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happygirl

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Everything posted by happygirl

  1. happygirl
    Lisa: Your doc should know what the "name" of the panel is, depending on which lab they use. All they need to know is that they want to be tested for the presence of "Celiac genes" which are HLA-DQ2 and HLA-DQ8. Like Chrissy mentioned above, many use "Prometheus" as their lab of choice for that type of testing.
  2. happygirl
    On top of that, because of the Food Labeling Law of 2006, they are required to list wheat. Couple that with Kraft's statement (as mentioned above), and if you read ingredients, you will be fine.
  3. happygirl
    You can see any doctor at any time. However, very few doctors actually *know* about the ins and outs of the diet. A doctor won't be able to test if you are maintaining well on the diet, as, if you don't have Celiac, the blood tests won't show anything. They will likely refer you to a nutrionist/dietician, many of whom do not know about the diet to the...
  4. happygirl
    hydrolized is only a process, just like "modified," so the same rules apply. As mango mentioned, if it is wheat, it has to be listed, and I've never see a barley or rye, either.
  5. happygirl
    All distilled alcohol is gluten free. So if it is distilled, it is safe.
  6. happygirl
    If you have been gluten free for two months, your tests won't be very accurate. However: if they are positive, then they are probably accurately positive. if they are negative, it doesn't mean that they are accurately negative (since you took out the offender-gluten-that isn't triggering the reaction). In order for the blood tests to be accurate...
  7. happygirl
    x
  8. happygirl
    coleen, its not bad that you ate the whole thing, because you were eating it in honor of the rest of us. So really, you didn't eat that much I think I might fly out to KC for the night just to eat this magical pizza. My trips are going to be based on where I can eat
  9. happygirl
    big macs and large glasses of milk... mmmmmmmmmmmmmm
  10. happygirl
    In America, you don't *have* to itemize anything. Keeping track of my receipts and the difference in prices, plus having a doctor's note stating you have Celiac, is more trouble for me than its worth...so I know little about it. Hopefully someone else will chime in. here are some links about it: https://www.celiac.com/st_prod.html?p_prodi......
  11. happygirl
    x
  12. happygirl
    Tanya, I wanted to wish you a very Happy Birthday! I know you are new to Celiac/gluten free diet/this board, but we are happy to have you here. I hope you are having a great day, full of gluten free treats Laura
  13. happygirl
    I don't know enough about the process that is involved, however, I would not be comfortable eating it.
  14. happygirl
    None of the Celiac researchers/experts, including Dr. Green at Columbia, nor any of the national Celiac support groups (including GIG), support this claim.
  15. happygirl
    malt is not wheat. malt is sometimes derived from barley, hence----gluten. but malt *can* be derived from other things, that are safe, like rice. The American Dietitic Assocation has stated that any distilled vinegar (including white vinegar, apple cider vinegar, etc) are gluten free. https://www.celiac.com/st_prod.html?p_prodi...-08107447343.d7
  16. happygirl
    To my knowledge, there are no studies that link exposure/glutenings to morbidity. That would be near impossible to do, as we don't always know when we are glutened (i.e., esp for asymptomatic Celiacs), so the validity/reliability of a study such as this would be highly questionable. In general, it appears that the higher risk of morbidity and most other...
  17. happygirl
    Its not their C of M soup that is gluten free, it is their CREAMY MUSHROOM that is gluten free.
  18. happygirl
    Yep. Luckily!
  19. happygirl
    jaysmom, I could read the hurt in your post. I am so sorry that you went through this. I, too, second the advice of finding a new pediatrician. Your doctor is HIGHLY uneducated about Celiac. This is sad, as the NIH has launched an awareness campaign for physicians because it is so under-diagnosed Open Original Shared Link. From their website...
  20. happygirl
  21. happygirl
    No problem. As this board is so big, its just easier for everyone to keep it in the same, original post, rather than starting a whole new thread.
  22. happygirl
    Welcome to the board! We are happy you have found us. That is a long time to deal with this...I hope you find some answers (gluten related or not!) Celiac is an autoimmune disorder that is highly under-diagnosed in our country. Many, many doctors know little to nothing about Celiac, or know old/outdated information---and as a result, provide a disservice...
  23. happygirl
    Welcome to the board! Yes, autoimmune thyroid problems are associated with Celiac (as well are other autoimmune disorders, particularly diabetes). A good book that covers Celiac and related disorders (including thyroid) is listed below in my signature. Laura
  24. happygirl
    e&j, Based on his IgA results, it could very well mean that he is IgA deficient. It doesn't mean that his other tests don't matter, it means that his IgA numbers will be worthless. Which makes tests like the tTG even more important. This might be a situation where you don't know why it works (the gluten free diet), but if it gives you good results...
  25. happygirl
    Angie, I'm sorry you won't be able to go! Maybe next month. In terms of managing the board --- this thread probably would have been better suited to the thread that it was referencing...otherwise people might not know what you are talking about! Often, related ideas are kept together in the thread for this reason. Laura
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