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trents

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Everything posted by trents

  1. trents
    Supermarket apples are dipped in wax to make them shiny but I don't know that the wax contains gluten. I do not know if the other veggies you mention are dipped in wax. I have never heard that.
  2. trents
    Ah! The stomach bug. I would guess that could cause inflammation of the small bowel lining. At any rate, I would have those tests repeated. The higher numbers could be a temporary anomaly.
  3. trents
    With oats, there is a strong suspicion that cross contamination with gluten-containing grains is not the only issue. Some will tell you that about 10% of celiacs react to the oat protein, avenin.
  4. trents
    It's very common for celiacs to be intolerant of dairy. In many cases, once there has been healing of the villi, dairy can be added back in. Something to think about.
  5. trents
    Is she still consuming dairy? https://glutenfreeworks.com/blog/2021/07/15/bovine-beta-casein-enteropathy-celiac-disease-cause-villous-atrophy/
  6. trents
    With the Celiac Disease Comprehensive panel you give only the tTG-IGA. A comprehensive panel will have several tests designed to detect celiac disease. Did you leave out some? The IGA:70 line is not really a test for detecting celiac disease. It is just the total IGA count. That can be significant if it is low because it can give false negatives to the celiac...
  7. trents
    It is not uncommon for celiacs to develop other food intolerances and an egg intolerance is one of the most common.
  8. trents
    Negative test results, especially those in the IGA family, can be caused by low total IGA counts. It's good that your doctor ran a full celiac panel that can detect celiac disease in this situation. Also, some people's immune response to celiac disease is atypical. This might help in understanding what tests can be run for celiac disease and the strength...
  9. trents
    First of all, please realize that gluten sensitivity being a precursor to celiac disease is a theory/suspicion but not a scientific fact. Second, celiac disease is not an allergy. It is an autoimmune disorder and I'm not sure that gluten sensitivity is actually an allergy either. These things involve different pathways in the immune system. So allergy testing...
  10. trents
    Maybe you should take this slight stomach ache more seriously. And if it's not from gluten it could be from dairy. I'm not talking about lactose intolerance which generally produces diarrhea. Lactose is the sugar in milk. I'm talking about a gluten-like reaction to the dairy protein casein. "The most common cause of villous atrophy in people with celiac...
  11. trents
    They aren't wrong. And your listed symptoms corroborate the tests. That's wishful thinking.
  12. trents
    Tiwa, You have a choice. You can ignore this new reality, enjoy your food and friends, and probably be able to pull it off for a while without a lot of physical discomfort. But over time it will catch up to you and as more damage is done to your small bowel lining from the celiac disease, the symptoms will worsen and their may be more collateral damage...
  13. trents
    Tiwa, welcome to the forum! To the contrary, you actually do have a grocery list of typical celiac symptoms. I'm not sure why you say you don't. Most of the symptoms you list are common and/or classic for celiac disease. Your blood test antibody numbers are not strikingly high but high enough to be unequivacable and they are increasing. Your...
  14. trents
    What about dairy?
  15. trents
    If you are still using oats and dairy you might try eliminating these as their are proteins in these two that blunt the villi of the small bowel for some celiacs as does gluten. "I took those yearly tests at the gastroenterologist that somehow told you if you had been eating gluten-free(never really understood how that worked) and passed." Are you talking...
  16. trents
    I would also add to what Kate333 said and point out that prolonged emotional distress can be the trigger which activates latent celiac genes.
  17. trents
    I'm not sure how reliable stool sample testing is. Eating out is probably the single most risky environment for those trying to eat gluten free. Studies have shown this. There are just too many variables in food preparation and handling in a restaurant setting to ever feel you can have control and are eating safely. It is likely that kitchen staff will vary...
  18. trents
    Get back to us when you have test results. It is disgusting how we get blown off by so many in the medical community. I know they are under pressure from the insurance companies and government to minimize healthcare costs and increase patient volumes in a way that the previous generation of physicians did not have to cope with but still . . .
  19. trents
    Under the circumstances, I agree with your decision. The proof is in the pudding anyway. If eliminating gluten from your diet causes significant improvement in your symptoms you have all the answers you need. I just want to forewarn you that truly eating gluten free is much more of a challenge than most people realize as how gluten shows up in the food supply...
  20. trents
    Scott, I think you have a typo here and meant to say "one you go gluten-free you cannot be tested for celiac disease."
  21. trents
    Mazzing, welcome to the forum! There are specific tests designed to detect celiac disease. The first stage of testing involves a blood draw and laboratory analysis to look for the antibodies produced by celiac disease: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ . Since many of your symptoms are common to those with...
  22. trents
    Yes, Maria. That is what I wanted to know. Although, if you are taking folate supplements it will mask a B12 deficiency.
  23. trents
    I asked if you had been checked for pernicious anemia. Perhaps you are not familiar with that condition. It's caused by a lack of something called "intrinsic factor." and enzyme produced by the parietal cells in your stomach. Intrinsic factor is necessary for the assimilation of B12 and B12, in turn is necessary for the assimilation of iron. The importance...
  24. trents
    Think about it. The purpose of the endoscopy/biopsy is to look for damage to the villi that line the small bowel. If you cut back on gluten consumption and allow healing to take place you may compromise the test results.
  25. trents
    Including the destruction of tooth enamel. But, if you only get glutened occasionally it's probably not an issue. Just don't aspirate the vomit.
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