Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ok, Not To Be A Total Skeptic...


HS7474

Recommended Posts

HS7474 Apprentice

I keep seeing things about CC with pots, pans, collanders, wooden spoons, etc. I don't know why but I have so much trouble accepting that I could actually experince symptoms from this. I understand that any small amount can be doing damage to the intestine but could my symptoms, that I can't see to get full relief from, really be because I used a washed pot that once held wheat pasta? I know I should be more considerate of my body and attempt to prevent any damage that may be causedl; I'm trying but I think I'm in a minor state of rebellion. I eat gluten-free but I do use a shared kitchen, pots, etc (all cleaned).

What I'd really love to hear is anyone's personal experience where they know that they were glutened from this kind of CC and it couldn't have been anything else.

These variations in how long before sypmtoms arise, how symptoms are different for everyone, etc has me completely uncertain on how to know if I've been glutened or have other issues.

Thank you for reading and putting up with my grumpiness :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 57
  • Created
  • Last Reply
Poppi Enthusiast

I wonder about that too. I did replace my wooden spoons because they are cheap but I'm sure someone in the house will use them for gluten foods eventually. I simply cannot afford to replace my pots, not going to happen.

I also wonder if all non-stick pots are equally bad. Ours are non-stick but not Teflon and I keep reading how Teflon is bad.

Chiana Apprentice

I keep seeing things about CC with pots, pans, collanders, wooden spoons, etc. I don't know why but I have so much trouble accepting that I could actually experince symptoms from this. I understand that any small amount can be doing damage to the intestine but could my symptoms, that I can't see to get full relief from, really be because I used a washed pot that once held wheat pasta? I know I should be more considerate of my body and attempt to prevent any damage that may be causedl; I'm trying but I think I'm in a minor state of rebellion. I eat gluten-free but I do use a shared kitchen, pots, etc (all cleaned).

Well, the thing to remember here is that it is your immune system hunting down the gluten. Your immune system's job is to be able to find single bacteria or single viruses and be able to respond and take them out. I can't even convey how small and insignificant viruses are, and how few it takes to successfully infect a person with an illness. Your body is trained to be very good at what it does--it just sadly backfires in a person with Celiac disease. It uses it's skills to find single particles of gluten with a high level of accuracy.

I use silicone utensils, and unscratched non-stick cookware that has been used for gluten-y things in the past, but this is out of monetary necessity. I simply refuse to use wooden utensils or scratched cookware, because it's not hard to imagine flour trapped in the pores or in-between the layer of Teflon and metal.

The most convincing thing you can do is have a chat with a graduate-level cell biology student or an organic/bio-chemistry student. If your local University has a parasitology or bacteriology professor, then you've won the lottery. Go have a chat...they are fantastically friendly when you ask questions like this. :)

Roda Rising Star

I don't know if I have actually been glutened from anything in this way to be honest. Some things I just replaced to avoid any potential problem. Things I got rid or/replaced included: wooden cutting boards that I had bread/gluten on, wooden spoons, baking stone, bake ware (they had cooked on "stuff"), toaster, plastic colonder, my old plastic utensils (wanted new ones anyway), waffle iron and any scratched teflon pans. Things I didn't replace: most of my cookware which is caflon (no teflon coating) (I did replace the griddle and pasta pot both were scratched), glass baking pans, and my jelly roll/cookie pans (I was able to sucessfully clean these and get off all baked on residue). I was bad about using the same measuring spoons/cups for flour and sugar and spices/herbs and would double dip so I needed to replace my baking soda, baking powder, spices and some herbs, granulated sugar, and powdered/brown sugar due to cross contamination. Since I did theses steps from the beginning, I don't think I have had any issue from this. When I go to others houses and need to use any pans I either line with foil or take my own pot. When I go to my inlaws or parents I always take my electric skillet! It's been a godsend. My mom has some stainless steel cookware for me to use when I am there also.

ravenwoodglass Mentor

could my symptoms, that I can't see to get full relief from, really be because I used a washed pot that once held wheat pasta? I know I should be more considerate of my body and attempt to prevent any damage that may be causedl; I'm trying but I think I'm in a minor state of rebellion. I eat gluten-free but I do use a shared kitchen, pots, etc (all cleaned).

It is hard to believe that such a tiny amount of gluten can still cause problems. When I was first diagnosed I ignored stuff like gluten ingredients in toiletries and although I did get a new toaster and replaced scratched pans and my strainer I still would have issues. At first I just couldn't believe that the small amount of gluten reside in lotions and wheat based ingredients in shampoos and such would keep me sick. It wasn't until I replaced those toiletries with non gluten ones that I finally really healed.

