Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Miss?

aeraen

By aeraen
in Coping with Celiac Disease

Recommended Posts

Almendra Apprentice
Almendra
Posted

I miss those Nilla wafers to use in some good, old-fashioned banana pudding.

I miss Krystal's hamburgers.

Oreos.

Tiramisu was my restaurant dessert of choice.

AND I miss the convenience - even of just bringing something to a potluck and being able to eat any leftovers. Now, though I like being able to share something delicious and gluten-free, the sheer injustice of bringing something that I cannot partake in once people's glutened hands and plates start hovering over it pricks something deep inside me sometimes. Not fair.

The whole idea of potluck is sharing. Not getting that give AND receive feeling. Not getting to compliment someone on their cake recipe - or their sausage balls. I had to leave for a moment or two in the bathroom in tears at my first Christmas potluck (where I couldn't have gluten). I was doing alright until someone noticed what I was eating, had forgotten my circumstance, offered me food with a questioning glance, remembered my situation with another glance, and subsequently allowed her face to show some pity.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 78
  • Created
  • Last Reply
love2travel Mentor
love2travel
Posted

I miss those Nilla wafers to use in some good, old-fashioned banana pudding.

I miss Krystal's hamburgers.

Oreos.

Tiramisu was my restaurant dessert of choice.

AND I miss the convenience - even of just bringing something to a potluck and being able to eat any leftovers. Now, though I like being able to share something delicious and gluten-free, the sheer injustice of bringing something that I cannot partake in once people's glutened hands and plates start hovering over it pricks something deep inside me sometimes. Not fair.

The whole idea of potluck is sharing. Not getting that give AND receive feeling. Not getting to compliment someone on their cake recipe - or their sausage balls. I had to leave for a moment or two in the bathroom in tears at my first Christmas potluck (where I couldn't have gluten). I was doing alright until someone noticed what I was eating, had forgotten my circumstance, offered me food with a questioning glance, remembered my situation with another glance, and subsequently allowed her face to show some pity.

You can buy gluten-free ladyfingers and easily make tiramisu, thankfully! I also have a recipe for homemade ladyfingers if you'd like. Then you can have your favourite dessert again!

I'm with you on the potlucks. We've been invited to one and I just don't know what to do about it. Do I not go? Not sure at this point as I, too, miss the sharing and breaking of bread in that way.

NateJ Contributor
NateJ
Posted

I miss bagel chips and anything hostess.

Terri O Rookie
Terri O
Posted

I'm with the person that said BEER. gluten-free beer is very terrible! And now Tyranena is brewing my favorite Chocolate Oatmeal Stout again...my mouth is watering. MMMM--

I try not to miss stuff and like to try new foods; this thread has made me melancholy though...I think I will bake something--gluten-free of course! Terri O

love2travel Mentor
love2travel
Posted

I've never been a beer fan but I have used Guiness in making such dishes as Steak and Ale Pie. Are you aware of any gluten-free Guiness in Canada? I would like to be able to make the pie for my husband who has a hankering for it.

K8ling Enthusiast
K8ling
Posted

I miss Publix turkey sandwiches on their fresh baked bread. I miss french bread and cuban bread and hot cross buns and bacon egg cheese biscuits.

I like knowing what is in my food though. I like knowing what goes into my body. I like being healthier.

NateJ Contributor
NateJ
Posted

I'm with the person that said BEER. gluten-free beer is very terrible! And now Tyranena is brewing my favorite Chocolate Oatmeal Stout again...my mouth is watering. MMMM--

I try not to miss stuff and like to try new foods; this thread has made me melancholy though...I think I will bake something--gluten-free of course! Terri O

They have a gluten free beer called RedBridge they sell at the baseball stadium here in STL. Not sure what it taste like.

Anyone here try that one yet?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


txplowgirl Enthusiast
txplowgirl
Posted

My most favorite, hot, soft, buttery crousants. :rolleyes: Uuuuuuhhhhhhhmmmmm.

CourtneyLee Contributor
CourtneyLee
Posted

I miss those Nilla wafers to use in some good, old-fashioned banana pudding.

