Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Got Any Funnys From Friends/family Trying To Understand?


Chad Sines

Recommended Posts

Chad Sines Rising Star

There are so many negative reactions for celiac on this forum from people who are just plain mean to us that I thought it would be nice to start a thread on cool, funny, or thoughtful things people do to try to help. God bless these people even thought they often get it wrong.

I find it hilarious when someone freaks when you eat a baked potato (thinking you are eating gluten) but then offers you a beer. Or a family member who offers you crackers in the chili they made with great care to avoid gluten. You have to love these people. They are trying so hard.

My mom actually went out and bought a few books to understand it. She even made some gluten-free brownies for me during a visit and had me check everything before she made them. That is the kind of support people need.

All my family was so supportive. They saw me sick for a year with little quality of life and then saw the change to "normal" once it was figured out.

I did a webinar on celiac for some medical professionals and shared my personal experience. Had so many emailing and calling about "WOW. I never realized that." Even friends who knew me at the worst mentioned they had no idea how bad it was.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 104
  • Created
  • Last Reply
Rebecca92 Apprentice

My mom has been very supportive of my gluten free diet. She understands why I'm not comfortable eating things that don't come out of my kitchen. My eight year old niece is always asking me if certain foods are gluten free, its cute even though she doesn't understand what gluten is. I have also been blessed with a boyfriend who trys so hard to understand and doesn't eat gluten in front of me, even though I've told him he can it doesn't bother me anymore, poor guy has suffered through my experimental gluten free cooking.

GuyC Newbie

When I was diagnosed, my 15 year old said, "Dad, I don't see the problem, you've got Snikers bars an orange soda. What more does a guy need?"

kareng Grand Master

Chad,

That's a great pic! Click on it & go to his profile to see the person. Is it a self- portrait? :P

When I told my folks, my dad went straight to the kitchen and starting reading ingredients. He was sooo happy to find their favorite turkey hot dogs were gluten-free! Not sure why. I don't eat hot dogs much.

They are happy to try any gluten-free baked good I make. In fact they are now making 2 of the cookies I made for them. They have only not liked some flax muffins I made. Too healthy for them.

Chad Sines Rising Star

I love that pic. That is how i envision myself.

sa1937 Community Regular

I love that picture, too...everyone really does need to click on it. The small one just doesn't do it justice! You may have a lot of visitors to your profile. :D

IrishHeart Veteran

I love that pic. That is how i envision myself.

Gotta love a man with a test tube and a flask.

My hubby is a chemist. :D

I have a story that is not funny "haha" really, but funny/sweet in that she tried anyway....My first gluten-free thanksgiving last year, my sister made me a separate turkey without stuffing. How sweet right? When I was helping with the dishes, I saw only one baster. My heart sunk...She had been basting my turkey and the stuffed one ALL DAY LONG with that puppy.....ah well. She also made me a gluten-free cake as it was my birthday. I had a piece and later learned she had greased and dusted the pan with...flour. sigh. She meant well. At Christmas, my own ham was prepared, but cut with the knife that had cut the rolls...the dreaded CC is just not easily understood. :blink:

Needless to say, we're eating at home this year!! :lol: :lol: :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marilyn R Community Regular

I went to a familty cookout today, but ate at home first, showing up fashionably late. About a half hour after arriving, my 10 year old great niece started handing out little paper plates with cookies she'd made and brownies my sister made, along with cocktail napkins. I said, "No thanks, honey, but I appreciate it."

She returned pronto with a small container of cut fresh fruit and a napkin. My heart melted a wee bit. :)

Katrala Contributor

My mom has been very supportive since my diagnosis. A few weeks ago we were discussing Thanksgiving and she mentioned graham crackers. I told her I couldn't have them and she said, "But it's.... graham, not wheat."

