Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Onset Of Neurological Symptoms After Being Glutened

HardcoreDior

By HardcoreDior
in Coping with Celiac Disease

Recommended Posts

HardcoreDior Newbie
HardcoreDior
Posted

Hey,

I have a question for those of you who have associated neurological symptoms with gluten intolerance.

What is the time frame in which you experience neurological symptoms after consuming gluten?

I have been gluten free for about 2 months, and recently discovered a tapioca intolerance as well. I was accidentally glutened yesterday, and today I'm feeling a lot of disordered thinking - depression and anxiety. Since going gluten free, I have noticed some improvements in my neurological symptoms, and it seems like every time I get glutened, they return full force.

Is it possible that gluten can cause an increase in neurological symptoms within hours?

(Alternatively, I acknowledge I could simply be frustrated at feeling so crappy again, which could also be causing the return of anxiety and depression)

Any advice or similar experiences would be greatly appreciated!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kwylee Apprentice
kwylee
Posted

90% of my symptoms are neurological, and not sure if this is typical of all who are gluten intolerant. If I ingest just a bite of either gluten, casein or soy, I feel dizzy within 10 minutes. For me, the response duration is commensurate with the amount ingested. Just a taste of something can leave me feeling "weird" for an hour. Since I am now accustomed to tasting and waiting, it's been a few months since I've had any reaction last longer than an hour.

Traveller Rookie
Traveller
Posted

Is it possible that gluten can cause an increase in neurological symptoms within hours?

Yes, it's possible. My first symbol appears within an hour (severe headache), rapidly followed by fatigue, foggy brain, and a motion disorder. The duration and severity seems to correlate with the amount of gluten ingested.

ravenwoodglass Mentor
ravenwoodglass
Posted

My neuro symptoms hit within a couple of hours at most and last for a couple of weeks. My GI issues (other than stomach growling which hits within an hour) don't appear until 3 days later.

curiousgirl Contributor
curiousgirl
Posted

Yes, it's possible. My first symbol appears within an hour (severe headache), rapidly followed by fatigue, foggy brain, and a motion disorder. The duration and severity seems to correlate with the amount of gluten ingested.

what kind of motion disorder?

Pac Apprentice
Pac
Posted

In my case the onset of symptoms is 1/2 to several hours after glutening, duration depends on how much gluten I ingested (or breathed in) - several weeks to several months. In july I accidentaly ate a bag of gluten cookies (the gluten-free package looks exactly the same, same name color... just the ingredients list differs) and I only started getting better last two weeks. I don't get any GI symptoms any more, just yeast infections (finger nails and throat) and a long list of neuro symptoms.

HardcoreDior Newbie
HardcoreDior
Posted
  • Author

This is GREAT feedback. Thank you so much, all of you.

I am VERY greatful for this forum - I would be very lost without it!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MelindaLee Contributor
MelindaLee
Posted

I ate gluten for lunch (accidentally) and by 4pm I was having dizziness and vision disortion. It lasted into the next day, though my GI symptoms take about 3 days to clear.

bluebonnet Explorer
bluebonnet
Posted

yes for me it hits in a matter of hours and lasts around 2 to 3 days.

Kenster61 Enthusiast
Kenster61
Posted

I have been researching this for some time as I have been having seizures for about four years. I believe that there is a direct connection between my seizures and gluten ingestion. I ws accidently glutened at a restaunt about a month ago and my siezures got worse the next week.

Ken

precious831 Contributor
precious831
Posted

Hey,

I have a question for those of you who have associated neurological symptoms with gluten intolerance.

What is the time frame in which you experience neurological symptoms after consuming gluten?

I have been gluten free for about 2 months, and recently discovered a tapioca intolerance as well. I was accidentally glutened yesterday, and today I'm feeling a lot of disordered thinking - depression and anxiety. Since going gluten free, I have noticed some improvements in my neurological symptoms, and it seems like every time I get glutened, they return full force.

Is it possible that gluten can cause an increase in neurological symptoms within hours?

(Alternatively, I acknowledge I could simply be frustrated at feeling so crappy again, which could also be causing the return of anxiety and depression)

Any advice or similar experiences would be greatly appreciated!

Mine happens in a few hours. The GI symptoms begin though about 20-30 minutes after I ingest gluten. That familiar bloating, cramping, nausea, then diarrhea follows after that. Then the neurological symptoms and I would usually feel ill for almost a week. My joints swell up, everything hurts.

anabananakins Explorer
anabananakins
Posted

I found it took repeated glutenings in a short time to get the symptoms back again. Usually I get stomach pains and D about 2 hours after getting glutened, but by the end of that night I am ok. At home I have very good control over what I eat, so it's usually accidently contamination eating out.

