wp1234 Newbie

Hello all,

Just found this great site and am hoping for some help from fellow sufferers. I was diagnosed via biopsy with Coeliac Disease three weeks ago and immediately switch to a gluten free diet .Within days I could feel an improvement but now three weeks later I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



motif Contributor

I

looking4help Apprentice

I agree. 10 cups is the problem. (Unless you have an allergy to coffee and that's a whole different discussion.)

What do you use to sweeten your coffee? I found that milk was my issue. I have cut out the milk in everything until I heal and then I will attempt it again. Your intestines may be so damaged it can't handle the milk.

Also, going gluten free doesn't heal you instantly. It took a long time to damage your insides and it can take a while to heal them as well. Be prepared for the ups and downs of healing. I am only a few months into my gluten free and still have what you are calling relapses.

You are in the right place though for advice and just plain ole support. This board is full of caring people!

coffee or tea is not a problem but 10 cups a day is a problem, especially when you sweeten them or drink with milk.

Besides "relapse" is normal because you can react to grains even few days after eating something. BTW drinking decaf makes no sense and is more bad for you then regular.

AlysounRI Contributor

Hi WP:

That is a lot of coffee!!

Even though the coffee is decaf, it tends to be very acidic and it can irritate your stomach.

I had to give up any kind of coffee. It does awful thing to my stomach and digestive system.

I drink decaf indian spice tea now and never have a problem.

Do you drink decaf tea, and if you do does it bother you as well??

lucia Enthusiast

Yeah, that's a lot of coffee. The acidity in coffee can cause acid reflux which I've heard is very painful.

An alternative - if you're not ready to give up caffeine entirely - is green tea. It has a quarter of the caffeine of coffee, it's not acid, and it's got a lot of antioxidants. Even so, though, 10 cups a day of green tea would still be a lot.

Maybe adopting a water habit would be a good idea. Are you getting 6-8 cups of water a day?

K8ling Enthusiast

I drank coffee like a madwoman after my son was born and...well...it was causing a lot of problems I didn't even connect. I suggest switching to tea (I drink Earl Gray in the morning, green the rest of the day) and at least seeing if it helps.

T.H. Community Regular

Question on how you make your coffee/tea.

Do you use tea bags or those coffee equivalent ones, where they are in sealed pouches? Some of those can be sealed with gluten and could be glutening you.

Have you double checked your coffee brand for gluten? I know some brands have gluten in them, like Teeccino brand has barley in it, if I remember right.

Same question with the tea - we just zapped ourselves the other day because a chamomile tea had 'oatstraw,' and that seemed to have some gluten contamination issue.

I have no idea about coffee filters, but I wonder if it's possible that coffee paper filters might have the same issue as some tea bags and some may be sealed with gluten? I've never heard of this being an issue, but it might be worth a little research.

Also, I know you are on a gluten free diet, but I didn't know how much research you've been able to do yet on non-food sources of gluten? Chapstick and lipstick is a big gluten source, whether on your lips or on someone whom you kiss. Or if your shampoo has gluten and you get any in your mouth when you rinse it from your hair, stuff like that.

All that said - when I went gluten free, I suddenly started reacting to other foods that I had never noticed a reaction to, and one of them WAS coffee, so that could definitely be an issue. :)

Hello all,

Just found this great site and am hoping for some help from fellow sufferers. I was diagnosed via biopsy with Coeliac Disease three weeks ago and immediately switch to a gluten free diet .Within days I could feel an improvement but now three weeks later I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TSC1 Newbie

My advice as a recently diagnosed person is that you were using coffee even decaf to a certain degree for energy and to rehydrate. It is now no longer needed and you simply are having too much for a healthy person who is digesting and feeling a lot more energy and health. Unless the coffe is sharing the same euiopment to be processed as wheat or another gltuen product (yes, even many designer mushrooms are grown in soil that has wood chip and wheat bran), there is no reason coffee that is not usually cross-contaminated to be a problem.

I have one or two cups in the morning and then drink water or ice tea, etc.

Hello all,

Just found this great site and am hoping for some help from fellow sufferers. I was diagnosed via biopsy with Coeliac Disease three weeks ago and immediately switch to a gluten free diet .Within days I could feel an improvement but now three weeks later I

TSC1 Newbie

Be careful, sweetners especially in large amounts like mannitol, sorbitol, etc. give me lots of intestinal problems and I steer clear of them even in small amounts.

coffee or tea is not a problem but 10 cups a day is a problem, especially when you sweeten them or drink with milk.

Besides "relapse" is normal because you can react to grains even few days after eating something. BTW drinking decaf makes no sense and is more bad for you then regular.