catsmeow Contributor

I had a BBQ a while back and one lady guest who came brought dip and wheat crackers. I kindly told her I couldn't put the crackers out because I have an airborne allergy to wheat, as well as not being able to eat any gluten. Her husband (a sweetheart) grabbed the box and started reading the ingredients. After a bit of head scratching he proudly proclaimed that there was "no gluten" listed in the ingredients and I could eat them. I was about to be nice to him and explain, but his wife butted in and laughed at him, calling him a dumb-ass, and told him that "gluten" would not be listed, that he was looking for wheat rye and barley (she knows, because I've explained it to her before). I felt sooo sorry for him. Of course, I did wonder why she, in all of her infinite wisdom had brought the wheat crackers in the first place...????? I did not ask her why...I left it alone. :blink:

Skylark Collaborator

My music teacher (and good friend) totally "gets" the gluten intolerance and he's awesome about letting me choose restaurants and so forth if we're eating out with friends. Thing is, he's absent-minded almost beyond belief. If he's snacking when I come by his apartment for a lesson, he always politely offers me food but he tends to snack on fresh-baked bread or cookies. The "would you like some?" pops out before he thinks. Then he realizes that he's just offered me something I can't eat...again. He gets the funniest expression and we laugh at his absent-mindedness. I never mind. After all, I'm there for a lesson not food.

Thumbs up for your niece, Marilyn!

mushroom Proficient

That is, of course, part of the gluten problem, because unless you bake bread you are most unlikely to have ever walked into a market to purchase "gluten" and therefore to be aware of what it is or what it is in, and, as you say, the only time it is on the label is when it says "gluten free" which still doesn't tell your average Joe what gluten actually is :rolleyes: So many people think you are talking about 'glucose' :blink:

catsmeow Contributor

That is, of course, part of the gluten problem, because unless you bake bread you are most unlikely to have ever walked into a market to purchase "gluten" and therefore to be aware of what it is or what it is in, and, as you say, the only time it is on the label is when it says "gluten free" which still doesn't tell your average Joe what gluten actually is :rolleyes: So many people think you are talking about 'glucose' :blink:

That is exactly right. The only reason I knew what it was before diagnoses is because I use to low carb, and would buy "vital wheat gluten" to mix with things like almond flour to make low carb cookies and such. I usually tell people I have a wheat allergy (which is true and accurate) and can also not eat rye and barley. It's less confusing, and I am working on my family to just use the term "wheat allergy" and not the term "gluten free"

Yea "glucose" I've heard that a time or two. :P

Chad Sines Rising Star

i honestly had no clue what it was. I just thought bread..end of story. Heck, look at all the discussions we have about gluten being in shampoo and hidden in this and that. No wonder the public gets confused.

We need a Celiac awareness ribbon and have the words "Don't be an idiot to us" inscribed on it for all the jerks out there.

Roda Rising Star

I guess in some way I knew what gluten was in relation to bread baking, but never gave it any more thought than that. Until I started searching for answers to my health issues 5 1/2 years ago, I was clueless too. I had only heard of celiac disease once(I'm even an allied health professional). It was when my oldest son was around two years old and having horrible constipation issues. My MIL saw something on TV about it and thought that maybe my son had it. She was always commenting about stuff she read or saw so I really didn't take her seriously and never looked into it. Funny now how I have him gluten free even though he does not have celiac but he is gluten intolerent. I guess I have to admit MIL was on to something without realizing it... :P She is now afraid to give or feed them anything without checking with me first.

lynnelise Apprentice

There is a lady at work who alerts me anytime she sees something that says gluten free on the box. It's funny because most of the time it's something that is naturally gluten free but she is so excited to be helping me that I don't have the heart to tell her!

When I first went gluten free my friend hosted a Christmas party and double checked all ingredients for her recipes. She was especially concerned about this one dip that she wanted me to try. When I got to the party the dip had all gluten free ingredients....except that it was served in a bread bowl! We laugh about it now!

IrishHeart Veteran

I went to a familty cookout today, but ate at home first, showing up fashionably late. About a half hour after arriving, my 10 year old great niece started handing out little paper plates with cookies she'd made and brownies my sister made, along with cocktail napkins. I said, "No thanks, honey, but I appreciate it."

