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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. glutengek, how long is it between the time you eat something with hidden gluten and when the symptoms start?
  2. Did your physician give any justification for not being able to order an endoscopy/biopsy?
  3. Laruen, see my bold. What you typed doesn't make sense. The DQ2, DQ8 are genes that have been identified with celiac so far and do not establish that you have celiac disease but only that you have the potential for it. For the genes to be expressed in actual celiac disease there has to be a triggering stress factor such as a viral infection. Otherwise...
  4. May we ask if you are male or female and your relative age? Not all hair loss is due to nutrient deficiencies. Gender, age and hereditary factors are all important players. Have you been diligent in your efforts to eliminate gluten from your diet? Besides biotin, what vitamin and mineral supplements have you been using? Have you had your B12 levels...
  5. Wheat starch can also be used as a filler in pills. Gluten shows up in the darndest places. Places you would never expect like soy sauce, canned soups, spices and even some chocolate syrup products. Eating gluten free has a real educational curve to it. Wheat flour is a cheap filler, thickener and texturing agent.
  6. Some Snickers candy bar products are gluten-free and others are not. They don't necessarily use the same formulation to make what seems to be the same product but in a different size or special occasion wrapper (say, for Halloween or the Holidays). Formulation may also vary from one country to the other. I believe there is an article or threads on this forum...
  7. If you are taking vitamins and supplements, make sure they are gluten free as well. Costco is a great resource for getting quality, gluten-free vitamin and mineral supplements in general. Much of what they sell is gluten free.
  8. Well, I only mention the amount I use because it would probably be much less than you would use as I'm aiming for 100 g of total protein per day. For celiacs/NCGS folks the total amount of gluten ingested per day is what really counts. The 20ppm "gluten free" standard was established by the FDA to ensure that over the course of a day celiacs and NCGS folks...
  9. Thanks for the explanations. Originally, I took it to refer to systemic neurological problems some celiacs experience from gluten ingestion/exposure.
  10. I use Optimum Nutrition Gold Standard Whey protein sold by Costco without any issues. But I only use about 1 scoop per day. On the package it states gluten free in larger letters.
  11. Good information that may prove to be helpful to others who still have gluten type reactions but are stumped as to where the sources might be since they are otherwise diligent. "Neurotypical adults"?
  12. Yes, RMJ is spot on. People adjust to a new reality over time and it becomes the norm. Your future in-laws seem to be sensitive, quality people. But be prepared for the fact that not everyone in your social circle will react so graciously. So, it's a good idea to think ahead of some scenarios that might develop and to be prepared with a gracious response...
  13. The tTG-IGA is the most important test, combining good sensitivity with good specificity for celiac disease. It is considered to be the centerpiece test of the celiac antibody panel. The number aren't dramatically high but any positive in that test points to celiac disease.
  14. Yes, as Scott said, hosting your fiance's family would be a goodwill gesture and would eliminate the hassle for them. You might even consider cooking some non-gluten dishes just for them if you can do so safely.
  15. I think you mistyped. It’s Franz, not Fratz. It’s my favorite. Canyon House is good too but their loaf bread slices are diminuitive.
  16. I would not bother with a colonoscopy unless you are having additional bowel problems from what you described in your original post. The "rushing to the toilet" could easily be explained by celiac disease. It concerns me that your doctor said "perfectly healthy people can have these results." I do not think that is true. I would consider connecting with another...
  17. It is difficult to tell from the numbers you supplied if your results are strongly positive because you did not supply reference ranges. Reference ranges vary from lab to lab. Therefore, an endoscopy with biopsy would be appropriate. The endoscopy/biopsy is considered the gold standard of celiac diagnosis. In the UK if your tTG-IGA score is 10x normal many...
  18. Your dad is incorrect. The mucous in your stool is from the small bowel lining being damaged by inflammation in that area caused by the gluten and is a normal result of celiacs being "glutened".
  19. With a tTG-IGA of 50 the odds are definitely in favor of you having celiac disease. We have had many forum posters with much lower scores than that get diagnosed with celiac disease. That particular test is pretty specific for celiac disease. About 18% of celiacs have elevated liver enzymes. I was one of them and it was what eventually led to my celiac...
  20. Though your sister's symptoms are minimal when she eats gluten, that doesn't mean she isn't experiencing damage to the villi of her small bowel. Someone needs to point that out to her because she is risking serious health problems down the road.
  21. You may have NCGS (Non Celiac Gluten Sensitivity). Many of the symptoms are the same as with celiac disease but no damage is done to the lining of the small intestine. That's why the antibody tests for celiac disease will be negative. Even so, a word of caution is in order. Some experts believe that NCGS is a precursor to celiac disease so in time it might...
  22. Lauren, welcome to the forum! Before you do anything more, can you be more specific about the "2 celiac markers." Do you have access online to your autoimmune indicator test results. Before we can advise you we need to know the specific tests that the physician is referring to with elevated celiac markers. Can you post them for us? Headaches and diarrhea...
  23. In the UK many doctors will wave the endoscopy/biopsy with tTG-IGA numbers 10x in excess of normal. Not necessarily so in the states. I would continue normal amounts of gluten consumption until you can discuss this with your physician.
  24. Welcome to the forum, Heal2Recove! The nature of celiac disease is it is an autoimmune disorder whereby whenever you consume gluten it triggers an inflammatory process in the small bowel that damages the lining (the "villi") of the small bowel. Your immune system is mistakenly identifying gluten as an invader. Over time the constant inflammation...
  25. Well, you're too young for onset of dementia so that is not a worry. You probably need to consider taking a gluten free high potency B-complex and zinc. B vitamins are important for neurological health. How much D are you on and what kind of D? D3 is the most assimilable. Make sure all your vitamins and minerals are gluten free.
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