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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    I don't know. Depriving one's self of gluten free comfort foods may create anxiety that does more harm than the comfort food.
  2. trents
    Russ, DGP is part of a standard celiac panel if you are using the term panel in the sense of a full panel. I certainly would not say that most physicians order it as a matter of standard practice.
  3. trents
    How long were you off gluten before that one week and are you back on gluten now and if son, how long have you been back on One week back on gluten would not be enough to produce positive tests, either antibody or biopsy? There is also the option of getting genetic testing done to see if you have the genetic potential for celiac disease. If not, then...
  4. trents
    There is the child's unexplained weight loss. It might be a good idea to trial a gluten free diet and see if the weight comes back on. Scott is correct in asserting that the test indicates his immune system is or was on the day of the blood draw reacting abnormally to gluten.
  5. trents
    What was tried for less than a week? I wasn't clear on this from your original post. Did you stop gluten for one week or go back on it for a week?
  6. trents
    Gluten disorders have a wide range of symptoms and affect people in different ways. It is quite varied. Some have frank GI distress, some have none of that, at least in the beginning. Some have brain fog and fatigue. Some have dermatitis herpetiformis. Some have neurologcial issues like ataxia. There is extreme variation. Many have a combination of symptoms...
  7. trents
    Why would Crohn's improve on a gluten free diet? Maybe they have both celiac disease and Crohn's? After all, autoimmune disorders are known to cluster.
  8. trents
    Welcome to the forum, CareyOsborne! Sounds like you either suffer from Celiac disease or NCGS (Non Celiac Gluten Sensitivity). The two share many common symptoms and NCGS is 10x more common than celiac disease. Currently, there is no reliable test available for NCGS. celiac disease must first be ruled out. Be aware that any testing for celiac disease...
  9. trents
    Yep. Sorry, I missed that one. Ditto to what Wheatwacked said about NCGS.
  10. trents
    Positive DGP-IGG could point to celiac disease but could also be due to other medical issues. The first line celiac antibody tests physicians usually order is the tTG-IGA. It is very reliable on adults but not on young children. That's where secondary tests which are less specific for celiac disease are helpful, like the DGP-IGG. One test that should have...
  11. trents
    Just copy and paste the web page address into a new post window on this forum.
  12. trents
    Yes, I was aware of that article but it does not cover melanoma: "The malignancies found by the team included small bowel adenocarcinoma, diffuse large B-cell lymphoma, carcinoma of the tongue, and colorectal carcinoma." I was concerned the post might have been spam but when I googled a part of the post in quotes as Scott suggested, I did not find the...
  13. trents
    Rebecca, could you supply a link to the recent article about increased risk of melanoma cancers with celiac disease? Nothing turns up when I search our forum for "melanoma".
  14. trents
    If you're gonna do that, watch out for elevated uric acid and gout.
  15. trents
    Not much damage to the villi yet. Must have caught it early. It is normal for some celiac tests to be negative when others are positive. Some are more specific and/or more sensitive than others. The tTG-IGA and Endomysial antibody tests are very specific for celiac disease and the tTG-IGA is also very sensitive.
  16. trents
    I think it would be appropriate to share the brand name of the coffee you are referring to on this website.
  17. trents
    And they feed cows wheat, yet it does not result in gluten in the cow's meat. Neither does feeding soy meal to chickens result in soy compounds in the chicken meat. That is a misconception. "You are what you eat" but you you don't turn into what you eat.
  18. trents
    I am a celiac dx'd 20 years ago. I took paxlovid last summer and had no issues. I realize that there is a great range of sensitivities in the celiac community to gluten and I am not particularly sensitive, insofar as immediate symptoms are concerned. I question whether or not a person can distinguish gluten-induced diarrhea or celiac-related diarrhea...
  19. trents
    Yes, it is common for celiacs to not have symptoms or perhaps very mild ones while damage to the small bowel villi or other body systems is going on. We call them "silent" celiacs. I was one. Then it typically comes all crashing down at some point in time.
  20. trents
    So, it looks like they may be using wheat bran to stretch their coffee supply and save a few bucks in production.
  21. trents
    Another option would be to do a trial gluten free diet up until the endoscopy/biopsy and see if your symptoms improve. The Mayo Clinic guidelines for a gluten challenge for those already having launched into the gluten-free diet is the daily consumption of two slices of wheat bread (or the gluten equivalent) for two weeks leading up to the day of the endoscopy...
  22. trents
    If your villi turn out not to be damaged but withdrawing gluten improves your symptoms then I would conclude you have NCGS (Non Celiac Gluten Sensitivity) for which there is no definitive test but it is 10x more common than celiac disease and shares many of the same symptoms.
  23. trents
    Don't cut back on gluten until after the endoscopy/biopsy. The dairy protein "casein" can damage the villi of the small bowel like gluten does in some people with celiac disease.
  24. trents
    Thanks for sharing your story, Guest Craig. It's heartbreaking that there was so much suffering in your family from misdiagnosis. But, what is the connection between what you shared and the topic of the article which you criticize by saying it, "lacks a lot"?
  25. trents
    Apparently, as is the case with many substances and even some medications, a small amount of gluten is passed into the blood epidermaly, an issue for at least some celiacs.
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