Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Freakin Hate My Insurance Company


redheadheather

Recommended Posts

redheadheather Explorer

DS was diagnosed this past August w/gluten intolerance... DH's grandmother had celiac and DH has had "food issues" [both allergies and intolerances] his entire life. I asked them if he could get a blood test and they stated if he "wasn't having any symptoms he doesn't need to get tested [this is still part of the quote!! EVEN IF HE HAS IT HE IF THERE'S NO SYMPTOMS IT'S NOT NECESSARY TO BE CONCERNED ABOUT IT"!!!

ARGH

At this point I just don't know if we should get outside testing done or what.

They astonish me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hez Enthusiast

Don't ask, tell them to do a blood test. I thought it was recomended for children to be tested every 2 to 4 years if one of their parents has celiac disease. I get reall angry when I have to fight for my health care!

bluelotus Contributor

You are not alone in your feelings about dr's and insurance....believe me. See some of the input on the "family members should be tested" thread.

VydorScope Proficient
DS was diagnosed this past August w/gluten intolerance... DH's grandmother had celiac and DH has had "food issues" [both allergies and intolerances] his entire life.  I asked them if he could get a blood test and they stated if he "wasn't having any symptoms he doesn't need to get tested  [this is still part of the quote!!  EVEN IF HE HAS IT HE IF THERE'S NO SYMPTOMS IT'S NOT NECESSARY TO BE CONCERNED ABOUT IT"!!! 

ARGH

At this point I just don't know if we should get outside testing done or what.

They astonish me.

<{POST_SNAPBACK}>

Hmmm has your son ever had a stomache ache, ever? Diarhrea ever? I am sure you can FIND symptons if you go looking. Might just take some umm clever thinking...rember theres sposdly over 200 possible symptons... surely you can find a few...

Felidae Enthusiast

Wow am I happy to live in Canada. My doctor sends me for every blood test she can every year. She also sends me to specialists when needed. I can't imagine having to go through insurance for a blood test. I feel for you.

KaitiUSA Enthusiast

I have had enough problems with the crazy doctors over the past few years and if they don't give you a blood test you tell them to give you one or tell them you will find another doctor.

They have the mentality that if it doesn't show signs of being broken then don't fix it...but you know it's better of catching a problem before it gets out of hand and 10 times worse.

lovegrov Collaborator

Two things. First, you can collect info showing how folks should be tested as proof the experts recommend this. You can probably also find info about "silent" damage. Silent damage put me in the hospital for 11 days and cost my insurance company tons of money.

I'd also agree with Vincent. Diarrhea, fatigue, achiness, mental fogginess, gas, etc. These are all possible symptoms.

richard


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

I would definitely get tested! Insurance can be such a %#$(# ! My employer is switching to an HSA, which means for my husband and I to get ANY coverage, we have to spend a $5,200 deductible each year...then we get our coverage. !

VydorScope Proficient
I would definitely get tested!  Insurance can be such a %#$(# !  My employer is switching to an HSA, which means for my husband and I to get ANY coverage, we have to spend a $5,200 deductible each year...then we get our coverage.  !

<{POST_SNAPBACK}>

I wish my empolyer would go to a HSA, they are much better in the long trm. The short term is rough, ie the first year, but its definitly the way to go if you can get past the first year or so. 20 years from now, I think that the HSA's will drasticly improve health care as they open the field up to more patient / doctor control and less insurance contorl.

Just a rough transistion ....

skbird Contributor
I would definitely get tested!  Insurance can be such a %#$(# !  My employer is switching to an HSA, which means for my husband and I to get ANY coverage, we have to spend a $5,200 deductible each year...then we get our coverage.  !

<{POST_SNAPBACK}>

I feel your pain, Jen. My unsurance (intentional) is like this - first $500 is covered, then the next $5,000 is not. Great plan for most fairly healthy folks, and will save you from bankruptcy if you get in a car wreck, but for people like me, who keep getting sent from GP, to Rheumy, to Gyne, to GI - it sucks. Nevermind the Chiropractor... or the psychologist I started seeing this past summer to deal with all this crazy health stuff. I am trying to get my work to allow me to buy up to a better plan (I figure paying $50 a paycheck before taxes is waaaaaay cheaper than I will be paying for stuff this year... so far I am out of pocket $1,000 and still have my first gastro appointment on Thurs, so likely some scopes happening, and a possible laparoscopy on the horizon for endometriosis... say goodbye to any hopes of going on vacation this year, either!!!)

Anyway, that totally bites.

