Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened...but By What?

K8ling

By K8ling
in Coping with Celiac Disease

Recommended Posts

K8ling Enthusiast
K8ling
Posted

Ok guys, I am thoroughly confused. Last night I had a major Gluten reaction- severe cramping, D and nausea- and I had barely eaten all day. My son brought home RSV and I caught it IMMEDIATELY (Toddlers just LOVE to share!) so I have been down sick for about 4 days. Yesterday I had gluten-free chicken potato soup that my husband made from scratch, and toast, some gluten-free crackers...and Tylenol PM. That's it.

So I am a little confused. My food choices have been limited to soup, crackers and ginger ale for the past 4 days.

I am also 6 weeks pregnant...is it possible that my body just freaked out?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

K8 have you talked to an OB yet?

Are you drinking lots and lots of water or Gatorade or Koolaid? You could be dehydrated.

Take care of yourself and that gluten-free bun in the oven.

K8ling Enthusiast
K8ling
Posted
  • Author

Water, I called my OB and just got a call back from my normal doctor who can't treat me with really anything antibiotic wise, because they are worried about the risk of miscarriage. I guess it is possible I am dehydrated, I just felt like it was a gluten reaction. I dunno maybe it's not. Being pregnant is very weird LOL.

I am being put on a nebulizer, inhalers and nasal spray and my husband is watching me to see if I get hypoxic.

tarnalberry Community Regular
tarnalberry
Posted

especially the first few weeks of pregnancy, you can't really say if it's gluten or hormones. hormones can cause all of those things - and it can be all the worse if you haven't eaten much. try to get some more food, and keep an eye on the cramping. some is normal, but if there's too much, you may want to check in with your doc to make sure your hormone levels are such that they can maintain a pregnancy. (sometimes, they can help with that, depending on the exact issue.)

K8ling Enthusiast
K8ling
Posted
  • Author

especially the first few weeks of pregnancy, you can't really say if it's gluten or hormones. hormones can cause all of those things - and it can be all the worse if you haven't eaten much. try to get some more food, and keep an eye on the cramping. some is normal, but if there's too much, you may want to check in with your doc to make sure your hormone levels are such that they can maintain a pregnancy. (sometimes, they can help with that, depending on the exact issue.)

Thanks, I've been getting blood tests every week to monitor my HCG levels. I tend to lose babies between 6 and 11 weeks so we are in the danger zone right now. I did call the OB and he's pretty sure it wasn't the baby. My normal doctor just called in some breathing stuff and told me to take it as easy as I can.

I'm not sure WHATS going on but I DO know I feel awful.

Thank you ALL for the input, I am really worried.

tarnalberry Community Regular
tarnalberry
Posted

Thanks, I've been getting blood tests every week to monitor my HCG levels. I tend to lose babies between 6 and 11 weeks so we are in the danger zone right now. I did call the OB and he's pretty sure it wasn't the baby. My normal doctor just called in some breathing stuff and told me to take it as easy as I can.

I'm not sure WHATS going on but I DO know I feel awful.

Thank you ALL for the input, I am really worried.

Correct me if I'm wrong, but I think low progesterone levels can also prevent you from carrying a baby to term, and they can supplement progesterone. Is this the same OB you've been seeing for the repeated miscarriages?

T.H. Community Regular
T.H.
Posted

Oh goodness! Here is wishing the baby lots of good, healthy vibes.

If gluten is the culprit...might be good to chuck the gluten-free crackers and toast for a bit and stick with carbs like unprocessed stuff like whole grains, potatoes, and sweet potatoes. Almost all gluten free food has a little gluten in it (below 20ppm) but perhaps during your pregnancy you are more sensitive to it? Or, if that's all you're eating, it could be that the low amounts of gluten are building up so you're ending up with over 20ppm. The gingerale can be an issue with gluten cc, too.

You can make a little gluten-free ginger tea by getting a 2 inch peeled piece of ginger, boil it in 4 cups of water for 15-20 min. and strain it. And a little sweetener added to it, fruit juice or honey. It might calm your stomach, and it would be more gluten free than the soda, yeah?

Also, the soup...did your hubby do it completely from scratch with a raw chicken, making his own broth, or did he use a pre-made chicken broth or bouillion? Or a flavor packet? If he used those but didn't get gluten free versions, maybe that was it. My kids have been glutened from all of those before.

The tylenol I suppose could be a problem, but I would think that would be more a morning sickness issue, not so much the D and cramping.

