Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Very Mild Case?


domesticactivist

Recommended Posts

domesticactivist Collaborator

I'm wondering if anyone has confirmed Dermititis herpitiformis which is not symmetrical or widespread. My daughter is about to undergo some testing for celiac, and one of the things that could point to it is that she has always had little itchy spots. Sometimes they look like bug bites, but they are more like a blister. They are isolated, (just one blister in a spot), she scratches them, and they are usually on her ankles, face (hairline or chin), or upper chest.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

My hub only ever had the one outbreak, about an inch-long line of vertical blisters starting just below the hairline on one side of his forehead. It was enough to put the fear of God in him about cheating on the diet, so was a good thing. :D

eatmeat4good Enthusiast

My first sores were very much one tiny very painful spot. Mosquito bite looking. Took forever to heal. That one would heal and another would appear. Later got one large spot on leg...same pain...same took forever to heal. That one took one year. Later outbreak on face. Several small painful spots that grew larger as the glutening went on and before the diagnosis. My son had "mosquito bites" on his legs that were itchy and painful and didn't heal. Here, then there. It all went away when the gluten did. No antibiotic or antifungal did anything for them but sometimes they would disappear altogether, only to reappear later. This was our experience.

rosetapper23 Explorer

I can only address symmetry. I think very few studies (if any) have been done on DH, so this assumption that it has to be symmetrical is not accurate. For my adult son and me, we both break out on our faces (jaw, chin, and down the sides of the neck). However, I also break out on the sole of my RIGHT foot and on my LEFT hand. My son, on the other hand, breaks out on the sole of his LEFT food and on his RIGHT hand, just the opposite of my outbreaks. Very strange "symmetry," for sure.

Skylark Collaborator

I'm wondering if anyone has confirmed Dermititis herpitiformis which is not symmetrical or widespread. My daughter is about to undergo some testing for celiac, and one of the things that could point to it is that she has always had little itchy spots. Sometimes they look like bug bites, but they are more like a blister. They are isolated, (just one blister in a spot), she scratches them, and they are usually on her ankles, face (hairline or chin), or upper chest.

I have one area along my right index finger used to get intensely itchy and would sometimes have a blister or two. It baffled a doctor because there is no reason for me to have herpes whitlow and neither of us thought of DH. I'm pretty sure it's DH because it hasn't blistered in a few years now and when I got stuck eating CC'd food over a weekend trip it started itching intensely.

TexasLady54 Newbie

I have one area along my right index finger used to get intensely itchy and would sometimes have a blister or two. It baffled a doctor because there is no reason for me to have herpes whitlow and neither of us thought of DH. I'm pretty sure it's DH because it hasn't blistered in a few years now and when I got stuck eating CC'd food over a weekend trip it started itching intensely.

I have had Dermatitis Herpetiformis off and on again for about 10 years or longer. It does get blistery and insanely itchy. I have never had the perfectly symetrical pattern but maybe one elbow, one finger, one knee and then other times it would be both elbows, both knees. It's just a crazy disease. It waxes and wanes though and sometimes I can go for a period of weeks or months without a breakout. I have scratched until I bled. Now when the itchy patches come, I use an Rx from my Dermatologist, Pramazone lotion (which actually dries up the blisters) given a few days time.

Muffy Rookie

I also get the singular bumps, like a weird bug bite. I called them volcanoes for the longest time because they would erupt as I scratched and scracthed and would take forever to heal, my scratching didn't help. wink.gif

I get them on my hands, wrists, forearms, upper cest, neck, face, and knees. There is never any kind of symmetrical pattern. I have an itchy spot on one foot that comes and goes and drives me crazy, it is red sometimes. I never thought it was related but by reading the other replies I see that the mystery is finally solved. For a while I even thought maybe a I had a single paralyzed scabbie living there or something... blink.gif


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shopgirl Contributor

That explains the weird, itchy spots I would get on one of my fingers that would come and go. I always assumed it was a tiny patch of eczema.