Stephanie

jenvan Collaborator

I understand why some support an HSA, I for one have done a lot of reading and have yet to be convinced for myself. Basically--I will spend a considerable amount of out of pocket $, but unless something catastrophic happens, I will not reach my full deductible... So in my situation, I may get up to a couple hundred in the HSA, but I will pretty much be paying out of pocket for everything. I understand why those who go to the doctor little or those who are fairly wealthy like it. And I do like having control of my own money, but in my current situation its not so great. At the least I think HSAs would be wise to cover preventive care intially. This plan will keep some from going to the doctor for preventive care appts, and in the end may cost everyone more. However, I will be moving on from my current position in the near future...so I'm not too worried. At least I have family to fall back on if need be. I feel for those who are truly 'on their own...' :unsure:

VydorScope Proficient
I understand why some support an HSA, I for one have done a lot of reading and have yet to be convinced for myself.  Basically--I will spend a considerable amount of out of pocket $, but unless something catastrophic happens, I will not reach my full deductible...  So in my situation, I may get up to a couple hundred in the HSA, but I will pretty much be paying out of pocket for everything.  I understand why those who go to the doctor little or those who are fairly wealthy like it.  And I do like having control of my own money, but in my current situation its not so great.  At the least I think HSAs would be wise to cover preventive care intially.  This plan will keep some from going to the doctor for preventive care appts, and in the end may cost everyone more.  However, I will be moving on from my current position in the near future...so I'm not too worried.  At least I have family to fall back on if need be.  I feel for those who are truly 'on their own...'  :unsure:

<{POST_SNAPBACK}>

Im am not wealthy, or healthy. The way you save (or in many cases your employer) saves big time with the HSA is the monthly payment. My empolyer pays over $1000 PER MONTH PER EMPLOYEE for heatlth coverage. It will bankrupt him if he has to keep paying it as the price sky rockets. HSA is the only reasonable way out. In fact for our company setup he will put 2500 in the HSA, and the dedcutible on the plan is 2500, so for the employees get about the same health coverage, with alot more freedom, and he cuts his monthly health bill by around 66%. I am realy pushing to get him to do it.

It might not work for everyone, but I see it as a great move, esply for ppl like me who struggle paycheck to paycheck. The very wealthy will not benifit from it as most of them are smart enough to already have money set aside for medical needs. I dunno why ppl think it will help them more then anyone else.. helps them less realy.

Like I siad in the long run the Health Care industry in general will be much better off as you put the PAYING PATEINT in control, and reduce the control of the often cold and uncaring insurance companies. Bringing the decsion making back in to the docts office, and away from teh lawyers and ins companies benifits everyone, IMO. :D

mom of a celiac Newbie
Hmmm has your son ever had a stomache ache, ever? Diarhrea ever? I am sure you can FIND symptons if you go looking. Might just take some umm clever thinking...rember theres sposdly over 200 possible symptons... surely you can find a few...

<{POST_SNAPBACK}>

There are over 200 symptoms??? I need info I believe and Dr thinks it is possible that my 13 yr old son has Celiac Disease.....However b/c of insurance and such cant get biopsy and blood test till 10/24....in mean time my son has lost 12 1bs in 2 weeks and that brings him to only weighing 69 lbs at present. He has always been small I took him to Dr after Dr through the years concerned over his size. I will post more details on message board later. They want me to keep giving him gluten until after the test...they say if he gets sicker and loses anymore weight they will hospitalize and then the test will be done. He can barely get out of bed some days. I do not know what to do.

Please help!

debmidge Rising Star

An insurance company reviews the doctor's reasoning for initiating a test and if the doctor presents the symptoms in the proper way, there's no way the insurer will deny the claim. This is like saying you had cancer, but no symptoms other than vague pain, just because your blood test shows normal white blood cells the insurance company won't allow a CT Scan or MRI. It's how the doctor presents it. It could be that your doctor just isn't interested enough to write out a report, etc. to justify the special blood test. Or he/she's really that inept not to investigate your claim any further. Either day, can you go to another doctor?

If all else fails, the one line from a customer that an insurer hates is: I'm going to report you to the State Dept. of Insurance.

VydorScope Proficient

Unfortinitly if you want the test to be valid he will have to be on gluten until you can get the test. How much is the blood test? Would it be with in your means ot pay for it your self? I dunno your situtation, or the cost, so I hope thats not anunreasonalbe question!

skbird Contributor
My empolyer pays over $1000 PER MONTH PER EMPLOYEE for heatlth coverage. It will bankrupt him if he has to keep paying it as the price sky rockets. 

<{POST_SNAPBACK}>

I have to ask, where do you work? We had an insurance meeting yesterday at work, my company pays $130 a month for a 30-39 year old employee's insurance (such as mine). Since I decided to buy up to the marginally better plan offered, I will be paying the difference, which is $19 a month, so my better plan is officially $149 a month. Over $1,000??? Cadillac insurance or something???

Just curious.

Oh, btw, I'm in California, if that makes any difference.

Stephanie

jenvan Collaborator

since my firm is so small, we have higher premiums... mine is about $700 a month

VydorScope Proficient
I have to ask, where do you work? We had an insurance meeting yesterday at work, my company pays $130 a month for a 30-39 year old employee's insurance (such as mine). Since I decided to buy up to the marginally better plan offered, I will be paying the difference, which is $19 a month, so my better plan is officially $149 a month. Over $1,000??? Cadillac insurance or something???

