Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Guy!

deltron80

Recommended Posts

deltron80 Rookie
deltron80
Posted

Hello Everyone!

I was recently diagnosed with Celiac @ age 31 and I have been gluten-free for 2 weeks now. I already feel better! I can't believe I've been sick my whole life and never knew it. I even used to think people with "celiac" were a little wacked out in the head. It turns out it was me that was wacked out in the head afterall. :D

I'm looking forward to the future now that I finally know what's "wrong" with me and I hope to learn a lot from you folks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Menic Apprentice
Menic
Posted

Welcome to the boards,

I was diagnosed at 31 as well, so I can relate.

GFinDC Veteran
GFinDC
Posted

Well welcome to both of you then! We are a pretty friendly bunch here and are glad to answer any questions. Nice to have you on board! :)

mushroom Proficient
mushroom
Posted

Yes, gluten can do a whack job on your head, as well as the rest of the bod. Happpy gluten free future and I'm glad you're feeling better already. Hang around and let us know how you progress. We are here to help. :)

AVR1962 Collaborator
AVR1962
Posted

Congratulations on your diagnosis and best to your new life and improved health!

deltron80 Rookie
deltron80
Posted
  • Author

I'm still new to this, but it is certainly remarkable that people kind of don't fully "buy it" when you tell them. I don't get it even though I definitely was one of those people before...so odd. I can't think of any other allergy or disease that is treated so flippantly by the general public as is Celiac.

And you really get some funny looks when you mention anything about neurological symptoms! I'll need to keep my mouth shut on those and just enjoy this new anxiety-free lifestyle without bragging about it I guess. :rolleyes:

Maybe if I had taken it more seriously myself and/or not been in such denial I would've been tested and diagnosed sooner...it took my father and sister being diagnosed to wake me up to reality.

Also...just in reading the forum the past couple days it scares me a little to see so many people with multiple dietary issues beyond gluten.....yikes!

sa1937 Community Regular
sa1937
Posted

Welcome, deltron! I think the problem is that unless you have celiac, it's really difficult to fully understand it. When I was first diagnosed, my friends thought "a little bit won't hurt you...so and so used to eat it occasionally". They "get it" now and will even ask if I can have something that contains fill in the blank. And then there are people who sorta go gluten-free like it's the latest and greatest fad diet.

The woulda, coulda, shudda...yeah, a lot of us wish we had been diagnosed sooner so don't beat yourself up over that. You're on your way now!

While some people do develop additional intolerances, don't automatically assume you will. Some of us did have to give up dairy products for awhile. I did but have successfully been able to add them back in. I craved cheese so badly while I didn't miss gluteny foods at all.

There's nothing that beats feeling good!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


deltron80 Rookie
deltron80
Posted
  • Author

Any single Celiac ladies in the greater NYC area? Now that I'm better I think it's time I start dating again. :lol:

kareng Grand Master
kareng
Posted

Any single Celiac ladies in the greater NYC area? Now that I'm better I think it's time I start dating again. :lol:

Maybe you should use a cuter picture of yourself? Maybe smile? Some clothes from this century? :D

mushroom Proficient
mushroom
Posted

Maybe you should use a cuter picture of yourself? Maybe smile? Some clothes from this century? :D

:lol:

And a red sports car would be very attractive too!

Darn210 Enthusiast
Darn210
Posted

Maybe you should use a cuter picture of yourself? Maybe smile? Some clothes from this century? :D

:lol::lol::lol:

Well, you certainly made me go look at his av!!

deltron80 Rookie
deltron80
Posted
  • Author

:lol:

And a red sports car would be very attractive too!

I have a red parachute how about that ;)

sa1937 Community Regular
sa1937
Posted

I have a red parachute how about that ;)

...and a sense of humor, too, so that's good! :lol:

Korwyn Explorer
Korwyn
Posted

Any single Celiac ladies in the greater NYC area? Now that I'm better I think it's time I start dating again. :lol:

Dude, From looking at your avatar, I have to tell you that the full body hair coat is definitely going be an issue. And I'd really suggest you consider some lip reduction surgery. And possibly a tandem bike. With more than one gear. :lol:

IrishHeart Veteran
IrishHeart
Posted

Welcome and yes, time for an upgrade to a posh car. However my hubs has a beard and I kind of like the look... :lol: .

As for the nuero symptoms, well, I can relate. :rolleyes: Those were both frightening and debilitating at times, and I was starting to fear for my sanity when it was pretty bad, but the good news is...THEY DISAPPEARED. :)

Do not get alarmed by what other people's various symptoms are, okay?

This is a Newbie mistake :) --because you want to feel better right away and when that takes some time, you start to panic a bit.

EVERYONE is different and healing times vary. Just because the "magic" doesn't happen right away does not necessarily mean other intolerances. I drove myself nuts with that at the beginning and all I needed was some healing time!

Sylvia is right about the dairy, though as it often just a secondary intolerance because of the celiac. Many docs (mine included) suggest you give it up the first few months to speed healing and reduce symptoms. It's your call, though.

Be patient with yourself, ask any questions you may have and just relax and begin to enjoy good health! You live in one of the greatest cities in the world ( I know, I was married there and go there frequently for FUN :) )

Best wishes, kiddo!

IH

CarolinaKip Community Regular
CarolinaKip
Posted

Hello Everyone!