She returned pronto with a small container of cut fresh fruit and a napkin. My heart melted a wee bit. :)

What a little sweetheart!!! :)

IrishHeart Veteran

My music teacher (and good friend) totally "gets" the gluten intolerance and he's awesome about letting me choose restaurants and so forth if we're eating out with friends. Thing is, he's absent-minded almost beyond belief. If he's snacking when I come by his apartment for a lesson, he always politely offers me food but he tends to snack on fresh-baked bread or cookies. The "would you like some?" pops out before he thinks. Then he realizes that he's just offered me something I can't eat...again. He gets the funniest expression and we laugh at his absent-mindedness. I never mind. After all, I'm there for a lesson not food.

Thumbs up for your niece, Marilyn!

Skylark...did you ever wonder if maybe his absent-mindedness is...um, gluten-related?? I know my brain was "absent" on it. :rolleyes:

IrishHeart Veteran

That is, of course, part of the gluten problem, because unless you bake bread you are most unlikely to have ever walked into a market to purchase "gluten" and therefore to be aware of what it is or what it is in, and, as you say, the only time it is on the label is when it says "gluten free" which still doesn't tell your average Joe what gluten actually is :rolleyes: So many people think you are talking about 'glucose' :blink:

I was pretty ignorant about gluten myself, despite being a baker.

In 2007, a Gluten Free Cafe and Bakery opened near us.

I joked to hubby, "What's gluten and why do we need to be free from it?" :lol:

We laughed. J. says to me "It's in flour." I felt like a dope. Oh yeah.

Then, I forgot all about it.

Little did I know that shortly after that, I started losing weight and became very, very ill and debilitated---for nearly 3 years ----before figuring out that it was GLUTEN that was trying to kill me! :blink:

And, that Gluten Free Cafe and Bakery? The first time I ate lunch there after DX, I started to cry because I knew for the first time in 3 years, I wasn't going to get sick. Now, a year later, it's my "hang out" and the owner, a celiac herself, is a friend. :)

NateJ Contributor

A friend asked me last night, "aren't you going to eat?". I said no i already ate before I came.

He said what did you eat? Cheerios? LOL, uh no dude I cannot eat Cheerios.

He laughed after he realized what he said.

Skylark Collaborator

Skylark...did you ever wonder if maybe his absent-mindedness is...um, gluten-related?? I know my brain was "absent" on it. :rolleyes:

Hmmm.... never thought of that one! He's tired a lot too.

People talking about vital wheat gluten are making me laugh. I had a bag of that stuff too. I used to bake bread a lot and a little wheat gluten would make really nice, fluffy rye or 100% whole wheat breads. It was such healthy food...only it was slowly poisoning me.

catsmeow Contributor

Hmmm.... never thought of that one! He's tired a lot too.

People talking about vital wheat gluten are making me laugh. I had a bag of that stuff too. I used to bake bread a lot and a little wheat gluten would make really nice, fluffy rye or 100% whole wheat breads. It was such healthy food...only it was slowly poisoning me.

Ha Ha Ha....isn't it funny how wheat use to be considered healthy by us? I remember feeling sooooo lousy and thinking I needed to eat healthier to feel better. So I would eat granola with a huge amount of wheat germ poured on top of it.....I did not realize then that I was making myself sicker!!

Chad Sines Rising Star

imagine how i felt the week i went vegan after some plant murderers suggested it would cure all ills. egads. no meat plus blech.

jswog Contributor

Skylark...did you ever wonder if maybe his absent-mindedness is...um, gluten-related?? I know my brain was "absent" on it. :rolleyes:

You know, this really drives something home to me that I've been pondering for a while now. At my last job, it was ALWAYS on Sundays when I made really big mistakes, mostly due to absent-mindedness. Sunday mornings, management always brought in doughnuts for everyone. Hmm... Connection?

mbrookes Community Regular

Me: I can eat anything except wheat, rye and barly.

Friend: Can you eat rice?

Me: Yes. It isn't wheat, rye or barley.

Friend: Oh. I guess a baked potato is out.

Me:ARGHHHHHHH

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

    2. - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

    3. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,107
    • Most Online (within 30 mins)
      7,748

    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.