Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened By A Gluten Free Marshmallow?

Poppi

By Poppi
in Super Sensitive People

Recommended Posts

Poppi Enthusiast
Poppi
Posted

So when I was shopping for the kids easter candy I bought Reese’s mini cups, Icy Squares, chocolate coins (the foil wrapped kind) and a bag of chocolate covered marshmallow eggs that said “gluten free” on the bag.

So we did our candy hunt and I had some of the kids chocolate (it all read clean on the ingredients) and I felt awful. Definitely glutened. I figured it was anything other than the clearly labeled gluten free marshmallow eggs, right?

So today I had Udi’s cinnamon raisin bread, butter and tea for breakfast - no chance of gluten! For lunch I had more tea and a strawberry scone I made myself from scratch - again, no chance of gluten.

After my scone (yes I realize I am eating horribly today) I had one single chocolate marshmallow egg and 2 hours later I hurt all over. My stomach is fine but my back hurts, my head hurts and I’m cranky.

Feels like gluten but is that possible?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dilettantesteph Collaborator
dilettantesteph
Posted

Of course it is possible. I can't eat much of anything processed without feeling glutened. I am sensitive to very low cc levels.

T.H. Community Regular
T.H.
Posted

Feels like gluten but is that possible?

Oh heck yeah. Best way to see how likely gluten cc would be to call them and ask the important question: do they test for gluten? If they don't, then they are in that lovely category of companies who label their products gluten free but should really say: we didn't add any gluten on purpose, for what it's worth.

Most companies that are not solely gluten free do not test. They will often avoid the question if you ask and answer that their products are completely gluten free and you have to push to get them to answer whether they test or not, and if they test every batch, or test periodically.

And then you can ask what the gluten ppm detection level was for the test they used, if you want to get really technical. Sometimes, before I ask this, they will say they test and then after I ask this, they will backpedal and redefine what they meant by 'testing.'

I've had companies very seriously inform me that their products were completely gluten free because they didn't add any gluten whatsoever to them and choose their ingredients very carefully.

My thought is: so what? Same could be said of any food made in any restaurant, and we all know that the gluten cc can mess up any claims of gluten-free lickety-split.

Shauna

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

Yes it is possible. PP went over the cc concern very thoroughly so I'll skip repeating that for you. You might also consider that you could be sensitive to some other ingredient in the egg. Off the top of my head--without knowing the ingredients I'm guessing that corn/corn syrup is probably the main ingredient. Everything else you ate today seems to be corn free (I'm only guessing since I don't know your scone recipe).

Poppi Enthusiast
Poppi
Posted
  • Author

I didn't have the bag anymore and even went to the store to see if they still had some of the candy around but they didn't and they couldn't tell me the company because the only description I had was "the marshmallow eggs in the brown bag"... not very descriptive.

My scones actually had corn flour in them so I don't think it was corn and I make myself a homemade corn tortilla with avocado and cheese on it for lunch a few times a week and feel fine after.

A lady on another site had a great suggestion for me that I will definitely be implementing. She suggested that any time I eat a processed food for the first time I cut out the ingredient panel (and write the name of the product on it) and put it in a big ziploc bag. If I get sick from it I put the ingredient panel in another bag marked "SICK!" and once I have a few items in there I can compare ingredients and see if there is anything in the sick bag that is not present in the other bag.

Worth a shot. At the least it'll help me keep track of stuff that works and stuff that doesn't.

Thanks for the info everyone. Luckily it was a fairly minor hit, I've had a off and on headache/neckache since yesterday but no joint pain or stomach issues.

dilettantesteph Collaborator
dilettantesteph
Posted

So today I had Udi’s cinnamon raisin bread, butter and tea for breakfast - no chance of gluten!

This is in the super sensitive section. This could be corrected to "no chance of gluten over 10 ppm" - I looked it up and they are certified by GFCO which uses a 10 ppm cut off.

Poppi Enthusiast
Poppi
Posted
  • Author

This is in the super sensitive section. This could be corrected to "no chance of gluten over 10 ppm" - I looked it up and they are certified by GFCO which uses a 10 ppm cut off.