EDIT:

And I just came across this on the celiac.com site after I responded to you:

xanthan sensitivity

Essentially, talking about having a xanthan gum sensitivity and how it can make it hard to distinguish form glutening. It can cause gut problems, the big D, cramping - it might be worth looking at, especially because it almost definitely would be in the crackers and toast.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shopgirl Contributor
shopgirl
Posted

There was a Tylenol recall announced this week but I don't know if the pills could actually make someone sick. I think there was a cleaning issue at the plant.

Seems like a long shot but just throwing it out there.

cassP Contributor
cassP
Posted

what's RSV???

and i know Docs say Tylenol is safe... but i would try not to take anything.

i hope u feel better!!!!

K8ling Enthusiast
K8ling
Posted
  • Author

Guys, I feel terrible TERRIBLE. I had to take Tylenol or I couldn't function. Really.

Thank you for all the input! I called my OB this morning and she said that it may have been hormonal since that's how my body responds to hormone rushes- GI upset.

The soup was TOTALLY made from scratch. Organic chicken, no fillers, no broth, etc. no stock. Fresh chicken, carrots, celery, onions, and potatos. So good that we are making MORE tonight! It really seems to help!

I did put up the crackers and toast. I had a banana today and some bacon (I dunno, the baby liked it LOL) and am pushing fluids. Thank you for all the help guys!! Really!!

RSV is a common upper respiratory virus that little kids get during spring and winter. Highly contagious and dangerous to pregnant women and newborns or people with asthma (I have asthma and the baby LOL). My son is much better as is my husband... I just keep getting worse!! :(

Googles Community Regular
Googles
Posted

I don't have any suggestions to add. But I wanted to say that I hope you are feeling better soon.

AZGirl Rookie
AZGirl
Posted

No Advice; but am praying that you and the baby make a very speedy recovery.

Luddie Newbie
Luddie
Posted

Guys, I feel terrible TERRIBLE. I had to take Tylenol or I couldn't function. Really.

Thank you for all the input! I called my OB this morning and she said that it may have been hormonal since that's how my body responds to hormone rushes- GI upset.

The soup was TOTALLY made from scratch. Organic chicken, no fillers, no broth, etc. no stock. Fresh chicken, carrots, celery, onions, and potatos. So good that we are making MORE tonight! It really seems to help!

I did put up the crackers and toast. I had a banana today and some bacon (I dunno, the baby liked it LOL) and am pushing fluids. Thank you for all the help guys!! Really!!

RSV is a common upper respiratory virus that little kids get during spring and winter. Highly contagious and dangerous to pregnant women and newborns or people with asthma (I have asthma and the baby LOL). My son is much better as is my husband... I just keep getting worse!! :(

I, too, wish you all the best. Sounds like the old chicken soup is helping! I've found an anti-viral that has helped protect me from my grandkid's "starting school" colds, etc. It's an Elderberry based tonic called Sambucus. Tastes good too and it's gluten-free. The one I have is from Nature's Way.

I agree with putting away the crackers, toast and any other flours right now.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

I just wanted to say I hope you are feeling better soon! I have asthma too and get upper respiratory illnesses pretty easily, so I can imagine how miserable you are. Nothing's worse than the feeling of not being able to breath AND having to run back and forth to the bathroom. I drink lots of gatorade (I buy the powder canisters and mix in up a gallon at a time) and also those Emergen-C powder vitamin packets you mix with water to boost the immune system--check with you OBGYN of course to make sure the vitamin is safe for the baby.

jerseyangel Proficient
jerseyangel
Posted

Thinking about you, K8, and hope all is well :)

CarolinaKip Community Regular
CarolinaKip
Posted

Ok guys, I am thoroughly confused. Last night I had a major Gluten reaction- severe cramping, D and nausea- and I had barely eaten all day. My son brought home RSV and I caught it IMMEDIATELY (Toddlers just LOVE to share!) so I have been down sick for about 4 days. Yesterday I had gluten-free chicken potato soup that my husband made from scratch, and toast, some gluten-free crackers...and Tylenol PM. That's it.

So I am a little confused. My food choices have been limited to soup, crackers and ginger ale for the past 4 days.

I am also 6 weeks pregnant...is it possible that my body just freaked out?

Good thoughts your way for yo and baby!

K8ling Enthusiast
K8ling
Posted
  • Author

Hey guys! I checked with my doctor today and she is actually referring m to an ENT because my ears just aren't clearing. I have been sick every month since August with a sinus infection or an ear infection. I am on a prenatal vitamin and the OBGYN told me to take Sudafed (which surprised me but I guess they're worried about my eardrums bursting from the pressure) to relieve pressure. Right now, since I AM pregnant, basically it's just try the hardest I can to avoid ALL gluten and take the best care of myself I can. Unfortunately, the high school kids I am teaching are little germ factories (surprising, I know LOL) so LOADS of purell.

