Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Found Something For Inflammation


AVR1962

Recommended Posts

Adalaide Mentor

I totally LOOKED at my teapot tonight! I almost even put water on to boil. :lol: Maybe later, when I'm not trying to cook 600 things.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 137
  • Created
  • Last Reply
IrishHeart Veteran

I totally LOOKED at my teapot tonight! I almost even put water on to boil. :lol: Maybe later, when I'm not trying to cook 600 things.

600? babes, how many burners does your stove have?? :lol: take care of you right now. xx

Adalaide Mentor

Okay okay, I was cooking 3 things. Taters, green beans and a burger. But it felt like a 600.

JNBunnie1 Community Regular

Started my nettle tea today! Will see what sorts of things happen.

Dejibo Newbie

I will have to add this to my cabinet. Thanks for the tip.

AVR1962 Collaborator

Tomorrow will be two weeks of drinking a cup per day, some days two. Positive things that I cannot prove are connected to the tea, but I am hopeful.

Accidental glutening symptoms were less severe than in the past. The gluten was from almonds packaged on the same lines as gluten and was obvious within half hour of ingestion. My symptoms are usually severe for five days. This time they were slightly less severe and lasted for 3 or 4.

I have had far more "vertical" time over the past two weeks. I was feeling quite ill one day and skipped the tea - the following day my joint/muscle pain was much worse.

Again, nothing conclusive - but everything promising. Off to drink my morning tea biggrin.gif

AWESOME!!!!!

AVR1962 Collaborator

No supplements, teas, or herbs (or making sacrifices to the gods) seem to help me.

I have decided to just do it full throttle --after doing is "sort of", I went full paleo 4 days ago.

No grains, dairy, legumes, sugar , soy (those last three were easy--I don't eat soy at all, sugar whips me up like a 3 year old

on Christmas Eve and causes insomnia and except for chili and soups, beans are not a big part of my diet. Hate peas. Peanuts are not a big deal to me either). Cheese, rice, white potatoes--these are tough to sacrifice. sigh.

But anyone who has gone full paleo --AVR included--has reported a reduction in inflammation, so I have to do it. The pain is maddening.

I'll keep you posted. (..........but cavemen drank gin, right? :unsure: )

Yes, grains and sugar are culprits for my inflammation and so staying away from them has done wonders for me. I do however eat aged cheese and white potatoes but very limited on the potatoes. The potatoes don't seem to give me issues.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Yes, grains and sugar are culprits for my inflammation and so staying away from them has done wonders for me. I do however eat aged cheese and white potatoes but very limited on the potatoes. The potatoes don't seem to give me issues.

This is very encouraging, A--thanks. Actually, anyone I know who has gone paleo says they feel great for doing so.

I'll stick with it--- and let you know. I appreciate you telling us how well you are doing. I remember when you first came on and

at the time, we both still felt so poorly. We have made great strides!

Healing happens. :)

Edited to add:

I have to correct myself. I am not "paleo", I am PRIMAL.

I have done more research and apparently, there are a few distinctions.

Primal it is.

AVR1962 Collaborator

IrishHeart, you are so correct about the pain I was in, it was terrible! I feel for all of the newbies with the same issues. What I can say is 'don't give up, don't stop trying, continue to find what works for you body.' I think people thought I had lost my mind, a real freak but I had to do what made me feel better. I have learned an awful lot in the last 2 years. Feel better now than I have in many years. My husband even mentioned he sees a huge difference in me.

Wanted to share this link also. I have been doing yoga and have finally got rid of the nerve pain (pins and needles) in my feet due to 2 bulging discs in my back but I was also having a different type of nerve pain in one of my feet...podiatrist said the nerves were inflamed....he tried various treatments including a cortizone shot to the foot which lasted about 6 months and then the pain came back. I am also finally noticing a difference in this pain and I don't think it is from the yoga, I could be wrong. I think it is from the nettle tea. Open Original Shared Link

IrishHeart Veteran

IrishHeart, you are so correct about the pain I was in, it was terrible! I feel for all of the newbies with the same issues. What I can say is 'don't give up, don't stop trying, continue to find what works for you body.' I think people thought I had lost my mind, a real freak but I had to do what made me feel better. I have learned an awful lot in the last 2 years. Feel better now than I have in many years.

