Jump to content

trents

Moderators
 View Profile  See their activity

  • Posts

    8,648

  • Joined

  • Last visited

  • Days Won

    532

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    I use a heated mask to unclog eyelid oil glands but I found the bean-filled ones you heat in a microwave to be unsatisfactory. They just don't have enough staying power. They cool off too quickly. On Amazon I found ones that have a built-in heater powered by a USB plug that work much better. You can plug it into any USB source such as a laptop or a USB battery...
  2. trents
    KaileyC, this might be helpful to you: https://vimeo.com/486284734
  3. trents
    The one substitute sugar (actually it's a sugar alcohol) I have no issue with is erythritol. Erythritol is largely absorbed before it gets to the colon and therefore does not cause GI issues as do many of the other common sugar alcohol sugar substitutes like sorbitol and malitol which make it all the way to the lower GI track. By the way, all sugar alcohols...
  4. trents
    Yes, we certainly need legislation but we also need prosecution. A a couple of highly publicized law suites winning settlements against care facilities not giving attention to the dietary needs of celiac residents would do wonders for their care. By the way, this is one reason it is important to get an official diagnosis.
  5. trents
    Welcome to the forum, Claudia! First, the value of 78 you give is meaningless unless you tell us two things. One is, exactly which celiac antibody test does it apply to. There are a number of antibody tests that can be run to diagnose celiac disease. The most common one ordered is the tTG-IGA. The other thing we need to know is the reference range the...
  6. trents
    It basically boils down to how you define "disease". If you define it as a biological condition that puts you at a disadvantage in functionally engaging the culture in which you live, then being a celiac or being gluten sensitive is having a disease. If you look at being a celiac or gluten sensitive as a normal biological variation, like having red hair or...
  7. trents
    Welcome to the forum, KileyC! Let me assure you, the vast majority of celiacs have been diagnosed as adults and most of them are considerably older than your are. I think it takes a10 years on the average to get a diagnosis after the onset of symptoms. For me, it was 13 years. I was diagnosed at about age 50 and I'm 71 now. I would guess the average...
  8. trents
    Try eating totally gluten free for a few days and see if the pain band across your chest subsides. If it does, you would be warranted in assuming you have a problem with gluten of some kind.
  9. trents
    Possibly, yes. But the results are less than unequivocal for celiac disease. What are your symptoms? You might ask to have an EMA blood test done. It is not a particularly sensitive celiac disease test but it is pretty definitive if positive for celiac disease. You may have NCGS (Non Celiac Gluten Sensitiity) instead of celiac disease. They share...
  10. trents
    Welcome to the forum, Mdevz! Do you know what blood tests have been run by your doctors? There are specific blood test that need to be run in order to diagnose celiac disease. It cannot be diagnosed by running a CBC or CMP such as your doctor would commonly order for an annual physical to check for different kinds of blood cells, iron levels, sugar,...
  11. trents
    I would push for it, Danielle.
  12. trents
    Welcome to the forum, DianeF! Robotics? Also, you state you have been "extremely gluten intolerant for years!" Do you have celiac disease or NCGS (Non Celiac Gluten Sensitivity)? Do you have an official diagnosis for either? Are you on a strict gluten free diet?
  13. trents
    Sounds like you probably have some food allergies in addition to being a celiac. This is extremely common in the celiac community and due mostly to the leaky gut syndrome that accompanies celiac disease. You might want to look into ALCAT food sensitivity testing to get an idea of what foods may be the offenders.
  14. trents
    Some of our food intolerances/sensitivities can disappear after we get good healing of the gut. I am so glad to hear you are doing so much better. You have been great about keeping us updated.
  15. trents
    Welcome to the forum, mwalum! What do you mean by "good tolerance"? Good tolerance of what?
  16. trents
    It's important to choose a magnesium supplement that is readily assimilable. Magnesium glycinate or Magnesium citrate are preferred to magnesium oxide, for example. Magnesium oxide is what you commonly find in stores and is inexpensive and probably what you will find at Costco. I take the glycinate form and get it from Amazon. The more assimilable forms are...
  17. trents
    You are on several prescription meds. Many prescription meds block uptake or deplete stores of vitamins and minerals and physicians often do not make their patients aware of this. So, I think you would be wise to increase your supplementation.
  18. trents
    I'm concerned about the pantoprazole. As strange as it may seem, GERD is often caused by low stomach acid (i.e., high PH). Proton Pump Inhibitors like Pantoprazole raise the PH even higher such that you still have reflux but you don't notice it. In addition, raising the PH of the stomach and the gut interferes with the normal digestion of food and uptake...
  19. trents
    Welcome to the forum, theOK! Are you on any prescription medications?
  20. trents
    Excellent point, Russ H! Most people don't understand that the 20ppm was not intended be an end in itself but a means to an end. What really counts is the total amount of gluten consumed over 24 hr.
  21. trents
    I'm saying there is no safe way to experiment with it. Goodness, most of us get "glutened" anyway, at least occasionally, despite our best efforts to avoid it without having to "experiment" with purposeful exposure.
  22. trents
    felicity31r, what number are you referring to? There are a number of serum antibody tests that can be run to detect celiac disease. The most common one is the tTG-IGA. Can you be more specific about the tests run and can you supply the reference ranges used by the lab to differentiate between what is negative and what is positive? There is no standard reference...
  23. trents
    This "someone" who advised you to continue exposing your daughter to small amounts of gluten . . . were they qualified to give such advice? Nearly all of us who have lived with celiac disease for years will tell you that it is true that once you have been without gluten for a significant amount of time you lose whatever tolerance to it you might have...
  24. trents
    I don't know how much gluten is in beer but the Mayo Clinic guidelines for a pretest gluten challenge is two slices of wheat bread (or the gluten equivalent) daily for two weeks leading up to the endsocopy/biopsy.
  25. trents
    Yes you do. If you stop gluten now, the damaged small bowel villi will begin to heal and the biopsy restults will be compromised.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.