I was recently diagnosed with Celiac @ age 31 and I have been gluten-free for 2 weeks now. I already feel better! I can't believe I've been sick my whole life and never knew it. I even used to think people with "celiac" were a little wacked out in the head. It turns out it was me that was wacked out in the head afterall. :D

I'm looking forward to the future now that I finally know what's "wrong" with me and I hope to learn a lot from you folks.

Welcome! You will learn alot from all the wonderful people here, I did as a newbie! I still do everyday and I love the reciepes and helpful advice.

I was DX celiac a month after my 44th birthday. Good luck on your quest for a girl!

Karen WA Newbie
Karen WA
Posted

Hi there, I was diagnosed with Celiac in March of this year. Since I have been gluten free I feel alot better but still adjusting.

deltron80 Rookie
deltron80
Posted
  • Author

Thanks everybody! I love the reassurance here..certainly not getting it from non-Celiacs! B)

Luckily my family understands since they have it also, but it's kind of disappointing that my friends aren't being more supportive so far. I guess it's unfair for me to expect them to understand immediately. For example, I can tell they don't believe me at all that I already feel better so quickly. Hopefully they will come around eventually. Anyway, I'm not always an easy person to be friends with so I should stop whining. :D

I am working on getting myself a new suit and a new (red) bicycle. Not much I can do about the whole being a monkey thing though. ;)

mushroom Proficient
mushroom
Posted

I am working on getting myself a new suit and a new (red) bicycle. Not much I can do about the whole being a monkey thing though. ;)

Is it a monkey suit you would be after buying??

Yeah, sad to say, most of us do not get a lot of support from our friends. At least at the local neighborhood Christmas get-together the hostess gave me some gluten-free gingerbread men (since she had made some for her gluten free grandchildren :P ) After four years our neighbors have fully recognized that we do not eat gluten, and most don't even offer it any more, which is nice. And they do still offer us the champagne, which is even nicer. And they do "dain" as opposed to disdain, to eat my gluten-free offerings. One of them spent a few days with us at Lake Tahoe last year and proclaimed after her visit that she is not afraid of gluten free food any more :unsure:

:lol:

Who would have thought that all along she was fearful of putting something gluten free in her mouth?? I bet not as fearful as we are of putting something gluten-full in our mouths :rolleyes:

electrochel Newbie
electrochel
Posted

Hi Im 29 and was only Diagnosed last year for sure, I had been attending the hospital with the same symptoms and problem for 3 years before they thought to test me for Celiac Disease.

I was shocked.

I asked my own G.P to run bloods 3 years ago because i felt i was allergic or intolerant to something i was eating and he said all results came back totally clear. Do they not check for that or what....?? I was fuming, no need to say what almost for years of medical bills added up to and while i was studying for my B.A degree too.

Anyway, iv felt better and have still had bouts of not being well, i reckon it will take me awhile longer to regulate my body and get my health back to what it should be. It really does affect everything from sleep, to mood to energy levels.

Glad you are feeling better so far, be careful when you eat out or in a friends house and when you share tubs, butter, jams etc with someone else. That was hard. Cross contamination is awful for us.

Michelle

29 Ireland

deltron80 Rookie
deltron80
Posted
  • Author

Wow I can totally relate to having a range of issues and not being diagnosed...

I have GERD, high blood pressure, low bone density, anxiety, the list goes on and on....My GP just kept prescribing me meds to treat the symptoms w/o even considering that all this could be caused by one simple thing....kinda sad and very eye-opening.

I went gluten-free 3.5 weeks ago and the last few days I've been feeling light-headed...I've been eating fairly well I think and I've never really felt this before. I wonder if my blood pressure is returning to normal and now it's low b/c I'm still taking meds? Guess I will have to go back to my GP and dress him down a bit.

kareng Grand Master
kareng
Posted

Wow I can totally relate to having a range of issues and not being diagnosed...

I have GERD, high blood pressure, low bone density, anxiety, the list goes on and on....My GP just kept prescribing me meds to treat the symptoms w/o even considering that all this could be caused by one simple thing....kinda sad and very eye-opening.

I went gluten-free 3.5 weeks ago and the last few days I've been feeling light-headed...I've been eating fairly well I think and I've never really felt this before. I wonder if my blood pressure is returning to normal and now it's low b/c I'm still taking meds? Guess I will have to go back to my GP and dress him down a bit.

Once you start absorbing food better, you absorb medications better. You should see if you need a lower dose of BP meds.

psawyer Proficient
psawyer
Posted

Once you start absorbing food better, you absorb medications better. You should see if you need a lower dose of BP meds.

True, dat!

IrishHeart Veteran
IrishHeart
Posted

Yes,sir!

Some of us take NO meds/prescription vitamin supplementation anymore because our absorption significantly improved and those issues we had been "treating" have resolved. :)

You are wise to follow up with the doc--- as the last thing you want is to be overly-medicated.

Here's what's OUT of my prescription line-up!!--- 4 GERD and "IBS" <_< medicines, thyroid medicine, prescription B-12 and Folic Acid for anemia, xanax for that bizarre anxiety that developed from gluten, 3 or 4 different sleep meds, including amitryptilline--which was a last resort because I was awake most nights for well over a year. :blink:

There is much to be said for HEALING the gut!! ;)

Happy & Healthy New Year to you, New Guy!

Cheers,

IH

deltron80 Rookie
deltron80
Posted
  • Author

best. restaurant. ever.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,964
    • Most Online (within 30 mins)
      7,748
    Cbear
    Newest Member
    Cbear
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.