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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. At the time our article ran Carol Kacinski was listed as the only officer and President of Simply Gluten Free Inc.. As of March 17, 2022 the officer of Simply Gluten Free Inc. has been changed to "Colin Kacinski," and Carol's name has been removed. Does this mean that Carol Kacinski has resigned as its President?
  2. I just want to emphasize what @trents brought up, that ~10x more people have non-celiac gluten sensitivity (NCGS) than do celiac disease, but there currently isn't a test for it. The treatment is the same, a gluten-free diet for life. So you could fall into this group if you don't have actual celiac disease.
  3. Thank you for sharing this, and it could definitely explain the issue you had with their product. In the USA such mislabeling could result in a product recall, so I'm also really surprised at their lack of accountability on their own gluten-free claim.
  4. Celiac.com did verify that Carol Kacinski is the owner of SIMPLY GLUTEN-FREE, INC. via a Florida corporation search, so you are not correct about her not being the owner. Feel free to click the link to see the documents yourself.
  5. For allergies normally hives develop fairly soon after consumption of the offending item, but I'm not an allergy expert. It might make sense to eliminate one allergen at a time for a week, for example corn, and then add it back. If the hives go away during that week it seems like you might have your culprit, especially if they come back when you eat it again...
  6. Celiac.com will continue covering this and other stories that are relevant to the celiac disease community, and will follow this article up with any future news on the disposition of this case.
  7. I also think that it is very important for you to keep a food diary, to see if there is something that might be triggering it. Look at the top 8 allergens and monitor those in your diet. I will assume that this isn't DH, and that they are hives due to allergies, not celiac disease.
  8. We’ve done some articles on this topic that may be helpful: https://www.celiac.com/search/?&q=coffee&type=cms_records2&search_and_or=and&search_in=titles
  9. We did publish our summary of the study I mentioned, which indicates that in children with 5x positive antibody levels there is no need for a biopsy: I realize that doctors may not be up to date on the very latest research, however, there is no reason that you can't be up on it. Of course it is your call whether or not you'd like a confirmation of celiac...
  10. Company Announcement Fairmont Foods, Inc. of Fairmont, MN is recalling corrugated boxes of Schwan’s Brand “Spinach and Artichoke Dip” with date code P82013 xxxx due to undeclared soy and wheat. People who have allergies or sensitivities to soy and wheat run the risk of a serious or life-threatening allergic reaction if the recalled product is consumed. ...
  11. So you didn’t read the quote or the source material that I posted?
  12. I’m drawing a blank here, sorry…are you sure that I recommended this?
  13. I just want to mention that there is a misconception about the Gluten-Free labeling laws, and foods are not fortified with gluten up to 20 ppm, so most foods that have “gluten-free” on their labels will usually have no detectable gluten in them, and are normally tested and monitored for gluten during production to avoid a possible product recall and lawsuit. So...
  14. Even though these products are still in a grey zone and aren’t legal on a federal level, it looks like those who make them are still regulated by the FDA, but the FDA needs to clarify things more for sure: https://www.fda.gov/news-events/public-health-focus/fda-regulation-cannabis-and-cannabis-derived-products-including-cannabidiol-cbd#food “Fo...
  15. Welcome to the forum. This thread is older so you may not get a reply from the original posters, but it’s my understanding that such high levels should not hurt you, although my doctor asked me to cut back on my B12 supplementation when my levels hit 1,500.
  16. Please let us know how things turn out, and good luck!
  17. I do not believe that cannabis edible products are excluded from FDA regulations, including using the term gluten-free on their packaging.
  18. I believe that the important thing is that they say "gluten-free" on the packaging, which should mean that they are safe for celiacs.
  19. I've not, but look for comments below from those who have.
  20. PS - This study is also important, and we have a summary about it that will be on our site on Monday: http://dx.doi.org/10.1136/archdischild-2021-322000 This indicated that CD can be diagnosed in children at 5x levels...
  21. We do have some recipes for gluten-free biscuits in this category: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-recipes-biscuits-rolls-amp-buns/
  22. Please share this study with your doctor to see if a biopsy is necessary:
  23. Welcome to the forum! It is really sad that your doctors are so ignorant about DH and celiac disease, as it is one of the most common autoimmune diseases on Earth...at least 1% of people have it, and around 10% have non-celiac gluten sensitivity (no tests are available yet for NCGS). In any case, it sounds to me like you've found the culprit even...
  24. No worries, and it is possible there is a manufacturing issue with that brand, but be sure also to check for other ingredients, for example soy, to see if your reaction might be due to an additional intolerance that you may have.
  25. Welcome to the forum, and I'm sorry to hear about your DH symptoms. How well are you doing on your gluten-free diet? With DH, it is extremely important to eliminate 100% of gluten. The article below may help you with that. Also, there are lotions available with up to 5% lidocaine, at least in the USA, which could also help.
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