Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Miss?


aeraen

Recommended Posts

Almendra Apprentice

I miss those Nilla wafers to use in some good, old-fashioned banana pudding.

I miss Krystal's hamburgers.

Oreos.

Tiramisu was my restaurant dessert of choice.

AND I miss the convenience - even of just bringing something to a potluck and being able to eat any leftovers. Now, though I like being able to share something delicious and gluten-free, the sheer injustice of bringing something that I cannot partake in once people's glutened hands and plates start hovering over it pricks something deep inside me sometimes. Not fair.

The whole idea of potluck is sharing. Not getting that give AND receive feeling. Not getting to compliment someone on their cake recipe - or their sausage balls. I had to leave for a moment or two in the bathroom in tears at my first Christmas potluck (where I couldn't have gluten). I was doing alright until someone noticed what I was eating, had forgotten my circumstance, offered me food with a questioning glance, remembered my situation with another glance, and subsequently allowed her face to show some pity.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 78
  • Created
  • Last Reply
love2travel Mentor

I miss those Nilla wafers to use in some good, old-fashioned banana pudding.

I miss Krystal's hamburgers.

Oreos.

Tiramisu was my restaurant dessert of choice.

AND I miss the convenience - even of just bringing something to a potluck and being able to eat any leftovers. Now, though I like being able to share something delicious and gluten-free, the sheer injustice of bringing something that I cannot partake in once people's glutened hands and plates start hovering over it pricks something deep inside me sometimes. Not fair.

The whole idea of potluck is sharing. Not getting that give AND receive feeling. Not getting to compliment someone on their cake recipe - or their sausage balls. I had to leave for a moment or two in the bathroom in tears at my first Christmas potluck (where I couldn't have gluten). I was doing alright until someone noticed what I was eating, had forgotten my circumstance, offered me food with a questioning glance, remembered my situation with another glance, and subsequently allowed her face to show some pity.

You can buy gluten-free ladyfingers and easily make tiramisu, thankfully! I also have a recipe for homemade ladyfingers if you'd like. Then you can have your favourite dessert again!

I'm with you on the potlucks. We've been invited to one and I just don't know what to do about it. Do I not go? Not sure at this point as I, too, miss the sharing and breaking of bread in that way.

NateJ Contributor

I miss bagel chips and anything hostess.

Terri O Rookie

I'm with the person that said BEER. gluten-free beer is very terrible! And now Tyranena is brewing my favorite Chocolate Oatmeal Stout again...my mouth is watering. MMMM--

I try not to miss stuff and like to try new foods; this thread has made me melancholy though...I think I will bake something--gluten-free of course! Terri O

love2travel Mentor

I've never been a beer fan but I have used Guiness in making such dishes as Steak and Ale Pie. Are you aware of any gluten-free Guiness in Canada? I would like to be able to make the pie for my husband who has a hankering for it.

K8ling Enthusiast

I miss Publix turkey sandwiches on their fresh baked bread. I miss french bread and cuban bread and hot cross buns and bacon egg cheese biscuits.

I like knowing what is in my food though. I like knowing what goes into my body. I like being healthier.

NateJ Contributor

I'm with the person that said BEER. gluten-free beer is very terrible! And now Tyranena is brewing my favorite Chocolate Oatmeal Stout again...my mouth is watering. MMMM--

I try not to miss stuff and like to try new foods; this thread has made me melancholy though...I think I will bake something--gluten-free of course! Terri O

They have a gluten free beer called RedBridge they sell at the baseball stadium here in STL. Not sure what it taste like.

Anyone here try that one yet?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



txplowgirl Enthusiast

My most favorite, hot, soft, buttery crousants. :rolleyes: Uuuuuuhhhhhhhmmmmm.

CourtneyLee Contributor

I miss those Nilla wafers to use in some good, old-fashioned banana pudding.

I miss Krystal's hamburgers.

Oreos.

Tiramisu was my restaurant dessert of choice.

AND I miss the convenience - even of just bringing something to a potluck and being able to eat any leftovers. Now, though I like being able to share something delicious and gluten-free, the sheer injustice of bringing something that I cannot partake in once people's glutened hands and plates start hovering over it pricks something deep inside me sometimes. Not fair.

The whole idea of potluck is sharing. Not getting that give AND receive feeling. Not getting to compliment someone on their cake recipe - or their sausage balls. I had to leave for a moment or two in the bathroom in tears at my first Christmas potluck (where I couldn't have gluten). I was doing alright until someone noticed what I was eating, had forgotten my circumstance, offered me food with a questioning glance, remembered my situation with another glance, and subsequently allowed her face to show some pity.

oh man, oreos, and hamburgers, what I would do to eat those.. :(

MJ-S Contributor

My mom's canaloni

French bread

Cheeseburger (with the bun)

REAL spagetti

Chocolate croissant

Croquettes

adab8ca Enthusiast

I miss:

Triscuits

Whole wheat tortillas

Timbits

Fresh french bread from the bakery (Hubby and I ate this for YEARS every Saturday, gluten-free bread does NOT cut it)

Hot, fresh pizza

Fast food of ANY KIND (and I NEVER used to eat it but now that I can't have it, i want it more!!!)

I just hate reading every label. If the list is too long, I just abort and don't bother.