Thanks for all the help! I REALLY appreciate it!!

jerseyangel Proficient
jerseyangel
Posted

Have you ever tried a neti-pot? I find it very helpful with my sinuses--you just use warm salt water so no fear for the baby.

K8ling Enthusiast
K8ling
Posted
  • Author

Have you ever tried a neti-pot? I find it very helpful with my sinuses--you just use warm salt water so no fear for the baby.

Yes, unfortunately my ears don't drain properly, and I end u with ear infections. They're considering putting tubes in :(

lynnelise Apprentice
lynnelise
Posted

Hope you feel better soon! I know my doctor told me Sudaphed was okay when I was preggo but that was 16 yrs ago. At any rate I did fine with it!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Thank you for sharing this — it’s really important. The FDA is actively seeking public input on improving gluten and ingredient labeling, which could directly impact how people with celiac disease and gluten sensitivity shop and stay safe. Clearer labeling would help reduce accidental gluten exposure and make it easier to identify hidden sources of gluten in ...
    2. Scott Adams
      - Scott Adams replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Low iron and vitamin d

      A low tTG is great news, but it doesn’t always mean the small intestine has fully healed yet—iron and vitamin D absorption can lag behind for months or even years, especially in young children. Many kids need supplements for a period of time while the gut repairs itself, and that doesn’t necessarily mean it will be lifelong. Morning stomach pain is also ...
    3. Scott Adams
      - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Healthy Gluten Free Foods low sugar that you found?

      A lot of gluten-free packaged foods do rely on extra sugar, starches, or sodium to replace texture and flavor, so focusing on simpler options makes sense. Many people do better with naturally gluten-free proteins like eggs, plain yogurt, nuts, seeds, hummus, beans, and minimally processed protein bars with lower added sugar and higher fiber. Pairing those...
    4. Scott Adams
      - Scott Adams replied to lizzie42's topic in Traveling with Celiac Disease
      1

      Trip to Anaheim/Disney

      This article is a few of years old, but my still be helpful.
    5. trents
      - trents commented on Scott Adams's article in Winter 2026 Issue
      14

      Can You Really Trust Gluten-Free Menus? What Every Celiac Needs to Know Before Eating Out

      This is likely dependent on the sensitivity of the individual celiac.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,242
    • Most Online (within 30 mins)
      7,748
    Maya Baum
    Newest Member
    Maya Baum
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By Scott Adams · Posted

      Thank you for sharing this — it’s really important. The FDA is actively seeking public input on improving gluten and ingredient labeling, which could directly impact how people with celiac disease and gluten sensitivity shop and stay safe. Clearer labeling would help reduce accidental gluten exposure and make it easier to identify hidden sources of gluten in foods. I encourage everyone here who is affected by celiac or gluten sensitivity to read the announcement and submit their own suggestions — real lived experience matters and can influence policy changes that benefit the whole community.
    • Scott Adams
      Low iron and vitamin d

      By Scott Adams · Posted

      A low tTG is great news, but it doesn’t always mean the small intestine has fully healed yet—iron and vitamin D absorption can lag behind for months or even years, especially in young children. Many kids need supplements for a period of time while the gut repairs itself, and that doesn’t necessarily mean it will be lifelong. Morning stomach pain is also commonly reported in celiac kids and can be related to slow healing, reflux, motility, or even low iron itself. It sounds like the supplements are clearly helping, which is reassuring, and ongoing monitoring with her doctor can help determine when (or if) doses can be reduced as absorption improves. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. This article has more info:    
    • Scott Adams
      Healthy Gluten Free Foods low sugar that you found?

      By Scott Adams · Posted

      A lot of gluten-free packaged foods do rely on extra sugar, starches, or sodium to replace texture and flavor, so focusing on simpler options makes sense. Many people do better with naturally gluten-free proteins like eggs, plain yogurt, nuts, seeds, hummus, beans, and minimally processed protein bars with lower added sugar and higher fiber. Pairing those with whole foods can help you feel more “normal” without triggering symptoms. Subscription boxes can be hit or miss, so checking labels carefully and using them as an occasional supplement—rather than a staple—often works best.
    • Scott Adams
      Trip to Anaheim/Disney

      By Scott Adams · Posted

      This article is a few of years old, but my still be helpful.  
    • knitty kitty
      Accuracy of testing concerns

      By knitty kitty · Posted

      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.