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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, paxmom. Children's immune systems are immature and often don't respond in the same way to celiac disease. Was there a total serum IGA count done? If total IGS is low then it drives down individual IGA scores. This might be helpful: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ Note these statements...
  2. trents
    As long as you reintroduce regular amounts of gluten (the equivalent of two pieces of wheat bread daily) for two months before your appointment with the gastroenterologist you should be able to trial a gluten free diet now. These are the Mayo Clinic guidelines for a pretest gluten challenge.
  3. trents
    Then I would not use it until you can locate an ingredient list. Can you pinpoint the exact product on Amazon that you bought? There are actually two concerns in these situations: 1. Does the product contain wheat, barley or rye as an intentional ingredient? Does one or more of those grains or their derivatives (such as malt or malt flavoring which...
  4. trents
    Marian12, welcome to the forum! Can you link the exact product so we can look at the ingredient list or at least give more details about which Knorr onion soup mix product you are asking about? Knorr offers several different onion soup mixes.
  5. trents
    Welcome to the forum, Anonimo9719! Several things I would point out to you: 1. The tTG-IGA antibody test for celiac disease misses 20% of those who actually do have celiac disease if they are of white European decent and 80% of those who actually have celiac disease if they are of black African decent. So, you can see that it is far from a perfect...
  6. trents
    What is meant by "regular people"? Those who aren't constipated?
  7. trents
    Franz is not dry and crumbly. It is denser than gluten bread and expensive, however, unless, as Scott pointed out, you get the Costco twin pack. But if you don't live in the west you may not have access to it.
  8. trents
    I would think it is a good sign, especially if deeper sleep is consistent. There is a time window for editing posts. This is to discourage spammers who test the waters with false posts.
  9. trents
    LRRP, more than likely the actual onset of your celiac disease preceded your diagnosis by years. It can take years before the damage to the villi of the small bowel becomes bad enough to produce dramatic symptoms. There is a term to describe this phenomenon, "silent celiac". And it is not at all unusual for people to not get diagnosed with celiac disease...
  10. trents
    Yep, you'll figure it out. Where there's a will there's a way.
  11. trents
    Were the flour tortillas made from wheat? But these are for your wife, correct, and not you? Be careful with CC (Cross Contamination) when using stirring, slicing and serving utensils that were used in gluten-containing foods. This might be helpful: https://celiac.org/about-the-foundation/featured-news/2016/01/gluten-free-101-need-know/
  12. trents
    Hi, LisaSan111. Thanks for the encouragement. Glad to hear things are turning around for you. If you don't have celiac disease you would seem to have NCGS (Non Celiac Gluten Sensitivity) which also calls for a strict gluten-free diet. NCGS doesn't damage the small bowel lining but it can damage other body systems if ignored.
  13. trents
    Welcome to the forum, Gretchen4! In 2007, what tests were used to arrive at a celiac diagnosis? Can you post the test results and original testing physician comments? If your are willing to post the results, and I assume this was antibody testing, please include the reference ranges for negative vs. positive as there is no industry standard and every...
  14. trents
    If I were you I would look into histamine intolerance and MCAS (Mast Cell Activation Syndrome). This could account for the inconsistency in your reaction to gluten consumption. The key to this is understanding that it is total histamine load that counts from all sources, not just what you are eating at a given time. Other things contribute as well such as...
  15. trents
    Got it! Thanks.
  16. trents
    Welcome to the forum, Megawisdumb! I'm thinking the oral form of Dapsone might be a better route. Just about everybody having DH on this forum who have used oral Dapsone have testified that it really helps.
  17. trents
    Can you provide a link to that one study you mention? It could be a valuable resource to keep on hand for other forum users. I think this is one of the many spinoffs of celiac disease.
  18. trents
    Welcome to the forum, Midwestern! Can you clarify for us if you have been officially diagnosed with either celiac disease or NCGS (Non Celiac Gluten Sensitivity) at some point in time? Or, did you just take it upon yourself to experiment with gluten free eating in response to a suspected problem with gluten? There is testing available specifically designed...
  19. trents
    I think they will be with you the rest of your life. I think they are by now hard wired into your immune system "reactivity data base". I think you will just have to adapt to a new diet. It is probably fair to say, given the many variables, that no matter what measures you take, you will not be completely free of reactions but you can expect to gain significant...
  20. trents
    Keep in mind that it's the total histamine load in your body that is what counts. Total histamine load is influenced not only by what we eat but by allergens in the air that we breathe via pollen and pollutants, aromas, etc. That could explain why you seem to be able to eat something one day without issues but then experience a reaction to the same thing...
  21. trents
    Avoiding high histamine foods is very challenging unless you live in a place where fresh food is readily available, like in the tropics. All foods undergo an increase in histamine level with time. So anything canned, pickled, refrigerated for extended periods, or stored on shelves for extended periods will increase in histamine count. Yes, some foods are...
  22. trents
    To answer your question, you probably know more about all this than I do and you seem to have researched it well and are aware of the issues. I'm afraid I can't add to your knowledge base at this point. Another thing about blueberries, though, is that they are very high in fiber so be careful with that. Fiber is good but too much of anything is not necessarily...
  23. trents
    Boiling them in the shell will not allow the steam to effect hydrolysis. I bought something like this to poach my eggs: https://smile.amazon.com/Nordic-Ware-64702-Microwave-Poacher/dp/B00004W4UR/ref=sr_1_21?crid=W09XJMVS9IQQ&keywords=egg+poacher&qid=1667923275&sprefix=egg+poacher%2Caps%2C193&sr=8-21 Crack the eggs into the cups. Pierce...
  24. trents
    For what it's worth, I found that I tolerate eggs just fine if they are poached (cooked with water and steam) but not if they are fried or scrambled. I did some research and discovered that the water/steam used in poaching creates a hydrolysis effect that breaks down the protein and allows some people who cannot eat eggs cooked other ways to tolerate them...
  25. trents
    I am not familiar with the Everlywell test. In fact, I have never heard of it. The home celiac test kit I would probably recommend would be the one by Imaware. I have never used it myself but it seems to be popular. The Mayo Clinic guidelines for the pretest gluten challenge is the daily consumption of two slices of wheat bread (or the equivalent) for...
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