BUT really, as we all know, there are so many things we CAN eat, so I try to celebrate those as much as I can!!!

iamsarar Rookie

I miss being able to go out with my husband and run to the new doughnut shop in town or picking up a pizza on the way home, stopping at the bagel shop. I didn't realize how much of our outings revolved around food until I couldn't do it any more. The fun part though is finding new things to do and places to explore like going to the city and trying a new restaurant we found with a gluten free menu or taking that hour long drive through the trees and along the water and ending up at the Gluten free bakery and having picnic by the water with new goodies to try........ actually as I read this I think I like the new life better :)

ilookthetype Rookie

I miss my Mom's homemade pizza. I miss Yorkshire Pudding. It's not that I miss the easy, and I didn't realize it until people mentioned it, I miss the fitting in. I'm pretty introverted and you can't be introverted when everyone is asking why you aren't eating. I'm incredibly sensitive, and I was a receptionist and had to set up and tear down potlucks, I ate before set up to prevent glutening.

I miss being able to eat at a restaurant. I miss being able to share a drink with my roommate without discussing what she's eaten that day. I miss being able to kiss my boyfriend without a 20min detox before hand. I miss being able to buy inexpensive food. I miss being able to waitress and feel fine after every shift. Most of all, I miss mother flipping YUENGLING. I'm a Pennsylvania girl, I tell my tables (here in DC where I now live) that Yuengling is in my blood, I was born to raised to love it. That is what I miss most of all (don't tell the BF that I miss more!).

ChristineR Newbie

I miss oreo double stuffs and butter finger candy bars

benchwarmer Newbie

- I miss going out for dinner to celebrate special occasions with my fiancee.

- I miss my Oma's amazing cakes and cookies.

- I miss having the option of taking a vacation at an all-inclusive resort.

- I miss ordering in when I'm tired and lazy after a long week.

- I miss being able to get through a day without somebody patronizing my meal with "well THAT looks good". . .because gluten-free is usually not good???!

- I miss being able to join in on bake exhanges with my friends at Christmas.

- I miss having drinks with friends at a bar or pub without worrying about contamination of the soda gun or the beer splashed on the bartender's hands.

- I miss being able to go to a friend's place or family member's place for dinner without feeling like an inconvenience.

Most of all, I miss feeling like everybody else.

Watching commercials or TV shows, sometimes I am baffled by how easy it is for people to go out to a restaurant or to a wedding and eat/drink whatever they want. It's one of those amazing luxuries in life that you don't know you have until it's gone. . .

wheeleezdryver Community Regular

I miss oreo double stuffs and butter finger candy bars

I totally hear ya on the Oreo's... but I think the gluten-free version I've had (KinniToos, by Kinnickinick) are just as good, of not better.... but they don't have a double stuffed version (yet...)

as far as butter fingers, are you referring to the candy bar? My understanding is that the Butterfinger candy bars are gluten-free... at least the regular size ones.

Wenmin Enthusiast

I miss oreo double stuffs and butter finger candy bars

Butter finger candy bars are gluten free....Can't say that about the oreos though!

Wenmin

BethM55 Enthusiast

As others have said, I miss convenience, and the freedom to eat whatever, whenever, wherever, without thinking about it. I miss being anonymous when we eat out. Sometimes it feels like there's a spotlight on me that says "DIFFERENT!!", as I explain my dietary needs to the server. :( Often I'd rather just eat at home or bring my own. It's so much easier.

Fortunately, the concept of gluten free eating is becoming more commonly understood. I'd still rather not have to deal with it, though!

And then there's bagels, sourdough breadbowls filled with steaming hot clam chowder, 'real' chocolate chip cookies... sigh. (ok, stop thinking about that stuff NOW!!. :lol:

And, I'm off to the market, to read labels and supply us for the coming week.

cassP Contributor

They have a gluten free beer called RedBridge they sell at the baseball stadium here in STL. Not sure what it taste like.

Anyone here try that one yet?

i tried redbridge- and it was AWFUL... i wanted to spit it out. so far, ive only liked gluten free cider.

Terri O Rookie

i tried redbridge- and it was AWFUL... i wanted to spit it out. so far, ive only liked gluten free cider.

Ditto on the Redbridge....New Grist isnt too terribly bad but it still isnt BEER. Now I am looking to find Greene's...supposed to have 3 flavors including a dark!

angel9165 Newbie

Ditto on the Redbridge....New Grist isnt too terribly bad but it still isnt BEER. Now I am looking to find Greene's...supposed to have 3 flavors including a dark!

The Redbridge does leave a lot to be desired but dang, I want an ice cold beer!!! :(

  • 3 weeks later...
Adrienne2823 Newbie

I miss the social aspect...potlucks, family dinners etc. I feel like an outcast sometimes but I do not miss being sick at all!

I do miss:

Picking up a quick cheeseburger meal..

A REAL smothered (flour tortilla) burrito at a mexican restaraunt

Pizza (as dairy kicks my butt too...)

CarolinaKip Community Regular

Watching commercials or TV shows, sometimes I am baffled by how easy it is for people to go out to a restaurant or to a wedding and eat/drink whatever they want. It's one of those amazing luxuries in life that you don't know you have until it's gone. . .

NateJ Contributor

i tried redbridge- and it was AWFUL... i wanted to spit it out. so far, ive only liked gluten free cider.

well thats good to know so i didn't waste 10 bucks on a 6 pack or 10 on a 20 oz at the stadium.

Oh well, i probably shouldn't be drinking anyway with my gut problems.

mbrookes Community Regular

I miss going to our neighborhood bar and having a beer with our friends. (a mixed drink just isn't the same, and in the middle of the afternoon it seems rather hard-core drinker)) Also I miss sharing in the bar food on the table. Even though I don't mind Redbridge, no bars or restaurants around here offer it.

Other things I really miss:

Fried shrimp Po boy

gumbo

Popeye's chicken

All things commercially fried

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    2. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    3. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    5. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748

    Peta Dunn
    Newest Member
    Peta Dunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.