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Coolclimates

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    Female
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    knitting, baking/cooking, spinning, travel, reading, jewelry making, sculpture, swimming, hiking, nature, writing, felting, photography, other art
  • Location
    Bradenton, FL

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About Me

Recent updates, May 2015

moved to Bradenton, Florida.

November 2010:

Tested positive for the HLA DQ2 gene, making my Celiac diagnosis almost certain.

IgA levels are still high despite following a strict gluten free diet for the last 6 months. Unknown whether I am continuing to consume gluten and/or have other food intolerances.

 

 

I got diagnosed with Celiac Disease on May 4, 2010. As an avid baker, this came as a particularly unpleasant surprise. For years I've been suffering from fatigue, poor sleep, restless legs, facial congestion (pollen allergies), acne, acid reflux and some weight loss (although not an alarming amount, and I like my weight now, ha ha).

I don't really have the stomach problems that many associate with Celiac, although IBS runs in my family and I'm suspect that some of my other family members may have it.

I currently live in Champaign, Illinois (about 2 hours south of Chicago) and work at an alterations store. As I'm relatively new to celiac disease, I'm trying to gather more information, do more research about my new diet and meet others who have this condition. I'm especially interested in meeting people who live nearby Champaign. Other than the internet, I feel quite alone right now with this condition and feel somewhat overwhelmed and alienated. I hope to meet new people, gather more information, get new recipes and more!

  1. thanks for the links. I am wondering if there are specifically doctors who specialize in Sarasota-Bradenton in Celiac Disease? I am willing to travel to other parts of the state if necessary but have a full-time job and little time off.
  2. I moved to the Sarasota-Bradenton area 9 months ago and am looking for a doctor who specializes in Celiac Disease. Any suggestions? I was diagnosed with celiac disease 6 years ago and am still having some health issues. If not in Sarasota-Bradenton, are there recommended doctors in St.Petersburg or Tampa for Celiac?
  3. I posted on their FB pages with these questions and they said that the products that were labeled "gluten-free" were truly gluten-free. I'm just concerned about cross contamination. I do not tend to get a lot of symptoms unless I'm really glutened bad. My antibodies are still slightly elevated and I was diagnosed with Celiac Disease 5 years ago.
  4. this is very disturbing news. Although I don't take probiotics, I do take some supplements. Does anyone know the status of these? they say "gluten-free" but that probably means nothing: Viactiv chews (for calcium) Nature's Bounty Iron Sundown Naturals Vitamin D3
  5. I think it was IgA. My Dad has promised not to bring anymore bread into the house. After having more conversations with him (which were often quite intense), he has come to the realization that this was causing me a lot of anxiety and he wanted to put an end to it. So the situation is much better...at least for now.
  6. I will try contacting the company. Hope they get back to me...
  7. I have been gluten-free for 5 years now, yet my antibodies are still slightly elevated. I never eat out and only prepare my own food and avoid Trader Joes products.
  8. I just noticed that some Talenti gelato flavors that were previously labeled "gluten-free" on the tubs no longer have that statement. Is it possible that these flavors are no longer gluten-free? On their website, it says they are gluten-free, but no indication on the label. I'm talking about the Mediterrenean Mint and Butter Pecan in particular. What is the...
  9. I have a question. I have Celiac Disease and am very sensitive to gluten. In fact, I only prepare my own food and never eat out. However, I do sometimes use other microwaves to heat up my food at work (and these microwaves have been used for gluten-containing foods). Am I in danger of having tiny bits of gluten fall into my food while I microwave it? (I do...
  10. thanks for the advice. I agree that my mom and I might be setting our expectations too high with my dad. It's also possible that he has early stages of dementia. His older brother suffers from it. It's a complex situation because I will most likely be moving back home with them if I don't find a job in the next few months. I am finishing school and my apartment...
  11. My Celiac Disease is causing really stressful family drama. This has been an issue since I was diagnosed, but has gotten worse lately. The problem is with my dad. He and my mom live in the same town as I do and I often eat there. Because I am so sensitive to gluten, my mom has tried to keep their house 100% gluten-free. But my dad keeps bringing in bread...
  12. contact Dr. Keri Peterson (the "doctor" who made the "trendy" comments) and bombard her: Open Original Shared Link Twitter: @DrKeriPeterson Open Original Shared Link contact: Keri Peterson, MD 110 East 59th St. (between Park and Lexington) Ste. 9C New York, NY 10022 Phone: 212-583-2962
  13. here's another great article written about the "trendy" comment: Open Original Shared Link The "doctor" who made these comments was Dr. Keri Peterson. please contact Dr. Keri Peterson and demand an apology: Open Original Shared Link Twitter: @DrKeriPeterson Open Original Shared Link contact: Keri Peterson, MD 110 East 59th St. (between Park and...
  14. Exactly. Since when was cancer a "trendy" disease or having AIDS "trendy"?
  15. I will be going to Montreal and Quebec City for the first time this August. Does anyone have any suggestions as to restaurants/cafes in either city that do gluten-free? I have Celiac Disease and am quite sensitive to gluten. Also, are there any grocery stores or other food places you suggest? Any other tips?
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