Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Las Vegas Celiac Support Group Active Again!

jendenise

By jendenise
in Introduce Yourself / Share Stuff

Recommended Posts

jendenise Rookie
jendenise
Posted

Hey all, just wanted to post that the Las Vegas Celiac Support Group is active again after almost a year of being inactive. I took over our group effective 9/11/2005 and am looking forward to helping our group grow and share lots of information. If anyone has any suggestions, ideas, helpful hints, etc... I would appreciate them whether from other group leaders or from those in a group or anyone else! If you know anyone in LV who has celiac disease please pass the info on! Thanks Jenn in LV B)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Bette Explorer
Bette
Posted

:) Hey fellow Las Vegan!!! I am fairly new to all this but please give a shout out when you plan on having a meeting or get together.

bboophsd@earthlink.net

Bette

  • 3 weeks later...
jendenise Rookie
jendenise
Posted
  • Author

Hello, we are planning a meeting at Water To Go in Summerlin for the 16 or 17 of October. Please join the LV Celiac Disease Support Group for up to date info. The link is Open Original Shared Link Hope to see you sign up! Jennifer H

jenvan Collaborator
jenvan
Posted

hey if you vegas gals have any good restaurants (besides the obvious ones) near the strip pass them along...i'll be out there next month for a vaca at the bellagio. :)

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

I'll be there...

I have the skinny on some decent restaurants that cater to the gluten-free Folk.....even in Summerlin!

See you there.

mouse Enthusiast
mouse
Posted

We are going to Las Vegas for Christmas. Any info on restaurants that are helpful to gluten-free would be great. We are staying at the Mirage, but my usual staple - Kokomos will be closed. I already started a list of recommendations from Broncobux. Armetta

blkwidow Newbie
blkwidow
Posted

My mother lives in Henderson NV and I visit often from Michigan. It would be great to know which restaurants to visit while I am there. If someone can post it, or email with that information, I would be forever grateful.

I just have been dx with celiac disease and I am so overwhelmed!!!

Thanks

Sally

swolter2@aol.com

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jendenise Rookie
jendenise
Posted
  • Author

Although neither of you reside in Vegas, you should check out our local group and sign up. You can then get info on local restaurnats that have gluten-free selections. Also, since your mom lives in Henderson maybe she could come to a support group meeting some time. I think she would enjoy it. The link to the website is: Open Original Shared Link

just click the join in tab and I will approve you. Make sure you set your settings to get all the messages from the day in the daily digest so that you aren't overwhelmed by emails!! Jenn in LV

blkwidow Newbie
blkwidow
Posted
Although neither of you reside in Vegas, you should check out our local group and sign up. You can then get info on local restaurnats that have gluten-free selections. Also, since your mom lives in Henderson maybe she could come to a support group meeting some time. I think she would enjoy it. The link to the website is: Open Original Shared Link

just click the join in tab and I will approve you. Make sure you set your settings to get all the messages from the day in the daily digest so that you aren't overwhelmed by emails!! Jenn in LV

<{POST_SNAPBACK}>

Thanks so much. I just joined the support group. I am waiting for approval. Look forward to hearing from you.

sally

jendenise Rookie
jendenise
Posted
  • Author

You've been approved. Thanks for joining. Please let your mom know there is a celiac disease meeting at Water to Go on Rampart and Lake Mead tomorrow (15 of October) at 2:00. You can find the address on the support site. I hope she is able to make it we have some great samples of gluten-free food available, there will be a speaker discussing a gluten-free related topic, and we will also have some gluten-free baking mixes being given away. Oh yeah, and all members will get a 15% discount on gluten-free purchases (including gluten-free vitamins). Hope to see her there! Jenn

  • 9 months later...
DBRIDGEVEGAS Rookie
DBRIDGEVEGAS
Posted

Hi... I just applied for membership. I have not been diagnosed as a celiac, but have been fighting symptoms consistent with celiac disease for a few years. My brother was just diagnosed with celiac disease and SS (Sjogren's). When I look back on the last few years, it is so clear that I am a celiac. I have been gluten-free for a few months and feel great. It is amazing how clear headed I feel. Hopefully I will be approved so I can meet other people that understand celiac and how frustrating it can be. Thanks :)

Dustin

Henderson, NV

dbsrv@yahoo.com

tiredofdoctors Enthusiast
tiredofdoctors
Posted

Okay, going to be in Vegas from the 24 - 27 (Broncobux, can't wait to meet you . . . Armetta says you're great!) Anyone else interested in meeting, just PM either me or Armetta!!!

  • 3 years later...
Canusa Newbie
Canusa
Posted
Hey all, just wanted to post that the Las Vegas Celiac Support Group is active again after almost a year of being inactive. I took over our group effective 9/11/2005 and am looking forward to helping our group grow and share lots of information. If anyone has any suggestions, ideas, helpful hints, etc... I would appreciate them whether from other group leaders or from those in a group or anyone else! If you know anyone in LV who has celiac disease please pass the info on! Thanks Jenn in LV B)

Hello I was diagnosed 6 weeks ago and feel totally lost. I'm afraid to eat anywhere but home and even there I managed to make mistakes. Does anyone have any recipes for real food? I'm getting tired of eating plain meat and canned veggies.

Gina

Las Vegas

Canusa Newbie
Canusa
Posted
I'll be there...

I have the skinny on some decent restaurants that cater to the gluten-free Folk.....even in Summerlin!

See you there.

Where ? Help !! I live in the Centennial area.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,803
    • Most Online (within 30 mins)
      7,748
    MaryAlice
    Newest Member
    MaryAlice
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Wheatwacked · Posted

      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By RMJ · Posted

      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      Just diagnosed today

      By JoJo0611 · Posted

      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.