I miss Krystal's hamburgers.

Oreos.

Tiramisu was my restaurant dessert of choice.

AND I miss the convenience - even of just bringing something to a potluck and being able to eat any leftovers. Now, though I like being able to share something delicious and gluten-free, the sheer injustice of bringing something that I cannot partake in once people's glutened hands and plates start hovering over it pricks something deep inside me sometimes. Not fair.

The whole idea of potluck is sharing. Not getting that give AND receive feeling. Not getting to compliment someone on their cake recipe - or their sausage balls. I had to leave for a moment or two in the bathroom in tears at my first Christmas potluck (where I couldn't have gluten). I was doing alright until someone noticed what I was eating, had forgotten my circumstance, offered me food with a questioning glance, remembered my situation with another glance, and subsequently allowed her face to show some pity.

oh man, oreos, and hamburgers, what I would do to eat those.. :(

MJ-S Contributor
MJ-S
Posted

My mom's canaloni

French bread

Cheeseburger (with the bun)

REAL spagetti

Chocolate croissant

Croquettes

adab8ca Enthusiast
adab8ca
Posted

I miss:

Triscuits

Whole wheat tortillas

Timbits

Fresh french bread from the bakery (Hubby and I ate this for YEARS every Saturday, gluten-free bread does NOT cut it)

Hot, fresh pizza

Fast food of ANY KIND (and I NEVER used to eat it but now that I can't have it, i want it more!!!)

I just hate reading every label. If the list is too long, I just abort and don't bother.

BUT really, as we all know, there are so many things we CAN eat, so I try to celebrate those as much as I can!!!

iamsarar Rookie
iamsarar
Posted

I miss being able to go out with my husband and run to the new doughnut shop in town or picking up a pizza on the way home, stopping at the bagel shop. I didn't realize how much of our outings revolved around food until I couldn't do it any more. The fun part though is finding new things to do and places to explore like going to the city and trying a new restaurant we found with a gluten free menu or taking that hour long drive through the trees and along the water and ending up at the Gluten free bakery and having picnic by the water with new goodies to try........ actually as I read this I think I like the new life better :)

ilookthetype Rookie
ilookthetype
Posted

I miss my Mom's homemade pizza. I miss Yorkshire Pudding. It's not that I miss the easy, and I didn't realize it until people mentioned it, I miss the fitting in. I'm pretty introverted and you can't be introverted when everyone is asking why you aren't eating. I'm incredibly sensitive, and I was a receptionist and had to set up and tear down potlucks, I ate before set up to prevent glutening.

I miss being able to eat at a restaurant. I miss being able to share a drink with my roommate without discussing what she's eaten that day. I miss being able to kiss my boyfriend without a 20min detox before hand. I miss being able to buy inexpensive food. I miss being able to waitress and feel fine after every shift. Most of all, I miss mother flipping YUENGLING. I'm a Pennsylvania girl, I tell my tables (here in DC where I now live) that Yuengling is in my blood, I was born to raised to love it. That is what I miss most of all (don't tell the BF that I miss more!).

ChristineR Newbie
ChristineR
Posted

I miss oreo double stuffs and butter finger candy bars

benchwarmer Newbie
benchwarmer
Posted

- I miss going out for dinner to celebrate special occasions with my fiancee.

- I miss my Oma's amazing cakes and cookies.

- I miss having the option of taking a vacation at an all-inclusive resort.

- I miss ordering in when I'm tired and lazy after a long week.

- I miss being able to get through a day without somebody patronizing my meal with "well THAT looks good". . .because gluten-free is usually not good???!

- I miss being able to join in on bake exhanges with my friends at Christmas.

- I miss having drinks with friends at a bar or pub without worrying about contamination of the soda gun or the beer splashed on the bartender's hands.

- I miss being able to go to a friend's place or family member's place for dinner without feeling like an inconvenience.

Most of all, I miss feeling like everybody else.