I say the same: never give up. Stay the course. I am slowly coming back from the walking dead and I have learned an awful lot in the last 2 years, too. :)

I am still drinking the nettle tea. Maybe it takes longer for me to see results. I do some yoga as well -- and like you, I feel better--- and I will continue to try anything to reduce inflammation and get out of this pain. Thanks for all the encouraging words. I am thrilled for you!!

kareng Grand Master

I stopped the tea. I was having stomach issues. I don't think the tea was the issue, butn I stopped it. My joints are hurting today, but I did a lot of UP and down these bleachers (first step at 2 foot off the ground) and no back rest, etc. Might try to find the tart cherry stuff Patti mentioned.

IrishHeart Veteran

I stopped the tea. I was having stomach issues. I don't think the tea was the issue, butn I stopped it. My joints are hurting today, but I did a lot of UP and down these bleachers (first step at 2 foot off the ground) and no back rest, etc. Might try to find the tart cherry stuff Patti mentioned.

Man, bleacher seats are the worst!

I got the Knudsen brand Tart Cherry, K -- I found it in the grocery store in the "natural" aisle.

I throw it in my smoothie or as Patti suggested, it's good in some seltzer with lime. I'm sore from stacking wood, so I hear ya on the "squawking joints". Damn you, inflammation!! (picture me with my fist raised dramatically to the sky....)

GottaSki Mentor

I'm holding solid at two cups per day - last week went 1.5 days without and ended up with very stiff, achy and sore for a few days...can't prove it was lack of tea...but I am much improved since I've been back on two cups per day. Tuesday will be four weeks on tea and 5 or 6 with no other supplements. Hard to know it's the tea as it may just be the length of time since my diet was tightened up - still promising.

Teen son with sinus and gerd issues that were improved gluten-free, but have never cleared - he's been permanently stuffy for years...is claiming very, very minor improvement at one cup per day and wants to continue for now. I do hear less morning hacking cough from him :)

Adult daughter with very serious AI symptoms from five AIs will be joining our experiment this week.

JNBunnie1 Community Regular

I've been brewing the tea in the morning, and then a few hours reusing the teabag.

Does this have any value or should I be getting a new tea bag each time?

Adalaide Mentor

I don't use teabags, I just buy dried nettle. Unless it isn't available as an herb I don't commonly buy tea bags, although I do keep some around the house of my favorite bedtime tea out of sheer laziness. Anyway, in both cases, with bags and herbs I always use them twice. I just leave it in a little longer the second time around. Omg, if I ever threw out a teabag or herbs after one steep and my grammy found out? She'd disown me!

GottaSki Mentor

I use tea bags...have tried making a second cup with them and it was pretty light -- I do let mine steep for a long time with the initial use, so not much left for the second round. My son's lets his steep for only a couple minutes....his may be able to make it for a second round.

JNBunnie1 Community Regular

i just leave the tea bag in the cup until it's cool enough to drink, then I drink it, and brew another. It

definitely gets just as dark the second time around for me. And it tastes the same.

GottaSki Mentor

If it is just as dark...I'd say you are good to go :)

JNBunnie1 Community Regular

I've been mixing the nettle tea with chamomile, as I've needed the relaxing effects

as of late, and there's only so many cups of tea I need to be drinking in a day. Is

that ok to do? So many questions...!

GottaSki Mentor

Chemistry according to G :blink: :blink: gle says it goes great together and the combo is suggested as a remedy for hay fever :D

JNBunnie1 Community Regular

LOL, thanks Leeser!

IrishHeart Veteran

Chemistry according to G :blink: :blink: gle says it goes great together and the combo is suggested as a remedy for hay fever :D

yes, but will it cure my addiction to Ba--CON!?

(see what I did there? that's a cross-over thread right there! ta da. Nailed it.)

I am drinking my nettle tea right now because you all are saying it helped. I will keep at it..

IH waves at Bunz!! let's sip our tea together.

Celiac Mindwarp Community Regular

IH, are you sure you are not back on the tonic today?

A friend got me some nettle and peppermint so I'll give that a spin I think :)

JNBunnie1 Community Regular

She's been drinkin somethin'..... :ph34r:

IrishHeart Veteran

IH, are you sure you are not back on the tonic today?

A friend got me some nettle and peppermint so I'll give that a spin I think :)

what's tonic? tonic water? blech....nope.

She's been drinkin somethin'..... :ph34r:

I told you...tea. Just tea.

Could I multi - quote otherwise? ;) You all know I am mutli-quote challenged.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,543
    • Most Online (within 30 mins)
      7,748

    Jeanette K.
    Newest Member
    Jeanette K.
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.