Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

2Nd Round Of Chemo, Done!


bonnie blue

Recommended Posts

bonnie blue Explorer

Hello to all my friends,

Well the 2nd round of cocktails are done and I am happy to report that this time was much easier, mainly fatigue but nothing I couldn't handle. I have one more round the 28th then surgery to remove my stomach in February. Ok so that is freaking me out a little I am doing all I can to get my body ready, physically, mentally, and spiritually so that my healing process will be easier. I just want everyone to know that I am doing well the doctors are very pleased with my progress, they actually thought by this point I would need a feeding tube, but I fooled them all and I am actually gaining weight!!! So I have this break now to enjoy Christmas with my family, so for now the words, Cancer, surgery, and chemotherapy are banned in my house. I just want to enjoy this next week and only have some fun!!! Have a wonderful day my friends and thank you again for all your support. B)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sa1937 Community Regular

I'm so glad you're doing well, Bonnie...there's nothing quite as sweet as fooling your doctors!!! I hope you and your family have a wonderful holiday season!

Thoughts and prayers are with you as you undergo the challenges of the new year!

kareng Grand Master

Sounds like " the thing that shall not be named "went well. Keep your head warm & Have a great holiday!

sahm-i-am Apprentice

Thanks for the update and hope you and your family have a very happy Holiday!!!

IrishHeart Veteran

Best wishes for a wonderful holiday season. Rest up, recharge and bask in the love of your family. You're one courageous chick, and don't you forget it! ;) Defying the doctors has made me feel pretty good---you should too!

You're a warrior princess!

My thoughts and prayers,

IH

GFinDC Veteran

Good news Bonnie! Take care and have a great Christmas season! :D

Skylark Collaborator

Thanks so much for taking the time to come and share the update. I'm glad to hear you're handling everything so well. Merry Christmas!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Booghead Contributor

Glad to here it went better, I was worried that it would go worse. Have a very Merry Christmas. B)

AVR1962 Collaborator

YAY! Wonderful news!!!!! Best to you and enjoy the holidays!

mushroom Proficient

Bonnie Blue, you are one strong lass. Wishing you and your family a joyous Christmas full of love and happiness :)

Bubba's Mom Enthusiast

So glad to hear you're faring well. A positive outlook is so helpful to healing.

You get extra bonus points for showing the Docs wrong! :D

HAPPY HOLIDAYS

Googles Community Regular

I'm glad that things are going well for you. I hope you have a wonderful holiday and enjoy being with your family.

Roda Rising Star

Glad this time went better. Have a great time with your family. Merry Christmas!!

lynnelise Apprentice

Merry Christmas and enjoy your holiday! Glad you are feeling well!

lucky28 Explorer

Great to hear from you! I hope you and your family enjoy a very merry Christmas!

PS: I work with doctors almost every day, it's good to prove them wrong! :P

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,019
    • Most Online (within 30 mins)
      7,748

    Wilson1984
    Newest Member
    Wilson1984
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.