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happygirl

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Everything posted by happygirl

  1. Jenny, No problem. I'm fascinated by the gene interplay with all of this. Dr Green talks a lot about the "basics" of celiac disease, including genes, in his book (in my signature). Its a good reference for a ton of stuff. I wish it had been out when I was diagnosed, as it would have cleared up SO many things for me and my learning curve would've...
  2. As a board, we have talked about companies that as a whole, declare that they will list all gluten ingredients clearly on the label. I can think of two offhand: Kraft Open Original Shared Link McCormick Open Original Shared Link Can others add companies they know that fall into this category, and any references (websites, emails, etc) to that...
  3. Angie: It is worth it to confirm with him to take "multiple biopsies in multiple sites" like Shirley mentioned earlier. It will increase your chance of "finding" it if it were there. You might as well "make it worth your while." Just so you know, although your doctor has given you the label of Celiac (which, by all means, it certainly makes sense...
  4. Carla, Hope it goes well. I'm thinking of you. xoxoxo
  5. Connie: In terms of spices that only have one ingredient in them, say, paprika, oregano, thyme, etc. They are pure spices and don't list other ingredients (by FDA law, if there is only one ingredient, they don't need an ingredient list, as long as "it" is clearly listed on the front). If you are using spice mixes, say, a package for chili, or a packet...
  6. I can only speak of the Celiac genes, not the "gluten intolerant" genes. About 30-40% of the American population has one of the Celiac genes, HLA DQ2 and HLA DQ8 (these genes cover about 98% of Celiac cases). About 1 in 133 Americans (the latest statistic, from Dr. Alessio Fasano from the Celiac Center at the Univ of Maryland-Baltimore) have Celiac...
  7. Chrissy, I completely understand! It took me a long time to feel like I "knew" who some people were. I think its a combination of things....time spent posting, time since joining the board, etc. For me, people's signatures really helped a lot too (helped jog my memory). But, its DEFINITELY not you!!!!!!!!! Especially with the board the size that...
  8. In general, stand mixers and hand mixers are used for different things (although, some things you could use either).
  9. One way to prevent repeat testing of children is to have them gene tested to start with. This way, you will know which ones are at risk for "true" Celiac (versus non Celiac gluten intolerance, which can have similar symptoms, but does not show up on Celiac bloodwork). About 98% or so of Celiacs have either DQ2 or DQ8, so knowing which of your kids have...
  10. I can't comment on the exact processing techniques used here, but yes, something can start out not safe and be made safe. For instance, alcohols and vinegars....that are then distilled. The gluten protein (gliadin) is too big to pass through, and it is rendered gluten free (as per the American Dietitic Association, etc). So, in theory, yes, it is entirely...
  11. https://www.celiac.com/st_prod.html?p_prodi...-20107416234.6e and other sources say that it is safe. Anyways, even if it WERE to be derived from wheat, due to the new food labeling law, it would have to be listed.
  12. Its definitely never too late...and most of us here "lurked" at some point as well. The more the merrier! Happy you are here!!!!!! Laura
  13. I don't think all the board features are decided on by Scott. I think its a general program that he uses. When everything changed, it was because he got the latest version. He even mentioned that he didn't know what all was on it. So I don't think these were all decisions that were made entirely by him, but might be useful on "other" forums that use this...
  14. Modified food starch is often ok. Amy is right, it is usually cornstarch. However, it can be made from wheat. Now, due to changes in food labeling, companies are required to list it if it is from wheat, because wheat is an 8 main allergen. It is not required to list corn, potato, tapioca, etc. Modified food starch does NOT equal gluten/wheat, but...
  15. How is Ian 7.5 months already? :) I love your picture...he is such a cutie!!!!!!!! I remember reading your posts during your pregnancy. I don't have any magical advice as I'm not a mom, but I wanted to wish you luck and I hope you find some answers and Ian improves. Laura
  16. Carla, I look into my magical ball and it says that in six months from now, you will be well underway to returning to the Carla that you want to be.
  17. Richard, Thanks for posting this reply and taking the time to follow up on this. Its also nice that both yours and Debs answers from the company "matched" up. Laura
  18. Tomato paste is safe. it should not be a problem. I buy canned tomato paste all the time, and I think the ingredients are only tomatoes, maybe water, and salt. Tomato paste is not thickened by a flour. It is tomatos that have been cooked down for a long time. On the whole, there are a lot more gluten free spaghetti sauces than ones that are not safe...
  19. I definitely just laughed out loud to that one. Its a good thing no one was around You are too funny. Everytime I see the quote in your signature from your ex-allergist, I have to smile. Tiffany: no matter if you are part of a clique or cool or any of those things, I think what is important --- to me --- is the time, effort, and thoughtful answers...
  20. Hey Suzanne, Welcome to the board....we are happy that you have been reading and decided this was a good place to "be!" I think you'll find a lot of knowledgable people on here, and will get great support. You are right, the diet is challenging, but luckily, it *does* get easier with time. I refer to it as a steep learning curve, but then once you...
  21. Macy: I had this problem this year (low weight, poor absorbtion, etc.) due to non-Celiac issues. I was worried about not absorbing and I talked to a nurse and a doctor about this. They both independently relieved my fears and said that BC was absorbed in the stomach, not the small intestine, so even if it was a Celiac problem I was having, I should be ok...
  22. Liz: Another Celiac, changing the world, one person/internet forum at a time
  23. Hey Moon, Welcome to the board! Happy you have found this site. It is definitely understandable that you are quite confused. It is frustrating to Celiacs/those trying to figure this whole thing out when the medical community knows little to nothing about Celiac. So, let's see...where can we help? You were right...there are other tests that should...
  24. Well you have come to the right place! We are happy you have found us. Its frustrating that so many have stories just like yours...on the other hand, there REALLY are people who can relate and understand. Really. I can completely relate...I was diagnosed at age 23, two months after getting married. Like life isn't already a bunch of changes right now...
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