  • 2 weeks later...
Cypressmyst Explorer

I also get the singular bumps, like a weird bug bite. I called them volcanoes for the longest time because they would erupt as I scratched and scracthed and would take forever to heal, my scratching didn't help. wink.gif

I get them on my hands, wrists, forearms, upper cest, neck, face, and knees. There is never any kind of symmetrical pattern. I have an itchy spot on one foot that comes and goes and drives me crazy, it is red sometimes. I never thought it was related but by reading the other replies I see that the mystery is finally solved. For a while I even thought maybe a I had a single paralyzed scabbie living there or something... blink.gif

I just have to say that I love the image of a single paralyzed scabbie. :lol:

My DH is sometimes on my chest, sometimes on my back, stomach, arms, jawline, face, and is sometimes like a little zit, sometimes just red, sometimes itchy, sometimes not. No pattern, then again why should there be one? :P

It is how I know I am glutened as it always always shows up in addition to the brain fog, migraines, cecum pain etc..

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Scatterbrain's topic in Sports and Fitness
      2

      Feel like I’m starting over

    2. - cristiana replied to Scatterbrain's topic in Sports and Fitness
      2

      Feel like I’m starting over

    3. - Scatterbrain posted a topic in Sports and Fitness
      2

      Feel like I’m starting over

    4. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    5. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,280
    • Most Online (within 30 mins)
      7,748

    newlife213
    Newest Member
    newlife213
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Were you doing any of the new home construction yourself? Drywall compounds and adhesives used in construction have been known to cause problems for some celiacs.
    • cristiana
      Hello @Scatterbrain and welcome to the forum I am sorry to hear you have had a return of your symptoms.  My first thoughts were that stress can cause IBS-like symptoms - a friend of mine has been suffering a huge amount of stress and when that happens she gets diarrhea.  But you say that you haven't got any bad abdominal issues, so perhaps you could share what other symptoms you are having? Cristiana  
    • Scatterbrain
      Hello, I was newly diagnosed in January of this year (2025).  Since then I have been strict about staying gluten free and only cooking at home.  I started feeling better in July while gradually resuming close to my normal routine of activities and athletics. September and October were extremely stressful due to a new home build being finished and moving.  My spouse and I take care of his mom who has advanced dementia and have been since 2021.  We did all the moving as well as get the other house on the market for the month of October.  Since earlier this month I feel like I did back in the early stages of my diagnosis.  Almost all of my symptoms have come back except for the bad abdominal issues.  I haven’t changed my diet or supplements since January and wonder if the stress has caused a set back? Any thoughts are helpful.  Thanks
    • Scott Adams
      This is why Daura Damm can be a sponsor here--at 3ppm or less it is gluten-free, and it's doubtful that anyone with celiac disease would ever have issues with such levels. Some people may be reacting to the yeast in the beer, but I seriously doubt that such beers could trigger elevated antibodies or villi damage--the science says such levels won't trigger celiac disease issues.  
    • Scott Adams
      I have to express some significant skepticism about the drclark cleansing programs you've mentioned. The claim that a specific, three-part parasite and organ cleanse is a universal solution for chronic health issues is a major red flag, as it oversimplifies the immense complexity of the human body and conditions like Celiac disease, which is an autoimmune disorder, not a parasite infection. Regarding your Celiac disease, the reaction you describe, while real to you, does not necessarily confirm a diagnosis; a delayed reaction is common with various digestive issues, and a definitive diagnosis typically requires specific blood tests and an intestinal biopsy, not just a provider's acceptance of symptoms. Furthermore, your mention of approaching mayors seems to misunderstand the role of local government versus federal policy; the deduction for gluten-free food is a federal tax law, and a mayor has no jurisdiction to implement widespread Celiac screening, which is a medical and public health decision far beyond a municipal leader's purview. It sounds like you are navigating a difficult health journey, but I would strongly advise consulting with qualified medical specialists and registered dietitians over relying on unverified online cleansing programs.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.