Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"But You Can Eat Whole Wheat, Right?"

earthtoneNJ

Recommended Posts

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

I saw a sign today advertising for a homemade specialty bread store. I scanned the list of what they make to see if they had any gluten free bread. No such luck, but the last product they listed was "Spelt bread for people with Wheat allergies" :o

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 121
  • Created
  • Last Reply
i-geek Rookie
i-geek
Posted

I saw a sign today advertising for a homemade specialty bread store. I scanned the list of what they make to see if they had any gluten free bread. No such luck, but the last product they listed was "Spelt bread for people with Wheat allergies" :o

Depending on what allergenic protein a wheat-allergic person reacts to, spelt might be safe. At least they didn't suggest it as safe for celiacs.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

Depending on what allergenic protein a wheat-allergic person reacts to, spelt might be safe. At least they didn't suggest it as safe for celiacs.

Really? I thought Spelt was just another (older) form of wheat. I thought I saw someone with a wheat allergy post here that they reacted to spelt, so I guess that's where I got confused. Thanks for the info.

ravenwoodglass Mentor
ravenwoodglass
Posted

Really? I thought Spelt was just another (older) form of wheat. I thought I saw someone with a wheat allergy post here that they reacted to spelt, so I guess that's where I got confused. Thanks for the info.

Actually I think you are right. Spelt is wheat and I do think someone allergic to or intolerant to wheat would react. But I could of course be wrong.

jerseyangel Proficient
jerseyangel
Posted

Depending on what allergenic protein a wheat-allergic person reacts to, spelt might be safe.

This is the way I understand it too. Some people with a wheat allergy can use spelt.

Of course, that does not hold true for Celiacs :)

i-geek Rookie
i-geek
Posted

Really? I thought Spelt was just another (older) form of wheat. I thought I saw someone with a wheat allergy post here that they reacted to spelt, so I guess that's where I got confused. Thanks for the info.

It's a varietal of wheat, but not the same species as common wheat(or sub-species; there appears to be some confusion). Some of the proteins in the two species will be identical and someone who reacts to those proteins in common wheat will also react to spelt. However, some of the proteins will be different, and someone who reacts to a protein that is only in common wheat will not react to spelt.

psawyer Proficient
psawyer
Posted

Spelt contains gluten. It is not identical to modern wheat, but neither is barley or rye. Celiacs must avoid all forms of gluten, including spelt.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


srall Contributor
srall
Posted

These are so funny. I'm brand new to this board but I can completely relate to this thread. I realized through an elimination diet in March of this year that I'm extremely gluten intolerant and I've also given up dairy which bothers me too. (May re-introduce wheat to get a celiac's diagnosis as I have many classic symptoms but am dreading the process).

Anyhow, I have been scrambling myself to figure out what is safe and not safe (never thought about make up...will have to research that next)

Anytime I travel or eat out I panic...I realize that nobody but me can be trusted when it comes to what foods are safe for me. In a hotel restaurant in Rhode Island I was already crashing from something I ate and was really struggling. There was a risotto on the menu and I asked the waitress to ask the chef if it was dairy free and if there was any soy sauce. I had already learned not to trust the servers. She comes back and says no soy sauce and dairy free. Risotto comes out...in a cheese sauce, which I discovered after taking a big bite. They did comp my meal.

I too have been asked many of the same questions :"You CAN eat white bread though?" and "What do you eat then?"

Honestly I'm eating 100% healthier since I've had to take control of my diet.

K8ling Enthusiast
K8ling
Posted

I'm having trouble accepting that my son won't eat as well as I can feed him at school. I am going to start sending him lunch, but since being diagnosed we eat SO healthy. Then he goes to school. I took him to school at lunch time today and saw what they were feeding him...and oh goodness. It made me wish I had fed him before he went to school. Being a Celiac has made everyone in my family healthier.

polarbearscooby Explorer
polarbearscooby
Posted

Here is a conversation I had with my Dad's sister. She's supposed to be a nurse...and supposedly the smart one?!?

ME: I can't eat anything with wheat in it...

HER: Oh. So you can only eat White bread? (I HATE THIS LINE!!!)