However, on my recent trip I found that while the first glutening resulted in those usual symptoms, I got glutened again and again over the next week or so with barely any recovery time (all cc). Not only did my GI symptoms go back to what they'd been in the years before I self diagnosed (C instead of D), my neurological problems returned. They are mostly dizzyness, very unsteady balance. I have trouble walking through groups of people walking towards me because I tip and stumble, I have trouble judging the spacing. It took about a week to feel better and ironically it was when I stopped bothering trying to eat proper meals and risk contamination and just lived on things I knew were safe even if not particularly nutritious (I ate an awful lot of sugar) that I felt better. I'm not officially diagnosed and that was really good proof that gluten is poison to me.

So I think I'm lucky in that I'm ok if I only get glutened once and have time to recover, the neuro symptoms don't come back.

sandsurfgirl Collaborator
sandsurfgirl
Posted

My neuro symptoms- dizziness, foggy head and anxiety attacks- happen within about half an hour or less. It's my first symptom and how I know I'm glutened. I hate it!

MelindaLee Contributor
MelindaLee
Posted

I ate gluten for lunch (accidentally) and by 4pm I was having dizziness and vision disortion. It lasted into the next day, though my GI symptoms take about 3 days to clear.

I just realized one week after this glutening...I had a migrain (mine are not typical. First I have visual distortion, then left arm, lips and nose numbness) This was my first migrain post gluten-free, so I followed up with the neurologist. He accused me of cheating! (that ticked me off! :angry: )until we got talking more and he realized how much I know this has helped. So there is a definate correlation between the accidental glutening and the migrain! :blink:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,791
    • Most Online (within 30 mins)
      7,748
    klholt
    Newest Member
    klholt
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      KATZ CINNAMON DONUTS

      By Scott Adams · Posted

      I'm so sorry to hear you're feeling so unwell, and I hope you recover quickly. While your personal experience of getting sick is absolutely valid, there are a few key inaccuracies in the information you've shared that are important to clarify for anyone else reading. The central misunderstanding is about oats and gliadin. Oats do not contain gliadin; gliadin is a specific protein found exclusively in wheat. The protein in oats is called avenin, which is similar in structure but is a completely different compound. For the vast majority of people with celiac disease or gluten sensitivity, pure, uncontaminated oats are safe. The reason "gluten-free" oats are necessary is because regular oats are frequently cross-contaminated with wheat, barley, or rye during growing and processing. Certified gluten-free oats are tested to ensure they are free from this cross-contamination. It's possible you may have a separate and less common sensitivity to avenin in oats themselves, or the illness could have been caused by another ingredient or even an unrelated virus. Given your expertise and severe reaction, it would be a good idea to discuss this with a doctor to pinpoint the exact cause. This article, and the comments below it, may be helpful:    
    • Scott Adams
      Newbie possible glutening help

      By Scott Adams · Posted

      This article, and the comments below it, may be helpful:    
    • trents
      Could my infant son have been glutened? Hear me out.

      By trents · Posted

      Celiac disease is an autoimmune condition with a genetic base. The the potential for developing the disease is inherited. but remains latent until triggered by some stress event. Thus, there is an epigenetic component to celiac disease. Once the genes are awakened from dormancy, celiac reactions are triggered by the ingestion of gluten.
    • bombier
      KATZ CINNAMON DONUTS

      By bombier · Posted

      I just called in sick to work and I'm laying here in a fetal position with liquid diarrhea so bad I'm using a trash can and can't make it to the bathroom. Last night I thought I would treat myself as most of you realize we have to cook from scratch so much but I thought I would treat myself and I made a huge mistake by buying these katz cinnamon donuts. I had a pre-covid gluten-free restaurant and used to hold gluten-free meetings in McDonald's until they closed the dining rooms down. I am very familiar with this topic. I'm too sick to fish the box out of the garbage can and read the ingredients again but I can guarantee you before I bought it I made sure they didn't have so-called gluten-free oats because there is no such thing. Oats have gliadin and gliadin is a derivative of gluten I learned this long ago in my gluten-free journey. I am in so much pain and so sick I can't believe it. Right now I'm feeling like this company has no business making food for the public.
    • Beeroney
      Newbie possible glutening help

      By Beeroney · Posted

      Hi all, just ticked over into my first year gluten-free after being diagnosed last October and feeling a bit rough after a possible glutening. Diagnosed at the ripe age of 38, never been ill in my life before this so safe to say my health anxiety is now borderline unmanageable. I think I may have been glutened a week ago, since then I’ve had that familiar hot/burning feeling in my gut, gas, bloating and all the Bristol Stool chart types in one sitting. I know people are different but does this sound familiar to anyone? Stomach was churning like mad last weekend like it did when I first ill before diagnosis. Acid reflux(which was my first symptom way back when) also reared its ugly head, which I probably the worst symptoms imo. Anxiety is probably up more so as I’m leaving on holiday to USA in 3 weeks time, which would be pretty much ruined if my guts are still messed by the time we leave.  Any words of wisdom appreciated    Bryan 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.