Watching commercials or TV shows, sometimes I am baffled by how easy it is for people to go out to a restaurant or to a wedding and eat/drink whatever they want. It's one of those amazing luxuries in life that you don't know you have until it's gone. . .

wheeleezdryver Community Regular
wheeleezdryver
Posted

I miss oreo double stuffs and butter finger candy bars

I totally hear ya on the Oreo's... but I think the gluten-free version I've had (KinniToos, by Kinnickinick) are just as good, of not better.... but they don't have a double stuffed version (yet...)

as far as butter fingers, are you referring to the candy bar? My understanding is that the Butterfinger candy bars are gluten-free... at least the regular size ones.

Wenmin Enthusiast
Wenmin
Posted

I miss oreo double stuffs and butter finger candy bars

Butter finger candy bars are gluten free....Can't say that about the oreos though!

Wenmin

BethM55 Enthusiast
BethM55
Posted

As others have said, I miss convenience, and the freedom to eat whatever, whenever, wherever, without thinking about it. I miss being anonymous when we eat out. Sometimes it feels like there's a spotlight on me that says "DIFFERENT!!", as I explain my dietary needs to the server. :( Often I'd rather just eat at home or bring my own. It's so much easier.

Fortunately, the concept of gluten free eating is becoming more commonly understood. I'd still rather not have to deal with it, though!

And then there's bagels, sourdough breadbowls filled with steaming hot clam chowder, 'real' chocolate chip cookies... sigh. (ok, stop thinking about that stuff NOW!!. :lol:

And, I'm off to the market, to read labels and supply us for the coming week.

cassP Contributor
cassP
Posted

They have a gluten free beer called RedBridge they sell at the baseball stadium here in STL. Not sure what it taste like.

Anyone here try that one yet?

i tried redbridge- and it was AWFUL... i wanted to spit it out. so far, ive only liked gluten free cider.

Terri O Rookie
Terri O
Posted

i tried redbridge- and it was AWFUL... i wanted to spit it out. so far, ive only liked gluten free cider.

Ditto on the Redbridge....New Grist isnt too terribly bad but it still isnt BEER. Now I am looking to find Greene's...supposed to have 3 flavors including a dark!

angel9165 Newbie
angel9165
Posted

Ditto on the Redbridge....New Grist isnt too terribly bad but it still isnt BEER. Now I am looking to find Greene's...supposed to have 3 flavors including a dark!

The Redbridge does leave a lot to be desired but dang, I want an ice cold beer!!! :(

  • 3 weeks later...
Adrienne2823 Newbie
Adrienne2823
Posted

I miss the social aspect...potlucks, family dinners etc. I feel like an outcast sometimes but I do not miss being sick at all!

I do miss:

Picking up a quick cheeseburger meal..

A REAL smothered (flour tortilla) burrito at a mexican restaraunt

Pizza (as dairy kicks my butt too...)

CarolinaKip Community Regular
CarolinaKip
Posted

Watching commercials or TV shows, sometimes I am baffled by how easy it is for people to go out to a restaurant or to a wedding and eat/drink whatever they want. It's one of those amazing luxuries in life that you don't know you have until it's gone. . .

NateJ Contributor
NateJ
Posted

i tried redbridge- and it was AWFUL... i wanted to spit it out. so far, ive only liked gluten free cider.

well thats good to know so i didn't waste 10 bucks on a 6 pack or 10 on a 20 oz at the stadium.

Oh well, i probably shouldn't be drinking anyway with my gut problems.

mbrookes Community Regular
mbrookes
Posted

I miss going to our neighborhood bar and having a beer with our friends. (a mixed drink just isn't the same, and in the middle of the afternoon it seems rather hard-core drinker)) Also I miss sharing in the bar food on the table. Even though I don't mind Redbridge, no bars or restaurants around here offer it.

Other things I really miss:

Fried shrimp Po boy

gumbo

Popeye's chicken

All things commercially fried

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,198
    • Most Online (within 30 mins)
      7,748
    Jamie0230
    Newest Member
    Jamie0230
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Bev in Milw · Posted

      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      Food Allergies

      By Ginger38 · Posted

      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • JForman
      7yo struggling!

      By JForman · Posted

      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...