ME: No. White bread is just bleached wheat. I can't have any wheat at all...

HER: OK...So how bout this cake mix? *holding up a box of regular betty crocker cake mix*

ME: No. Not that either

HER: Oh. Well, You can still eat Ravioli out of the can right? Or spaghetti from a box?

ME: NO. I have to eat special spaghetti, regular pasta is made from wheat...

HER: Ok. I got it. So you can eat Kraft Mac and Cheese Right?

ME: *head palm* No.

Needless to say I NEVER let her cook for me....

i-geek Rookie
i-geek
Posted

Here is a conversation I had with my Dad's sister. She's supposed to be a nurse...and supposedly the smart one?!?

ME: I can't eat anything with wheat in it...

HER: Oh. So you can only eat White bread? (I HATE THIS LINE!!!)

ME: No. White bread is just bleached wheat. I can't have any wheat at all...

HER: OK...So how bout this cake mix? *holding up a box of regular betty crocker cake mix*

ME: No. Not that either

HER: Oh. Well, You can still eat Ravioli out of the can right? Or spaghetti from a box?

ME: NO. I have to eat special spaghetti, regular pasta is made from wheat...

HER: Ok. I got it. So you can eat Kraft Mac and Cheese Right?

ME: *head palm* No.

Needless to say I NEVER let her cook for me....

Oh, that's just frightening.

ravenwoodglass Mentor
ravenwoodglass
Posted

Here is a conversation I had with my Dad's sister. She's supposed to be a nurse...and supposedly the smart one?!?

ME: I can't eat anything with wheat in it...

HER: Oh. So you can only eat White bread? (I HATE THIS LINE!!!)

ME: No. White bread is just bleached wheat. I can't have any wheat at all...

HER: OK...So how bout this cake mix? *holding up a box of regular betty crocker cake mix*

ME: No. Not that either

HER: Oh. Well, You can still eat Ravioli out of the can right? Or spaghetti from a box?

ME: NO. I have to eat special spaghetti, regular pasta is made from wheat...

HER: Ok. I got it. So you can eat Kraft Mac and Cheese Right?

ME: *head palm* No.

Needless to say I NEVER let her cook for me....

I guess she slept through her nutrition classes. Wow I can't believe a nurse could be that clueless, scarey.

Skylark Collaborator
Skylark
Posted

I guess she slept through her nutrition classes. Wow I can't believe a nurse could be that clueless, scarey.

She's one of those foodiots. Ask her where the flour trees grow. You might get an interesting answer. ;)

kayo Explorer
kayo
Posted
I can't believe a nurse could be that clueless

Related story... a friend had gastric bypass surgery and is having trouble with her diet. She suspects she might have lactose intolerance so she called her doctor who said, yogurt and cheese don't have lactose because they're processed so she can go ahead and eat them.

:blink:

I can maybe sort of understand an average person may not know this but a doctor? One who deals with gastric bypass patients who have to drastically change their diets? You'd think they'd be up on basic food intolerance knowledge.

Jestgar Rising Star
Jestgar
Posted

yogurt and hard cheese have very little lactose.....

missceliac2010 Apprentice
missceliac2010
Posted

I can maybe sort of understand an average person may not know this but a doctor? One who deals with gastric bypass patients who have to drastically change their diets? You'd think they'd be up on basic food intolerance knowledge.

Doctors....LOL! Even though I have a print out, right on my refrigerator door that tells me the lactose content of "commonly eaten foods", and yogurt is pretty low in lactose, I still eat soy yogurt. Although, I will admit, because of a lack of not-gross cheese substitutes out there, I still indulge in "regular" cheese, with the help of "Lactaid." I tried once to eat a regular yogurt, and got sick as a dog, even with the Lactaid. I guess we are all different, and we all have to make choices about how far we are willing to "push" our diet. Lactose, unlike gluten, does not make my belly extend, which is the symptom I find most painful and annoying. My clothes don't fit, my back hurts, ugh, it's hell. But Lactose...if I screw up its just a few trips to the potty with D. I take 2 lactaid before a sandwich with a slice or two of cheese, and that is fine, but if I am having a "cheese plate" (a common snack with my BF and I...(different cheeses and rice crackers...yum..), I have to take 3 - 4 Lactaid. It's probably better if I avoid 'cheese plate lunch' day, but hey, it's a risk I am willing to take!