Just curious.

Oh, btw, I'm in California, if that makes any difference.

Stephanie

<{POST_SNAPBACK}>

Only 4 employees... and its very low end for what it covers, no dental, no vision, nutin. And its the best rate we could find. It was around 900 LAST year, and this year it went up the max allowable.

debmidge Rising Star

That's true (I do insurance for a living) smaller groups pay higher premiums. There's savings in large numbers. Larger groups also have more clout to control level of coverages, premiums, deductibles, etc.

But, every state has a Dept. of Insurance that oversees the plan's rules. But first talk to your HR person to see if they can rectify your insurance coverage issues.

You may have to switch doctors because in my opinion, this is a problem stemming from the doctor, not the insurance company.

The insurer wouldn't want to keep you from getting diagnosed properly, but must be informed as to the reasons why a test like this needs to be performed.

A prior post mentioned over 200 celiac disease symptoms and you are bound to have a good number of them.

Perhaps even a fib like "someone in family (mother father sister brother) has celiac disease and I was told to get tested because I have similar symptoms such as blah, blah, etc."

Write up on your own a list of your symptoms as justification. and if you feel like fighting with the insurance company after the test, then you write a letter an "appeal" their denial of claim. But before you go this route you should either change doctors or contact your HR and advise them that your insurance company, if it's really true and it's not the doctor, is giving you a hard time with regard to this test.

D.

  • 4 weeks later...
CeliacMe Rookie
I would definitely get tested!  Insurance can be such a %#$(# !  My employer is switching to an HSA, which means for my husband and I to get ANY coverage, we have to spend a $5,200 deductible each year...then we get our coverage.  !

<{POST_SNAPBACK}>

I am not in any way trying to defend insurance companies, as I also think that many of their rules are stupid and counterproductive- BUT they are pretty broke from the rising cost of healthcare, namely perscription drugs. Some of these drugs are outrageously expensive and many companies haven't started cracking down on what is on the formulary until the past 2-3 years. I work in a pharmacy and am finishing my BS in business, so I think that I know especially from what I have observed in the pharmacy.

Look on your label next time you get a Rx from your local pharmacy, it should say what the cash price is as opposed to how much your insurance charges you for it. It's not the pharmacy marking it up either, pharmacies make more money off the markups on generics, that's part of the reason why most pharmacies have a policy to reccomend a generic if one is available, even if the patient requests brand name. Some examples are: Fosamax ($80 for 4 pills), Zithromax Z-pack ($70 for 5 pills) and omnicef ($125.99 for a 60 ml bottle). Also, drugs like viagra which cost $14 a pill, which most insurances pay for 4 to 6 per month. Plavix is $130 for a bottle of 30. Imagine needing two or more of these perscriptions per month, which many people do. That bill adds up for the insurance company exponentially. Also, don't believe that the money goes to "research." At pfizer's annual meeting this past march, they decided to cut R & D money in order to keep their vast marketing department and sales staff. The starting salary for a drug rep at pfizer is $52,000 per year. Plus they get a $2,000 raise each time they complete a phase of training (about 5 phases in the first year) and a bonus. So, their first year starting annual salrary ends up being around $80,000. PLUS they get a company car and expense account, which they use to wine and dine doctors, adding up to thousands per month- for one rep. There are about 60 salespeople in a popluated area like Broward county Florida. So if you start adding up all the bills, you can figure out for yourself that they don't charge THAT much for R & D.

Not to get all political, but - There are various groups lobbying for restrictions on what drug companies can charge for medicine. I feel that if t his were done than the cost of healthcare could be cut down significantly. Also, the shortage of healthcare professionals doesn't help. I am not at all trying to minimize your conflict with your insurance, just trying to help you understand why they are the way that they are. You could write a letter to your local congressman or senator complaining that we don't restrict drug companies prices like other countries- like canada do. Until then, you are going to have to fight with them for your blood test. You should be able to get "routine" bloodwork everyyear and given your familie's medical history, I don't see why that wouldn't be considered routine.

tarnalberry Community Regular
Some of these drugs are outrageously expensive and many companies haven't started cracking down on what is on the formulary until the past 2-3 years. 

<{POST_SNAPBACK}>

It's unfortunate that, in updating formularies and the costs associated with different medications, insurance companies assume that generics are equivalent to brand name. They're not. They can often be used as substitutions, but there are sometimes differences in inert ingredients that can cause a person to react badly to the medication. Generic albuterol (inhaler) made me much shakier than a brand name formulation. Generic naproxyn sodium gave me bad stomach issues that brand name stuff didn't. For other drugs, generics work just fine for me. But insurance companies don't - to my knowledge - address the differences between generics and brand name in all patients.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,551
    • Most Online (within 30 mins)
      7,748

    Newest Member

    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.