Looking for answers Contributor

One more thought about coffee, especially decaf. Unless it decaffienated using the swiss water process, decaf coffee contains a load of chemicals and pesticides. Since you have an autoimmune disease and are in the process of healing, I too recommend switching over to tea. Good quality green tea is not bitter and doesn't give you the ups and downs of coffee. It's also an amazing source of antioxidants and vitamins, and will lower your body's overall inflamation. I use the premium green tea from Teavana. It's pricey, but each batch of loose tea can be used up to three times, so it lasts a long time...and it's so pure that I don't need to add anything to it. Good tea is not bitter if you don't over steep it!!! For a more affordable tea, Costco sells bagged green tea that is manufactured in Japan from a quality distributor who uses high grade leaves. I know this because my best friend is from Japan and her family validated the maker for me.

For anyone reading this who drinks green tea, if your "green" tea looks more yellow than green it means it's oxidated - switch to a better quality brand. Both teas I recommend are the color of grass in the cup.

SGWhiskers Collaborator

Congrats on going gluten free and figuring out how to become healthy again. I'm all for the coffee theory, but I would like to add that as a newbie to the gluten-free world, it is also likely that you are inadvertently getting some CC somewhere. For me it was the BBQ grill, the vegetable steamer, and pineapple juice. Think about every kitchen item that touches your food. Unless you are better at itching, sweating, and showering than me, check every product that touches your body, makeup, fancy soaps, hair products. While you are at it, cut that coffee down to 2 in the morning and switch to tea. Make sure you are also eliminating or going very light on dairy in the begining of a gluten-free diet. Almost as a rule, dairy is really rough on celiac intestines until they heal.

Best wishes on a quick recovery.

  • 1 year later...
EPrasn Newbie

I'm new to the group and I was so impressed with all of the information, I decided to join. It all started with me around 3/17, I just didn't feel good, and I had this bad taste in my mouth and it was making me sick. I went to my primary doctor and she took 6 vials of blood, it all came back normal (thank God), I even had an app't with my digestive Health specialist and he suggested that I eat parsley 3x's a day to get rid of the taste in my mouth. I really had to think about the whole situration, and it seemed like I was getting sick in the morning and especially in the afternoon, after I had a cup of coffee. So I just started drinking Soy Milk and you know what, it wasn't too bad. I do feel better but not 100%, now I'm wondering if it is the coffee????? I know one thing, I don't ever want to feel this way again. I look forward to contine to read your post and thank you for all of your valuable information.

Skylark Collaborator

I'm not sure you noticed, but this is a two-year old thread. Most of the people who answered are not on the board any longer.

If you suspect you are reacting to something, eliminate it and see how you feel. :)

By the way, I would not feel well having soymilk in my coffee. A lot of people react to soy. I'd suggest just cutting out the coffee entirely and have some black tea.

MikeOhio Rookie

Some people are sensitive to coffee. I get diarrhea 8-24 hours after drinking coffee. I used to drink it in very small amounts if I was constipated. I still was a little more un-constipated than I wanted to be.

woodnewt Rookie

There could be some sort of cross-contamination in your diet that you're not aware of, so you might want to go through all of your food items and double check. But otherwise, like others here have said, 10 cups of decaf coffee is a lot! If your gut's unwell, that is definitely going to be an agitant, especially if you're adding cream and sugar. Coffee was one of the many, many foods I had to totally stop while I was recovering. Just couldn't tolerate it or a lot of other things that are even slightly harsh to the gut. Now I drink 2-4 cups a day, instant, with nothing added (no cream or sugar) with absolutely no problems.

tuxedocat Apprentice

If acidity is the problem, try cold brewing your coffee.

Open Original Shared Link

It's such a good cup that you may never want standard coffee again. I stopped needing to sweeten the coffee and it even tastes good without cream.

Jestgar Rising Star

If acidity is the problem, try cold brewing your coffee.

Open Original Shared Link

It's such a good cup that you may never want standard coffee again. I stopped needing to sweeten the coffee and it even tastes good without cream.

I have read about this, but never tried it. Thanks for the reminder, I may try it this summer.

deb445 Rookie

I recently received a Keurig coffee maker - the one with the little single serving coffee doins' that you pop into the machine & press GO. I noticed that some brands of the coffee doins' contain autolyzed yeast extract. NOT going near that cuppa joe!

kareng Grand Master

I recently received a Keurig coffee maker - the one with the little single serving coffee doins' that you pop into the machine & press GO. I noticed that some brands of the coffee doins' contain autolyzed yeast extract. NOT going near that cuppa joe!

That's an odd ingredient for coffee. But it's gluten free.

lovegrov Collaborator

I recently received a Keurig coffee maker - the one with the little single serving coffee doins' that you pop into the machine & press GO. I noticed that some brands of the coffee doins' contain autolyzed yeast extract. NOT going near that cuppa joe!

If you're worried about gluten in tha,t don't be.

richard

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,743
    • Most Online (within 30 mins)
      7,748

    MistyMoon
    Newest Member
    MistyMoon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.