Celiac is autoimmune. It isn't the gluten that damages us it is the antibody reaction that does. It takes very little gluten to call the antibodies into action and create symptoms. Those antibodies don't just attack the gut they attack the entire body.

Since you are still having issues you, IMHO, should at least get your own wooden utensils, strainer and a non-stick skillet for just your gluten free use and see if your issues resolve. I didn't replace stuff like my stainless pots and pans or dishes as those can be throughly washed. You wouldn't eat a salad that had croutons on it that someone just removed and handed back to you even if you couldn't see any crumbs. Strainers and wooden utensils can have reside that is virtually impossible to remove just like the crumbs from those croutons.

txplowgirl Enthusiast

I kept thinking the same thing until I realized one day that my skillet had scratches in them. You can't cook the gluten out of the scratches. Once I chucked my skillet and got a cheap skillet from the dollar store and a new spatula I finally started feeling a lot better.

Let's hope you don't get as sensitive as I am and react to a contaminated refrigerator door or your doornobs, but what really surprised me was when I reacted to a contaminated steering wheel.

domesticactivist Collaborator

I am not celiac, so I thought (after months of being gluten free) that it would be ok to have a piece of gluten free banana bread at a friend's house who I know used an old pan and would have cc in her kitchen (didn't let the kids have any). I definitely experienced symptoms from it.

I also know that until we did the deep clean and declutter on our own kitchen our son was still being glutened regularly and had lingering symptoms and I hadn't gotten better (actually felt worse). After we cleared everything out we stopped getting mystery glutenings.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MJ-S Contributor

I resisted throwing away my wooden spoons because I also didn't really think they could be a problem after many thorough washings. Then I got glutened making pasta and stirring with one of those spoons. It took about 3 months after being gluten free to clear my system enough and become sensitive enough until I felt the glutening from the spoon. So I finally tossed them and haven't had issues making pasta since.

I also felt that since I tested negative for celiac I had more leeway. If I had tested positive I would have thrown them away immediately. A negative test doesn't necessarily mean you're less sensitive, though, as I am finding.

I spaced out the other day and licked the tip of an envelope shut. I felt severe stomach pains several hours later and brain fog following. Luckily I was on my way to a "Big Lebowski" dudefest, so I was a cheap date. :)

lovegrov Collaborator

Envelopes have pretty much been debunked as sources of gluten. The glue they use does NOT have gluten.

richard

GlutenFreeManna Rising Star

Stainless steel pans that have been scrubbed clean are fine. It's the things that have scratches, or are pourous (like wood) that are the concern. If you are skeptical you could try to cook without these things for a couple weeks to see if your lingering symptoms disappear. You can easily use foil on baking sheets, put parchement over old cutting boards, use metal spoons for stirring and cook mainly in the microwave instead of on non-stick pans for a few weeks to test this out. I had one non-stick pan that I did not replace and that was only because it was new at the time I started gltuen free--it had no scratches and had only been used for gltuen pancakes twice. For everything else I did the above suggestions (using foil, cutting on a plate instead of a cutting board, not using the old wooden spoons and not using my old toaster) until I could afford to replace everything. I slipped up and used an old wooden spoon once for making gluten free bread and I payed for it. My wooden spoons went in the trsh the next day.

K8ling Enthusiast

I got glutened by a scratched non stick pan.

All gluten-free ingredients....fresh veggies in a gluten-free kitchen. Only thing was the pan (for sure)

It wasn't the worst reaction but DEFINITELY a reaction.

lynnelise Apprentice

I've gotten sick at my mother's house eating verified gluten free foods so I feel it had to be the cookware. She's got a lot of older/scratched items. Since I've told her to only use non-scratched cookware, metal utinsels, and/or disposable pans I've not had any trouble.

MJ-S Contributor

Envelopes have pretty much been debunked as sources of gluten. The glue they use does NOT have gluten.

richard

Hmm - the only other questionable item was a tempeh reuben I made for lunch. I've suspected it before, but I can't figure out what's in it that would make me react.

I make it with Udi's bread, sauerkraut, Lightlife tempeh (flax), and Annie's Thousand Island dressing.

I've been fine every time I've had it except the last two times. Could the dressing be an issue? I'm fine with udi's (have it all the time, and soy is fine too).

Monael Apprentice

I know what you mean because that was my initial reaction. Luckily all of my pans are not of the nonstick variety. The only thing I have done so far is not use any wooden utensils for my non gluten foods and I bought another strainer for my gluten free pasta. Also, I have segregated the butter. Since I am too cheap to buy gluten free bread (not only cheap, but they feel hard as a brick) I haven't bought a new toaster. It is better safe than sorry, is what I keep telling myself.