You can find out the general amount of lactose in commonly eaten foods. That way, you have a formal, educated answer to the lactose content of food, and you can make your own choices. I found a great table here:Open Original Shared Link

They have an excellent chart about half-way down the page. I printed 3 and hung on my fridge, one on bf's fridge, and carry one in my purse. Good luck!

kayo Explorer
kayo
Posted
yogurt and hard cheese have very little lactose.....

But very little does not equal none. Besides, he didn't make that distinction so she continued to eat cottage cheese, cream cheese, yogurt, etc.

I'm severely lactose intolerant and been dairy free for a long time so I know my stuff when it comes to lactose, cassein and whey. Lactaid doesn't work for me but I suggested to my friend that she try Lactaid milk or soy milk to see if she feels better.

I don't want to stray too far off topic, just wanted to highlight that nurses and docs can be just as ignorant about food intolerances as anyone else.

mushroom Proficient
mushroom
Posted

But very little does not equal none. Besides, he didn't make that distinction so she continued to eat cottage cheese, cream cheese, yogurt, etc.

Everyone has a different tolerance level. I was severely intolerant of milk, cream, ice cream and frozen yogurt. I could eat cheeses, cream cheese, sour cream, yogurt, butter, without any problem.

Ahorsesoul Enthusiast
Ahorsesoul
Posted

Kind of like asking someone who's can not eat shellfish if they can have shrimp if you remove the shell.

  • 2 years later...
floral Newbie
floral
Posted

When you have a gastric bypass you lose the part of your intestine that digests lactose. You are told before surgery that you will become lactose intolerant. To me it didn't make any difference since I had been severely lactose intolerant since the age of 18. I'm surprised that the above doctor who performs this surgery for a living wouldn't have informed all of his patient's of this beforehand. ?????

Chiana Apprentice
Chiana
Posted

It's possible that he has had other bypass patients report that cheeses, etc. did not give them issues. I know someone who still drinks milk post-bypass, so I think problems/severity is variable.

If the cheese is properly aged (which almost no cheese is these days) then it should contain no lactose. But that takes years. It's just like dry wine - given the proper conditions and the right starting ingredients, fermentation should continue until all sugars have been consumed.
JNBunnie1 Community Regular
JNBunnie1
Posted

Please keep in mind, guys, the conversation you are joining is two years old, and

many of the participants may not be around anymore. Very amusing thread to resurrect

though. :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Colleen H
      - Colleen H posted a topic in Coping with Celiac Disease
      0

      Oh my goodness medication causing pain !!!!

      I think I found a huge culprit for severe reactions to create worsening of my c symptoms. Do people with celiac have sensitivity and /or have opposite reaction to certain medications Where can I find a list ? I'm new here I'm.wondering why I am getting worse when I take certain medicine...the burning feet. Rebound muscle pain so intense ...
    2. Colleen H
      - Colleen H replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon. I did no't have any bread It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right...
    3. dixonpete
      0

      Inoculation and video development

    4. Juliane
      - Juliane replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    5. RMJ
      - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight. My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,843
    • Most Online (within 30 mins)
      7,748
    K M
    Newest Member
    K M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Oh my goodness medication causing pain !!!!

      By Colleen H · Posted

      I think I found a huge culprit for severe reactions to create worsening of my c symptoms. Do people with celiac have sensitivity and /or have opposite reaction to certain medications Where can I find a list ?  I'm new here I'm.wondering why I am getting worse when I take certain medicine...the burning feet.  Rebound muscle pain so intense  How many people get opposite effects or have a horrible attack after these meds
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon.  I did no't have any bread    It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it  The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook. Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems... I wonder if I should fast because I'm not eating gluten .  Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞 Any suggestions I am open... I am bedridden when this happens to me.  Thank you Celiac community. 🙏🏻❤️      
    • Juliane
      Stomach burning and neuropathy

      By Juliane · Posted

      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    • RMJ
      Nausea

      By RMJ · Posted

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.