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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Great to hear from you! i am glad you are doing better! ?
  2. cyclinglady
    How long have you been gluten free? You might consider getting tested for celiac disease. The catch is that you must be consuming gluten for 8 to 12 weeks prior to a blood draw.
  3. cyclinglady
    Welcome, Mike! ?
  4. cyclinglady
    I have never had DH. However, I have had "allergies" all my life. Weird things like being allergic to the cold (cold urticaria), anaphlatic reactions to medications,and some foods (though mild). After my last glutening (unknown source), I became very ill. Vomiting, ab pain, etc. My antibodies were sky high. I became lactose intolerant and then.....passing...
  5. cyclinglady
    Time. It takes time to heal from celiac disease. For some it can take months or a couple of years! Seriously! Why? The learning curve for going gluten free is steep. Plus, everyone has different levels of damage. Your best bet is to eat whole foods (well-cooked for easier digestion) that you prepare yourself. Avoid eating out. Avoid processed foods...
  6. cyclinglady
    I think this is excellent advice! I do not have DH, but when I was glutened in July (confirmed by follow-up antibody testing in August by my GI), my recovery took about three months which included becoming lactose intolerant again! At the same time, I was getting a rash and hives appearing every few days (if not daily). This was managed with anti-histamines...
  7. cyclinglady
    Welcome! You could have celiac disease. You have already taken the first step by asking for help and setting up an appointment with your doctor. Here is the list of tests: -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA -total serum IgA and IgG...
  8. cyclinglady
    I think you need to consider asking your parents and/or doctor about getting properly tested for celiac disease. Something to consider doing just at the start of summer so it will not impact your studies. Honestly, my hubby went gluten-free 14 years ago per the poor advice of two medical doctors. It worked. He is well, but we will never know if he has...
  9. cyclinglady
    Glutened? Who knows? But I have made Betty Crocker Brownies many times and have not been glutened. You could have contaminated the mix during preparation using scratched plastic dishes, etc. I recommend lining baking dishes with parchment paper. Makes for easy clean-up and gluten-free baked goods tend to stick and this will not happen with parchment...
  10. cyclinglady
    It sounds like you solved your problem! I can not believe that people could be so inconsiderate! ? Glad that you are feeling better! ?
  11. cyclinglady
    I would look to other ingredients. Intolerances can develop at anytime. We eat Hellman's (Best Foods on the Westcoast) all the time and have never been glutened. I can not vouch for the ice cream. When I first went gluten-free, I reacted to gluten-free bread. Did not bother my gluten-free hubby (14 years gluten-free) but it bothered me. Turns out...
  12. cyclinglady
    Have you been keeping up with the General Mills Cherrios saga? Oats are often rotated/ grown in barley fields. Most celiacs will not react to oats but the chances of cross contamination are due to the growing and harvesting methods. General Mills suppliers mechanically sort the oats. Read about it here: Open Original Shared Link like I said...
  13. cyclinglady
    You will know more when you get the biopsy report. But....I am one of the rare patients, like you, who tested negative on everything BUT the DGP IGA. My biopsy revealed a Marsh Stage IIIB (moderate to severe damage). Anemia was my main symtom -- no tummy issues. In all my research, it appears that toddlers can test this way, but I am old! My GI doctors...
  14. cyclinglady
    Whew! That is good news. ??
  15. cyclinglady
    I had been on thyroid replacement for years (1997). I took a tiny dose of Armour thyroid long before my TSH went out of range. My doctor was hoping that my thyroid antibodies (over 2,000) would diminish and my enlarged thyroid would get small. It did help bring down my antibodies to around 1,000, but my thyroid reminded slightly enlarged and I had a...
  16. cyclinglady
    If those biscuits were popped out of a tube, they should not bother you, but making them from scratch (is there any other way? ?) can gluten you. Flour can stay in the air and when you breath it in, you swallow it. The only baking I do is gluten free. If your oven is not clean, bits and pieces can drop into your gluten-free food. gluten-free should...
  17. cyclinglady
    Welcome! A lot of us have had some or all of these symptoms that may or may not be related to celiac disease. Have you been tested for celiac disease?
  18. cyclinglady
    Ryan, welcome back! Sorry to here that you are still sick. I looked back at your earlier posts and found that it has only been seven months. You were pretty sick back in June. Misdiagnosed for four years! ? it can take a long time to heal from celiac disease. Your antibodies are down, so you are doing everything right. ? I was a Marsh Stage IIIB...
  19. cyclinglady
    Open Original Shared Link The above link to the University of Chicago's celiac website should explain your question.
  20. cyclinglady
    Celiac disease can develop at any time. My kid gets tested every two years evn if she is symptom free. I would strongly consider getting tested and insisting on the complete celiac panel. -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA -total...
  21. cyclinglady
    I have Hashi's. It was stable for many years until I hit the year before menopause. A few months after menopause, I was diagnosed with celiac disease. My swings from hypo to hyper drove my doctor crazy (my family too). It took about a year to calm down after I went gluten free. It has been stable for almost two years. We look at my lab results...
  22. cyclinglady
    Oh, it is hard to say....everyone responds differently. Here is some information about antibodies rising after a glutening: Open Original Shared Link i hope you feel better soon! Try not to worry. What's done is done! Either you got glutened or you did not. Focus on feeling better. ?
  23. cyclinglady
    Check this growth chart from the CDC (US gov). Open Original Shared Link Your child should be on at least one of the measurement charts: height, weight, head circumference (check with your MD). My kid was always at the 5 to 10% mark for weight. 50%. For height. She was little because she came from a little family. She eats well and has...
  24. cyclinglady
    It is hard to say without seeing your celiac blood panel results. Can you post them? Three weeks is not much time to make a significant difference. Most celiacs takes months if not a year or so to feel well. The gluten free diet has a huge learning curve. It takes a while for most people to avoid cross contamination and hidden sources of gluten...
  25. cyclinglady
    We eat Breyers at our house: Open Original Shared Link Open Original Shared Link Why? I like ice cream that contains the fewest ingrediants. Just my thing. Hubby and kid consume most of it. Not sure if this helps you.
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