Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutenzyme

Kristinade

By Kristinade
in Coping with Celiac Disease

Recommended Posts

Kristinade Rookie
Kristinade
Posted

I saw this online. You take it before you eat gluten and it makes eating okay again.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sa1937 Community Regular
sa1937
Posted

I saw this online. You take it before you eat gluten and it makes eating okay again.

I'd never take it. Period. My feeling is if something sounds too good to be true, it usually is.

kareng Grand Master
kareng
Posted

Anyone can put anything on line. They can make a slick website and even fake research. If there was a pill we could take, don't you think every Celiac website would talk about them. And pretty soon we wouldn't need a Celiac website. ;)

IrishHeart Veteran
IrishHeart
Posted

How does it "make eating okay" again?

Do you mean it magically takes away the damaging effects of gluten in a Celiac?

Because there is no magic bullet for that. Sorry, kiddo.

If there were, it would be front page news and the developer would win the Nobel Prize in Medicine. :)

From the website:

"Glutenzyme is a digestive enzyme specifically designed to aid in the digestion of gluten. Glutenzyme may be especially helpful for those who suffer from gluten intolerance or celiac disease when they have an accidental ingestion of gluten or otherwise eat something that was unknowingly contaminated with gluten. It is not intended to be a substitute for the avoidance of gluten nor is it a cure for gluten intolerance. It is not suitable for people with stomach or intestinal ulcers. Warning - we recently learned that this product contains Dairy and Soy!"

DOES THIS SOUND LIKE A GOOD IDEA to you???

Nope.

Don't waste your money.

Skylark Collaborator
Skylark
Posted

I saw this online. You take it before you eat gluten and it makes eating okay again.

If you believe this I have some genuine snake oil to sell you. It will cure any ill. Only $79.95 and if you buy in the next 15 minutes I will include an entire, full-size second bottle for absolutely no extra charge plus our special book "How to cure anything with snake oil".

(This statement has not been evaluated by the Food & Drug Administration. This product is not intended to diagnose, treat, cure, or prevent any disease. Be sure to check with your health care practitioner before taking any dietary supplement.)

Chad Sines Rising Star
Chad Sines
Posted

i do not believe in the stuff but apparently it is supposed to break down the gluten protein. Interesting theory; however, I do not know how they are proving that it tears up the part that the body sees as foreign.

Skylark Collaborator
Skylark
Posted

DPP-IV was ineffective in clinical trials. The Alvine enzymes only worked for small amounts of CC. There is no pill that will suddenly allow you to eat a bagel.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AVR1962 Collaborator
AVR1962
Posted

I have tried a couple different ones. Both helped my digestive issues but it did nothing to stop the dizziness Iwill have for 3+ weeks afterwards.

mamabear272 Explorer
mamabear272
Posted

I keep GlutenEase on hand for accidental glutenings. It doesn't completely take away symptoms but it does greatly reduce them. I certainly would NEVER use it to purposely eat anything gluteny but in a pinch it does help!

Katrala Contributor
Katrala
Posted

If you have celiac, it is not proven to stop damage.

catsmeow Contributor
catsmeow
Posted

I use it for CC and have found it shortens the misery. I carry Gluten-zyme in my purse, that is the one I use. My Natureopathic doc friend gave me the first bottle I had. It took me nearly 2 years to go through it. I just bought my second bottle recently.

mamabear272 Explorer
mamabear272
Posted

If you have celiac, it is not proven to stop damage.

Right, but like I said, for accidental cc, it helps with symptoms. It doesn't take them away or stop small intestine damage by any stretch, I'm sure. ;)

Strawberry-Jam Enthusiast
Strawberry-Jam
Posted

could you take it with a meal at a restaurant you sortakinda trust but don't trust 100%? would that be beneficial?

I ask 'cause in a few years I wanna bike across america which will involve eating out of groceries mostly, but at some points you'll have to stop for food at restaurants that you're not completely sure of (I'll have glutenoid cycling partners)

mamabear272 Explorer
mamabear272
Posted

could you take it with a meal at a restaurant you sortakinda trust but don't trust 100%? would that be beneficial?

I ask 'cause in a few years I wanna bike across america which will involve eating out of groceries mostly, but at some points you'll have to stop for food at restaurants that you're not completely sure of (I'll have glutenoid cycling partners)

The GlutenEase that I use says to take one before eating a gluteny meal. I take 2 when I feel unsure. Just the other day I ate a magic bar that my mom made (she made a batch with and a batch without and I grabbed the wrong one :blink: ). I came home and immediately took 2. I had minimal tummy problems and did have a bit of fogginess, dizziness and joint pain. It was NOTHING like other glutenings I've had.

Like I've said (I feel like I can't stress it enough) don't use it as an excuse to gorge on gluten! It most likely won't do anything for intestinal damage and it doesn't eliminate symptoms. But in case of accidental or suspected glutening, it helps.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748
    bigwave
    Newest Member
    bigwave
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.