Jump to content

happygirl

Advanced Members
 View Profile  See their activity

  • Posts

    4,583

  • Joined

  • Last visited

  • Days Won

    1

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by happygirl

  1. happygirl
    Marcia: At one point this fall, I was reacting to every and all foods, essentially, and was horribly sick. This was one of our concerns, as what would happen if I had to be admitted? Granted, I think very few IVs have gluten in them, but our main concern was corn. We spoke to a great doctor at Bethesda Navy Hosp who said that IVs (which almost all have...
  2. happygirl
    In general, the overall premise behind almost all autoimmune disorders is a combination of: genes (some which are identified) and the environment (for us, the "environment" is gluten) When they describe stress, it is *usually* meant more in terms of severe, traumatic stress, versus everyday stress that everyone goes through. Another thing...
  3. happygirl
    Hey Alison: Tough situation for you as the mom!!!! Although you say she has no symptoms, I would say that the bloating, the hard stools, the speech delay, and occasional rash could ALL be symptoms of a problem with gluten. They most certainly could not be related to gluten, however, the fact that she is having some problems indicates something is...
  4. happygirl
    also see--- https://www.celiac.com/st_prod.html?p_prodi...-59107106795.85 https://www.celiac.com/st_prod.html?p_prodi...-59107106795.85
  5. happygirl
    I've yet to see a regular peanut butter that is not gluten free. This is something we are *generally* safe with. I use Peter Pan PB....used it as a kid, and was so happy to find out as a Celiac that it was safe. We have to count our blessings for naturally gluten free foods!
  6. happygirl
    Moondanse: I second what Lisa said. Definitely no "mild" Celiac....its like pregnancy: either you are or you aren't. Now, symptoms can vary and damage can vary (however, the damage is patchy, and could have been more severe in another place)...so in terms of that, yes, it could be "mild" or "severe." But Celiac is Celiac is Celiac. Welcome to the...
  7. happygirl
    Bree: I don't have any good ideas or advice to help out, but I wanted to extend my congratulations to you! What a relief. And although I'm sad that she "has" these medical problems, at least they are identified and documented .... which gives you the chance to move on and raise your sweet girl. My best, Laura
  8. happygirl
    Thanks so much for posting this and sharing this with us!
  9. happygirl
    No, its not a typo. Hopefully this will help explain a little bit---from Dr. Green's book: "HLA DQ2 and DQ8 are nicknames for genes. They are actually molecules on cells that are encoded by specific alleles of genes. HLA DQ2 (encoded by alleles DQA1*05 and DQB1*02) and DQ8 (encoded by DQB1*0302 and DQA1*03)." Just a note----this research that you...
  10. happygirl
    Addie: Sweet, sweet picture! Welcome to the board. If gluten is the problem----you are in the right place. If you need substitutions for things---let us know. Try Tinkyada (rice) pasta....it comes in all shapes/sizes. Having a safe pasta (and this one is GOOD!) made such a difference for me. Best of luck :) Laura
  11. happygirl
    Elizabeth, Aw, your post made me sad. I know you do so well on the diet, as well as your other intolerances at one point, and this is just crappy. I hope that you start to feel better. Give us an update on how you are doing and what you decide to end up doing. hugs to you, Laura (try some immodiums---i know you aren't having D, but when I have overall...
  12. happygirl
    Betty: My mom has the best banana bread recipe. She makes it in big batches for me and puts them in my freeezer I'll ask her for the recipe and see if it would be suitable for you.
  13. happygirl
    Are there studies for this, that actually assess the time/amount of gluten consumed, versus being a diagnosed/treated Celiac or an undiagnosed/untreated Celiac? In general, the studies that I have seen only differentiate between treated and untreated/undiagnosed Celiacs. Not that the overall theory behind the above statement is or isn't hypothetically...
  14. happygirl
    Off the topic a bit here Angie, but I had to add this, to give reference for why, for *some*, it can be important to have a "complete" diagnosis. I did not have a positive biopsy (doctor knew nothing about Celiac, told me to go gluten free, and five weeks later, I had the biopsy...and he only took one sample). My positive dietary response and bloodwork...
  15. happygirl
    Yes, it is that simple. And yes, its frustrating that most doctors know little to nothing about it. Hence why NIH has launched a celiac awareness campaign among medical professionals because even NIH recognizes that our current doctors just don't get it. Its not taught in med school to the degree it needs to be, and incorrect/outdated info...
  16. happygirl
    Thanks so much for posting this info! I knew about the Downs Syndrome-Celiac link, but didn't know about Williams. Thank you for sharing this.
  17. happygirl

    ARCHIVED Houston

    happygirl replied to hez's topic in Gluten-Free Restaurants

    Hez, That is frustrating! Feel free to vent away :) I think it kind of varies depending on the group...some areas I have lived in had info, some did not. I don't know if we have any Houstonians on the board? I really hope you find some answers!
  18. happygirl
    Peter, You are always SO good for answers like this!!!!!!!!!! Laura
  19. happygirl
    Let's see....here are some thoughts: If you want a diagnosis, you need to continue eating gluten. Make sure that the FULL Celiac panel is run, including the newer, more sensitive tTG test. Often doctors do not run the full panel and only run the anti-gliadin tests. Confirm this with your doctor, otherwise, your testing will be delayed if you have...
  20. happygirl
    Jenny, I think the reason that people get their kids gene tested (when they themselves have Celiac and one or both genes) is because they want to know if their kids *could* ever have Celiac. I have the DQ8 gene, and when I have kids one day, I will have them all gene tested. This way, I won't have to keep worrying and testing, re-testing, re-testing...
  21. happygirl

    ARCHIVED Help

    happygirl replied to Stef-Ani's topic in Coping with Celiac Disease

    Most ketchups are gluten free. The main question used to be if vinegar in ketchup was safe, and unless it is malt vinegar, it is generally safe. So ketchup is *usually* safe but you need to check. As mentioned, Rice Krispies are a no no. Some fries can have wheat in them, or they can be fried in contaminated oil, as mentioned above. The best way...
  22. happygirl
    As mentioned above, she was gene tested. Positive DQ2. In general, if you have ever been diagnosed with it, it means you have it. But, its hard to say if you were diagnosed correctly, given that you don't have a lot of info about it. A biopsy is the gold standard for a diagnosis, as the "blunted villi" in the small intestine are the classic hallmark of...
  23. happygirl
    I just wanted to clarify, so that someone wouldn't think that if they had a "cream of mushroom" that it was safe (because condensed cream of mushrooms are obviously different than the Creamy Mushroom). Plus, if there was a 'condensed' one, I wanted to know xoxo
  24. happygirl
    Sherry is gluten free. I use it in fondue and my chx tettrazini. https://www.celiac.com/st_prod.html?p_prodi...-47107095511.7f I saw your post about it....you know I would've said something if there was any question about it . However, I use Progresso "Creamy Mushroom" soup...I know that is gluten free. Is their "Cream of Mushroom" soup...
  25. happygirl
    Hey girl, I second Lisa's suggestion. There is also a recent book about places that are friendly to gluten free eaters, or places that people have eaten at successfully, and ideas for what to order there. I can't think of the name of it for the life of me. I don't really eat out much, so I can't be of so much help, but I know others have found this...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.