Huh. Learn something new every day. I guess I should have been more specific and just said it was something I hadn't reacted to in the past.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


butterfl8 Rookie
butterfl8
Posted

The easter candy could have been packaged on shared lines too. I've noticed that a lot.

-Daisy

Poppi Enthusiast
Poppi
Posted
  • Author

The easter candy could have been packaged on shared lines too. I've noticed that a lot.

-Daisy

I wish I still had the bag so I could look at the ingredients but it definitely didn't have a "may contain..." or "manufactured in the same facility..." statement. I don't buy those items. I'll have to double check but I think those statements are law in Canada or at least they will be law by 2012 and some manufacturers are phasing them in already.

Although, now that I've had this experience I've been noticing items with a "Gluten Free" label on them that also have "may contain wheat" or "manufactured in the same facility as wheat" written after the ingredients. How the heck can you call yourself gluten free if this is the case?

I noticed that on the Black Diamond Nut Thins. They say "Gluten Free" on the front and have a Celiac Disease Foundation label as well but then state that they are manufactured in the same facility as wheat. I don't get it.

kareng Grand Master
kareng
Posted

Sometimes, we never figure out what caused the problem. Sometimes it isn't even gluten. Sometimes, life is just a mystery. :unsure:

What's that old joke?

The man says to the doc, "Doc, it hurts when I eat marshmallow candy"

and the doc says, "Well, don't eat marshmallow candy. That's a $20 co-pay."

Poppi Enthusiast
Poppi
Posted
  • Author

Sometimes, we never figure out what caused the problem. Sometimes it isn't even gluten. Sometimes, life is just a mystery. :unsure:

What's that old joke?

The man says to the doc, "Doc, it hurts when I eat marshmallow candy"

and the doc says, "Well, don't eat marshmallow candy. That's a $20 co-pay."

Yup. I think it's also putting things into perspective. Gluten-free for life doesn't necessarily mean pain-free for life. Other things cause pain and discomfort and not everything has an identifiable cause.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,567
    • Most Online (within 30 mins)
      7,748
    pbear
    Newest Member
    pbear
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      gluten-free Oatmeal

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Well said, @Mari!
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Hi, @Ginger38, I've had shingles in the past.  I understand how miserable you're feeling.   Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten.  The virus lives dormant in the nerves on the left side of my face.  It causes Bell's Palsy (resulting in drooling).  The cold sore virus is also in my eye.  My eye swells up and my vision is diminished permanently whenever I have a flare, so it's of the utmost importance to keep flares away and treat them immediately if they do happen so I don't lose any more vision.   I take the amino acid supplement L-Lysine.  Lysine messes with the replication of viruses, which helps the body fight them off.   I haven't had an outbreak for several years until this year when exceptionally stressed and contaminated, it flared up again. Lysine has been shown to be beneficial in suppression of viruses like the cold sore virus (a herpetic virus), the chickenpox virus (also a herpetic virus), as well as the HIV virus, and even the Covid virus.   I also take additional Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) because Thiamine has antiviral properties as well.   For pain, a combination of Thiamine (like TTFD or Benfotiamine or Thiamine Hydrochloride), with B12 Cobalamine, and Pyridoxine B6 have been shown to have analgesic properties which relieve pain and neuropathy.    The combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 really does work to relieve pain.  I take it for pain from crushed vertebrae in my back.  This combination also works on other pain and neuropathy.   I usually buy a supplement that combines all three and also Riboflavin B2 called EXPLUS online.  However, it's made in Japan and the price with the tariffs added makes it really expensive now.  But the combination of Thiamine B1, Pyridoxine B6 and B12 Cobalamine (and Riboflavin B2) still work even if taken separately.   I can't take Tylenol or ibuprofen because of stomach upsets.  But I can take the vitamin combination without side effects.  However, you can take the three vitamins at the same time as other pain relievers for added benefit.  The vitamins help other pain relievers work better. I hope you will try it.  Hopeful you'll feel better quickly. Interesting Reading: Thiamine, cobalamin, locally injected alone or combination for herpetic itching: a single-center randomized controlled trial https://pubmed.ncbi.nlm.nih.gov/23887347/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov/12799982/ A Narrative Review of Alternative Symptomatic Treatments for Herpes Simplex Virus https://pmc.ncbi.nlm.nih.gov/articles/PMC10301284/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.