Juliebove Rising Star

Hmm - the only other questionable item was a tempeh reuben I made for lunch. I've suspected it before, but I can't figure out what's in it that would make me react.

I make it with Udi's bread, sauerkraut, Lightlife tempeh (flax), and Annie's Thousand Island dressing.

I've been fine every time I've had it except the last two times. Could the dressing be an issue? I'm fine with udi's (have it all the time, and soy is fine too).

Is the Annie's safe? I remember the Dr. telling me to buy that brand of dressing when daughter was first diagnosed. And granted this was almost 6 years ago but I seem to remember something on the label about shared lines or may contain.

NorthernElf Enthusiast

I too was a non-believer ! I live in a household of 5 and I didn't believe pots & pans that were cleaned were gonna get me. It didn't take long to change my mind (a few years ago).

Further proof is that when I visit relatives for a week or whatever, no matter how careful I am, after a few days I am sick - cutting boards, pans, whatever. Ok, yeah, it has been spices too but I get got !

Small doses add up - and affect you like you had a big dose. :( There seems to be a cummulative effect.

HS7474 Apprentice

Thank you all so much for your replies, input, andfor sharing your personal experiences with me. I'll try harder to avoid scratched pans and will probably invest in my own cutting board (yes, I've been using a shared wooden cutting board, only wiped down with a shared sponge!). I feel very negligent now and wish I could apologize to my body lol

mbrookes Community Regular

Glutened by a steering wheel? Did you lick it? I don't mean to be a smart a**, but doesn't the gluten have to enter your digestive system? I don't think you get glutened by surface contact. Maybe I'm wrong. I do touch my husband's regular bread and carefully wash my hands. I've had no problem from that.

Poppi Enthusiast

Glutened by a steering wheel? Did you lick it? I don't mean to be a smart a**, but doesn't the gluten have to enter your digestive system? I don't think you get glutened by surface contact. Maybe I'm wrong. I do touch my husband's regular bread and carefully wash my hands. I've had no problem from that.

Don't you ever eat in the car?

I can see my husband eating a burger while driving and then me sitting in the same seat the next day driving and eating a bag of rice chips. For a very sensitive individual this is totally plausible. I'm not quite that sensitive but not far off.

ravenwoodglass Mentor

Glutened by a steering wheel? Did you lick it? I don't mean to be a smart a**, but doesn't the gluten have to enter your digestive system? I don't think you get glutened by surface contact. Maybe I'm wrong. I do touch my husband's regular bread and carefully wash my hands. I've had no problem from that.

Actually for the antibodies to be activated the gluten only needs to contact a mucous membrane. If you made your husbands sandwich and then ate a gluten free one or rubbed your nose or eyes you would activate the antibodies. Making that sandwich is also surface contact, which you are avoiding problems with by washing your hands to prevent CC.

OneStarTattoo Newbie

This conversation has convinced me to toss my wooden spoons and strainer...I didn't even think of that! ugh $$$$

mbrookes Community Regular

Actually, I don't eat in my car... or text or use a cell. I only drive. Distracted driving is as dangerous as drunk driving.

etta694 Explorer

This conversation has convinced me to toss my wooden spoons and strainer...I didn't even think of that! ugh $$$$

Me too!

You know, I read and read and read... cc, cc, cc,.. and think...yes, but I haven't had problems. But then... I have been feeling like crap too and thinking that I don't know why. DUH!!! :blink: Time to throw some stuff out. ;)

IrishHeart Veteran

Anything's possible, I think. I brought almost all my own food to my sister's house for Christmas and only used one of her microwave containers, the micro, a plate, some of her squeeze gluten-free mustard, some gluten-free ham she made plain just for me (although bro-in-law did carve it with one of their knives--but in an aluminum pan, not the cutting board) and a fork....came home glutened anyway. They were all eating pasta, bread, pies.... :blink:

hmm... I did kiss them all goodbye.... :unsure:

GlutenFreeManna Rising Star

Actually, I don't eat in my car... or text or use a cell. I only drive. Distracted driving is as dangerous as drunk driving.

My non-gluten-free husband will go through the drive-thru someplace and then pull into a parking spot to eat in the car. Then he drives home. I do believe the steering wheel has gotten me before when I drove after he had been driving my car. All it takes is for me to rub my eye or somethign and the gluten residue enters via a mucous membrane. Now I make him wipe down the steering wheel and the shifter after he drives my car (which is not very often anyway so it's not that big of a deal to do).

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    3. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,076
    • Most Online (within 30 mins)
      7,748

    Deb baker
    Newest Member
    Deb baker
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.